Sibling caring roles and responsibilities when a child suffers from a chronic illness

Siblings' lives and well-being are potentially affected in profound ways when their brother or sister suffers from a chronic illness in childhood. The shift in the care of chronically ill children from the hospital to the home in recent years has had an impact on family relationships and interactions. Whilst studies on caregiving have focused on the parental care of children who are chronically ill; siblings may nevertheless take on some caring roles and responsibilities. This article intends to make a novel contribution to the sociological literature on siblings, caring, and chronic illness by presenting a review of the literature addressing siblings' caring roles and responsibilities in families of children with a chronic illness. Knowing about the caring roles and responsibilities undertaken by siblings when a brother or sister has a chronic illness, may be beneficial to healthcare professionals and influence their caring practice. In addition, this work may contribute to a better understanding of family relationships and further improve healthcare policies.     

Reflection note: confessions of a Muslim researcher – considering identity in research

ABSTRACT

This research note explores some of the contentions that have emerged from Muslim-on-Muslim research and how this can implicate the researcher more personally. Speaking in the context of methodological concerns arising from qualitative research, the paper consider the following aspects: inappropriate access of participants, over-representation of own experiences, and questioning fundamental parts of your identity. Whilst certain experiences can shake the foundations of being a researcher and even sense of self, these should ultimately be welcomed. It is concluded that, in taking the time to reconcile from such tensions emerging from our multiple identities, it can allow for becoming a more rigorous and reflexive researcher.     

NGO2.0 and social media praxis: activist as researcher

This article tracks the emergence of a particular brand of ICT activism that promotes the use of social media as a means of helping Chinese NGOs break out of their communication bottleneck. The author starts by introducing NGO2.0, an activist project targeting China's rural regions, using it as an entry point to examine the practice of “social media for social good” and shed light on the ecosystem of social media usage by Chinese NGOs. The author also deliberates on the explanatory value of the binary paradigm of “rural vs. urban,” looks into the methodological implications of undertaking “social media action research,” and articulates what it means to be engaged in the hybrid practice of “activist as scholar” in the specific context of Cultural Studies.     

Developing the social work researcher through a practitioner research training programme

As part of its core programme, the Centre for Child Care Research at Queen's University, Belfast, Department of Social Work is developing a Practitioner Research Training Programme for social workers interested in undertaking applied research. A survey was undertaken to assess the research literacy and competency of the social work profession as well as interest and desire to learn by undertaking research training. The findings produced useful insights into the value of such a programme and offered a contribution to the more global debate on the development of practitioner-researcher partnerships for creating a research base within the profession.     

A concise history of school-based smoking prevention research: a pendulum effect case study

School-based cigarette smoking prevention was initiated shortly after the first Surgeon General's Report in 1964. This article highlights a sequence of events by which school-based tobacco use prevention research developed as a science, and illustrates a pendulum effect, with confidence in tobacco use prevention increasing and decreasing at/different points in time. Suggestions are offered to advance school-based smoking prevention research.     

Comments on the use of multiple roles to maximize the utilization of outcome research

This paper is a brief comment on the previous paper (Goering & Wasylenki, 1993) about the use of multiple roles in facilitating the use of outcome results. The commentary recounts some important points from the paper, draws some general conclusions about assuming multiple roles, and emphasizes the importance of functioning as an internal evaluator based on personal experience working in state government and on readings from the evaluation literature.     

Not one of the guys: The female researcher in a male-dominated setting

An important, but frequently overlooked, issue in qualitative research is how the status characteristics of the researcher affect the process of gaining access to, establishing, and maintaining rapport with respondents or informants in a setting. Some researchers may never succeed in achieving more than superficial acceptance from their respondents because of the status each researcher occupies. Female researchers studying male-dominated groups frequently find themselves in just such a position or do not attempt to gain entry in certain male-dominated settings. Sex-role expectations may hamper women's work in the field. Until recently, little attention was given to these issues.This paper discusses the dilemmas faced by female researchers in male-dominated settings. It begins by examining how the instructional fieldwork literature addresses this issue and finds that it generally does not. In addition, the literature's advice to novice fieldworkers, while perhaps appropriate for males, may be inappropriate for females, given stereotypical sex-role expectations. Novice female researchers must turn to accounts of experienced female researchers for discussions of problems they may encounter in field settings. The paper then turns to my study of a prosecutor's office. Similarities between my experiences and those of other female researchers are noted, and suggestions are made about how women in the field can manage and even overcome these problems.     

The impact of migration on gender roles: findings of field research in Turkey

Findings are based on a sample of four types of Turkish women affected by migration: 1) pioneer women who emigrated on their own (33 persons); 2) followers with wage work experience, who joined or left with husbands (44 persons); 3) followers without wage work experience (39 persons); and 4) women left behind when husbands migrated (45 persons). These women are compared to a non-migrant control group (54 persons). Sample surveys were conducted in three sites, which varied in levels of industrial development, economic diversification, and urbanization (Ankara, Kisehir, and eight rural villages in the province of Kisehir). The sample includes returnees registered with the Social Insurance Institute and persons located by the chain inquiry method. Prior research supports the importance of including typologies based on family types, marriage types, levels of education, and experience with wage work. This study confirms that pioneer women were more likely to have romantic marriages, to have nuclear families, to have higher educational levels, and to have prior wage work. Analysis of the 116 women with migration experience shows that 75% migrated during 1968-74. 22% migrated after 1980. 51% were returnees during 1983-85, and many received retirement benefits. Almost 65% spent 10 or more years abroad. 56% were aged under 24 years. 85% were married at the time of emigration. 61% viewed their migration experiences as improving their maturity and ability to handle affairs compared to nonmigrant women. 88% became housewives after returning. 27% of return migrants and 82% of nonmigrants had never had their own bank accounts. 69% of return migrants and only 22% of nonmigrants reported movement outside the home without permission. 63% of migrants and 39% of nonmigrants would cast political votes independently of their husbands. Migrating women exercised more independent behavior but retained traditional responsibility for housework. The greatest differences were between women with wage work and women without or with migrating husbands. Followers without wage work were the most disadvantaged. Migration is viewed as a significant factor in determining gender roles among Turkish women.     

Walking a tightrope: reflections on police gatekeeping roles in suicide research in Ghana

Engaging non-conventional gatekeepers such as the police presents both promises and perils. Although studies have relied on police data for researching suicide and other sensitive topics in Africa, there is a paucity of literature that explores or reflects on police gatekeeping and its research implications. This paper presents authors’ reflections on police gatekeeping in a qualitative suicide study in Accra, Ghana. The main observation is that the process was double-edged. On the one hand, it led to field delays and costs, (mis)apprehensions and positionality problems, and trust building challenges. On the other hand, it vouched for research(er) credibility, provided therapeutic openings, and facilitated the viability of research with the suicide bereaved. Sensitivity to research context, sensitising the police, and reinforcing ‘therapeutic-research discourse’ with participants, are recommended means for aligning participants’ goals to research goals and for achieving therapeutic disclosures.     

Rumor behaviors as collective problem-solving: The moderating roles of regulatory focus

Approaching rumors as a form of collective problem-solving, this study investigated how regulatory focus (i.e., prevention vs. promotion) interacts with rumor valence to affect rumor behaviors via community motives using an experiment with 534 Korean citizens. The analysis showed that positive rumors (vs. negative) elicit stronger information seeking intentions among low promotion-focus individuals. Also, when exposed to negative rumors (vs. positive), both high prevention- and promotion-focus individuals showed stronger community motives, increasing both their rumor transmitting and information seeking intentions.     

The discovery of participatory research as a new scientific paradigm: Personal and intellectual accounts

The article presents considerations for the placing of participatory research in the practice of sociology. The changing conditions in contemporary society have compelled social scientists to rethink the way social theory has been conceptualized and has been practiced in relation to social change. Modernist social theory, of which sociology is a prime example, has been imbued with the biases of the Enlightenment that privilege the essentialized male rational actor set above the ordinary people. As a consequence it has produced narratives and practices that are not in the interest of the people, especially those who have been dominated and oppressed. In order to live up to the potential of sociology as a vehicle for the improvement of social conditions, it must include the interest and the wisdom of the people in its researching and theorizing activities. It is argued that participatory research provides an opportunity to follow this course in sociology. Participatory research, it is contended, will lead to a paradigm shift in the social sciences because it is based on an expanded conception of knowledge and because it changes the relationship between the researcher and the researched and between theory and practice. Arguments are drawn from the history of science, critical theory, and postmodernist and feminist critiques. Peter Park is currently on the faculty of the Fielding Institute.     

Hidden boundaries and shared meanings: the roles of researcher characteristics and cultural norms in shaping understandings of sexuality in the unstructured interview setting

This paper examines the role of the research process in shaping the construction of knowledge about sensitive topics in in-depth interviews particularly with regard to researcher identity and cultural influences or norms. We argue that these influences shape all aspects of the research process and that researchers will benefit from reflecting upon them when planning, undertaking and interpreting qualitative studies. Drawing on an empirical study interviewing Australian women aged 55 years and older about sexuality we address differences and similarities between researchers and participants; cultural constructions of sexuality and ageing, and generational influences. Using examples from our interview data we interrogate the contribution of each of these aspects to the interview dynamic and the co-production of meaning. Our analysis draws attention to the fluidity of insider and outsider status and to the existence of hidden boundaries that impact on how certain topics can be discussed in interviews. The paper argues that knowledge about sensitive topics such as older people’s sexuality must be viewed as a situated occurrence shaped by the particularities of the interview and the cultural context. Finally, we discuss the implications of these findings for qualitative inquiries into sensitive topics.     

Social roles as process: caregiving careers and women's health

Is involvement in multiple roles beneficial for women's health or do the often noted health benefits of multiple roles reflect an ongoing process of role management? We address this question by looking at two roles, caregiving and employment, and by investigating changes in women's health as they move into and out of both roles. We examine changes in physical health limitations and psychological distress over a two-year period with data from a nationally representative sample of 2,929 late-midlife women. Looking first at health changes associated with caregiving, we find that psychological distress increases as women move into and continue caring for an ill or disabled person in their household. Caregiving has a weaker effect on physical health, but increases in physical limitations prompt exists from caregiving. Increases in physical limitations also appear to be greater for non-employed women, but some or all of this difference reflects selection out of the labor force for women having difficulty combining both roles. Our findings provide further evidence that care work has implications for women's health, while also suggesting a need for further attention to the ways that women actively manage problematic role combinations.