Time to ask and tell: Voices of older gay and bisexual male veterans regarding community services

ABSTRACT

This participatory action study involved lesbian, gay, bisexual, transgender, and queer (LGBTQ) veterans in determining community-based service needs for health and wellness, illuminating perspectives of older LGBTQ veterans regarding community services. This study explored veterans' perceptions of being LGBTQ later in life. The study included data from interviews with gay and bisexual male veterans ages 51 to 87. Participants valued engagement as part of community. Their recommendations for action included communal meals, transportation, housing, and the coming-out process. Community services facilitated community engagement to support health and wellness for LGBTQ older veterans. The authors used participatory action research (PAR), a method of systematic inquiry integrating the perspective of persons living the experience, to organize the study. Further PAR is recommended to implement community services to meeting health and wellness needs of participants.     

Making Connections: Community Organizing,Empowerment Planning,and Participatory Research in Participatory Evaluation

This article shows the intersections of participatory research, popular education, empowerment planning, and community organizing with participatory evaluation. It argues that a truly successful participatory evaluation involves participants in guiding and even conducting the research, doing a process of self- and program study, creating plans for change, and organizing themselves for implementing these plans. Next, the chapter shows how these elements played out in a participatory evaluation of a community organizing training and technical assistance project in Toledo, Ohio. The first year of the project was facilitated by participatory evaluation that helped identify early successes and problems so participants could make programmatic changes early in the process. The telling of the story also develops practices of participatory evaluation, including planning the evaluation, doing the research and adapting it to changing conditions, uncovering creative tensions, participatory validity checking, and linking the process to planning and action. The chapter concludes with some lessons for participatory evaluation practice.     

Exploring the unmet needs for creating an enabling environment for nurturing care to promote migrant child health in Bishkek,Kyrgyzstan: A theory-guided community-based participatory action research

Empirical evidence on community-driven child health promotion programs in disadvantaged migrant populations is limited despite various promotional strategies. Therefore, we implemented a developmental process to shape child health interventions using theory-guided community-based participatory action research (CBPAR) in a migrant community in Bishkek, Kyrgyzstan between 2015 and 2019.The collaborative and iterative CBPAR process was conducted through participatory workshops and focus group discussions with support from trusting and collegial partnerships between community members and the research team. The goal and scope of the intervention was guided by enabling environments for nurturing care, including the four domains of caregivers’ capabilities, empowered communities, supportive services, and enabling policies. Diverse interests and needs identified by community members were aggregated in the theoretical model and reflected in the intervention.Community-driven intervention is perceived as a culturally acceptable, sustainable, sensitive and relevant approach to solve problems. There are several challenges in conducting the CBPAR, such as the effort and time spent on building partnerships, co-learning and mutual understanding, and the power equilibrium involved. Despite this, the success of the CBPAR process provided opportunities for community mobilization, empowerment and sustainability of the intervention. Evaluation of the process and outcomes of the intervention provided community health researchers and practitioners with evidence of the theory-guided community participatory approach.     

Why advocacy research?: Reflections on research and activism with immigrant women

This article discusses some of the common problems that arise in fomenting participatory research, and proposes that some form of advocacy research may be a more accessible alternative. The advocacy research alternative is distinguished from the pure model of participatory research by several factors: 1) the people being studied do not control the research; 2) advocacy research recognizes that it is not always possible to know in advance precisely what research findings will in fact be “useful” as a tool of social change; and 3) advocacy research is realized through political action, but not necessarily in the same community in which the research was conducted. I discuss advocacy research by relating some of my research experiences in a Mexican undocumented immigrant community in northern California, and how I utilized some of the research materials in an outreach program aimed at Latina immigrant domestic workers in Los Angeles.     

Disabled citizens as researchers – Challenges and benefits of collaboration for effective action and change

ABSTRACT

This article reports on the evaluation of an initial pilot for a collaborative research project undertaken in an English county between a service user-led Coalition of Disabled People, the local authority and local university. The project sought to map the assets and resources for/of disabled people in their local community as well as needs and gaps, to inform the Coalition’s strategic planning and raise awareness of disability issues across the county.

The article discusses an inclusive, co-productive approach using participatory action research. It focuses on experiences from the pilot stage of the project and considers how the authors worked together with the required knowledge exchange and power-sharing to recruit and train researchers with expertise from their personal experience of disability. Recruitment ensured they had relevant qualities and skills that could be developed, to increase their confidence, knowledge and skills set as researchers. They then undertook photo-elicited, semi-structured interviews with other disabled people, analysed findings and created photographic exhibitions for dissemination and awareness raising.

Demonstrating a commitment to emancipatory research and collective action for change, the discussion considers the promotion of shared values within the research team, and explores the benefits and challenges encountered during the process and how the particular stages were managed to achieve the beneficial outcomes of the pilot. The article seeks to add to the literature of participatory/emancipatory action research for social work.     

Decolonising research in a Sub-Saharan African context: exploring Ubuntu as a foundation for research methodology,ethics and agenda

In all parts of the world, researchers are addressing the colonial legacy of research. This article aims to contribute to the decolonisation of research in a sub-Saharan African context by exploring Ubuntu as an indigenous Southern African research paradigm. Drawing on lessons learnt from participatory action research with South African science teachers and on Ubuntu research literature, I develop, and reflect on, characteristics of an Ubuntu research ethics, agenda and methodology. Understood as humanness, Ubuntu encompasses a dimension of becoming human and being human. Both dimensions are realised through lived community and respectful, caring relations with other living beings and the environment. Thus, ethical protocols evolve around relating positively to others. Ubuntu research agendas contribute to strengthening community and methodologies are community based, relational and participatory. The emphasis of the article is not on presenting Ubuntu research as categorically oppositional to conventional methodologies, but on an approach to research that is grounded in indigenous African epistemologies.     

Community reintegration for people with psychiatric disabilities: challenging systemic barriers to service provision and public policy through participatory action research

People with psychiatric disabilities represent a growing group within the population of nursing home residents in the USA. Despite a preference for living in community‐based settings, the availability of supportive services for community living is hindered by barriers at both the service provision and public policy levels. Therefore, understanding and responding to the community living and participation needs of people with psychiatric disabilities is a highly relevant area for action research. This paper discusses a participatory action research endeavor carried out in collaboration with key personnel at Centers for Independent Living who work to provide community reintegration services for individuals with psychiatric disabilities. The events of this 15 month partnership are extensively described, analyzed and discussed. Findings reflect the critical need for communication, dialogue and action to support people with psychiatric disabilities in the community.     

Epistemological journeys in participatory action research: alliances between community psychology and disability studies

This paper seeks to explore emancipatory disability research possibilities through the use of participatory action research and the cross-fertilisation of ideas between British disability studies (DS) and community psychology (CP). First, we consider the psychology in CP and suggest that it is far removed from mainstream psychology's pathological vision of disabled people. Second, we draw on Burrell and Morgan's (1979) model of paradigms to interrogate research practice in DS and CP. Third, we compare and contrast research narratives from DS and CP through reference to some examples of our own research. We argue that CP pays particular attention to the development of community selves and cultural identities within the participatory action research process: which we feel to be a key concern for the development of an emancipatory DS. We conclude that recognising the radical humanist element of participatory action research (PAR) permits us to navigate an enabling journey for disability research.     

The Psychology of Working in Practice: A Theory of Change for a New Era

This article advances the psychology of working theory by developing a parallel change‐based paradigm to guide interventions at the level of individuals (i.e., the psychology of working counseling) and systems (i.e., the psychology of working systemic intervention). The change paradigm presented in this article includes (a) a needs assessment encompassing survival, social connection/contribution, and self‐determination and (b) input on the mobilization of agentic action that includes critical reflection and action, proactive engagement, social support, and community engagement. The needs assessment and agentic action aspects of this approach can be used to foster change in individual counseling, advocacy, and systemic intervention. Case examples reflecting a systemic intervention and an individual counseling vignette are presented along with implications for research, such as explorations of the impact of these change models on client outcomes and systemic change efforts.     

Participatory research: Three models and an analysis

This article examines three models of participatory research: what we call the parallel process model, the mutual engagement model, and the University of Central America (UCA) model. These models represent successively greater degrees of academic engagement with outside communities—from complementary, though not necessarily uncommitted, engagement by academic(s); to compromised full engagement between the academic(s) and the community; to institutional engagement between the entire university and the community. Our analysis outlines the tensions that may arise within participatory research between service and scholarship. We conclude that for participatory research to capture the attention and involvement of the broader discipline, it must provide a spectrum of theory, methods, and substance that sociologists find of importance independent of the participatory way in which such contributions are generated. This article is based on a paper presented at the 87th Annual Meeting of the American Sociological Association, D.L. Lawrence Convention Center, Pittsburgh, Pennsylvania, August 20–24, 1992.     

Photovoice as a Tool for Social Justice Workers

Abstract

This article considers the use of Photovoice as a tool for social justice workers. Photovoice is a technique that affords diverse populations of oppressed individuals the opportunity to take social action by raising awareness in the community and with policy-makers through use of a photographic process. The theoretical underpinnings, goals, and uses of Photovoice are reviewed in relation to social work contexts and values. In addition, the inclusion of empowerment theory and group work literature is explored as a natural expansion of the current theoretical underpinnings. Photovoice is a prime example of participatory research, assessment, and social action. The relevance of Photovoice to social work theory and practice is considered and possibilities for use as an integrated practice tool are explained.     

We did it together: a participatory action research study on poverty and disability

This article presents the perspective of both non-disabled and developmentally disabled people working together in a research project on poverty and disability. Our study used a participatory action research approach that challenges the norm of exclusion in the research process. Control of the research agenda has been inclusive and shared to varying degrees in accordance with the needs and desires of the members of an advisory committee of developmentally disabled people living with low income. We reflect on our process of working together according to four principles of participatory action research with disabled people. We discuss our successes and challenges enacting these principles in the hopes that future researchers can build upon our experience to be more inclusive of developmentally disabled people in their work.     

Using a Stakeholder Participatory Model in a Community-Wide Service Needs Assessment of Elderly Residents

ABSTRACT

This paper discusses a collaborative approach to a community-wide needs assessment in a county in Ohio. A neighborhood service provider for elderly residents in the community initiated the research project. To promote ownership in the evaluation process and to conserve resources, the evaluators used a stakeholder participatory approach. This effort not only resulted in increased cooperation among all parties involved (stakeholders, evaluators, community agencies), but culminated in the acceptance and utilization of controversial findings.     

The work ability web: A tool for job matching

A rural community in the Eastern Cape, South Africa, requested assistance in finding a solution for the dilemma of unemployment for persons with disabilities (PWD). The researcher was involved in a multi disciplinary development programme in the community and investigated the possibilities of integrating the PWD in the income generating projects planned for the community at large. This article reports on one of the objectives of this participatory research study: exploring possible ways of job placement in the projects by community workers. The challenge was to find a simplified process by which uncomplicated placements could be handled by community workers, and complex cases identified and referred to the regional occupational therapists. The researcher used a functional assessment kit to assess the level of dependence/independence of each PWD as well as an interview on employment history and personal aspirations and needs. A job analysis was done on five planned projects for the community that would generate income. The data of the functional analysis of each person and the job requirements were then plotted on one web, the work ability web (WAW) to illustrate compatibility. One of the cases from the sample is described to demonstrate the process.     

Leaving Alinsu: Towards a Transformative Community of Practice

Wenger's portrait of Alinsu insurance claims processors as elaborated in Communities of Practice: Learning, Meaning, and Identity remains closely associated with the community of practice model. The enduring metaphor of Alinsu has limited the scope of Wenger's theory to relatively simplistic, closed, and reproductive systems. The model has both reproductive and transformative potential, and it is the latter that has been less widely taken up and developed. In this article I consider ways in which analyzing a different instantiation, the No Outsiders participatory action research project, can reinvigorate and broaden our understandings of the community of practice model and point the way toward the possibility of learning and practice communities that are more transformative and less reproductive.     

Beginnings: participatory action research and adults with developmental disabilities

This paper discusses the emergence of Participatory Action Research (PAR), and its use with individuals with cognitive disabilities. A brief history of PAR is given, with a focus on its uses for empowerment and self-determination for persons with disabilities. Using literature-based standards for participatory, action and emancipatory research approaches, a 3-year research project with goals of increasing community participation by adults with developmental disabilities is described and evaluated. The "Transition into Community Life" project used an adapted form of the "Farmer-back-to-Farmer" PAR model (Rhoades & Booth, 1982), and the article discusses the successes and challenges of the model in a context quite different from how it was originally designed. The author describes lessons learned concerning the use of PAR with people with developmental disabilities. The article concludes with a brief discussion of the feasibility of PAR with individuals with cognitive challenges.     

Participatory action research in local development: an opportunity for social work

Even if related to the seminal work of Kurt Lewin dating back to 1946, participatory approaches like action research still represent a relevant theoretical and practical set of methodologies for social work and research. In this article, after a brief overview of this methodological approach, the use of this paradigm in social work is explored, with a special focus on the development of symbolic and material resources within local communities. The processes and forms of involvement are examined with regard to the Italian experience of local development. An application of the participatory methodology stemming from a phenomenological approach proposed by Achille Ardigò, a well-known Italian sociologist, is employed. Following these premises, a procedural model enhancing the development of social groups is considered as the building block of community development. Short examples are provided. It is concluded that, in the process of local development, the symbolic and the immaterial dimensions need to be stimulated, as well as the material and the infrastructural ones. In order to achieve this, correct tools are needed.     

“We don't want to talk about that”: Overcoming barriers to rural aging research and interventions on sensitive topics

Geographical, economic, social and cultural barriers to accessing services in rural areas are widely reported. Less widely discussed are dilemmas posed by individual and community reluctance to address sensitive health issues. This article, focusing on the highly sensitive area of mental health, and employing a participatory action approach, describes the natural history of a project, the Mental Health and Aging Initiative (MHAI) to enhance awareness of mental health issues in rural Kentucky-Appalachian communities and overcome the reluctance of individuals in these communities to seek assistance. Funded by the United States Department of Agriculture (USDA), MHAI involved an educational intervention to improve knowledge about mental health and aging in rural Appalachian counties. The need to overcome significant community reluctance to engage in discussion of mental health resulted in significant modification of the protocol. The intervention was grounded in recognition of four key aspects of the local situation: (1) the need to understand the sensitivity of mental health as an element of rural culture; (2) the critical role of local community leaders as points of entry, acceptance, and action; (3) the need to overcome social stigma and reframe the topic of mental health in a more positive light; and (4) the need for methodological innovation in developing an empowering educational action plan oriented toward community-wide long-term impact. The intervention model that emerged from these considerations was based on engaging community leaders, providing educational and technical resources, and nurturing the acceptance by individual rural residents of responsibility for monitoring community mental health. This motif became a central theme in a strategy designed to facilitate culture change and acceptance of mental health as a community concern. It involved active engagement of community representatives in defining and implementing an intervention consistent with participatory action research as a means of empowering rural residents in monitoring and addressing sensitive health care issues. Given that many issues in rural health are difficult to address because of such sensitivity, the approach described is considered to have application in other contexts.