The Forgotten: Dementia and the Aging LGBT Community

Although research documenting the experience of lesbian, gay, bisexual, transgendered (LGBT) aging in general is gaining traction, and literature on dementia continues to proliferate, few articles attend to how dementia affects members of the aging LGBT community. This article reviews the current state of knowledge on the experience of dementia for LGBT older adults, and suggests areas for further research. In addition, it aims to promote social work’s engagement with related disciplines and global dementia care. The article’s ultimate goal is to encourage development of care practices tailored to the experiences, expectations and needs of older LGBT individuals affected by dementia.     

Putting the child at the centre of inter‐professional cooperation in out‐of‐home care

A large part of most children's childhood is about taking part in educational and leisure‐time activities together with other children across various contexts. However, children in out‐of‐home care do not always have easy access to these possibilities for participation. In general, parents coordinate their children's everyday lives, but in the case of children in out‐of‐home care, the responsibility of care is distributed between several professionals and institutions. Research often recommends that inter‐professional cooperation should put the child at the centre and be more child focused. But what does that mean? The paper investigates theoretical understandings of ‘child centredness’ in inter‐professional cooperation. It also includes an empirical example taken from a research project that followed four children in their everyday lives in two residential homes in Denmark. The research explored how professionals work together across contexts in order to support children to take part in school and leisure‐time activities. The overall reasoning leads to the point that for children in out‐of‐home care, the possibility of exercising personal agency in their everyday life constitutes a difficult but vital issue. How children in out‐of‐home care learn how to conduct their everyday lives, is closely related to the ways professionals cooperate across contexts. It points to the need for close inter‐professional cooperation in order to encourage and support children's initiatives and engagements in activities in communities with other children.     

Too Many Rationales,Not Enough Reason: A Call to Examine the Goals of Including Lay Members on Institutional Review Boards

Every major U.S. commission appointed to review Institutional Review Boards (IRBs) as well as numerous reports and scholarly articles have recommended increasing the number of lay (nonscientist and unaffiliated) members on IRBs. Meanwhile, qualitative studies have shown that lay IRB members experience confusion about their roles, including ambiguity whether their roles are different from other members of the board. Without articulating the unique reasons why unaffiliated and nonscientist members are needed, IRBs have little guidance on how to recruit and train these members, and how many should be at the table. By looking back through the history of IRB regulations, policies, and commentaries we can articulate unique contributions these members can make. Only with these contributions in mind can we make arguments for how to best achieve them and make the case that increasing their numbers is necessary.     

The working practices of Birmingham's Centre for Contemporary Cultural Studies

This article offers a history of the working practices of the Birmingham Centre for Contemporary Cultural Studies. Based on extensive interviews with former members and on research into a new archive of the Centre, housed in the Cadbury Research Library, University of Birmingham, it argues that cultural studies as practised in the 1970s was always a heterogeneous subject. The CCCS was heavily influenced by the events of 1968 when it tried to develop a new type of radical and collaborative research and teaching agenda. Despite Stuart Hall's efforts to impose a focused link between politics and academic practice, the agenda soon gave way to a series of diverse and fruitful initiatives associated with the ‘sub-groups’ model of research.     

Adolescents and their networks of social support: real connections in real lives?

Social support is widely seen as an integral component for coping with the stresses of everyday life. While there are various sources and types of support potentially available to young people, it is perhaps less obvious the extent to which young people differentially experience these sources and types. Anecdotal evidence suggests that context, culture and other factors unique to local life shape the many dimensions of social support for youth. In this paper, we seek to examine this research need in more detail by focusing on a broad range of factors shaping youth social support and youth well‐being. Drawing on mixed methods research, we examine social support evidence for adolescents in Florida, USA, and Offaly, Ireland. Through this research, we investigate how the connection between social support and well‐being bears out in these two different socio‐cultural contexts; second, we seek to understand whether types and sources of social support differ among youth in both countries; and what relationship exists between well‐being and types and sources of support. Comparing similar measures of social support across two distinct societal contexts allows us to determine similarities and differences, while also providing suggestions for application that can shape future programmes and policy.     

Use of domestic craft for meaning-making post-disaster

Much of the post-disaster research has focused on the vulnerability of affected populations and deleterious effects of such events on mental health, living conditions and employment. Little scholarly consideration has been given to investigating the resourceful activities of everyday living that occupants of disaster-ridden locations use to strengthen coping and aid recovery. This article reports on research conducted after the Christchurch 2010–2011 earthquakes aimed at capturing how people have used crafting as a means of connecting with others and aiding recovery. Using participant voices from five focus group and nine individual interviews, findings from this research show how Cantabrians used the activity of crafting to bring people together, generating a form of healing and recovery. Incorporating symbolism, expressions of compassion and restoring broken materials within their crafting helped participants generate strong and positive responses to a traumatic series of events. The benefits of these crafting efforts were realised on both individual and community levels, signalling the importance of creativity in disaster response work. While reference to domestic crafting has been largely absent from earlier research on disaster recovery we demonstrate how this medium has been powerful in enabling individuals to forge their own recovery after the 22 February 2011 Christchurch earthquake.     

The Ethical Issues in Uranium Mining Research in the Navajo Nation∗

We explore the experience of Navajo communities living under the shadow of nuclear age fallout who were subjects of five decades of research. In this historical analysis of public health (epidemiological) research conducted in the Navajo lands since the inception of uranium mining from the 1950s untill the end of the 20th century, we analyze the successes and failures in the research initiatives conducted on Navajo lands, the ethical breaches, and the harms and benefits that this research has brought about to the community. We discuss how scientific and moral uncertainty, lack of full stakeholder participation and community wide outreach and education can impact ethical decisions made in research.     

The Japanese Touch

ABSTRACT

Touch, as it is conventionally conceived, appears to be lacking in everyday Japanese intimate relationships. Here, the “touching spaces” between Japanese people are explored, challenging assumptions about closeness and intimacy. Based on ethnographic research conducted in Japan, this review suggests that “finite” conceptions of touch, body, and subjectivity limit our understanding of experiences of closeness in a Japanese cultural context. Instead, how the space between people is inhabited, and the feelings in this space, seems much more significant. In sum, Japanese experiences of touch, particularly in a familial context, should best be seen as a tangible and sensuous connection that is not just felt in the body. Focusing on two body practices, this review explores the connection and embodied experience of closeness in the Japanese family vis-à-vis co-bathing and co-sleeping. It ends with a summary of the design of these sites of intimacy and some ways in which communication and bonding can be enhanced.     

The ethical issues in uranium mining research in the Navajo Nation

We explore the experience of Navajo communities living under the shadow of nuclear age fallout who were subjects of five decades of research. In this historical analysis of public health (epidemiological) research conducted in the Navajo lands since the inception of uranium mining from the 1950s untill the end of the 20th century, we analyze the successes and failures in the research initiatives conducted on Navajo lands, the ethical breaches, and the harms and benefits that this research has brought about to the community. We discuss how scientific and moral uncertainty, lack of full stakeholder participation and community wide outreach and education can impact ethical decisions made in research.     

Research records and the resolution of misconduct allegations at research universities

Accurate record keeping is an important part of the responsible conduct of research. However, there is very little empirical research on scientific record keeping. No one knows the incidence of serious problems with research records, the types of problems that occur, nor their consequences. In this study, we examined the role of research records in the resolution of misconduct allegations as a useful barometer for the incidence and types of problems that occur with records. We interviewed Research Integrity Officers (RIOs) at 90 major research universities and conducted focus groups with active research faculty. RIOs reported problems with research records in 38% of the 553 investigations they conducted. Severe problems with research records often prevented completion of investigations while problems that are more typical lengthened them by 2 to 3 weeks. Five types of poor record keeping practices accounted for 75 % of the problems with incomplete/inadequate records being the most common (30%). The focus groups concurred with the findings from the interviews with RIOs, stressed the importance of the research group leader in setting and maintaining record practices, and offered additional insights. While university officials and faculty members have suspected for many years that there are serious problems with research record keeping, our study provides empirical evidence for this belief. By documenting some of the problems with record keeping in university-based research, the results of our study provide information that will be useful for policy development at academic institutions.     

Community-led initiatives for climate adaptation and mitigation

ABSTRACT

Planning for climate change is complex. There is some uncertainty about how quickly the climate will change and what the anticipated localised effects will be. There are also governance questions, for instance, who has the mandate to make decisions around the management of collective resources (like council infrastructure) and private property. Underlying these questions are issues of justice, equity and agency – who pays for the costs of adaptation and mitigation, and how do decision-makers engage with communities when what is ultimately needed is transformational socio-economic change? We use a case study in Te Awa Kairangi – Lower Hutt, Wellington, to show how a community initiative called Common Unity Project Aotearoa (CUPA) is fostering everyday practices of adaptation and mitigation amongst people who have traditionally had limited participation in more formal planning processes. We use the example of CUPA to demonstrate the significance of local community-led development initiatives for adapting to a changing climate. We argue that local government engagement with people around climate change cannot be separated from broader community development and wellbeing initiatives, and needs to be understood as longer term processes, rather than one-off project consultations.     

Social inclusion in research: reflecting on a research project involving young mothers in care

This article considers social inclusion in research by reflecting upon a project involving young mothers in care, which used grounded theory methodology (GTM) to theorise their situations and emphasise their voice, a key issue in inclusion, and yielded mixed outcomes. GTM dealt poorly with inclusivity and was supplemented by a feminist orientation. This also failed young mothers. They were included by sitting on an Advisory Com-mittee, being paid an honorarium and assisting in disseminating results. These efforts were unable to overturn power dynamics that privileged researchers' ownership of the findings, and enabled them to benefit from doing research and their rela-tionship with funders. The attempt to change policies and practices that served clients badly was thwarted by an election that brought in a régime with different goals. The young women authored their own stories and spoke authoritatively of their experiences. However, inclusion was not fully secured in and by the research process. Their positioning as research subjects curtailed their potential in this regard.     

Partisan Joiners: Associational Membership and Political Polarization in the United States (1974–2004)*

Objectives. Associational life may foster political integration or amplify division, depending on how individuals partition themselves into groups and whether their multiple affiliations embed them into concentric or cross‐cutting social circles. Starting from this premise, I relate trends in associational membership to political partisanship, and ask if there is any evidence of increased political polarization in the associative patterns of Americans. Methods. Using GSS data (1974–2004) on affiliations to 16 types of groups, I plot trends and run multilevel models to examine changes over time in the partisan allegiances of group members and patterns of overlapping memberships. Results. The often‐lamented decline in group membership affects primarily the category of single‐group members and is limited to a few types of groups. The density of the network of overlapping memberships has remained stable over time and there are no real changes in the patterns of shared memberships between group types, nor do Republicans and Democrats differ in their patterns of preferential affiliation. Although political partisanship does not drive patterns of group affiliation, group members, especially those affiliated with multiple groups, are more radical in their partisan identification than nonmembers, and most types of groups have become politically more heterogeneous over time. Conclusion. The puzzling finding that group types are not becoming more partisan, while group members are, leads to the hypothesis (to be tested in future research) that civil society polarization is occurring at the level of actual groups, and not group types.     

Assimilation and discriminatory perceptions and experiences: The case of Hispanics in the United States

This paper examines the relationship between assimilation and discriminatory practices encountered by Hispanic-Americans. Theories of intergroup relations have typically assumed that as members of minority ethnic groups assimilate to a dominant group, they perceive and experience lower degrees of discrimination directed against them. In reviewing theories of majority–minority relations, we have called this the “assimilationist” model. This view has been opposed by some scholars who argue that as minority ethnics assimilate and become more knowledgeable of the larger society, they perceive and experience higher levels of discrimination against them and their group. We have termed this the “conflict model” of interethnic relations. Using data from the 2002 National Survey of Latinos, conducted by the Pew Hispanic Center, we test opposing hypotheses based on these two models. Our findings, while exploratory, largely support the assimilationist model, with a few contradictory results. We discuss these findings and their implications for understanding the current situation of Hispanics in the United States.     

Ethical Beliefs of Social Work Researchers

Abstract

The purpose of this study is to examine the beliefs of social work researchers about ethical practices. Surveys were mailed to a random sample of 240 members of the Society for Social Work and Research (SSWR) to elicit their views about ethical practices in social work research. Responses from 160 members (67% response rate) yielded information regarding the appropriateness of dual relationships, authorship practices, informed consent procedures, and other conduct in social work research. Age, gender, educational level, years of social work research experience, and current teaching of social work research were related to respondents' ethical views about practices with students and sexual relationships with research subjects. The need for additional resources on ethics in social work research is highlighted.     

“It's like he just goes off,BOOM!”: mothers and grandmothers make sense of child‐to‐parent violence

Child to parent violence (CPV) involves continual and cumulative abusive actions perpetrated by children and adolescents towards their parents or caregivers. This abuse produces short‐term distress and ongoing long‐term harmful consequences for parents and their families. Practitioners, researchers and policy‐makers are increasingly challenged to identify, conceptualize and respond to this form of family violence. A major challenge is that parents and caregivers under‐report this abuse so there is a lack of awareness and understanding of their psychological experiences in relation to CPV. This research adopts an interpretative phenomenological approach to explore the psychological experience of CPV. Interviews were conducted with six New Zealand mothers and two grandmothers who all experienced CPV. This abuse was experienced as an ‘emotional bloody roller coaster’ of unconditional love through to hatred; as ‘judgement’ – self‐blame and others' blame of their parenting skills; and the ‘absent father’ in their adolescents' lives was drawn on as an explanation for the abuse. Taken together, these psychological experiences identify the silencing of CPV is related to parents' conflicting emotions towards their children, their thoughts and feelings about themselves and how other people view them, and the impact of an absent father figure in their children's everyday lives.     

Mothering and everyday life during and in the aftermath of domestic violence among women with immigrant backgrounds in Norway

This paper focuses on how immigrant women experience and negotiate their everyday life with children prior to and after leaving a violent partner. Twenty‐three women staying at domestic violence and abuse shelters with their children were interviewed about their experiences with assistance services and their everyday life with their children. At the time of the interviews, most of the women were legally separated or divorced and were either living in or in touch daily with shelters. In this paper, we look at some of the challenges that women face when exposed to violence in a relationship that involves children. Being exposed to violence from a partner raises a number of economic, practical, and emotional concerns, both prior to and after leaving. For the mothers in our study, maintaining a regular routine is key to making the children feel safe in an unpredictable setting. For many, economic dependence on the partner is replaced with economic dependence on assistance services after leaving the partner. Services must recognize that providing help to mothers who have left a violent partner constitutes more than just practical support but is crucial for mothers' ability to re‐establish a predictable everyday life with their children.     

The Responsible Conduct of Bioethics Research

The responsible conduct of research in the biomedical and behavioral sciences has received significant attention since the late 1980s. However, very little has been written about the responsible conduct of bioethics research. Bioethics is an interdisciplinary field and brings together divergent ethical standards and practices which may be the source of tension or conflict. This article argues that bioethicists should reflect more on ethical issues in the responsible conduct of bioethics research through examination of authorship practices and peer review. I also outline three possible approaches to promote research integrity in bioethics.     

Researching the Senses as Knowledge

ABSTRACT

Research in the growing field of sensory studies has begun to identify the sensory aspects of experience, particularly in our engagement with material culture. What is yet to receive much attention is how the senses are acquired and used by individuals and communities, and how they inform action. Adopting barth's argument that cultural phenomena are most productively examined as different kinds of knowledge, this article argues that the senses can be examined as any other knowledge source. This article demonstrates the value of examining the senses as knowledge through an account of learning to hear medically. This example is taken from a broader ethnographic study of the aural practices and experiences of ninety-two musicians, doctors, adventurers, and Morse code operators. It argues that hearing is learned, specialized, and specific to the places we go, the people that surround us, and the things that we do. To seek out the sources and value of this taken-for-granted aspect of our experience, it argues that the senses can be analyzed in terms of their foundations, their acquisition, and practice.     

Preference for Nature in Urbanized Societies: Stress, Restoration, and the Pursuit of Sustainability

Urbanicity presents a challenge for the pursuit of sustainability. High settlement density may offer some environmental, economic, and social advantages, but it can impose psychological demands that people find excessive. These demands of urban life have stimulated a desire for contact with nature through suburban residence, leading to planning and transportation practices that have profound implications for the pursuit of sustainability. Some might dismiss people's desire for contact with nature as the result of an anti-urban bias in conjunction with a romantic view of nature. However, research in environmental psychology suggests that people's desire for contact with nature serves an important adaptive function, namely, psychological restoration. Based on this insight, we offer a perspective on an underlying practical challenge: designing communities that balance settlement density with satisfactory access to nature experience. We discuss research on four issues: how people tend to believe that nature is restorative; how restoration needs and beliefs shape environmental preferences; how well people actually achieve restoration in urban and natural environments; and how contact with nature can promote health. In closing, we consider urban nature as a design option that promotes urban sustainability.