The Exclusion of Disabled People from Positions of Power in British Voluntary Organisations

Disabled people are excluded in various ways from a wide range of social privileges, activities and institutions. Voluntary and charitable organisations promote themselves as champions of disabled people in their struggle for access to the ordinary choices and opportunities of everyday life. This paper reports the findings of an empirical study which demonstrate that in voluntary agencies governed by able-bodied people, disabled people are excluded from positions of power and influence, and they experience the same sorts of barriers and constraints as those with which they are confronted in the wider world. Furthermore, the development of agencies governed by disabled people themselves is constrained by their lack of access to money, staff and other resources.     

Doing Disability Research: activist lives and the academy

The relationship between the academy and the disability movement is a problematic one. Disability researchers based in the academic world who align themselves with the social model of disability face contradictory aims and values in attempting to challenge dominant modes of research production in ways that signify the importance of the agendas of disabled people. It could be argued that research that involves people with the label of 'learning difficulties' [1] creates further points of contention. In this paper we do two things. First, we re-present a paper given at a conference on the performing arts of people with 'learning difficulties', where the audience was made up of performers, workers, providers and researchers. This paper attempted to be accessible, theoretical, political and practical. Secondly, we reflect upon this paper in relation to seven points of analysis that emerge at the boundaries of disability politics and disability research. We argue throughout that real efforts must be made to bridge these boundaries in ways that augment disability theory and politics together.     

Changing the Social Relations of Research Production?

This paper will argue that research on disability has had little influence on policy and made no contribution to improving the lives of disabled people. In fact, up to now the process of research production has been alienating both for disabled people and for researchers themselves. Neither positivist nor interpretive paradigms are immune from the characterisation of research as alienation, and hence it is suggested that the only way to produce unalienated research is to change the social relations of research production. This change will require the development of an emancipatory research paradigm and both the development of and agenda for such a paradigm are briefly considered.     

‘A frog in a well’: the exclusion of disabled people from work in Cambodia

Based on ethnographic research conducted in north‐west Cambodia in 2000–2001, this paper examines why disabled people experience systematic marginalisation in the labour market. Although there are no official data on the relationship between disability and employment status in Cambodia, this research suggests that disabled people are more likely than their able‐bodied counterparts to be unemployed, in low status occupations, earn less or be out of the labour market altogether. Consequently, disabled people are more likely to live in poverty, experience social isolation and poor mental health. I argue that disabled people’s social status effectively shapes their work patterns through (mis)conceptions that associate ‘disability’ with ‘inability’ to work and to be employable. This paper illustrates how geographical processes fix disabled people in their socio‐spatial place, which together with ideological and structural inequalities distinguish and entrench their poverty from that of other social groups.     

'Service user': regressive or liberatory terminology?

The term 'service users' has come to be increasingly used both in the UK and beyond to describe people on the receiving end of health, welfare and social care policies and services, including disabled people. This use of language is contentious. It has come in for criticism as presenting people in passive, consumerist terms. However, many disabled people, and others, use the term of themselves. This article seeks to develop discussion about this terminology and suggests that as well as being used by state and service system in regressive and pejorative ways, it may also serve as a unifying concept which has helped groups to act with solidarity and to challenge and seek to improve their status in society. In this way, it may parallel the terms 'disabled' and 'disability' as used within social approaches to disability.     

Developing Social Firms in the UK: a contribution to identifying good practice

Social firms and related enterprises are developing rapidly in the UK as a means of providing employment for disabled people. This study examined the kind of enterprise that will best meet the aspirations of disabled people. A telephone survey identified the range of enterprises describing themselves as social firms, and examined their develop ment and operation. Alongside the survey, focus groups with disabled people and interviews with carers explored perspectives on the values that should underpin social firms. The results suggest that indicators of good practice include: user/worker participation in the firm's development and operation; the availability of expert advice to enable informed choice about payment, with payment at the minimum wage rates or higher for those who choose this; opportunities for workers to develop to their full potential; a workforce comprising disabled and non-disabled workers; the involvement of carers and local socio-economic agencies in developing the social firm.     

Vestiges of the medical model: a critical exploration of the Ontario Disability Support Program in Ontario,Canada

Although ample literature exists on workfare in Ontario, Canada, research on the social assistance programme for disabled people, the Ontario Disability Support Program (ODSP), is relatively scant. What we do know points to similar shortcomings. We present a critical disability study considering four policy domains to explore how disabled people are identified and accommodated in Ontario. Discussing the principles of universal design, we argue for policy design that meets the needs of as many individuals as possible, while accounting for significant human variability. We conclude that the ODSP, in failing to adopt a rights-based framework, violates the dignity and rights of disabled people.     

What the digitalisation of music tells us about capitalism,culture and the power of the information technology sector

This article examines a striking but under-analysed feature of culture under capitalism, using the example of music: that the main ways in which people gain access to cultural experiences are subject to frequent, radical and disorienting shifts. It has two main aims. The first is to provide a macro-historical, multi-causal explanation of changes in technologies of musical consumption, emphasising the mutual imbrication of the economic interests of corporations with sociocultural transformations. We identify a shift over the last twenty years from consumer electronics (CE) to information technology (IT) as the most powerful sectoral force shaping how music and culture are mediated and experienced, and argue that this shift from CE to IT drew upon, and in turn quickened, a shift from domestic consumption to personalised, mobile and connected consumption, and from dynamics of what Raymond Williams called ‘mobile privatisation’ to what we call ‘networked mobile personalisation’. The second aim is to assess change and continuity in the main means by which recorded music is consumed, in long-term perspective. We argue that disruptions caused by recent ‘digitalisation’ of music are consistent with longer term processes, whereby music has been something of a testing ground for the introduction of new cultural technologies. But we also recognise particularly high levels of disruption in recent times and relate these to the new dominance of the IT industries, and the particular dynamism or instability of that sector. We close by discussing the degree to which constant changes in how people access musical experiences might be read as instances of capitalism’s tendency to prioritise limiting notions of consumer preference over meaningful needs.     

Repositioning mothers: mothers,disabled children and disability studies

In this article we set out to review the ways in which mothers of disabled children have been portrayed within disability studies and the more broader academic literature. We argue that within disability studies mothers of disabled children occupy a liminal position because they are often not disabled and yet they can experience forms of disablism. Their experiences can differ markedly from the experiences of mothers of non‐disabled children and yet the consequences and outcomes of these experiences, such as developing a ‘special competence’ is largely overlooked. Mothers can work to effect change on behalf of their children and, in some cases, for disabled people more generally, however, this role of activist mother is largely undervalued. The review of literature presented here leads us to conclude that further research needs to be undertaken exploring and highlighting the ways in which mothers of disabled children negotiate, manage and approach their daily lives, operating within what are described by feminist scholars as oppressive mothering ideologies and disabling environments.     

A Question of Friendship: Community Care and the Relationships of People with Learning Difficulties

There is evidence that a number of people with learning difficulties living in the community do not enjoy a range of satisfactory social relationships. This paper will examine the way that the issue of the apparent loneliness of people with learning difficulties has been approached in the community care literature. I will argue that there is a clear assumption in much of the literature that friendships between disabled and non-disabled people are of greater value than those relationships between disabled people. The low value accorded to friendships between disabled people is very damaging to their individual self-esteem, as well as to the possibility of political action based on a sense of solidarity. The paper will point also to the constraints that many people with learning difficulties face which render it difficult for them to form friendships and, therefore, reinforce their isolation.     

Representing the Views of Disabled People in Community Care Planning

The 1990 NHS and Community Care Act requires social services departments in Britain to involve representatives of service users in the preparation of their annual community care plans. This paper gives a critical account of the different ways in which the views of disabled people are sought and represented in community care planning; and of the organisational and practical barriers which disabled people and their organisations are likely to encounter in representing their views to service planners. People with learning disabilities, older disabled people, people with sensory impairments and disabled people from Black and ethnic minority communities are particularly likely to be excluded from current consultation procedures. The paper concludes that present methods of representation place considerable burdens on both individual disabled people and on their organisations. Consequently, disabled people may increasingly question the effectiveness and usefulness of their involvement in community care planning, in the light of the many other issues which are important to them.     

‘Me too!’: individual empowerment of disabled women in the #MeToo movement in China

This study examines the role of disabled women in the #MeToo movement by analyzing their voices in the movement. Through online participatory observation, we discovered that the movement has individually empowered disabled women on three levels: as women, as disabled people, and as resisters. These disabled women described two ways in which they were empowered at each level, a total of six ways: they realized that they were not guilty, not ashamed, not stereotyped, not going to tolerate abuse, awakened, and united. However, the empowerment of the #MeToo movement only works at an individual level for some disabled women with higher economic and social status through online platforms, with few offline actions being taken and few responses from society to their appeals. There is thus still a long way for disabled women to go in order to be fully included in society.     

When they call me cripple: a group of South African adolescents with cerebral palsy attending a special needs school talk about being disabled

Central to the experience of disability are social and political forces and discourses which position people in particular ways. Little is known about the experiences of individuals with disabilities living in low-income and middle-income countries. We investigate the lived experience of a group of South African adolescents with cerebral palsy. In-depth interviews were conducted with 15 adolescents with cerebral palsy. Data were analysed using interpretive phenomenological analysis. The participants position themselves between the medical and social models of disability, in a liminal space between ‘normal’ and ‘disabled’, but do not identify with either group. They describe a ‘hierarchy of disability’ and position themselves in-between more serious sensory impairments and less serious emotional and learning disabilities. Being disabled is associated with being taken care of, infantilised and being powerless. Consequently they aspire to achieve independence and autonomy, and face danger, which are seen as signifiers that they are not disabled.     

Families with Children with Disabilities - Inequalities and the Social Model

This article suggests that families with children with disabilities experience a range of inequalities that families with children without disabilities do not suffer. It draws on a recent qualitative study to illustrate the way in which it is not just disabled people, but in the case of disabled children, whole families that suffer from unequal opportunities and outcomes. We draw on the social model of disability to show that the lives of these families are often characterised by financial hardship, stress and anxiety as a result of social barriers, prejudices and poorly conceived service provision. The social model of disability is usually drawn upon to illustrate the way in which social organisation disables people with impairments. In this instance, we illustrate the way in which social organisation disables not just the family member who has an impairment but the whole family unit. By applying this model of disability, new ways of creating practices and policies for these families can be developed which incorporate their views into the heart of the policy-making process.     

Invention and repair: disability and education after the UK Coalition Government

This short paper examines the extent to which the UK Coalition Government has been inventive or reparatory in their approach to policies governing the education of disabled children and young people. Of central concern here is the extent to which policies contribute to the invention of the disabled child by conceptualising their education as a constant process of reparation. I argue here that this landscape of policy proposals creates particular problems for the ways in which the pedagogic relationship can be conceptualised, reinforcing teaching as a complex negotiation of deficit and anxiety.     

符号消费背景下的名牌消费（英文）

In consumer society, objects are consumed not only because of their usefulness, but also due to their added value,differences between objects, namely,symbolic, thus to be the main objective of consumer. From the viewpoint of Jean Baudrillard's symbolic consumption, the large-scale consumption of objects not only changed people's daily life, but also changed people's social relations and their ways of life. People have transformed from material consumption to spiritual consumption. From commodity or service, people are always looking for symbolic meaning behind useful symbols, for the feeling of their own, pursuing the value of self-expression existence. From the viewpoint of Baudrillard's consumerism and semiotic, this paper analyses symbolic meaning of brand consumption. Symbolic consumption prompted consumers to blind pursuit of status, wealth, honor and other symbols of consumption. The previous research pays more attention to the relationship between symbolic consumption and certain brand consumption, but this paper stresses more on their general relationship.     

Grudge spending: the interplay between markets and culture in the purchase of security

In the paper, we use data from an English study of security consumption, and recent work in the cultural sociology of markets, to illustrate the way in which moral and social commitments shape and often constrain decisions about how, or indeed whether, individuals and organizations enter markets for protection. Three main claims are proffered. We suggest, firstly, that the purchase of security commodities is a mundane, non‐conspicuous mode of consumption that typically exists outside of the paraphernalia of consumer culture – a form of grudge spending. Secondly, we demonstrate that security consumption is weighed against other commitments that individuals and organizations have and is often kept in check by these competing considerations. We find, thirdly, that the prospect of consuming security prompts people to consider the relations that obtain between security objects and other things that they morally or aesthetically value, and to reflect on what the buying and selling of security signals about the condition and likely futures of their society. These points are illustrated using the examples of organizational consumption and gated communities. In respect of each case, we tease out the evaluative judgements that condition and constrain the purchase of security among organizations and individuals and argue that they open up some important but neglected questions to do with the moral economy of security.     

“I was Excited by the Idea of a Project that Focuses on those Unasked Questions” Co‐Producing Disability Research with Disabled Young People

In this article, we detail the politics and practicalities of co‐produced disability research with disabled young people with life‐limiting and life‐threatening impairments. We centre an ESRC‐funded arts‐informed co‐produced research project that has brought together a Co‐Researcher Collective of disabled young people. Co‐production is an established approach; however, our co‐researchers have led us to develop inclusive research practices that engage with online social research methods in innovative ways. As we detail our experiences, we aim to encourage disability studies researchers and others to adopt virtual environments when researching with and for the lives of disabled people.     

Disability and Dependency: origins and futures of 'special needs' housing for disabled people

In this paper we analyse the provision of housing for disabled people in both its historical and ideological contexts. While the recent extension of part M of the Building Regulations to dwellings by the government represents a significant advance towards the inclusion of disabled people, we argue that the shift in funding of public housing from a 'bricks and mortar' subsidy to Housing Benefit potentially creates greater dependency. This amounts to a policy contradiction in which the government is punishing disabled people for being dependent whilst simultaneously being the cause of their dependency. If this issue is not addressed disabled people will continue to remain excluded, albeit within accessible dwellings.     

Towards an Affirmation Model of Disability

In this paper we argue that a new model of disability is emerging within the literature by disabled people and within disability culture, expressed most clearly by the Disability Arts Movement. For the purposes of discussion we call it the affirmative model. It is essentially a non-tragic view of disability and impairment which encompasses positive social identities, both individual and collective, for disabled people grounded in the benefits of lifestyle and life experience of being impaired and disabled. This view has arisen in direct opposition to the dominant personal tragedy model of disability and impairment, and builds on the liberatory imperative of the social model. Critiques of the latter have been consistently expressed as, or interpreted as, re-affirmations of personal tragedy, particularly in relation to impairment. In this analysis the affirmation model addresses the limitations of the social model through the realisation of positive identity encompassing impairment, as well as disability.