A Case for Limiting the Reach of Institutional Review Boards

Institutional review boards (IRBs) governing social and behavioral research seem to systematically exceed the guidelines established by the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. We examine a clandestine study of prostitution and another of employment discrimination and conclude that IRBs, more concerned about being sued than they are about protecting research subjects, get in the way of science and cause ethical problems as a consequence. We discuss the ethical principles involved and call for a suspension of all IRB review in the social and behavioral sciences.     

Standard Bearers: Qualitative Sociologists’ Experiences with IRB Regulation

In response to the system for regulating research with human subjects, researchers have raised two apparently contradictory concerns: that IRBs are excessively inconsistent (often raised by biomedical researchers), and that they are excessively standardizing (often raised by qualitative interview researchers). Why does standardization appear as the dominant theme in qualitative researchers’ experiences with their IRBs? And how do qualitative researchers experience standardization in their IRB encounters? We focus on IRBs role as regulatory bureaucracies, which typically rely heavily on standardized communication and decisions to process information and make large numbers of decisions in a timely manner. We explore the role of standardization in IRB regulation of qualitative research in an analysis of semi-structured interviews with 26 qualitative sociologists from six research universities and three liberal arts colleges in the Northeastern United States. In a regulatory regime oriented toward the norms of experimental research, these frictions resulted partly from a lack of appropriate standardized language and decision-templates, but also from the inherent difficulties of applying standardized decisions to work that is unpredictable, unique, and difficult to routinize.     

Social network research and human subjects protection: Towards more effective infectious disease control

The issue of human subject protection in relation to social network research on the spread and control of human pathogens is considered. As this area derives most of its concepts and methods from social network analysis more generally, the present discussion has wider relevance. One problem is that some Institutional Review Boards (IRBs) have assumed that if a participant (who gave informed consent) is to be asked to name network associates these too — automatically — would be human subjects from whom informed consent also must be obtained. Invariably, if this occurs proposed research — whatever its funding and potential contributions might be — is blocked. A conservative approach is taken here. The Common Rule is assumed to provide relevant guidance, the responsibility of IRBs is to make decisions based on the Common Rule, and in consequence the burden is on those proposing social network research to design — and defend — their planned work with this in mind. At the same time, it is argued that it is important not to stifle beneficial research by adding to one inherently conservative review process (of grant proposals) another (of IRBs) so that work is prevented simply because it is research at the frontiers rather than ‘safe’ research.     

Is Guardian Permission a Barrier to Online Sexual Health Research Among Adolescent Males Interested in Sex With Males?

Institutional review boards (IRBs) that refuse to grant waivers of guardian permission may hinder research to inform needed online sexual health interventions for adolescent males interested in sex with males (AMSM). Information on the challenges of obtaining (or waiving) guardian permission is imperative. In June and July 2017, AMSM (N = 206; ages 14 to 17) in the United States completed an online survey on sexual behaviors, sexually explicit media use, and sexual education exposure/needs. A mixed-methods approach assessed attitudes toward guardian permission for the current survey and future online sexual health intervention research. Logistic regression models assessed differences by “outness” to a guardian. A framework matrix analysis was conducted to summarize, then aggregate, qualitative responses. Findings indicated that most AMSM would not participate if guardian permission was required (current: 83%; future: 87%). Youth who were not out were more likely to say they would not participate (current: adjusted odds ratio [AOR] = 2.8, 95% confidence interval [CI]: 1.2 to 6.8); future: AOR = 4.7, 95% CI: 1.6 to 13.5). Participants reported that guardian permission would be an invasion of their privacy, lead to involuntary outing, and endanger participants. Overall, guardian permission appears to be a barrier to AMSM participation in online sexual health research. Investigators and IRBs should consider alternative practices and policies to facilitate such research.     

Shared Expectations? Reforming the Social Work Qualifying Curriculum in England

This is the first of two articles presenting findings from a scoping review undertaken in 2011 to inform proposals for a review of the social work qualifying curriculum in England made by the Social Work Reform Board. The review used a mixture of published and unpublished resources to compare the issues raised by the reports of the Social Work Task Force with what was known from published research investigating the ways that the current Requirements for Social Work Training (Department of Health, London, 2002) operate. It found that the evidence base on which the key issues relating to the concerns about initial social work qualifying programmes rest was very variable. The absence of a substantial research evidence base in this area hinders the development of effective policymaking on social work education, but the current changes to social work education and to social work regulation offer a timely opportunity to expand what we know about different assessment systems and how best to regulate social work courses.     

Who benefits from network analysis: ethics of social network research

The success of social network research (SNR) has led to expectations that in addition to academic research, SNR can introduce people to one another, solve organizational problems, map the epidemiology of AIDS, and catch criminals and terrorists. Since SNR requires that names of both respondents and their contacts be collected and used in most analyses, Institutional Review Boards become very concerned. Experiences of the author, participants in the 2003 Sun Belt Conference and the Social Network List Serve illustrate ethical issues. Proper handling of the data and the analysis, including complete control by the investigator can virtually eliminate harm to respondents and those they nominate, though perhaps not to the satisfaction of IRBs. On the benefit side, academic researchers always benefit, organizations, society and science may benefit, but individual respondents rarely do.     

Toward ethical guidelines for network research in organizations

All sociological/anthropological research (network or otherwise) in organizations (particularly corporations) is complicated by the need to obtain consent not only from the potential respondent but from the organization itself. Whereas in ordinary research there are essentially two parties that must come to agreement – the researcher and the respondent – in the organizational research there are three. In addition, the fact of organizational hierarchy means that the employee's participation in the research entails considerably more risk than in other situations. At the same time, social network research involves special challenges due to the lack of anonymity at the questionnaire level and the sensitivity of some of the questions. This paper seeks to lay out some of the issues and to propose a set of standard guidelines for ethical research on networks in organizations. It is hoped that developing a set of standard guidelines and forms will help Institutional Review Boards (IRBs) to allow network research. Examples of proposed forms are included as appendices.     

Do Some Students Need Special Protection From Research on Sex and Trauma? New Evidence for Young Adult Resilience in “Sensitive Topics” Research

Institutional review boards (IRBs) have expressed concerns that certain individuals or groups, such as participants who are younger, ethnic minorities, or who have certain psychological or personality traits, may be particularly distressed when participating in “sensitive topics” research. This study examined the effects of several demographic and individual difference factors (i.e., age, sex, ethnicity, religiosity, Big Five personality traits, and baseline psychological distress levels) on reactions to participation in sensitive topics research. Participants were 504 undergraduates who completed an extensive battery of either trauma/sex questionnaires or cognitive tests and rated their positive and negative emotional reactions and the perceived benefits and mental costs of participating. They also compared research participation to normal life stressors. Our findings indicated that individual difference and demographic risk factors do not increase participant distress after participating in sex/trauma research over and above that experienced after participating in traditionally minimal-risk cognitive tasks. Participants generally found research participation less distressing than normal life stressors and even enjoyable.     

Participatory action research (PAR) with children and youth: An integrative review of methodology and PAR outcomes for participants,organizations, and communities

Due to an increasing emphasis on children's rights, children's participation in studies about social issues has become a trend. The research community has been liberally utilizing the concept of participatory action research (PAR). Thus, oversimplification of children's involvement and misinterpretation of their voices has become a concern for many scholars. This review is an attempt to support the critical conversation about PAR, especially in regard to (1) its methodological features, as well as (2) outcomes of genuine children's participation in PAR for children and youth themselves, social service organizations, and communities. Forty-five articles were selected and coded for analysis in accordance with integrative review methodology. PAR with children and youth showed evidence of positive outcomes for children, organizations, and communities. However, PAR with children and youth still faces the challenges of involving very young participants, providing meaningful participation opportunities and addressing power differences between children and adults in diverse cultural contexts. Discussion of methodological challenges and review of critical outcomes of the PAR approach is provided.     

Copresence in Virtual Environments

Copresence, the sense of “being together” with others, is at the center of theories about social interaction. It is an intra‐individual sense that stems from and shapes the social context. Recent research on copresence in virtual environments (VEs), synthetic simulations of existing experiences (e.g., desktop computer environments, “virtual reality”), demonstrates the variability in which people experience copresence with others who are not sharing in the same time or space. At the same time, experimental researchers in sociology are using VEs as a methodological tool, yet remain unaware about the ramifications of varying levels of copresence for the social processes under investigation. The goal of this review is to introduce sociologists to the research on copresence, specifically highlighting findings and gaps important for those who use VEs in their research practice. An understanding of how copresence occurs in VEs can improve how well sociologists design experiments to advance theories about interpersonal behavior.     

Is theory development essential for the social work dissertation?

Grounded theory methodology (GTM) is a popular methodology used in social work dissertation research. GTM entails the development of theory ‘grounded in’ and generated from data systematically gathered and analyzed through qualitative methods. But little is known of its theory development and relationship to social work education at the doctoral level. In this article, we reflect on contemporary usage of GTM with respect to the state of theory development in social work education by reviewing a sample of Canadian social work doctoral dissertations that utilize GTM, identifying if and how theory was developed. Our analysis draws from a broader review of GTM research published as social work doctoral dissertations in Canada using the Qualitative Research Quality Checklist (QRQC). The findings indicate that almost half of the dissertations in the sample did not contribute to theory development, and for many, theory development was not the intention. This raises a question about whether theory development when utilizing GTM is essential in social work dissertation research, and perhaps, whether the focus should be on exploring a social work issue rather than generating theory. The paper concludes with considerations for social work educators in regards to research methodology, epistemology, and theory.     

Advances in the Conceptualization of Personality Disorders: Issues Affecting Social Work Practice and Research

This article provides a review of the research that has informed the proposed changes to the DSM-5 conceptualization of personality psychopathology with a focus on implications for social work practice and research. A paradigm shift to a dimensional model is likely to replace the current categorical model of personality disorders and will have profound implications for the profession. While establishing a diagnostic system that is grounded in empirical knowledge is the primary benefit, this tool will also be more consistent with social work’s orienting theories and values. Social workers should gain knowledge about the proposed changes and actively participate in the review process.     

From Clinic to Community: The Evolution of a Group for Women with Postpartum Mental Illness

Since 1980, national and international research knowledge on carers and care-giving has been accumulating. However, the theoretical bases of this research are usually unstated and implicit. Theory is vital in shaping social work research programs and types of social work intervention. This paper examines and critiques the social work theories influencing published social work research on care-giving. A search of key social work journals from 1980 to 2001 identified a total of 102 research articles about care-giving. The perspectives informing these articles fall into four groupings: positivist; interpretivist; systems; and feminist/radical. Building on the model developed by Howe (1987), which differentiates theories of radical change from those concerned with social regulation, each perspective is critically analysed for its underlying assumptions, level of analysis, research methodology and implications for policy and practice. Our review indicated that research on care-giving is dominated by a positivist approach that focuses on stress-coping and social support theories. These approaches are essentially individualistic, focus on the burden of care and prescribe interventions that assist carers to adjust to or cope with the care-giving role. Future social work research on care-giving should be informed by critical social work theories offering deeper structural analysis. This would be more consistent with our discipline's concern for social change and social justice.     

Post-Qualifying Education for Social Workers: A Continuing Problem or a New Opportunity?

Between 1990 and 2012 there was a national system for regulating post-qualifying social work education in England. Since then social work has been expected to take a more flexible approach to continuing professional development (CPD) which recognises the contribution played by work-based and self-directed learning alongside higher education awards. While universities can continue to offer post-qualifying courses, it is envisaged that they will work more closely with employers in deciding what should be taught and how. This article is based on a scoping review of post-qualifying social work education in England which highlights the paucity of knowledge about the topic. Although achieving a post-qualifying award is associated with improved knowledge and confidence, little is known about the long-term effects on individuals, organisations and service users. There appears to be a complete absence of evidence on cost effectiveness. As yet, we know very little about the extent of self-directed CPD among social workers and current funding constraints are likely to limit the resources that organisations invest in CPD for their workforce. In a rapidly changing context, the article seeks to provide a baseline from which an agenda for future research into CPD among social workers can be shaped.     

Social Work Doctoral Education in Australia: The Case for Further Development

ABSTRACT

Social work education in Australia has been based in universities since the 1940s. There are now 32 higher education providers offering social work programs across Australia. The significant growth in master’s level qualifying programs in Australia, along with recent higher education policy changes, has increased the need for social work academic faculty members with doctoral qualifications. This paper presents the findings of a scoping review of literature on social work doctoral education. Despite a growing literature on social work doctoral education in international contexts, the review found that there is a lack of Australian research and evidence on social work doctoral pedagogy, the number and diversity of doctoral students, the doctoral student experience, and doctoral graduate employment intentions and outcomes. Addressing the lack of Australian research in this area would be an important step to enabling Australian social work to address future research training and capacity needs and directions.

IMPLICATIONS

• There is a lack of research on Australian social work doctoral education and this is a neglected aspect of social work scholarship of teaching and learning (SOTL) research.

• Research into social work doctoral education would provide baseline information on the number and diversity of students, doctoral student experiences, graduate outcomes, and employment intentions.

• Development of social work SOTL about doctoral education would support future research capacity and enable the advancement of social work research knowledge and skills.

     

Social Work Students ‘Juggling’ Field Placement

Field education is widely acknowledged as a central component of social work education. However, it requires a substantial commitment of time and energy from students which can present challenges to students who have multiple responsibilities. Based on a literature review conducted in preparation for doctoral research into social work student experience of juggling multiple roles and responsibilities with field placement, this article summarises what is known about the challenges they face and what helps them to complete placement. The findings have implications for students, schools of social work and field placement agencies. Further research should provide guidance for professional social work bodies, schools of social work, field educators and students.     

Teaching Globalization to Social Work Students: In and Out of the Classroom

This paper was part of qualitative research that sought to explore motivations of Masters-level students (n = 53) in taking an elective course in international social work at a large public university in the Southeastern US. A review of the literature includes the foundational aspects of globalization and its relationship with social work education. Through content analysis, results show comportment of students' stated motivations for taking the course and the contemporaneous literature on globalization. Themes expressed are the historical context of globalization, concern about global inequalities, and the varying impacts of globalization around the world. Discussion is directed towards exploring ways of effectively infusing globalization content in the social work curricula.     

Progress in Social and Educational Inquiry Through Case Study: Generalization or Explanation?

Although much of the most productive research in applied social science is case-based, there is still concern about the restricted utility of such research because of its limited power to offer generalizable findings. Such concern has contributed to a recent trend in policy-making circles—particularly those in education—to prefer experimentally orientated research for insights on policy. The argument is made here that concerns about generalization are exaggerated and that the focus upon them has allowed an evasion of issues about quality of explanation coming from different forms of social inquiry design. After discussing these generalization-based issues I proceed to define case study as an inquiry form, outlining its most significant ingredients and I offer a review of case study inquiries in education which exemplify its capacity for offering credible new insights on the questions being posed.     

Autonomy and Compliance: How Qualitative Sociologists Respond to Institutional Ethical Oversight

Prevailing sociological understandings of institutional ethical review tend to homogenize faculty responses to them, and are predominantly speculative. In this research, we conduct interviews with sociologists from 21 Ph.D.-granting departments across Canada, finding three predominant “ethics orientations” among them, with associated cognitive maps and strategic actions. In our analyses, we use these orientations to complicate homogeneous appraisals of social researchers’ responses to new bureaucratic requirements, enriching our understanding of how such requirements affect the ways sociologists think about their occupation, approach their research, and mentor successive generations. These ethics orientations suggest the field of sociology is comprised of distinct political cohorts with diverging understandings of ethical review, and by extension, power and intellectual work. For some, ethical review signals a more consultative and therefore better approach to knowledge production, while for others it marks the end of an era of unfettered (and superior) intellectual pursuit in sociology.