Participatory action research and researcher’s responsibilities: an experience with an Indigenous community

This paper seeks to explore the relational participatory action research (PAR) frameworks that have been developed to allow non-Indigenous researchers, along with Indigenous co-researcher participants, to learn and honour Indigenous stories. Specifically, in the context of PAR research in the Chittagong Hill Tracts of Bangladesh, we outline: (a) potential challenges between Indigenous research paradigms and Western research paradigms, (b) the situation of the non-Indigenous researcher in relation to the Indigenous community, (c) challenges associated with the non-Indigenous researcher’s selection of a research site, (d) collaboration throughout the research process and (e) the processes of developing and maintaining responsibilities. The aim is not to offer simple answers to such challenges, but to highlight the manner in which such processes can be addressed. This research may provide practical insight for future non-Indigenous researchers working with Indigenous communities through a participatory sharing process with Indigenous co-researcher participants, Elders, leaders, knowledge-holders and youths.     

Can we find solutions with people? Participatory action research with small organic producers in Andalusia

This paper reports on an experiment linking science with people. Taking as a paradigm the holistic scientific approach fostered by agroecology, we present a methodological proposal for the implementation of participatory action research in rural areas. Our aims were various: to solve a specific problem, i.e. the exclusion of small- and medium-scale organic farmers from the official certification system; to find solutions collectively through an exchange of knowledge between researchers, technicians, producers and consumers; and to generate endogenous social change in rural areas through processes based on local skills and collective creativity. This paper examines the methods applied, and provides a participatory reflexive analysis of those methods. Both the keys to the success and the constraints are analysed, in order to conclude the contributions that agroecology and PAR processes can make to sustainable and innovative research proposals.     

Relationships and the Research Process: Participatory Action Research and Social Work

Social science research methods are experiencing a paradigm shift in that participatory research methods, in many cases relegated to second-class status, are gaining credibility as valid and legitimate ways to engage in scholarly and solid research. In social work, participatory research is one more way social workers can engage with participants as partners in the process of generating knowledge and transforming society. This article discusses a particular type of participatory research called Participatory Action Research (PAR). PAR is explained and an example of how PAR has been used is offered. This article offers a discussion of how PAR is consistent with the core values of social work, especially those values of partnership, relationship, and social change. Finally, the article offers social work researchers a framework for engaging in liberatory research.     

Community Participation Reconsidered

ABSTRACT

This paper describes the process of planning, developing, and implementing a community-based project with Hmong women in a large Midwestern city. Combining action and research to forge relationships, identify common goals and garner resources, the Hmong Women's Project applied principles of both feminist and participatory action research (PAR). In light of the successes and challenges of this ongoing project, we critically evaluate the oft-encouraged goal of “maximum community participation” in PAR projects by questioning common definitions of “community” and “participation.” We argue that the parameters of what constitutes a “community” and what counts for “participation” are inherently unstable, requiring constant negotiation of ideas, values, identities and interests among all who participate in a PAR project.     

Time to ask and tell: Voices of older gay and bisexual male veterans regarding community services

ABSTRACT

This participatory action study involved lesbian, gay, bisexual, transgender, and queer (LGBTQ) veterans in determining community-based service needs for health and wellness, illuminating perspectives of older LGBTQ veterans regarding community services. This study explored veterans' perceptions of being LGBTQ later in life. The study included data from interviews with gay and bisexual male veterans ages 51 to 87. Participants valued engagement as part of community. Their recommendations for action included communal meals, transportation, housing, and the coming-out process. Community services facilitated community engagement to support health and wellness for LGBTQ older veterans. The authors used participatory action research (PAR), a method of systematic inquiry integrating the perspective of persons living the experience, to organize the study. Further PAR is recommended to implement community services to meeting health and wellness needs of participants.     

Participatory video analysis in disability research

This article sets out critical framing as an analytical approach in participatory video by which people investigate and analyze a topic through arts-based engagement, storyboarding, and collaborative editing. Participatory video as an action research method in self-advocacy has been discussed elsewhere. Here, the author examines critical framing and the role of generative themes in participatory analysis by describing a case study in which adults with developmental disabilities explored the dimensions of sexual health through participatory video. The author proposes that critical framing provides a more nuanced approach to participatory analysis. Credibility and trustworthiness with data triangulation and overall findings are also described.     

‘McDonald’s Is Good for My Social Life’. Developing Health Promotion Together with Adolescent Girls from Disadvantaged Neighbourhoods in Amsterdam

There is limited knowledge about key factors that enable adolescent girls with a low socioeconomic position (SEP) to adopt a healthy lifestyle. This paper aims to better understand the complexity of addressing health behaviour of adolescent girls with a low SEP by gaining insights into (i) the perspectives of adolescent girls with a low SEP (n = 26) on a healthy lifestyle, (ii) how to develop health promotion that fits these girls’ daily realities, by using participatory action research (PAR) in which girls developed health promotion materials. The study offers an understanding of girls’ daily lives and how health promotion could be improved.     

An exploration of factors which may influence how teachers perceive participatory action research tools being employed in schools

This article draws on a lead researcher's observations about participatory research collaboration within a qualitative research project involving teachers, pupils and members of the communities surrounding schools. It presents a practical account of research processes aimed at uncovering to how pupils, teachers and community members in economically and socially disadvantaged neighbourhoods perceived their own roles in relation to creative activity with groups of children, who had been identified by their schools as being in need of help to engage in learning. The activities were led by artists who would not normally be involved in schools. Social constructionist frameworks for evaluation are combined with the literature on participatory appraisal, in order to suggest a politically sensitive course of action by which practitioners and peer interviewers could be involved more usefully in the future, through direct collaboration on the planning tasks to reveal rarely articulated pupil attitudes.     

Beginnings: participatory action research and adults with developmental disabilities

This paper discusses the emergence of Participatory Action Research (PAR), and its use with individuals with cognitive disabilities. A brief history of PAR is given, with a focus on its uses for empowerment and self-determination for persons with disabilities. Using literature-based standards for participatory, action and emancipatory research approaches, a 3-year research project with goals of increasing community participation by adults with developmental disabilities is described and evaluated. The "Transition into Community Life" project used an adapted form of the "Farmer-back-to-Farmer" PAR model (Rhoades & Booth, 1982), and the article discusses the successes and challenges of the model in a context quite different from how it was originally designed. The author describes lessons learned concerning the use of PAR with people with developmental disabilities. The article concludes with a brief discussion of the feasibility of PAR with individuals with cognitive challenges.     

Epistemological journeys in participatory action research: alliances between community psychology and disability studies

This paper seeks to explore emancipatory disability research possibilities through the use of participatory action research and the cross-fertilisation of ideas between British disability studies (DS) and community psychology (CP). First, we consider the psychology in CP and suggest that it is far removed from mainstream psychology's pathological vision of disabled people. Second, we draw on Burrell and Morgan's (1979) model of paradigms to interrogate research practice in DS and CP. Third, we compare and contrast research narratives from DS and CP through reference to some examples of our own research. We argue that CP pays particular attention to the development of community selves and cultural identities within the participatory action research process: which we feel to be a key concern for the development of an emancipatory DS. We conclude that recognising the radical humanist element of participatory action research (PAR) permits us to navigate an enabling journey for disability research.     

Reflections on doing participatory research in health: participation,method and power

The author has reflected on her experience in facilitating three participatory research (PR) projects to identify key issues surrounding participation, method and power. The three PR projects in health, all undertaken in the same region in southeast Australia, assessed the needs of women who have experienced breast cancer, evaluated an Indigenous healthy lifestyle programme and developed and documented a model of coordinated care by a consumer group. In particular, the three participatory projects suggested that participants do not always want to maximise their own participation and may prefer external researcher involvement – relationships, confidentiality, anonymity and time‐impacted perspectives of participation. In one study, quantitative methods were selected and time and previous knowledge of research shaped participants' selection of method. In the projects, power relations were complex and issues of negotiation, inclusion, quality of research, agendas, roles and integrity are discussed. The lessons learned here are that participatory researchers can be open to differing levels of participation and methods while also comfortable with sharing decision‐making in research, even if it alters the research outcome.     

Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland: Evaluation of the ‘On track watch’ project

Strategies to date have been ineffective in reducing high rates of rheumatic heart disease (RHD) in Australian Aboriginal people; a disease caused by streptococcal infections. A remote Aboriginal community initiated a collaboration to work towards elimination of RHD. Based in ‘both-way learning’ (reciprocal knowledge co-creation), the aim of this study was to co-design, implement and evaluate community-based participatory action research (CBPAR) to achieve this vision. Activities related to understanding and addressing RHD social determinants were delivered through an accredited course adapted to meet learner and project needs. Theory-driven evaluation linking CBPAR to empowerment was applied. Data collection comprised focus groups, interviews, observation, and co-development and use of measurement tools such as surveys. Data analysis utilised process indicators from national guidelines for Aboriginal health research, and outcome indicators derived from the Wallerstein framework. Findings include the importance of valuing traditional knowledges and ways of learning such as locally-meaningful metaphors to explore unfamiliar concepts; empowerment through critical thinking and community ownership of knowledge about RHD and research; providing practical guidance in implementing empowering and decolonising principles / theories. Lessons learned are applicable to next stages of the RHD elimination strategy which must include scale-up of community leadership in research agenda-setting and implementation.     

Reconsidering participatory action research for organizational transformation and social change

Abstract

Considering the notion of vagueness of organizational and social contexts during the processes of organizational transformation and social change, a dramaturgical model of organizations is proposed for facilitating the process of organizational transformation and learning in local and contingent contexts. Our strategy for participatory action research (PAR) is suggested for appreciating the importance of the multiple uses of research methods, hence the need to come to terms with pluralism and holism. In this paper, the design of participant-driven research, using the post-structuralist thought of Michel Foucault and Gilles Deleuze, is critically reviewed.     

DEVELOPMENT OF PRACTICE

In this paper it is described how the work of the Balay Rehabilitation Centre in the Philippines has changed over time as the political and human rights conditions of the country's affected areas have changed. Balay's psychosocial rehabilitation programmes address the needs of individuals and communities and offer support and healing. Originally Balay focused on individual and family-level psychological and social intervention in accordance with clinical diagnoses; however, as the political and human rights situation of the Philippines changed and large numbers of people became victims of trauma and displacement the intervention strategies changed. Balay became increasingly interested in assisting communities to become empowered to participate in their own healing and the frameworks of community research and participatory action research (PAR) are now being explored by Balay as valid methods of integrating research with rehabilitation activities on the community level.     

Disabled citizens as researchers – Challenges and benefits of collaboration for effective action and change

ABSTRACT

This article reports on the evaluation of an initial pilot for a collaborative research project undertaken in an English county between a service user-led Coalition of Disabled People, the local authority and local university. The project sought to map the assets and resources for/of disabled people in their local community as well as needs and gaps, to inform the Coalition’s strategic planning and raise awareness of disability issues across the county.

The article discusses an inclusive, co-productive approach using participatory action research. It focuses on experiences from the pilot stage of the project and considers how the authors worked together with the required knowledge exchange and power-sharing to recruit and train researchers with expertise from their personal experience of disability. Recruitment ensured they had relevant qualities and skills that could be developed, to increase their confidence, knowledge and skills set as researchers. They then undertook photo-elicited, semi-structured interviews with other disabled people, analysed findings and created photographic exhibitions for dissemination and awareness raising.

Demonstrating a commitment to emancipatory research and collective action for change, the discussion considers the promotion of shared values within the research team, and explores the benefits and challenges encountered during the process and how the particular stages were managed to achieve the beneficial outcomes of the pilot. The article seeks to add to the literature of participatory/emancipatory action research for social work.     

Participatory action research: Easier said than done

This article describes participatory action research as an alternative methodology for conducting community needs assessment. The research model empowers individuals by recognizing they have the ability to identify their own needs, and to generate practical long lasting solutions (Rappaport, 1981). A case study is presented in which two community members attempted a participatory community needs assessment. The article concludes with a discussion of how this attempt deviated from the ideal participatory action research model, and the consequences of the compromises made during the research process.     

Pockets of Participation: Revisiting Child‐Centred Participation Research

This article revisits the theme of the clash of interests and power relations at work in participatory research which is prescribed from above. It offers a possible route toward solving conflict between adult‐led research carried out by young researchers, funding requirements and organisational constraints. The article explores issues of participation in child‐centred research in a cross‐cultural context and gives examples from research carried out with young refugees. The author discusses what might be the best way forward for researchers against a backdrop of critical dialogues concerning child participation on the one hand and funders’ frequent calls for participatory methodologies on the other. In doing participatory research with children and young people on the margins of society, issues of power, knowledge, ethical relations, funding processes and research methodologies and practices may seem at odds and difficult to resolve. In this article a methodology of creating pockets of participation that can be owned by the young researchers is suggested as a possible route.     

Exploring the value of involving experts-by-experience in social work research: experiences from Slovenia and the UK

The evidence base for the methodological validity of conducting participatory research is becoming established. This article reviews the experiences of two researchers undertaking Ph.D. studies in Slovenia and UK, respectively, and considers the value of involving service users and carers in social work research. The Slovenian research involved user-researchers who developed research tools and undertook qualitative research. The first author explores the co-researchers’ impact on the research process and its outcomes, identifying both individual and collective empowerment of the co-researchers. The English study involved people from diverse backgrounds, who developed a recovery training programme for carers of people with schizophrenia. The second author describes how the steering group, and the carers who participated in the programme were impacted by the research process and experienced a sense of empowerment and how they influenced the development of new knowledge through the reflexive cycle. The authors draw out the commonalities and differences in our research that add to the existing evidence base supporting the development of participatory inquiry. We conclude by affirming the value of user participation in research in leading to the empowerment of users, the development of new research perspectives, and in contributing to theory in social work research and practice.     

Participatory action research (PAR) with children and youth: An integrative review of methodology and PAR outcomes for participants,organizations, and communities

Due to an increasing emphasis on children's rights, children's participation in studies about social issues has become a trend. The research community has been liberally utilizing the concept of participatory action research (PAR). Thus, oversimplification of children's involvement and misinterpretation of their voices has become a concern for many scholars. This review is an attempt to support the critical conversation about PAR, especially in regard to (1) its methodological features, as well as (2) outcomes of genuine children's participation in PAR for children and youth themselves, social service organizations, and communities. Forty-five articles were selected and coded for analysis in accordance with integrative review methodology. PAR with children and youth showed evidence of positive outcomes for children, organizations, and communities. However, PAR with children and youth still faces the challenges of involving very young participants, providing meaningful participation opportunities and addressing power differences between children and adults in diverse cultural contexts. Discussion of methodological challenges and review of critical outcomes of the PAR approach is provided.