‘A mockery of equality’: an exploratory investigation into disabled activists’ views of the Paralympic Games

This article offers an exploratory analysis of the opinions of disabled activists towards the Paralympic Games. With the use of a qualitative online survey, the work focuses on the perceptions of disabled individuals (n = 32) who are not Paralympic athletes but are affiliated to the disability rights group, the United Kingdom Disabled People’s Council. Working on the premise that the views of disabled activists have been excluded from Paralympic sports discourse to date, the results illustrate a nuanced yet negative view of the Games to contrast with an existing, yet overly positive, academic narrative. Participants were particularly cynical of the portrayal and production of the Games and its Paralympic athletes as they perceived that the wider population of disabled people is misrepresented. The overwhelming perception in this preliminary analysis suggests that the Paralympic Games can be counterproductive to disability rights beyond sport.     

‘I’m not an activist’: an exploratory investigation into retired British Paralympic athletes’ views on the relationship between the Paralympic games and disability equality in the United Kingdom

One claim of the UK Government’s Department for Culture, Media and Sport is that the London 2012 Paralympic Games ‘improved attitudes to disability and provided new opportunities for disabled people to participate in society’. In addition, the International Paralympic Committee’s strategic plan suggests that the Paralympic Games is a vehicle for achieving ‘a more equitable society’. The aim of this study was to examine the reflections of a group of retired British Paralympic athletes on the relationship between the Paralympic Games and disability equality in the United Kingdom. Narrative interviews were conducted with five male retired British Paralympians and one female retired British Paralympian who had participated in a total of 22 Summer Paralympic Games events. I will argue that some Paralympic athletes who are not obvious ‘activists’ can still contribute to equality for disabled people.     

Empower,inspire, achieve: (dis)empowerment and the Paralympic Games

This paper undertakes a critical examination of the International Paralympic Committee’s desire to use the Paralympic Games as a vehicle to empower individuals with a disability. We achieve this by applying Pierre Bourdieu’s sociological concepts of habitus and capital to semi-structured interviews conducted with Paralympic stakeholders. Interviewees included current and former Paralympians, active and retired disability sport administrators, social researchers of disability and disability sport, and disability rights advocates. The paper starts by highlighting the distinctive cultural context of the Paralympic Movement, before exploring the potential for the Paralympic Games to act as a source of empowerment, through the creation of sporting and lifestyle role-models. Findings suggest Paralympians are considered most likely to gain empowerment from the Paralympic Games, yet their specific impairment, athletic lifestyles and failure to identify as ‘disabled’ were identified as potentially limiting the ability of the Paralympic Games to empower others.     

Disability activism in the new media ecology: campaigning strategies in the digital era

This article examines the changing nature of disability activism through the influence of social media. As disabled people in the United Kingdom have been subjected to acute austerity, this has coincided with a new era of disability activism channelled through increased social media participation. Drawing on the analysis of one group’s online activities and a qualitative content analysis of disability protest coverage in traditional news media during the 2012 Paralympic Games, this article positions this shift in the broader framework of ‘new media ecology’. We explore how emerging structures of disability activism have begun to offer a more visible profile to challenge government policy and negative stereotypes of disabled people. This highlights the usefulness of campaigning strategies for generating favourable news coverage for disability protest.     

Tensions and unity in the struggle for citizenship: Swedish disability rights activists claim ‘Full Participation! Now!’

This article analyses the claims of contemporary disability rights activists mobilising in a context where de facto second-class citizenship co-exists with legal and political declarations about the rights of disabled people. As an empirical case, it focuses on the blog ‘Full Participation.Now’, which was initiated by disability rights activists in Sweden. Drawing upon citizenship research, the article points to the tensions and dilemmas featuring the bloggers’ demand for participation and equality, as well as the challenges relative to their struggle. Although the bloggers formulate contrasting arguments, the article highlights that the activists share a common aspiration for ‘full citizenship’.     

‘Talking about us without us?’. A response to Neil Crowther

In Volume 22 Number 7 of Disability & Society Neil Crowther of the recently formed Equality and Human Rights Commission provided his interpretation of the current situation of disability politics in the UK. Besides acknowledging the pioneering role organisations controlled and run by disabled people had played in the struggle for the eradication of disabling barriers, he suggests that the challenges facing disabled people are increasingly different from those of the early 1990s, and that despite the incorporation of a disability rights agenda into the formal mechanisms of Government many disabled people remain amongst the most economically and socially disadvantaged in Britain. This he ascribes to the disabled people's movement's ‘ideological purity’ and failure to engage in productive partnerships with other disability organisations. Here we argue that these assertions are based on a lack of clarity of meaning and a partial reading of the difficulties encountered by the disabled people's movement as a consequence of its early success and the activities of the agencies he urges the movement to engage with.     

Roma and the politics of double discourse in contemporary Europe

ABSTRACT

The article analyses the politics of ‘double discourse’ in relation to Roma that has evolved in contemporary neoliberal Europe. On the one hand, the double discourse promotes the integration, rights and equal opportunities of Roma, on the other, it denies recognition of, and ways to address, enduring structural violence and rising social insecurity. The article argues that the politics of ‘double discourse’, as a neoliberal approach towards Roma, is structured by two contradictory discourses that speak to different audiences, using duplicitous approaches to create anti-Roma consensus and maintain the critical difference and subordinated position of the racialised Romani populations in Europe. By studying the representation of Roma in the cases of so-called 'child theft' in Greece and Ireland, and in the recent ‘refugee crisis’, the paper identifies and discusses three dimensions of contemporary neoliberal double discourse: racialised de-Europeanisation, neoliberal undeservingness and (dis)articulation of citizenship.     

Three Days to Walk: a personal story of life writing and disability consciousness in China

Through a close reading of Three Days to Walk, a memoir of disability by Chinese writer Zhang Yuncheng, this paper develops a new understanding of self-narrated life writing and its intersection with disability consciousness in the contemporary Chinese context. It examines the changing nature of disability life writing since the end of the early 1980s, a time when the images and voices of disabled began to emerge from effective cultural invisibility and silence. In a move away from state-sponsored ‘triumph over tragedy’ biographical narratives typical of the immediate post-Cultural Revolution period, Three Days to Walk is characteristic of a new popular trend to publish self-narrated life stories that reveal unique and intimate histories of disability experience both imbued with and propelled by a burgeoning sense of disability consciousness in the Chinese context.     

‘Stuck In The Middle With You’: Towards Enabling Social Work with Disabled People

This article explores progress to date in embedding enabling social work understandings and practices with disabled people by reviewing the UK social work curriculum. Based on these observations and the ideas from UK disability studies, it will offer possible solutions or at least better pathways to enabling practice with disabled people. As Meekosha has pointed out in a global context, to date social work has been experienced as an ambivalent practice [Meekosha, H. & Dowse, L. (2007) ‘Integrating critical disability studies into social work education and practice: an Australian perspective’, Practice, vol. 19, no. 3, pp. 59–72], often both enabling and disabling; an intervention that can both lock and unlock resources, and challenge and reaffirm traditional notions of the ‘disability problem’ [Finkelstein, V. (1993) ‘Disability: A Social Challenge or an Administrative Responsibility?’, in Disabiling Barriers ‐ Enabling Environments, eds J. Swain, V. Finkelstein, S. French and M. Oliver, Sage Publications in association with the Open University, London]. Social work also has the potential to both challenge, but also be an (inadvertent) apologist for contemporary social support and welfare systems. Indeed it is clear that social work as a profession and social care as a policy area have been the poor relations of healthcare and health professions [King's Fund (2011) Social Care Funding and the NHS: An Impending Crisis?, King's Fund, London]. Viewed anthropologically, social work remains a largely non-disabled workforce ‘ministering’ to disabled clients (BCODP, 1997). This might reinforce the perception of ‘us and them’ in some social work encounters. As Paul Longmore questioned, can we begin to go ‘beyond affliction’ (2003) in our work with disabled people? Can social work help support the collective struggles of disabled people or is their role inevitably to reinforce that of individual(ised) clients?

The development of the personalisation agenda and self-directed support is clearly welcome in this context [DoH (2006) Our Health, Our Care, Our Say: A New Direction for Community Services, Department of Health, London; DoH (2007) Independence, Choice and Risk: A Guide to Best Practice in Supported Decision-Making, Department of Health, London; DoH (2009) Personalisation of Social Care Services, Department of Health, London]. Such developments reflect the changing service user–professional relationship. The temptation to see these developments as the icing on the social support cake needs, however, to be resisted. Arguably, with the increased rationing of social support, the continued role of social workers in assessment and monitoring of support could be seen to require a yet more reflexive and enabling professional education and training in an age of austerity, one where previously supported disabled people are being told that their needs can no longer be met.     

Managing manipulation: tools and challenges in creative collaborations with intellectually-disabled people

There has long been an ‘us’ and ‘them’ mentality when it comes to the production of disability narratives on screen, driven by an assumption that non-disabled people cannot accurately interpret the disabled experience. Given the appalling history of representations by non-disabled filmmakers, it is easy to understand why many academics and members of the disability community favour the complete control of disability content by disabled people. But this approach has failed the many compelling ‘disabled voices’ that go unheard because they do not reach audiences. The most practical solution is to forge new models of creative collaboration between disabled and non-disabled people, something I attempted to do with my PhD film, a comedy feature entitled Down Under Mystery Tour. I discovered that the most important tool in such collaborations is the utilisation and management of manipulation, one that prioritises skill and experience and best expresses the unique perspective of intellectually-disabled collaborators.     

Crip theory and the disabled identity: why disability politics needs impairment

This article highlights the importance of recognizing both the ontology of impairment as it relates to the creation of the disabled identity as well as why articulations of the disabled identity being ‘crip’ obfuscate potential politics. Examining how the disabled identity has been cast as a coherent social and political category, rather than the messy and complicated identity it truly is, I argue the adoption of a post-structuralist orientation by activists and advocates is bad for disability politics. Providing two examples, the first focusing on a publicized rape case of a person with an intellectual disability and the second on the importance of disability rights claims based on visibility of impairment, I show how articulations like those made in crip theory can have serious, negative implications for the lived experience of people with disabilities. I conclude with a call for disability studies scholars to engage disability politics in their work.     

Narrating Childhood in Elena Chizhova’s Vremya zhenshchin

ABSTRACT

This article discusses the representation of the Soviet past through the figure of a child in Elena Chizhova’s novel Vremja ?en??in [Vremya zhenshchin] (2009). The concept of the vulnerable subject is applied to conceptualize the narrative’s ‘access’ to the past. Vremja ?en??in [Vremya zhenshchin] tells the story of a mute girl raised by her mother and three ‘grandmothers’ in 1960s Leningrad. The women decide to keep her muteness as a secret in order to protect her from being sent to a state institution for disabled children, and to raise her at home. The child figure is situated on the verge of two value systems: the collective, secular, and modern value system, represented by the outside world of home; and the private, spiritual, and traditional value system represented by the community of three old women. The position of the vulnerable child figure on the margins of society enables the representation of a ‘lost’ past and its alternative values. The article suggests that the vulnerable child figure can be seen to stand for a feeling of loss and abandonment in more general terms in contemporary Russia, and as representing a search for a lost inheritance.     

Gender and Disability in Male‐Dominated Occupations: A Social Relational Model

Evidence from male‐dominated sectors points to high levels of disability and the disabling nature of working environments. However, research of this nature assumes a medical model of disability that does not account for the social construction of disability or the lived experiences of disabled employees. Using data from seven focus groups (n = 44) and semi‐structured interviews with professional transport employees with life‐long hidden ‘impairments’, including dyslexia, dyscalculia, dyspraxia, ADD/ADHD and Asperger syndrome (n = 22), this paper explores the lived experiences of men and women working in a sector traditionally dominated by men, the transport industry. Key themes include homosociality, public–private divide and the impact of changing work practices. Further, the data revealed how those with hidden ‘impairments’ in part construct their identities in relation to both non‐disabled colleagues and those considered stereotypically representing disability (wheelchair users). This study furthers understandings of the relationality of gender and disability in the workplace, and the lived experiences of disabled employees.     

A lame argument: profoundly disabled embodiment as critical gender politics

In this paper I explore how disabled embodiment offers radical theory and practice for gender politics. I use Adrienne Rich’s classic treaties ‘lesbian existence [and] the lesbian continuum’ and Judith Butler’s twenty-first-century queer interrogation of ‘the category of The Human’ to highlight the exclusion of disablement from gender politics despite its radical potential for theory and praxis. Using a crip ethos I not only explore the consequences of this exclusion for disabled people, but also the resultant limitations of able-bodied perception, theory and practice. A crip ethos facilitates politics and practices where disabled embodiment becomes a profound, severe, and radical challenge to normativity in all its aspects, and a vehicle through which to move beyond such restrictive frameworks.     

In search of disability: a critical discourse analysis of a Key Stage 1 guided reading scheme

This paper employs critical discourse analysis to examine the representation of disability in the children’s Oxford Reading Tree Series Read with Biff, Chip and Kipper. The representation is found to influence self-identity and social attitudes towards disability, for it grants ‘normalcy’ a status of idolatry. Such elevation of normalcy elicits ‘normate’ culture, which, in turn, can generate ‘aesthetic nervousness’. This hegemonic tradition therefore produces a replicative process that is consequential to the production of future texts, social justice and an inclusive society.     

Disabled people as counterfeit citizens: the politics of resentment past and present

In this article I argue that disabled people in the United Kingdom have been tipped into an abyss of counterfeit citizenship. They have been smeared as ‘false mendicants’ – an old trick well documented in the historical archives of ableism. Neoliberalism has used this repertoire of invalidation – its noxious taint of cunning and fraud – as the ‘moral justification’ for welfare reform and for the pillory and notoriety into which the entire disabled community has been placed. Austerity – through the neoliberal politics of resentment – has made disabled people its scapegoat. I argue that a historical precedent for the contemporary demonisation of disabled people as counterfeit citizens can be found in the early modern period in the mythology of the ‘sturdy beggar’.     

Disabled children’s childhood studies: a distinct approach?

This paper suggests that the emergence of disabled children’s childhood studies as an area of study offers a distinct approach to inquiry; it represents a significant shift away from the long-standing deficit discourses of disabled childhoods that have dominated western culture and its reaches. On the one hand, contemporary childhood studies contest normative, Eurocentric mantras around the ‘standard child’; while on the other, disability studies critique the medical discourses and the scope of its authority. However, while drawing on these two approaches, disabled children’s childhood studies provide more than this combined critique. In disabled children’s childhood studies, disabled children are not viewed as necessarily having problems or being problems, but as having childhoods.     

Ultimate concerns in late modernity: Archer,Bourdieu and reflexivity

Through a critique of Margaret Archer's theory of reflexivity, this paper explores the theoretical contribution of a Bourdieusian sociology of the subject for understanding social change. Archer's theory of reflexivity holds that conscious ‘internal conversations’ are the motor of society, central both to human subjectivity and to the ‘reflexive imperative’ of late modernity. This is established through critiques of Bourdieu, who is held to erase creativity and meaningful personal investments from subjectivity, and late modernity is depicted as a time when a ‘situational logic of opportunity’ renders embodied dispositions and the reproduction of symbolic advantages obsolete. Maintaining Archer's focus on ‘ultimate concerns’ in a context of social change, this paper argues that her theory of reflexivity is established through a narrow misreading and rejection of Bourdieu's work, which ultimately creates problems for her own approach. Archer's rejection of any pre‐reflexive dimensions to subjectivity and social action leaves her unable to sociologically explain the genesis of ‘ultimate concerns’, and creates an empirically dubious narrative of the consequences of social change. Through a focus on Archer's concept of ‘fractured reflexivity’, the paper explores the theoretical necessity of habitus and illusio for understanding the social changes that Archer is grappling with. In late modernity, reflexivity is valorized just as the conditions for its successful operation are increasingly foreclosed, creating ‘fractured reflexivity’ emblematic of the complex contemporary interaction between habitus, illusio, and accelerating social change.