Along the Cancer Continuum: Integrating Therapeutic Support and Bereavement Groups for Children and Teens of Terminally Ill Cancer Patients

Family life is altered irrevocably when a young parent is diagnosed with or dies from cancer. This article tracks the genesis and transformation of a comprehensive psychoeducational support and bereavement program for children, adolescents, and parents affected by cancer. From the inception of the program, families with parents in active treatment participated in time-limited support groups. When a parent died, families transitioned out of support and into bereavement groups. As the cancer experience became more chronic, families remained in these respective groups for longer periods of time. This required clinicians to reconsider group structure to avoid the additional losses incurred as newly bereaved families transitioned from one group to another. Restructuring the program allowed participants to remain in familiar environments and to experience greater support and continuity in their care. Children, teens, and parents made clinical gains in communicating their needs and feelings to loved ones. Further, children and teens stayed on track developmentally, academically, and socially. Clinicians structuring these programs must be skilled in working simultaneously in both support and bereavement modalities. Recommendations for self-care and supervision are suggested.     

Challenging the Roles of “Skilled” Professionals and “Risky” Young Mothers: Peer Support,Expertise, and Relational Patterns in Facebook Groups

Today, many countries spend a great deal of money and effort on programs for expert-guided parenting support to be carried out in face-to-face groups. One goal of such support is to target, help, and educate “risky” groups of parents, such as young parents. It is striking, however, that young parents have a conspicuously low degree of participation in this type of parenting support. Drawing on the assumption that many young parents go online to seek, give, and receive peer parenting support, this paper presents a case study of activities within three Facebook groups. Using a combination of social network analysis, online ethnography, and interviews, we analyze how social network relationships and discussions differ depending on whether the analyzed Facebook group in question is administrated by professionals or peers, what the role of professional experts is, and how young parents might use social media to take control of their own support needs. Our results indicate that some of the affordances provided by Facebook might contribute to a challenging of the roles of “skilled” professionals versus “risky” young parents.     

An Investigation into Needs of People Living with Multiple Sclerosis, and Their Families

Forty people living with multiple sclerosis and/or their families were interviewed to assess their knowledge of, use of, needs for, and attitudes towards support groups. The majority of participants were both misinformed about their illness and ignorant of resources available to them, resulting in much stress and anxiety. It is felt that information-both about their disease condition and of support structures-needs systematically to be available and accessible to patients on diagnosis, and is a necessary component for empowerment.     

Mothers and deployment: Understanding the experiences and support needs of deploying mothers of children birth to five

ABSTRACT

Military deployments can demand long separations of service members and their families. The strain of separation is particularly acute for mothers of very young children. This study aimed to better understand the deployment and reintegration experiences of service members who are mothers of young children. Focus groups and interviews were conducted with 12 service member mothers who deployed to Iraq and/or Afghanistan when one or more of their children was younger than age 6. Discussions explored experiences before, during, and after deployment; needs and challenges at each stage; available support resources and gaps in support. Thematic data analysis was conducted, drawing on principles of grounded theory. Disruption and continuity were central themes as participants illuminated the challenges they faced and their profound dedication to sustaining strong family relationships across the deployment cycle. Relinquishing, reassuming, and balancing multiple roles and responsibilities are additional themes that were frequently evoked. Participants noted a lack of formal resources responsive to their needs and circumstances and highlighted a need for services tailored to mothers who are deploying. Military mothers, particularly mothers of young children, face distinct challenges surrounding deployment. Better understanding their experiences and support needs can inform tailored services to meet their needs.     

Differentiating Characteristics and Needs of Minority Grandparent Caregivers

Abstract

Data collected over a three-year period compared two groups of African American grandparent caregivers with a group of European American grandparents who were raising their grandchildren. Gender, marital status, and household income differentiated minority from nonminority participants. Statistically significant differences among certain of the demographic variables between the two groups of African American grandparents were also found. Practical implications of the results for research and practice are discussed through illustrating differences in advocacy needs and agenda-making between two grandparent caregiver support groups.     

Social Service Needs of Hispanic Immigrants

Abstract

Large numbers of poor Hispanic immigrants have come to the U.S. in recent years with many social service needs. This qualitative, pilot study of Hispanic immigrants in the Washington Heights community in New York City identifies their perceived needs and barriers for accessing services. Seven face-to-face interviews with community-based professionals and four focus group interviews with thirty Hispanic immigrants provide the data. Both groups of informants report many unmet service needs, especially in the areas of health care and housing. Data support the view that Hispanic immigrants often require micro-and macro-level advocacy that can best be performed by Spanish speaking social workers.     

A Needs‐centred Educational Support Model for the Career Transitions of North Korean Defectors: Implications for South Korea's Support Policy

North Korean defectors have faced significant challenges in finding and keeping jobs in the South Korean labour market due to their many differences from South Korean workers. As the number of defectors has increased, South Korea has experienced an increased need for employment support to assist defectors in overcoming challenges in their employment and leading them to stable economic status. This study aims to develop a needs‐centred educational support model for defectors' career transitions, compare the content of suggested support programmes with the content of currently provided support programmes, and suggest relevant policy implications. Based on this study's findings, the authors argue that defectors' employment needs differ from those of other groups of job seekers in Korea; thus, this population should be served differently with consistent educational support. Each stage of the developed model provides appropriate support programmes that reflect the unique employment needs of defectors.     

Brief online surveys to monitor and evaluate facilitated peer support groups for caregivers of children with special needs

BackgroundThere have been few systematic evaluations of experiences of participating in peer support groups for parents and other caregivers of children with special needs. In Australia, facilitated groups are available to caregivers in community settings, through a nationally funded program, MyTime. Mechanisms for ongoing monitoring and evaluation have not yet been instituted.AimTo establish whether brief, online surveys can be used for monitoring and evaluating peer support groups for caregivers of children with special needs.MethodsTwo brief, online surveys, with both fixed-choice and open-ended questions, were developed. All caregivers who attended any MyTime group during a 1-month period were invited to participate.ResultsOf 89 caregivers who expressed interest in participating, 54 and 31 respondents completed respectively. Respondents represented a variety of backgrounds and circumstances. Responses revealed both positive and negative aspects of group participation. Linked data on expectations and experiences provided important feedback for the program.ConclusionBrief, online surveys are a suitable mechanism for ongoing monitoring and evaluation of peer support group programs for caregivers.     

Grandparent-Headed Families in the United States

Abstract

Grandparents are returning to the role of parents in ever-increasing numbers. Custodial grandparents often find themselves isolated from sources of support as they face unique emotional, physical, and financial challenges on a daily basis. Nearly half are grandparents without partners and the majority are caring for two or more young children. Children in the care of grandparents are more likely to experience cognitive, emotional, and physical challenges. Their early traumatic experiences may lead to difficulties in communication and forming attachments.

The Parent Topics Questionnaire is a standardized assessment measure designed to provide parent education group facilitators with specific information about needs, desires, and expectations of participants. Administration of this instrument to four parent groups revealed a high readiness for information among the custodial grandparent population. Based on information obtained from this measure, a holistic program was developed which simultaneously provided services to care-giving grandparents, their young grandchildren, and educational professionals.

Grandparent and grandchildren's groups met weekly and emphasized topics and activities aimed at meeting common needs within these populations. Educational professionals participated in a series of inservice meetings aimed at increasing awareness of needs and strengths of grandparent-headed families, modifying curriculum to more effectively meet grandchildren's needs, and enhancing knowledge of existing resources. Pre- and post-test analysis demonstrate significant positive effects for all involved populations. Grandparents were found to increase in parenting knowledge, perceived levels of social support, willingness to utilize existing resources, and enjoyment of time with their grandchildren. Levels of isolation and perceived depression were decreased. Participating grandchildren demonstrated increased abilities to interact effectively with peers and adults and perceived their interactions with grandparents more positively. Educational professionals reported feeling more informed about custodial grandparent family issues, more confident about interacting with grandparents, and more knowledgeable about existing resources.     

Supporting pupils with special health needs in mainstream schools: policy and practice

Education policy favouring ‘inclusion’, together with medical advances, mean that a growing number of pupils in mainstream schools may have health‐related support needs in respect of a chronic illness or physical disability. Data from an empirical research study investigating these needs and carried out between 1996 and 1998 are used to reflect on the position of this group of pupils within policy guidance on special educational needs (SEN) and medical needs. Evidence of confusion and ambiguity, both in the guidance and its interpretation, suggests that the needs of this group remain somewhat hidden. More recent developments in special needs policy guidance are discussed in terms of the prospect for strengthening support for this group of pupils. Copyright © 2001 John Wiley & Sons, Ltd.     

The race gap in support group participation by breast cancer survivors: real or artifact?

Addressing methodological weaknesses of previous research, this study assesses whether African American women are, in fact, less likely to participate in breast cancer support groups than are White women. Of the breast cancer survivors, 958 (26% African Americans, 73% Caucasian) completed interviews concerning demographic characteristics, other support networks, effects of illness on home and spiritual life, and support group participation. Contrary to previous research, no race difference was found in support group participation. This research suggests more effort needs to be paid to sampling techniques and other methodological factors to adequately reflect the experiences and needs of breast cancer survivors, specifically African American women.     

Conceptualizing Adoptive Parent Support Groups: A Mixed-Method Process

Indubitably, the process of adopting a young person, no matter the context, can be challenging. To assist adoptive parents in coping with these challenges, entities (e.g., social service/adoption agencies, etc.) have historically fostered the development of support groups. Despite the intent of these efforts, many adoptive parent support groups utilize frameworks that are not congruent with meeting the needs of group participants. This paper examines the process for using Concept Mapping to conceptualize effective support groups based on the perspectives of adoptive parents in one southeastern state.     

Does the road get lonelier? Aging in a coloured community in South Africa

The Social Environmental Theory of Aging, developed by Jay Gubrium, postulates the utilization of activity resources in the personal, social or fiduciary domain. These resources are developed during the active years and exchanged as age increases. Success in aging depends on making favorable exchanges and maintaining independence. Aged Coloureds in Grahamstown utilize their social networks and support groups to avoid loneliness. While they are still ambulatory they visit neighbors and friends or participate in the old age club, the Antics. However, in a compressed economy with double digit inflation they have one secure item for exchange, i.e., their pensions. This provides their basic needs and assures the support of their family. Their primary security is in the social environment and is guaranteed by their fiduciary role.     

Do Foster Parents and Care Workers Recognize the Needs of Youth in Family Foster Care with a History of Sexual Abuse?

Children in family foster care have the right to participate in decisions regarding their life, however, adults often advocate on behalf of children. This Q methodological study explored whether shared perspectives among foster parents and care workers resemble shared perspectives of youth regarding the psychosocial needs experienced by youth with a history of sexual abuse. Participants sorted a set of statement cards according to what they thought was most important for youth. By-person factor analyses examined how the Q sorts of foster parents and care workers related to those of youth. The results showed that foster parents mostly recognized the group of youth who value an instrumental relationship with their carers, while care workers mostly recognized the group of youth who value support of both foster and birth parents with regard to their preparation for independent living. The two youth groups characterized by ambivalence and autonomy were barely recognized. Results are discussed in light of the expected roles of foster parents and care workers, and youth’s contact with birth parents. Lastly, this study highlights the importance of youth participation, because youth offer unique and varying perspectives about their needs.     

Understanding Food Insecurity Among Latino Immigrant Families in Rural America

Using ecological theory, this study investigated how low-income rural Latino immigrant families succeeded or failed to meet their food needs over time. Interviews with ten families purposively selected to represent consistently food secure, fragile, and consistently food insecure groups were intensively analyzed using a case study approach. Achieving and maintaining food security was a complicated task and a constant struggle for families. Success or failure was influenced by factors at multiple ecological levels including family characteristics, access to social networks and community support, and the local economy. These findings can inform practitioners and policymakers seeking to identify strategies and policies that will support Latino immigrant families as they work toward improving their well-being.     

Sudanese and Somali Refugees in Canada: Social Support Needs and Preferences

The aim of the study was to identify the unique support needs and preferences of African refugees in Canada. In‐depth interviews were conducted with Sudanese and Somali refugees (n=68) living in two cities in central and western Canada. Refugees were interviewed individually to identify their support needs, current sources of support, available support programmes, barriers to access to support resources, and preferred support interventions. These refugees reported major support needs, depleted social networks, and barriers to accessing services and supports. They identified distinct preferences for support from peers from the same country of origin and professionals. Participants wanted group‐level support supplemented by one‐to‐one support. Transportation, child care, meals, and peers matched by language and gender were recommended to enhance accessibility to support programmes. These findings can inform the design of support intervention research and enhance the relevance and supportiveness of services and programmes for recent refugees.     

Use of vehicles with client groups

Conclusion In analyzing the group's behavior in the vehicle one needs to determine whether the behavior is obstreperous and aggressive or whether it is excessive energy and enthusiasm stimulated by the anticipated activity. If the worker determines that the group's hyperactivity is due to enthusiasm and delight over the anticipated pleasure, he may interpret to the group his awareness of their delight and enthusiams and support it. At the same time that he indicates his awareness of their impatience in not getting into the activity soon enough, the worker needs to help the group realize the danger potentials in their behavior and the need to maintain safety. Group members often have persecutional interpretations of regulations and rules (Redl & Wineman, 1957, p. 117). However, group workers need to help members acquire more realism about behavior that is appropriate in a vehicle.     

Meaning of Home in Later Life as a Concept to Understand Older Adults’ Housing Needs: Results from the 7 Age-Friendly Cities Pilot Project in Québec

To support older adults’ desire to age in place, their housing needs must be well understood. However, little research has explored housing needs from older adults’ point of view. This article, based on the results of 49 focus groups (n = 392) and one case study from the Age-Friendly Cities Project in Québec, Canada, uses the concept of meaning of home in later life to explore older adults’ housing needs. An overview presents how older adults express meaning of home and what their needs are regarding housing and relocation. Finally, the implications for decision makers and stakeholders are discussed.     

Psychoeducational Model for Caregivers of Persons with AIDS

ABSTRACT

For every individual infected with the HIV virus, there is a group of friends, family and loved ones who are affected by the disease. Although support groups for these caregivers have begun to develop throughout the country, there is a paucity of research examining the effectiveness of these groups in relieving the stresses experienced by this hidden population. A review of the literature on caregiver groups of other chronically ill family members indicate that both education and support are necessary ingredients in effecting change. The authors propose a practice framework which integrates the determinants of burden, the stage of illness and the stage of mourning in assessing the differential needs of the caregiver for support and education. Implications for further research in this area are discussed. Finally, the authors delineate the usefulness of the model not only in assessing the stresses experienced by the individual caregiver but in developing and implementing a psychoeducational group.     

Coming to terms with sexual abuse: a day care perspective

SUMMARY. Pre-five establishments are increasingly identifying or having to admit children who have suffered from sexual abuse. The feelings that sexual abuse arouse in staff., their need for support and praise in managing the children's needs, the angry and abusive parents and families, and the conflict between the various agencies in child protection requires some consideration. This article offers an insight into a group of nursery workers' efforts to come to terms with identifying abuse, understanding their right to express feelings and acknowledge anger and disgust and their attempt to integrate a preventive approach in the nursery curriculum