‘Chocolate … makes you autism’: impairment,disability and childhood identities

This paper discusses perceptions and experiences of impairment and disability from the perspectives of learning disabled children, their parents and their social workers. The author reports on findings from her doctoral study that adults often fail to take into account the views and experiences of learning disabled children. As a result, these children developed their own interpretations of impairment and disability based on their experiences and interactions with others. Whilst this indicates that they are active social interpreters, it also suggests that adults should make greater efforts to inform and consult learning disabled children. The author concludes by reflecting on the relevance of these findings to contemporary theories of disability and childhood.     

Managing turning points and transitions in childhood and parenthood – insights from families with disabled children in Norway

This article explores turning points and transitions emerging in the life course of children with disabilities and their parents. Through in‐depth interviews with parents we found that a change appears in disabled children’s social participation and belonging, at approximately eight years of age for children with learning difficulties and at approximately ten years of age for children with mobility difficulties. Most of the parents experienced a ‘turning point’ that directed them into either marginal or inclusive positions in adulthood. The ‘transition’ emerges at a time described as a stable period of life for families in general and illustrates parents’ experiences of the importance of both ‘doing’ and ‘being’ in parenthood and childhood. Parents’ experiences are strongly interwoven with the child’s life and access or lack of access to services and relational responses.     

Adults with cystic fibrosis and barriers to employment

Existing research on cystic fibrosis (CF) tends to view CF as a long‐term medical condition of childhood, thus reinforcing the mistaken view that few children with CF survive into adulthood. Despite the fact that people with CF are increasingly living into older age there has been little research into the employment of adults with CF. Those studies which have been undertaken portray CF as a ‘serious illness’ which causes employment problems. In contrast, this paper discusses findings from a study which explored the employment experiences of adults with CF from a social model perspective. The findings reveal barriers to employment which are similar to those experienced by other disabled people, as well as barriers related to the ‘impairment effects’ of CF. The authors conclude that adults with CF have valuable perspectives to contribute to social model analysis and the development of employment‐related policy solutions.     

‘I’m not really sure but I hope it’s better’: early thoughts of parents and carers in a regional trial site for the Australian National Disability Insurance Scheme

The National Disability Insurance Scheme (NDIS) is one of the most significant initiatives in Australian social policy history. Its complexity has been compounded by a fast-paced introduction and ongoing refinement throughout the initial trial phase. Parents and carers of very young disabled children face particular challenges accessing and navigating NDIS systems. This article presents findings from a mixed-method pilot study examining the perspectives of parents and carers of disabled children in one NDIS trial site – the Hunter Region of New South Wales. The research highlights a number of policy assumptions potentially impacting on NDIS take up for young disabled children and their families in regional contexts. Based on research findings a number of policy suggestions and improvements for disabled children and their families entering the NDIS and other individualised funding schemes are outlined.     

Short Break and Respite Services for Disabled Children in England: Comparing Children's and Parents' Perspectives of Their Impact on Children

Researchers, health and social care workers often seek to understand the perspectives of children; but gathering views directly from children can present difficulties. Parents are often asked to provide accounts of children's feelings or opinions on the assumption that their proxy reports are accurate and unproblematic. This qualitative thematic analysis of open‐question responses from 352 parents and 73 disabled children examines their accounts of the impact of short break services on disabled children. Participants' perspectives differed; children tended to describe immediate outcomes such as enjoying activities and participation; parents acknowledged these, but focused on longer term developmental outcomes for children.     

Emancipating play: dis/abled children,development and deconstruction

This paper reflects critically on the meaning of play, especially as it relates to disabled children and their experiences. We explore the close alliance of play to cognitive and social development, particularly in the case of psychologies of development, and reveal a dominant discourse of the disabled child as a non‐playing object that requires professional therapeutic intervention. We argue that this pathologisation of play on the part of disabled children is closely tied to normalisation of childhood, in which non‐normal bodies are increasingly expected to be governed and corrected not only by professionals but also by parents/carers. In order to rescue more enabling visions of the disabled child and their play we turn to three perspectives – the new sociology of childhood; social oppression theories of disability; critical developmental psychology. These resources, we suggest, allow us to reconfigure what we mean by play and disability in a contemporary climate that celebrates competition and marketisation over the intrinsic potentialities of all children. We argue that how we conceive play will per se undermine or promote forms of inclusive research, policy and practice.     

“I'm Not Going to Leave Her High and Dry”: Young Adult Support to Parents during the Transition to Adulthood

The transition to adulthood is a critical time in the life course, and the role of parental support during the transition has been one of the most prominent discussions in this literature. Yet while research has focused attention on the support passed from parents to young adult children during the transition, it has generally ignored the support that young adults may provide their parents. Utilizing qualitative interviews, this article explores the types of support one group of young adult children provide to their families during this time in the life course. It then examines how this assistance to parents intersects with young adults' ability to meet their own social and human capital goals.     

Negotiating identities: the lives of Pakistani and Bangladeshi young disabled people

Research has generally amalgamated minority ethnic (all called 'Asian' or 'black') disabled young people's experiences and failed to acknowledge the multiple aspects of Asian and black disabled identities, for example how the combined attributes of race, ethnicity, religion, gender, culture, class and disability shape their perspectives and experiences. In an attempt to address this issue my doctoral research explored the experiences and perspectives of 13 young Pakistani and Bangladeshi disabled people. By drawing on the substantive and theoretical findings which emerged from my analysis in this paper I shall consider how multiple aspects of identity, such as ethnicity, disability and gender, affect this population's identity and self-image and how this makes their experiences different from white disabled young people and other minority groups' experiences.     

Giving (Money) Back To Parents: Racial/Ethnic and Immigrant–Native Variation in Monetary Exchanges During the Transition to Adulthood

Scholars consistently find that parents provide economic support to their young adult children through the transition to adulthood. However, scholars rarely examine whether young adults contribute monetary resources to their parents. To test this proposition, I use the National Longitudinal Study of Adolescent to Adult Health, and the case of “money for living expenses.” Overall, monetary independence is the modal category for all groups. However, when I compare across groups, I find that White young adults with native-born parentage are more likely to report monetary independence, African Americans are more likely to report monetary interdependence and Asian and Latino children of immigrants are more likely to report child-to-parent assistance compared to each other, with SES explaining most, but not all, of these differences. I argue that young adult offspring in non-White families are more likely to provide monetary support to their parents during the transition to adulthood. These transfers may deplete resources for non-White young adults and may exacerbate racial/ethnic inequality during the transition to adulthood.     

PARENTAL INFLUENCE ON GENDER AND MARITAL ROLE ATTITUDES: IMPLICATIONS FOR INTERVENTION

This study examined parental influence on specific attitudes toward marital and parental roles and nonspecific gender-role attitudes. Respondents included 173 young adults (127 women and 46 men) and their parents. Young adults' scores on the Role Orientation scale of the Marital Statisfaction Inventory and on masculinity and femininity scales from two self-report inventories (the MMPI-2 and the Personal Attributes Questionnarie) were correlated with their parents' scores on a subset of these same measures. Results indicated that (a) marital and parental role attitudes among young adults are strongly related to specific marital role attitudes of their parents but only modestly related (for women) or unrelated (for men) to nonspecific gender-role attitudes of their parents; (b) broader gender-role attitudes of young men are moderately correlated with their father's attitudes but generally uncorrelated with their mother's attitudes regarding gender roles; and (c) the relationship of young women's gender-role attitudes to both maternal and paternal attitudes is generally weaker and more complex than for young men. Clinical implications of these findings for assessment and intervention with distressed couples are discussed.     

Working With Parents of Gender-Variant Children: Using Social Action as an Emancipatory Research Framework

This article examines and reflects on the methodology used in a research project that involved group work activities with parents of gender-variant children. Gender variance in children remains a topic people talk little about. Discussions about people who express themselves differently from the social norms attached to their birth sex, to a large extent, remain rarely discussed. They challenge a society organized largely on the basis of a binary understanding of identity, one that belongs to either male or female. This article discusses the concept of oppression as being central to the experiences of gender-variant children and young people and their parents, and it proposes social action research as a compatible and appropriate research framework for exploring their experiences. We describe the research process, identify its achievements, and explore issues that had to be confronted. We suggest that traditional research structures may benefit from being revisited in order to allow emancipatory research to more fully achieve its potential for both research and social action.     

Social capital and leaving the nest: Channels and housing tenures

Young adults in Europe sometimes have trouble moving away from their parents and obtaining a home of their own, which is considered an important step in the transition to adulthood. This paper investigates whether nest-leaving is affected by individual social capital and parental economic capital. The paper also examines how these resources are related to the type of housing tenure obtained and whether the housing was acquired through informal channels. In addition, the paper assesses whether differences in access and returns to social capital can explain the later nest-leaving of the children of immigrants. The study uses a Swedish two-wave panel survey of young adults aged between 19 and 22. Individual social capital is operationalized as an extensive social network measured with the position generator, while parental economic capital is estimated with registered disposable income. The results show that individual social capital is positively related to prospective nest-leaving, but parental income is not. Nevertheless, both individual social capital and parental economic capital are related to the obtained housing tenure type: social capital is linked to informal ‘second-hand’ rental agreements often acquired through contacts, whereas having high-income parents is linked to obtaining owned housing tenure. The children of immigrants are found to be more likely to live with their parents, but this is not explained by lower access or return to social capital.     

CHANGE, DISENGAGEMENT, AND RENEWAL: RELATIONSHIP DYNAMICS BETWEEN YOUNG ADULTS AND THEIR FATHERS AFTER DIVORCE

Little is known about children's perceptions of their parents' divorce or how children construct meaning around the divorce and their subsequent relationships with their parent. The focus of this was to learn about the experiences and the meanings young adults had constructed about the divorce process and their relationships with their fathers in the years after the divorce. The findings revealed a broad spectrum of experiences and several key issues that gave meaning to both the disengagement and the reengagement with their fathers. Loss, acceptance, availability, and support are a few of the vital issues addressed. Implications for family therapists are discussed.     

Physically disabled women and sexual identity: a PhotoVoice study

The issue of sexuality for young disabled women is not often talked about in society. Our study aimed to explore four young physically disabled women’s experiences and perspectives regarding sexuality and disability. We used PhotoVoice, a participatory action research method which uses photographs, to capture and convey our participants’ concerns. Through their photographs they showed that everyday interactions with others, particularly strangers or meeting people for the first time, were made difficult by how they were always seen as having a disability. Other parts of their identity were not recognised. The change the young women wanted was for people to see them as young women and not just as disabled.     

Being trusted: The perspectives of trusted adults about engaging with young people

Trusted adults outside the home often play an important role in young people's lives, providing motivational, emotional and practical support as young people navigate the social and economic transitions of young adulthood. Their support is developmentally appropriate as they often treat young people as adults, as they are guiding them towards that status. Yet knowledge of trusted adult relationships is largely drawn from the perspectives of young people. How do trusted adults themselves experience the relationship?Drawing on a broader study of young people's social and economic engagement during adolescence to adulthood, this paper explores the perspectives of 23 trusted adults, including those in family/friend, paid professional and community roles. It looks at how trusted adults' accounts of the relationship compare with young people's accounts. It examines some subtleties trusted adults experience in the relationship, related to their perception of their role and the roles of others, the impermanence of the relationship and personal–professional boundaries. It draws policy and practice implications regarding how to support both trusted adults and young people in the relationships they share.     

Disadvantage and Discrimination Compounded: the experience of Pakistani and Bangladeshi parents of disabled children in the UK

This paper discusses a qualitative and quantitative study of the circumstances of 20 Pakistani and Bangladeshi families with one or more severely disabled children living in Birmingham, England. Parents and other adult carers were interviewed using a combination of structured questionnaires and a semi-structured interview schedule focusing on the families' material circumstances, their use of formal services, informal care arrangements, and aspects of the parents' social and psychological well-being. The study suggests that previous national surveys of disabled families may have under-estimated the extent of material disadvantage, while it confirms that health and social care professionals should not assume that Pakistani and Bangladeshi parents have recourse to high levels of extended family support. The combination of disadvantaged circumstances and difficulties in securing access to appropriate services, which are found for the majority of families with a disabled child, was particularly acute for these ethnic minority families, suggesting the additional dimension of institutional racism.     

Emotionally Focused Family Therapy and Play Therapy for Young Children Whose Parents Are Divorced

ABSTRACT

Divorce is common and can pose risks to those involved. Although divorce affects all parts of the family system, young children face extraneous challenges due to their unique developmental stage and limited cognitive ability. Emotionally focused family therapy (EFFT) works to enhance attachment bonds by restructuring a family’s negative interaction cycle and can be useful for repairing relationships between parents and their children who are suffering negative effects of parental divorce. Whereas adults have the skills to express themselves verbally, young children often use imaginary play to convey their emotional experiences and unmet attachment needs. By using play therapy techniques within an EFFT framework, adults and children can better communicate their perspectives concerning difficult life events such as parental divorce.     

Exploring narratives of education: disabled young people’s experiences of educational institutions in Ghana

Disabled young people in many low and middle-income countries experience significant levels of educational exclusion due to disabling social and physical environments and are more likely to be illiterate than their non-disabled peers. Most social sciences and development literature, however, tends to homogenise the educational trajectories of disabled young people and focuses predominantly on the perspectives of educationalists, development experts and carers in assessing educational needs and institutions. Consequently, the experiences of young people across multiple categories of social difference, and their agency in shaping their own educational trajectories, remain largely unknown. This article contributes to filling this gap by exploring the educational narratives of young people with different impairments in mainstream, special and integrated schools in Ghana. The article shows how exploring individual narratives provides new insights into the educational needs of and ‘appropriate’ education for disabled young people in the Global South.     

Negotiating with Gatekeepers in Research with Disadvantaged Children: A Case Study of Children of Mothers with Intellectual Disability

Child‐oriented researchers have long recognised children's right to be heard in research about their lives and, as experts about childhood, their perspectives should inform social policy and research. While it is encouraging that more children are consulted about matters of importance to them, some children's voices remain silenced. When researchers have to liaise with adults, such as parents and social workers, to recruit children, these adults make decisions about who participates. An account of recruiting children of mothers with intellectual disability, a potentially disadvantaged group, is presented. The reasons for gatekeeping and the implications of this are explored.     

Managing moods and parenting: Perspectives of former system youth who struggle with emotional challenges

Young adults who were served in public systems of care as children are much more likely than their peers to be parenting in adolescence and young adulthood. They are also more likely than their counterparts to have a history of mental health problems. This study examined the perspectives of young adult parents with mood problems who had been involved in public systems of care before age 18. Qualitative interviews with twenty-eight participants were analyzed to examine the experience of managing moods and parenting. Young parents described how their symptoms impact their parenting and how parenting impacts their coping. They also described the strengths and challenges of using mental health services while parenting. Findings highlight the need to provide interventions that include supports for both parenting and symptom management and for providers to include both tangible and emotional support in their interventions.