Technically disabled,ill for all practical purposes? Myalgic encephalopathy/chronic fatigue syndrome discourse in Norway

After decades of activism, theorization, and model building, disability remains an undesirable marker of individual identity. Under-reporting of disability on a global scale is at least partly attributable to the stigma attached to disabled identity. Another cause, however, may be the lack of fit between the concept and discourse of disability as they evolve in a political, legislative, and organizational context, and the discourse in which everyday experiences as a disabled person are treated. The article examines discourse about myalgic encephalopathy and chronic fatigue syndrome from the Norwegian public sphere, and discusses the relationship between disability, chronic illness, and identity.     

(Re)Seeing Black girls: intersections of liberalism,difference, and the hidden curriculum

This article analyses the race and gender norms embedded in the verbal and visual discourse at an internationally acclaimed secondary magnet school in Philadelphia. While scholars have documented the visual learning of adolescents and elementary school-aged youth of colour extensively, few have focused exclusively on the nature of visual learning for young Black women in and around urban schools. The nature of looking and the visual is a highly contested and political process in the twenty-first century urban context. Images saturate the cityscape; these images teach. Thus this article examines the specific lessons related to race, gender, and place young Black women learn from the school adults who shape the visual culture of their school environment. Based on an ethnographic, photographic and discourse analysis study, this article argues that even in the context of an award-winning, progressive, liberal-minded school culture, young working class Black women are often softly encouraged to change and or are re-programmed into more palatable, commodifiable versions of themselves that both sustain and advance the school’s identity as different. This ‘re-programming’ often requires young Black women to alter their dress, speech, and physical demeanour in order to find belonging in a larger school culture dominated by a discourse of inclusivity and diversity.     

A 3-D model of health decline: disease, disability, and depression among Black and White older adults

Much of the research on health decline in older adulthood has specified a single causal direction between two health domains, often measured at the same time point, making it difficult to disentangle the mechanisms of health decline over time. Using three waves of data over seven years from older residents of North Carolina, a 3-D model is used to examine the temporal ordering of general health decline and the pathways of influence across three health domains (disease, disability, and depression). In addition, we test whether the 3-D model of health decline is similar for Black and White older adults. Results indicate that both prevalent and incident disease lead to increases in depression and that prevalent disease leads to greater disability three years later. Depression, in turn, leads to disease, identifying a cycle of health decline that is, for the most part, similar for Black and White older adults. The effect of widowhood is more deleterious to the health of Black older adults than for their White counterparts.     

Predictors of Family Support and Well-Being Among Black and Latina/o Sexual Minorities

ABSTRACT

Sexual minorities are receiving an increasing amount of attention within sociological research on families. However, much of the existing work on these families has been limited to largely White, middle-class, and highly educated individuals. Using national data from the Social Justice Sexuality Project, this study fills a much-needed gap by exploring predictors of family support and the relationship between family support and well-being among Black and Latina/o sexual minorities. We find that sexual identity, how out one is to one's family, and relationship status predict levels of family support. In addition, we find that among Black and Latina/o individuals, family support is an important factor influencing health and well-being. Other social statuses such as gender identity, sexual identity, and relationship status are associated with happiness and self-rated health as well. Our work suggests that sexual minorities of color have unique family dynamics that should be studied from an intersectional perspective. Further investigation into the family dynamics of sexual minorities of color should pay particular attention to individuals' positionality within systems of gender, racial, and sexual identity disadvantage to help understand their health and well-being.     

Conditional Inclusion: Sexual Minorities,Tolerance, and Nationalism

This article discusses how the approach towards sexual minorities has shifted from exclusion to inclusion between the mid-1980s and the present, and explores how the view that Japan is more tolerant of sexual minorities than the USA and Europe actually limits discussions on citizenship. An examination of the AIDS crisis and the Fuchu Youth Center court case in the 1980s and 1990s shows that gay men were regarded as a threat to national identity, seen to endanger Japan and whose sexuality was deemed to be unintelligible. In a word, their citizenship was denied. In the 2010s the ruling Liberal Democratic party issued a report on sexual orientation and gender identity (SOGI) issues, which examined measures aimed at achieving equality for those who suffer from SOGI discrimination. While sexual minorities became an object of inclusion, only partial and circumscribed citizenship was granted. Although the report ostensibly aims to promote SOGI diversity, it relegates the existence of minorities to the private sphere, and limits diversity by demanding the acceptance of a “tolerant culture” predicated on heterosexism and gender norms. By positioning their diversity effort in Japan's “tolerant traditional culture,” the party inadvertently incorporates nationalism and renders it central to their approach towards SOGI diversity. This article concludes that the discourse that the Japanese state is tolerant of sexual minorities undermines the recognition of sexual minorities’ citizenship.     

Disability as a Phenomenon: a discourse of social and biological understanding

This paper addresses conceptualisations of disability and what it constitutes as a category in a social security system. It argues that the conceptualisation of disability involves a discourse about definitions. This means it is an ongoing debate about principles or which determinators to use presenting the 'correct' understanding of disability as a phenomenon. The disability discourse involves a contest between a biological and social understanding of disability. This paper discusses which domains of interest are produced by each of these understandings. They are based on empirical findings when analysing rights of entitlement to a disability programme in the Swedish social security system. The study followed documentation of the public debates for a period of 25 years and extracted what was communicated as constituting disability in these debates. Which definition to give disability by this social security programme appeared as being a continuous contest between medical and social understanding. The paper argues that, rather than approaching the biological understanding as representing an antiquated concept to disability and the social model as a modern conceptualisation, these understandings are competitive. This makes disability into a flexible and heterogeneous concept, a term difficult to give a specified and limited meaning.     

Keys That Jingle and Fold: Federal Student Aid and the Expansion of Educational Opportunity for Black Women

Since the mid-20th century, the United States has seen a dramatic increase in Black women’s educational attainment. Given Black women’s status as “double minorities” and their disproportionate representation among low-income Americans, this trend has important implications for equal opportunity in the United States. While scholars recognize higher education as a central determinant of socioeconomic well-being and political engagement, we have yet to consider the role that federal higher education policies have played in expanding Black women’s access to college degrees. This article examines the extent to which student aid programs have supported Black women’s educational pursuits and influenced their educational attainment. I find that financial aid usage is associated with greater educational attainment and is perceived by Black women as significantly expanding educational opportunity.     

Reproductive genetics,gender and the body: 'please doctor,may I have a normal baby?'

This paper's purpose is to highlight key sociological issues, that come to light when 'the body' becomes a theoretical site in reproductive genetics. By positioning the body as a central feature in this analysis, the paper: (1) describes how a mechanistic view of the body continues to be privileged in this discourse and the effects of this view; (2) examines how reproductive limits are practised on the gendered body through a feminised regime of reproductive asceticism and the discourse on shame; and (3) explores the social effects and limitations of reproductive genetics in relation to disability as a cultural representation of impaired bodies. The central assumption concerning reproductive genetics are that it appears within surveillance medicine as a part of a disciplinary process in society's creation of a genetic moral order, that it is mobilised by experts for the management of reproductive bodies and that it constructs a limited view of the body. Thus, the way reproductive genetics operatives tends to hide the fact that what may appear as 'defective genes' is a result of a body's interaction not only with the environment but also gendered social practices valorised by difference as well as rigid definitions of health and illness. The research is from a 1995-96 European study of experts interviewed in four countries.     

Exclusion of HIV-positive people with disabilities in the media

This current issue piece aims to address the harmful exclusion of people with disabilities in the Iranian media. In a case study, this author collected news related to statistics of HIV-positive people covered by popular news websites written in the Persian language between June 2011 and June 2012. Within the analysed electronic texts, no reference was made to the number of HIV-positive people with disabilities. Under the rubric of critical discourse analysis, one can argue that this lack of representation may also be linked to a more general level of discourse that constitutes the marginalization of people with disabilities. This damaging exclusion both legitimizes and reproduces the ideology that people with disabilities are social minorities who can be excluded to the benefit of powerful people. This current issue piece also discusses the potential negative consequences of excluding HIV-positive people with disabilities from the discourse of HIV/AIDS in the media. Ultimately, the conceivable reasons for the Iranian government failure or refusal to publish the statistics of HIV-positive people with disabilities will be provided. Studies from various countries could shed more light on the exclusion of HIV-positive people with disabilities in the media and the interplay between HIV/AIDS and disability issues.     

Psychiatrist–consumer relationships in US public mental health care: consumers’ views of a disability system

The US public mental health system is a disability system. By this is meant that public programs for people with mental illness serve consumers who are seriously and chronically ill, functionally disabled and eligible for benefits by virtue of their disability. This study explores, through focus groups and qualitative data analysis, the perceptions of these consumers of their relationships with public sector psychiatrists. Thematic analysis finds relationships of three types – compliance, collaboration and contention – and constituent sub‐themes that specify these further. Issues of poverty and powerlessness arise in every category, but especially in contentious relationships. Although the converse is widely believed to be true, this paper argues that the economic and political empowerment of people with psychiatric disabilities is vital to the success of their clinical care     

Private Tragedy in Social Context? Reflections on Disability,Illness and Suffering

This article reviews aspects of the debate about the contested divide between disability and illness. It considers this divide in the context of three main themes: political efficacy; contradictions between the project of accommodation and that of cure; and Western cultural concerns with bodily control. It suggests that attempts to specify a distinction between disability and illness simply shift the boundaries of social and conceptual exclusion. Chronically sick people remain stigmatised, with their strengths unrecognised and measures to improve their lives unformulated. While acknowledging the serious difficulties involved, the article argues for a more inclusive and diverse movement, which can encompass those whose suffering is resistant to social accommodation.     

Between butch/femme: On the performance of race,gender, and sexuality in a YouTube web series

Drawing on a legacy of Black television and film production, Black web series remediate earlier media forms in order to usher in a twenty-first-century revival of indie Black cultural production. Specifically, video sharing and social media platforms operate as a sphere in which content creators and users are afforded unique opportunities to engage with video content and each other on a variety of levels. Focusing on the YouTube media sphere, one can also observe the myriad ways in which the performance of race, gender, and sexuality influences the types of discourse that circulate within these sites. In watching and analyzing Black queer web series on YouTube, I examine how the performance of gender and sexuality by Black queer women within and outside of web series are policed and protected by both community insiders and outsiders. Utilizing an ethnographic framework, which includes a critical discourse analysis of the YouTube comments for the series Between Women, as well as a textual analysis of series content, this project draws conclusions about the role that the politics of pleasure, performance, and the public sphere play in the recognition and/or refusal of queer sexuality within Black communities.     

Commonality and Difference in the Movement: an 'Association of Blind Asians' in Leeds

Qualitative research with a group of blind Asian people in Leeds indicated that issues of 'difference' were perceived as more important in mobilising disabled people at a local level than the issues of 'commonality' which characterise the international disability movement. Respondents identified more strongly with their experience of specific impairment and specific cultural identity than with their common experience of disablement. It is argued that such issues are common to other social movements and that the disability movement can learn much from the histories of Black people's movements and the women's movement. In building a successful movement at a local, national and international level, disability alliances will need to challenge racist stereotypes about Black disabled people and their families. They will need to support Black-led groups which organise separately while, at the same time, creating more enabling environments for Black people to participate more fully.     

Schizophrenia in older adults

Although the number of people older than 55 with schizophrenia is expected to double during the next 20 years, the research data on older adults with schizophrenia are limited. This appears to be because until the middle of the 20th century, it was assumed that mental illness in older adults was a part of the aging process and because older adults are often excluded from research investigations. Nursing research is needed to explore how people with schizophrenia learn to manage their problems as they age, as well as how those who are first diagnosed with schizophrenia in later life adapt to their illness. Mental health nurses need to be cautious in assigning premature labels to older adults with mental illness that may lead to unsubstantiated assumptions about levels of disability. Instead, nurses should realize individual potential regarding undiscovered strengths and should attempt to create interventions that recognize and foster personal development for older adults with schizophrenia.     

Pretending to be a normal human being: Peep Show,sitcom, and the momentary invocation of disability

This interdisciplinary article presents research about the place of disability in the British sitcom Peep Show, whose 54 episodes span more than a decade in their transmission (2003–2015). The methodology of critical discourse analysis is employed to probe the relationship between casual word choice and broader themes such as normalcy, humour, and social attitudes. This analysis is informed by classic and new work in cultural disability studies, as well as by work in literary studies and television studies. The conclusion is that, despite its apparent irrelevance to disability studies, Peep Show reveals much about conversational invocations of disability.     

Intersectionality and Black Women’s Health: Making Room for Rurality

Black women have poorer health compared to their White counterparts in a range of health outcomes, including breast cancer, diabetes, HIV/AIDS, and heart disease. The health disparities literature has largely treated women as a monolithic group, assuming that health practices and treatments are equally applicable and effective for all women. This approach, which places too much emphasis on gender, risks masking the unique experiences of various women based on other social categories. This article argues that in order to advance Black women’s health, an intersectionality approach should be incorporated into health research and practice. This approach, however, should go beyond the usual intersection of race and gender to include rurality. The article builds this argument on the fact that Black women living in rural areas have unique experiences that intersect with their gender, race, and class status. Benefits for embracing the intersectionality approach are discussed.     

Relational Autonomy in Assisted Living: A Focus on Diverse Care Settings for Older Adults

Consistent with Western cultural values, the traditional liberal theory of autonomy, which places emphasis on self-determination, liberty of choice, and freedom from interference by others, has been a leading principle in health care discourse for several decades. In context to aging, chronic illness, disability, and long-term care, increasingly there has been a call for a relational conception of autonomy that acknowledges issues of dependency, interdependence, and care relationships. Although autonomy is a core philosophy of assisted living (AL) and a growing number of studies focus on this issue, theory development in this area is lagging and little research has considered race, class, or cultural differences, despite the growing diversity of AL. We present a conceptual model of autonomy in AL based on over a decade of research conducted in diverse facility settings. This relational model provides an important conceptual lens for understanding the dynamic linkages between varieties of factors at multiple levels of social structure that shape residents' ability to maintain a sense of autonomy in this often socially challenging care environment. Social and institutional change, which is ongoing, as well as the multiple and ever-changing cultural contexts within which residents are embedded, are important factors that shape residents' experiences over time and impact resident-facility fit and residents' ability to age in place.     

Disability activisms: social model stalwarts and biological citizens

The Disabled People’s Movement (DPM) in the UK rejects the view that disability is an illness. For the DPM it is the social processes of discrimination and oppression that create the material circumstances out of which solidarity and politicisation arise. The DPM has also been shy about impairment, arguing that it is generally irrelevant to the issue of disability and that a clear distinction between impairment and disability is necessary if disability is to be understood as a basis for identity politics. The biological citizens that support embodied health movements use impairment, genetic status, biomedical diagnosis and classification as calling cards that signal their claims to identity. Whilst the DPM has challenged medical hegemony and scientific ideas, many ‘biosocial’ groups embrace the specialised medical and scientific knowledge associated with their ‘condition’, particularly where it might be used to enhance their claims to citizenship. This paper argues that disability activism in the UK is bifurcating. It addresses the difference in perspective and action between the ‘social model stalwarts’ of the DPM and biological citizens that organise politically around particular diagnostic labels.     

Nennu and Shunu: gender, body politics, and the beauty economy in China

This essay analyzes recent discourse on two emerging representations of women in China, "tender" women (nennu) and "ripe" women (shunu), in order to examine the relationships among gender, body politics, and consumerism. The discourse of nennu and shunu suggests that older, ripe women become younger and more tender by consuming fashions, cosmetic surgery technologies, and beauty and health care products and services because tender women represent the ideal active consumership that celebrates beauty, sexuality, and individuality. This discourse serves to enhance consumers' desire for beauty and health and to ensure the continued growth of China's beauty economy and consumer capitalism. Highlighting the role of the female body, feminine beauty, and feminine youth in developing consumerism, this discourse downplays the contributions of millions of beauty and health care providers (predominantly laid-off female workers and rural migrant women) and new forms of gender exploitation. Such an overemphasis on gender masks intensified class division. This essay suggests that women and their bodies become new terrains from which post-Mao China can draw its power and enact consumerism. Gender constitutes both an economic multiplier to boost China's consumer capitalism and a biopolitical strategy to regulate and remold women and their bodies into subjects that are identified with the state's political and economic objectives. Since consumerism has been incorporated into China's nation-building project, gender thus becomes a vital resource for both consumer capitalist development and nation building. This essay shows that both gender and the body are useful analytic categories for the study of postsocialism.     

One size fits all? The social construction of dis-employ-abled women

This article is based on an evaluation of a labour-market training programme for women with ‘mental health problems’ in a social workplace in Belgium. The research team explored the retrospective insider perspectives on the work aspirations of the women involved in the programme to identify critical dynamics in their high drop-out from the social workplace. The central findings provide evidence of a prevalent one-size-fits-all discourse in these practices wherein complex and interrelated processes of discrimination take place that are based on both disability and gender. The findings demonstrate that the social workplace functions as a male bastion, in which the oversized overalls that women are forced to wear are symbolically relevant. In conclusion, we discuss and challenge the dominance of the neo-liberal norm of economic productivity and employability.