A Critical Analysis of the Social Work Literature on Disabilities

Abstract

The principles of empowerment and demedicalization have been central to the formulations of rehabilitation and social service practices as well as case management, a core community support service provided to people with psychiatric disabilities. This study describes empowering and demedicalized practices in mental health case management. Semi-structured interviews were conducted with thirty leaders in the mental health consumer movement and five professionals. Twenty-five categories of such practices were developed and are presented. Findings have implications for both the nature of the interaction between case manager and client and for program structures, activities, and missions.     

A Contextual Analysis of Caregivers of Children With Disabilities

When a child is born with a disability, the caregiver's life is altered. With the numerous challenges caring for a child with disability brings, caregivers may feel devastated. These challenges often result in increased stress on the caregiver, which, in many cases, places the child at risk for maltreatment. The purpose of this study is to explore issues a caregiver faces when caring for his or her child. In this contextual analysis, seven caregivers of children with moderate-to-severe disabilities completed a questionnaire, were interviewed individually, and assisted the researcher in constructing an ecomap of their current living environment. Content from the interviews was analyzed and several themes developed from the data. Implications for clinical practice and future research ideas are discussed.     

The UNCRC and Social Workers' Relationships with Young Children

In the UK, The Munro Review of Child Protection (2010, 2011a, 2011b) has recently highlighted that among the failings in safeguarding children known to social services is the lack of meaningful relationships between social workers and children. In her final report, Munro (2011b) has made recommendations for a more child‐centred system anchored on two themes – the child's journey and the United Nations Convention on the Rights of the Child (UNCRC). This article illustrates by way of practical examples how the UNCRC, together with the detailed advice and guidance contained in the UNCRC general comments numbers 5, 7 and 12, provides the best framework for developing effective social work relationships with, and safeguarding, young children. Copyright © 2011 John Wiley & Sons, Ltd.

Citing Literature

Number of times cited according to CrossRef: 14

• Robert B Porter, Recording of Children and Young People’s Views in Contact Decision-Making, The British Journal of Social Work, 10.1093/bjsw/bcz115, 50 , 6, (1796-1815), (2019). Crossref
• Ercüment Erbay, Ertu?rul Hatipo?lu, Sosyal Hizmet Uzmanlar?n?n Gerçekle?tirdikleri Mesleki Uygulamalarda ve Ald?klar? Kararlarda Çocuklar?n Kat?l?m Hakk?n? Dikkate Alma Durumlar?, OPUS Uluslararas? Toplum Ara?t?rmalar? Dergisi, 10.26466/opus.538109, (2019). Crossref
• Cheryl McCormack, Marie Gibbons, Caroline McGregor, An Ecological Framework for Understanding and Improving Decision Making in Child Protection and Welfare Intake (Duty) Practices in the Republic of Ireland, Child Care in Practice, 10.1080/13575279.2019.1685464, (1-17), (2019). Crossref
• Paul McCafferty, Implementing Article 12 of the United Nations Convention on the Rights of the Child in Child Protection Decision-Making: a Critical Analysis of the Challenges and Opportunities for Social Work, Child Care in Practice, 10.1080/13575279.2016.1264368, 23 , 4, (327-341), (2017). Crossref
• Joe Duffy, Mary Collins, Sook Hyun Kim, Linking family engagement with a rights perspective: macro factors influencing practice, European Journal of Social Work, 10.1080/13691457.2016.1255925, 21 , 1, (45-60), (2016). Crossref
• Jo Dillon, Daz Greenop, Mel Hills, Participation in child protection: A small-scale qualitative study, Qualitative Social Work: Research and Practice, 10.1177/1473325015578946, 15 , 1, (70-85), (2015). Crossref
• Michele Cascardi, Cathy Brown, Svetlana Shpiegel, Ariel Alvarez, Where Have We Been and Where Are We Going? A Conceptual Framework for Child Advocacy, SAGE Open, 10.1177/2158244015576763, 5 , 1, (215824401557676), (2015). Crossref
• Karmen Toros, Michael C. LaSala, Marju Medar, Assessment of Children in Need in a Post-Soviet Context: Reflections of Child Protective Workers in Estonia, Journal of Family Social Work, 10.1080/10522158.2015.1065458, 18 , 4, (267-287), (2015). Crossref
• G.G. van Bijleveld, C.W.M. Dedding, J.F.G. Bunders-Aelen, Seeing eye to eye or not? Young people's and child protection workers' perspectives on children's participation within the Dutch child protection and welfare services, Children and Youth Services Review, 10.1016/j.childyouth.2014.09.018, 47 , (253-259), (2014). Crossref
• Julie Ridley, Cath Larkins, Nicola Farrelly, Shereen Hussein, Helen Austerberry, Jill Manthorpe, Nicky Stanley, Investing in the relationship: practitioners’ relationships with looked‐after children and care leavers in Social Work Practices, Child & Family Social Work, 10.1111/cfs.12109, 21 , 1, (55-64), (2013). Wiley Online Library
• Sara Johnsdotter, European Somali Children Dumped? On families, parents, and children in a transnational context, European Journal of Social Work, 10.1080/13691457.2013.844682, 18 , 1, (81-96), (2013). Crossref
• C. Larkins, J. Ridley, N. Farrelly, H. Austerberry, A. Bilson, S. Hussein, J. Manthorpe, N. Stanley, Children's, Young People's and Parents' Perspectives on Contact: Findings from the Evaluation of Social Work Practices, British Journal of Social Work, 10.1093/bjsw/bct135, 45 , 1, (296-312), (2013). Crossref
• Karmen Toros, Anne Tiko, Koidu Saia, Child-centered approach in the context of the assessment of children in need: Reflections of child protection workers in Estonia, Children and Youth Services Review, 10.1016/j.childyouth.2013.03.011, 35 , 6, (1015-1022), (2013). Crossref
• Jane V. Appleton, Peter Sidebotham, Making an Impact for Children, Child Abuse Review, 10.1002/car.1208, 20 , 6, (391-394), (2011). Wiley Online Library

Volume 20 , Issue 6 November/December 2011

Pages 395-406     

Inclusion of children with disabilities in mainstream child development research

This study investigated whether children with disabilities are excluded from mainstream child development research. Fifteen per cent of 533 articles from Child Development and Developmental Psychology (1996–2010) were randomly selected. The exclusion rate was 89.9% when no mention of participants with disabilities was interpreted as exclusion and 66.7% when only studies mentioning disabilities were surveyed; 74% of studies did not provide justification for exclusion. Most studies could have included children with disabilities. Inclusion could be increased by adopting universal design principles and accommodations so that more children with disabilities can gain equal access to research opportunities and the benefits that accrue.     

Mothers with Physical Disabilities Caring for Young Children

Seventy-one U.S. mothers with a physical disability who had a child aged 0 to 3 years responded to a survey about the system of care used for their child. Results indicated that mothers participated in all different types of care (physical, comforting, playing, limit setting, and taking the child outside the home). Partners and participants’ mothers provided the most assistance with care. Mothers were generally satisfied with assistance received from others. This article explores how mothers remain central to their children with others assisting with the child’s care and the impact of such assistance on mothers’ relationships with partners and children.     

Defining Coparenting for Social Work Practice: A Critical Interpretive Synthesis

Coparenting, referred to as “an enterprise undertaken by two or more adults working together to raise a child for whom they share responsibility,” is responsive to intervention, associated with multiple indicators of individual and family well-being, and applicable to diverse family structures. Because of a lack of conceptual clarity, however, and absence from social work publications, coparenting has not yet entered the purview of social work. In this review, the authors attempt to synthesize existing coparenting definitions into one that is conceptually clear and clinically useful for social work practice with families. Implications for social work practice and research are discussed.     

Social Return on Investment of an Innovative Employment Option for Persons with Developmental Disabilities

Common Ground Co‐operative (CGC) provides training, administrative, and job coach support to five social enterprises for which persons with developmental disabilities are the non‐share‐capital partners. This study examines the use of social return on investment (SROI) as a means of determining the value of program impacts related to quality‐of‐life changes for enterprise partners and their families. The process of conducting this SROI analysis is described and analyzed in terms of its utility in employment services for persons with developmental disabilities.     

Parenting Success and Challenges for Families of Children with Disabilities: An Ecological Systems Analysis

This article examines factors that are associated with parenting success for caregivers of children with disabilities using Bronfenbrenner's ecological systems framework. Although numerous studies have investigated risk factors for negative parenting among caregivers of children with disabilities, there are relatively few research findings on parenting success. More specifically, we examine factors for parenting success within the context of micro- (parenting practices, parent-child relations), meso- (caregivers' marital relations, religious social support), and macro-systems (cultural variations, racial and ethnic disparities, health care delivery system), which is then followed by implications for social work practice.     

Jordan's Principle and Indigenous Children with Disabilities in Canada: Jurisdiction,Advocacy, and Research

This article discusses Indigenous¹¹In this article, the terms Indigenous, First Nations, Aboriginal, and Treaty Indian are used interchangeably, and as needed to describe the political reality of the First Peoples of Canada. children with disabilities in Canada and examines their experiences with federal and provincial jurisdictional and funding disputes. It explores Canada's adversarial legal and policy techniques to delay implementation and funding of Jordan's Principle, a Canadian Human Rights Tribunal action seeking to address the delays, and the recommendations of a recent independent Canadian research project. Finally, it suggests ways to advance Jordan's Principle in Canada and elsewhere.     

Supporting the Well-Being of People with Mobility Disabilities Through Social Work Practice

ABSTRACT

The purpose of this insight generating study was to explore the viewpoints of people with mobility disabilities (PWMD) about ways for social workers to promote their well-being through social work practice. A qualitative participant action style methodology encouraged PWMD to voice their concerns and recommendations. Eighteen PWMD were interviewed, including nine consumers and nine social workers. Participants indicated from their experiences that social workers commonly are not sufficiently cognizant of the personal goals, perspectives, and health potentials of PWMD. Overall, they suggested that the social work practice approach for people with disabilities should become more holistic and proactive. Their recommendations are consistent with current ideas about best practice in the social work and disabilities literature and they reinforce the importance of making these ideas more widely practiced.     

Young Children of Parents with Substance Use Disorders (SUD): A Review of the Literature and Implications for Social Work Practice

SUMMARY

This article reviews the scientific literature that focuses on school-age children of parents with substance use disorder (SUD). The review examined the subjects, instruments, and results of 10 scientific studies published from 1985 to the present (2006). Generally, school-age children of parents with SUD demonstrated a variety of emotional, cognitive, behavioral, and social problems. Specifically, (a) children of drug users (CODs) were at higher risk than children of alcoholics (COAs) for psychopathology and functional impairments, and (b) Children of parents diagnosed as having SUDs (particularly alcohol), along with anti-social personality disorder (ASPD) showed more negative psychosocial outcomes than children whose parents did not have ASPD. Recommendations for future research and implications for social work practice are discussed.     

Open Road or Blind Alley? Welfare Reform, Mothers, and Children with Disabilities

Welfare reform was examined for 39 Michigan families whose children have significant health or intellectual and behavioral disabilities. As a group, these families received little specialized assistance or services to address their unique needs. Family-cited barriers to self-sufficiency included poorly trained welfare caseworkers, limited public transportation, and inadequate child care. Having an older child was the only discriminating variable between working and non-working mothers. However, working mothers only had temporary positions with no benefits and low pay. All families, whether employed or not, lived below the poverty line.     

Pioneering Health Care for Children with Disabilities: Untold Legacy of the 1916 Polio Epidemic in the United States

In 1916, the United States experienced its first polio epidemic, resulting in 6,000 deaths and 21,000 injured individuals. Medical practices were ill prepared to stop the disease and treat survivors. Historians have documented the creation of the polio vaccine during the 20th century, but less is written about efforts to provide rehabilitation services to children afflicted with polio. This research looked at Polio After-Care Committees, a new form of community practice that provided care to children with disabilities. The Committees worked to change community-level systems of care while providing medical care, demonstrating that new forms of community-based service organization could reach children.     

Ethnic Identity as a Protective Factor for Looked After and Adopted Children From Ethnic Minority Groups: A Critical Review of the Literature

The development of a strong ethnic identity has been considered to relate to psychological well-being. The aim of this article is to critically review the literature relating to ethnic identity and positive outcomes in looked after and adopted children from ethnic minority groups. A literature search of SCOPUS, PsycINFO, and Medline databases from 2000 to 2010 was conducted to identify qualifying published studies. Studies that pertained to ethnic identity development in children in relation to positive outcomes, adjustment, self-esteem, and psychological well-being were reviewed. Overall, evidence from the studies was mixed, with strong ethnic identity not always found to be indicative of improved psychological adjustment. Methodological limitations of the reviewed studies are discussed, and clinical implications and recommendations for future research are presented.     

Children and Families’ Involvement in Social Work Decision Making

This review summarises the research literature on children’s and parents’ involvement in social work decision making, which is regarded, in policy terms, as increasingly important. In practice, however, it tends to be messy, difficult and compromised. Different individuals or groups may have different understandings of participation and related concepts, while differences of age and disability also mediate effective user engagement. The literature highlights common themes in effective participatory practice with both children and their parents. Central to this are the establishment of relationships of trust and respect, clear communication and information and appropriate support to participate.     

我国残疾儿童学前教育相关政策分析

残疾儿童学前教育需要相关政策提供支持与保障.本文采用政策文献计量法,对我国残疾儿童学前教育相关政策进行分析发现,相关政策数量持续增长,并受五年规划影响波动.在颁布主体上,教育部、民政部、财政部、残联形成核心合作关系,同时呈现多部门协作的特点.横向结构上综合政策以及特殊教育、康复政策多,普通教育(含学前教育)政策少;纵向结构上以规范性文件为主.政策内容中康教比重、参与主体、安置形式及资金支持方式不断变化,体现出日益重视教育的特点,以及政府主导、多主体参与的局面.相关政策发展历程体现出从缺陷补偿到全面发展的教育观变迁、从单一主体到多元主体的管理观变迁以及从即时补缺向制度性普惠的支持观变迁.最后,提出夯实政策基础、增强部门合作、教康合力推进等发展我国残疾儿童学前教育的建议.     

A rights-based conceptual framework for the social inclusion of children and young persons with an intellectual disability

There is a basic principle that all children and young persons with intellectual disabilities should be able to enjoy citizenship on an equal basis with others. This includes enjoying personal dignity and exercising choice, control and freedom in social, community and cultural life, in keeping with their individual lifestyle preferences and aspirations. There is a need for a stronger human rights narrative to achieve this. This article identifies a conceptual framework for a rights-based approach to the integration of children and young persons with disabilities. Seven components of such a framework are identified: citizenship and social inclusion; recognition; agency; voice; capabilities; equality; and self-realisation. This framework was developed as part of an Irish case study involving consultation with young persons with intellectual disabilities, their parents or guardians and professional staff delivering support services. The rights of children/young persons with intellectual disabilities are essentially those of children generally. While this principle may be obvious in many respects, its implementation presents significant challenges. The need for a transformative narrative and its components are outlined.     

Beyond the Call: Mothers of Children with Developmental Disabilities Responding to Sexual Abuse

A qualitative, interdisciplinary study was undertaken to examine the experiences of mothers of children with developmental disabilities who were sexually abused. In-depth interviews were conducted with four mothers, their children, and the professionals involved with each case. The dual impact of caring for a child with a disability together with dealing with the aftermath of child sexual abuse, both personally and systemically, was considered. Individual professionals went out of their way to try to help, but, nonetheless, the abuse increased what was already a significant burden of care and further reinforced stigmatization, marginalization, and powerlessness. At the same time, the study painted a picture of committed and determined mothers who were devoted to their children.