‘A great job and a family’: work narratives and the work and family interaction

This article investigated how work narratives of dual-earner families are materially and symbolically configured in discourses of reconciliation of work and home life. Following critical studies of the work–family interaction, this research takes into consideration symbolic and social structures and tries to look into the interrelation of factors such as job resources, job satisfaction, levels of autonomy with the self-esteem and sense of ‘self’ which parents derive from their paid work. Hochschild's concept of ‘emotional culture’ is used to explore how parents' experience of work is intertwined to their occupational groups and how it is associated with different narratives of work–family interaction. This study is conducted through qualitative methods, using in-depth semi-structured interviews on a sample of 27 dual-earner families. The data collected are composed of in-depth accounts that are then examined through the method of narrative analysis. The data indicate that, for divergent occupational levels, work generates different material and symbolic resources, which account for divergent narratives of work and home. The sociological analysis of occupational levels with the associated emotional culture of work and family then provides an exploratory model for understanding the links between social class and work–family interaction.     

‘Some people are not allowed to love’: intimate citizenship in the lives of people labelled with intellectual disabilities

Disability helps us think differently about the ‘ideal’ neoliberal-able citizen who may not equate to ideas of productive, sexual, ‘normal’. Intimate citizenship – our rights and access to intimacy – is often ignored by those working with people labelled with intellectual disabilities and in research. In this article, we discuss the outcome of a dialogue between self-advocates labelled with intellectual disabilities, academics, service providers, Aboriginal leaders, students and artists about intimate citizenship through love, intimate work and consumption.     

‘The silence is roaring’: sterilization,reproductive rights and women with intellectual disabilities

This paper reviews the history of sterilization of women with intellectual disabilities, and considers its relevance to current practice regarding reproductive choice and futures. The paper provides an overview of published research on historical practices, focusing on the United Kingdom, the United States, Canada and the Nordic countries. Most of this research draws upon written records, centring on eugenics debates. However, emerging oral history testimonies gathered by the authors suggest that sterilization procedures were also conducted in the community, the result of private negotiations between parents and medical practitioners. The article presents these accounts and calls for an end to a ‘roaring silence’ on this issue. More empirical studies are needed to recover the experiences of women who have been sterilized and to explore how decisions about reproductive choice and capacity were made in the past and continue to be made today.     

‘The seal of approval’: referring adults with intellectual disabilities and challenging behaviour to community learning disability teams

This article describes a study that involved interviewing eight managers of residential services, who have made referrals to community learning disability teams (CLDTs) for challenging behaviour. Thematic analysis and a critical perspective are combined to analyse and interpret what referrers said about the process of the referral. The study found that managers referred people with intellectual disabilities to the CLDT primarily in order to manage organisational problems rather than to directly manage challenging behaviour. The referrals enlisted the services of professionals to legitimise the residential services, to confirm their practices and to provide credibility to existing decisions by managers. In referring a man or woman with intellectual disabilities to the CLDT, the managers submit themselves, their staff and the person with the intellectual disabilities to the power of the health and psy-complex professionals.     

‘Weightless?’: disrupting relations of power in/through photographic imagery of persons with intellectual disabilities

Missing in discussions of visual representations of people with intellectual disabilities are their own perspectives. Rooted in Derrida’s concern with the ‘right of inspection’ over visual representations, participatory arts-informed methodologies were used in research with people with intellectual disabilities. They critiqued and then used Photoshop to transform public photographs of labeled people. Responding to visual constructions of labeled persons as ‘weightless’/powerless, they revealed personal experiences of being denied control over their lives and representations. Yet their critiques and transformations reveal possibilities for their re-conceptualization as powerful, subverting stereotypes of labeled people and disrupting relations of power in disability imagery.     

The ideology of neuroscience and intellectual disability: reconstituting the ‘disordered’ brain

During the last two or three decades, neuroscience has changed how we understand brain functioning. This shift, which is re-conceptualizing the relationship between the materiality of the brain and consciousness, is bound to have implications for intellectual disability, which is commonly seen as a condition of the brain. At present, examinations of intellectual disability that deploy techniques and concepts from neuroscience constitute a growing research field that has been welcomed in some quarters of the disability research community. The purpose of this article is to urge for caution as regards this development. I argue that the neuroscience of intellectual disability is embodying ideological propositions that need to be problematized. By theorizing the relationship between biology and politics and examining neuroscientific publications on intellectual disability, I argue that this strand of research is underpinned by a discursive division between normal and pathological, that it therefore constitutes a continuation of understanding intellectual disability as a ‘disorder’ and that any firm separation between the ‘nature’ of intellectual disability and processes of power is inherently problematic. To be able to critically approach the neuroscience of intellectual disability, it is vital that disability researchers problematize the relationship between biology and politics.     

‘I walk from trouble’: exploring safeguards with adults with intellectual disabilities – an Australian qualitative study

People living with intellectual disabilities have a right to be safe from abuse and neglect and have a right to be included in the decision-making process determining safeguards that will affect them. However, the research evidence that could underpin good professional practice in terms of co-producing safeguards against abuse and neglect directly involving people with intellectual disabilities is largely missing. This article, based on qualitative research involving semi-structured interviews conducted during the first half of 2014, seeks to strengthen this evidence base. It reports on the prevention strategies identified by 12 adults with intellectual disabilities about how to stay safe and compares these with the findings of similar research. The article suggests that a comprehensive safeguarding approach comprises both life course-focused safety training and access to assisted decision-making. The article argues that given the plethora of risk situations encountered by people living with intellectual disability, assisted decision-making should take the form of a co-creation process that is situation specific and grounded in everyday life.     

The changing face of the ‘good mother’: trends in research into families with a child with intellectual disability,and some concerns

This article reviews changing perspectives in recent social science research into families of children with intellectual disability. These latest trends emphasise family resilience, adaptation, and transformation, with the focus predominantly on mothers and their ability to psychologically adjust to their caring challenges. A concern is that by concentrating on the adaptive strategies of mothers, researchers risk minimising the socio-political dimensions of this experience. The theme of the ‘good mother’ figures strongly in this research, linked to the limiting socio-cultural narratives available to mothers of children with intellectual disability that, it is argued, may condone their continuing marginalisation.     

Interrogating ‘acquiescent’ behavior of adults with developmental disabilities in interactions with caregiving family members: an instrumental case study

In this article, we adopt a Critical Disability Studies orientation to interrogate ‘acquiescent’ behavior of one adult diagnosed with developmental disabilities – Suzanne – in interaction with her caregiving parents. We conduct conversation analysis of interactions and offer themes of Speaking over/capping it off, Speaking for/giving it over and Correcting/redirecting as evidence of Suzanne acquiescing as part of ‘orchestrating’ input from her parents to get what she wants. We discuss adults diagnosed with developmental disabilities navigating daily life amidst shifting powerplay by strategically steering conversations in ways that serve them and we argue such navigations as vital to understanding ‘acquiescence.’     

‘Us’ and ‘them’: the limits and possibilities of a ‘politics of neurodiversity’ in neoliberal times

The neurodiversity movement claims that there are neurological differences in the human population, and that autism is a natural variation among humans – not a disease or a disorder, just ‘a difference’. A ‘politics of neurodiversity’ is based on the claim that the ‘neurodiverse’ population constitutes a political grouping comparable with those of class, gender, sexuality or race. This paper considers the limits and possibilities of neurodiverse political activism, and concludes by calling for a politics of identity that does not depend on a politics of ‘us’ and ‘them’.     

‘She will know that her mother’s doing something for her’: women with intellectual disabilities assuming the mother identity

This article explores the experiences of women with intellectual disabilities in becoming a mother. The presented findings are from a grounded theory research study with 19 women with intellectual disabilities from the Czech Republic. The findings are organised around external and internal factors affecting the women’s assumption of the mother identity, with the most prominent being poverty of the participating mothers, negative attitudes towards their motherhood, and a lack of preparation for motherhood. There is a need for systemic support for mothers with intellectual disabilities, starting in adolescence with sexual education, and continued throughout adulthood, including programmes focused on skills development.     

Solicitors’ experiences of representing parents with intellectual disabilities in care proceedings: attitudes,influence and legal processes

This paper reports on an exploratory study of the role of solicitors acting for parents with intellectual disabilities (ID) in public law proceedings. The paper draws on in-depth interviews with 11 solicitors and a subsequent focus group in which the interview findings were presented and reflected on by six of the eleven participants. Two of the five themes that emerged will be discussed here. They are entitled ‘Attitudes and Influence’ and ‘Legal Processes’ and concern the attitudes and influence of those involved in assessing, supporting and representing parents with ID and the care proceedings processes encountered by parents with ID.     

In search of a level playing field – the constraints and benefits of sport participation for people with intellectual disability

This paper presents the results of a study seeking to examine the experiences of people with intellectual disability in a sporting context. The research design employed an online, interviewer-completed questionnaire in both a standard and an easy English version designed for administration by a third party for those requiring assistance to respond. Questions sought both quantitative responses about levels of participation and qualitative responses about constraints experienced and benefits received from participation. The results of the study show high levels of participation reported by people who are independent or have lower to moderate support needs, whereas people with high to very high support needs had substantially lower levels of participation. Constraints are examined for both those who participate in sport and those who do not. For those who do participate, the benefits were identified as overwhelmingly social in nature, including belonging, companionship and achievement.     

Educational interventions for people with social and health difficulties in Italy: the case of a ‘welcoming community’ for young and adults

This article presents a case study that we consider significant for the social work of ‘welcoming communities’ in Italy. In the first part, we describe the history, methodologies and educational instruments aimed at young adults with social and work integration difficulties. In the second part, we present research questions, methods and results of a field research study carried out over 8 years, during which researchers were continuously present. All the 375 persons living in the welcoming community Villa S. Ignazio, in Northern Italy, have been observed. In the conclusions, we point out the main elements for a critical reflection that may lead to a methodological enhancement of the activities, also considering the global economic and political crisis, which is particularly dangerous for the rights of the vulnerable people.     

Disability welfare reform and the chav threat: a reflection on social class and ‘contested disabilities’

The recent UK media clash between Katie Hopkins and Katie Price in the reality TV show Celebrity Big Brother 2015 regarding Price’s receipt of welfare benefits for her son, Harvey, has reopened old debates about welfare support for the so-called deserving and undeserving poor. Nowhere is this more evident than in the classed moralities of motherhood with the harshest criticisms aimed at the ‘chav’ poor and working-class families and their children whose lifestyles and moral respectability may be called into question for causing or even fabricating particular disabilities in the first place. Alongside these characterisations of parental deficits and immorality associated with working-class and poor parents, connections between ‘invisible’ disability, poverty and poor parenting continue.     

‘Cruel and unusual punishment’: an inter-jurisdictional study of the criminalisation of young people with complex support needs

Although several criminologists and social scientists have drawn attention to the high rates of mental and cognitive disability amongst populations of young people embroiled in youth justice systems, less attention has been paid to the ways in which young people with disability are disproportionately exposed to processes of criminalisation and how the same processes serve to further disable them. In this paper, we aim to make a contribution towards filling this gap by drawing upon qualitative findings from the Comparative Youth Penality Project – an empirical inter-jurisdictional study of youth justice and penality in England and Wales and in four Australian states. We build on, integrate and extend theoretical perspectives from critical disability studies and from critical criminology to examine the presence of, and responses to, socio-economically disadvantaged young people with multiple disabilities (complex support needs) in youth justice systems in our selected jurisdictions. Four key findings emerge from our research pertaining to: (i) the criminalisation of disability and disadvantage; (ii) the management of children and young people with disabilities by youth justice agencies; (iii) the significance of early and holistic responses for children and young people with complex support needs; and (iv) the inadequate nature of community based support.     

The ‘myth’ of the family farm: Defining the family farm and assessing its importance in the European community

Family farming is a central but inadequately defined concept in the European Community's agricultural policy. An investigation into the importance of family farming is reported, using data from the European Community's Farm Accountancy Data Network that covers some 59,000 farms in the 12 Member States. A definition is adopted, based on the share of the labour provided by the family, to group farms into family, intermediate or non-family types. Almost three-quarters of Community farms were classed as family farms in 1989, but they produced only just over half of the total agricultural output and 62% of the total income. The incidence of family farming varied between countries and was lowest in the United Kingdom, where less than half fell into the family group. In all countries family farms tended to be smaller and to have lower incomes per person than non-family farms. However, the non-family group did not consist solely of larger farms operated by family labour supplemented by hired labour; at least in some countries the group contained smaller farms operated on a part-time basis and where there is substitution by hired labour for family labour. These subgroups point to alternative ways of structural adjustment to achieve higher incomes from farming.     

‘All in the extended family’: the Pandora's box of conservatism and fascism reopened

The article attempts to reanalyze the relationships between conservatism and fascism in a historical and comparative perspective. This analysis is premised on the view that to fully understand and explain conservatism requires reexamining its comparative-historical relations to fascism, and, alternatively, understanding and explaining the second presupposes taking account of the first. The thrust of the issue is whether and to what extent conservatism constitutes or develops into fascism, and, conversely, whether the latter represents or results from the former. The central argument and finding is that under certain social conditions and historical constellations conservatism eventually evolves into or functions as fascism. Alternatively, fascism universally represents and reproduces conservatism.