Planned change in the disability community

Planned change with people, who are physically or mentally disabled, as with other special populations, requires a range of skills and knowledge; several specific aspects of the change process are identified and discussed in this article: the characteristics of the change agent, the timing of the change event, and creating a vision for change. These aspects are illustrated through the writer's own experiences as a change agent working a long-range change event to improve access1 to mental health services in the US with and for people who are deaf and hard of hearing.     

Disabled academics: a case study in Canadian universities

Though Canadian universities are legally required to accommodate disabled employees, disabled faculty still experience difficulties navigating neoliberal performance standards and medicalized conceptualizations of disability. Drawing on data from a qualitative study with Canadian university faculty, this paper explores the experiences of five disabled academics. Our analysis draws on post-structural understandings of neoliberalism, discourse, disciplinary power, and governmentality, as well as Rosemarie Garland-Thomson’s concepts of the fit and misfit. Though the sample is small, this analysis suggests universities pose disabling contexts for academics. Disability is cast as individual responsibility, leaving disabled academics navigating accommodations without institutional support. The normative academic constructed through a discourse of efficiency and productivity is the measure against which disabled academics are evaluated, requiring self-governance to produce themselves as ‘good enough’ academics. Although higher education environments are increasingly diverse, disabled academics are still having to prove their right to exist in academia, hindering their abilities to participate fully.     

Societal Reaction And The Physically Disabled: Bringing The Impariment Back In*

According to the societal reaction perspective, the reactions of the nondisabled are the key to understanding the physically disabled. Consequently, stigmatization has been emphasized in explaining the often awkward and inhibited encounters between the disabled and the nondisabled. Stigmatization, though, cannot fully explain interaction between the disabled and the nondisabled. Through a qualitative analysis of encounters between the deaf and the hearing, 1 demonstrate that disabilities are also disruptive when they cause the assumptions and routine practices which usually successfully maintain interaction to become problematic. Coping strategies are attempts to compensate for those assumptions and practices which have failed. The reactions of the nondisabled are important in understanding the physically disabled, but in more complex ways than the societal reaction perspective has so far suggested.     

Deaf or hard of hearing inmates in prison

Despite laws in the United States enacted to protect individuals with disabilities in prison, there is ample case law to demonstrate that the intent of these laws has not been achieved. Using the existing US legal and social science literatures and experiences, this article considers: the problems hearing-impaired offenders face in prison that are not encountered by non-deaf or hard of hearing inmates; the services and accommodations prisons provide for deaf or hard of hearing inmates so that they can function at least as well as non-deaf or hard of hearing inmates; and the types of scientific research that should be conducted to understand the possible types of deaf or hard of hearing experiences in prisons, the consequences of these experiences, and the best way to address pathological sequela of being deaf or hard of hearing in prison. We argue that the creation of rules to protect this population is of no value unless these laws are implemented as intended. Without monitoring the law in action and studying why the intent of the law may be thwarted, an atmosphere in which deaf or hard of hearing offenders are neglected and even abused will likely occur.     

Researching Disability Politics, Or, Some Problems with the Social Model in Practice

This article arises from a research project involving the disabled members' group in UNISON, and problematises the social model which explicitly undergirds the discourses and practices of this group. In abstract terms, there are dangers that the social model can be interpreted in a way which privileges some impaired identities over others, sanctions a separatist ghetto which cannot reach out to other groups of disabled and disadvantaged people, and weaves a tangled web around researchers who adhere to the emancipatory paradigm. In concrete terms, these dangers are explored with reference to the stories of impaired people who believe that they are excluded from the disabled members' group, the predicaments of ex-disabled and differently-disabled people in relation to the movement, and the culture of suspicion surrounding academics, particularly the 'non-disabled' researcher as would-be ally. It is argued that, whilst such identities and issues might appear to be 'marginal' ones in the sense of occurring at the boundary of disabled communities, disability politics and disability studies, they should not be 'marginalised' by disabled activists and academics, and indeed that they pose challenges to our collective identities, social movements, theoretical models and research paradigms which need to be addressed.     

Auditory status and experiences of abuse among college students

Studies that explore experiences of abuse among deaf or hard of hearing college students are sparse and usually focus on lifetime experiences rather than the college years. A random sample of more than 1,000 college students at a campus in Upstate New York provided the data for this study. An institute for the deaf or hard of hearing was one of the colleges at the university and provided a unique opportunity to explore experiences among this demographic. Victimization rates and experiences by auditory status--deaf and hard of hearing or hearing--were examined. Binomial regression analyses were employed and findings indicated a significant association with being deaf or hard of hearing and physical and psychological abuse at the hands of a partner. Implications for policy and future research are discussed.     

Addiction Treatment with Deaf and Hard of Hearing People: An Application of the CENAPS Model

ABSTRACT

Alcohol and drug addiction is a significant problem among deaf and hard of hearing people. Looking through a Deaf culture lens, treatment for alcohol and drug addiction is key for providing care for deaf and hard of hearing clients. Using the CENAPS model, an applied cognitive-behavioral therapy program is recommended for addiction treatment. The CENAPS model provides clinicians with tools for stabilizing deaf and hard of hearing clients, supporting their transition to early recovery. Educating the client about the stages of relapse and the stages of recovery, clinicians using this model can better treat and prepare deaf and hard of hearing clients for long-term recovery.     

Exploring in Silence: Hearing and Deaf Infants Explore Objects Differently Before Cochlear Implantation

Infant development has rarely been informed by the behavior of infants with sensory differences despite increasing recognition that infant behavior itself creates sensory learning opportunities. The purpose of this study of object exploration was to compare the behavior of hearing and deaf infants, with and without cochlear implants, in order to identify the effects of profound sensorineural hearing loss on infant exploration before cochlear implantation, the behavioral effects of access to auditory feedback after cochlear implantation, and the sensory motivation for exploration behaviors performed by hearing infants as well. The results showed that 9‐month‐old deaf infants explored objects as often as hearing infants but they used systematically different approaches and less variation before compared to after cochlear implantation. Potential associations between these early experiences and later learning are discussed in the context of embodied developmental theory, comparative studies, and research with adults. The data call for increased recognition of the active sensorimotor nature of infant learning and future research that investigates differences in sensorimotor experience as potential mechanisms in later learning and sequential memory development.     

Planned Change in the Disability Community

Abstract

Planned change with people, who are physically or mentally disabled, as with other special populations, requires a range of skills and knowledge; several specific aspects of the change process are identified and discussed in this article: the characteristics of the change agent, the timing of the change event, and creating a vision for change. These aspects are illustrated through the writer's own experiences as a change agent working a long-range change event to improve access¹ to mental health services in the US with and for people who are deaf and hard of hearing.     

Geographies in the American DeafWorld as institutional constructions of the deaf body in space: the sensescape model

Space is a site where culture and body meet. It is a physical text of cultural constructions of the body that articulate personal, social and material functions and arrangements. The American DeafWorld consists of spaces where deaf and hard of hearing people are found. The geographies in the DeafWorld are the sites where different institutions create and imprint their ideologies, practices and properties pertaining to their sensory notions of the deaf body onto brick-and-mortar spaces in the DeafWorld. Sensescape is proffered as a theoretical model to describe DeafWorld institutional geographies.     

Abuse and deaf children: Some factors to consider

Deaf children are uniquely disadvantaged in terms of access to information on safety and abuse. This is often due to misunderstood linguistic and cultural needs which relate to the deaf community. Consequently, a greater number of children who are deaf are placed in potentially abusive situations when compared to their non-deaf peer group. A high percentage of deaf children have also acquired negative self-concepts. This is often due to external influences such as educational experiences and family communication. Many deaf children believe that abuse is part of their being deaf. The implications of this are that deaf children are at risk of neglect and abuse as well as long-term damage to their emotional development and self-esteem. A number of survivors of physical and sexual abuse have been referred to the National Centre for Mental Health and Deafness, Preston. Some of these referrals have been inappropriate and due to a dearth of local resources. Extremely little support is available for deaf people who have been or are being abused. There are few appropriately trained counsellors equipped with the necessary skills in communicating with deaf people and even fewer trained in deaf awareness. A number of risk factors have been identified and are illustrated in this article. Three case studies are described to highlight the issues involved.     

Disabling Environments and the Geography of Access Policies and Practices

Writings about disabled people are usually aspatial or lack geographical frames of reference. This is curious because geography is fundamental to an understanding of the social, economic, and political opportunities and/or constraints underpinning the lives of disabled people. This paper develops the contention that geographical and/or spatial terms of reference are important in understanding disabled people's lives. In developing this point, the paper seeks to describe and account for geographical variations in local authority policies and practices in addressing disabled people's access needs in the built environment. The paper adopts and develops, after Mark-Lawson & Warde (1987), the concept of 'local political environment' as a basis for understanding spatial variations in local authority policies and practices. Such ideas, in turn, are deployed with reference to postal survey and case study data, where I describe and explain aspects of the geography of access policies and practices in the United Kingdom. I conclude by noting that geographical frameworks and/or perspectives ought to be incorporated, where appropriate, into studies of disabled people and public policy processes.     

Workplace discrimination, deafness and hearing impairment: the national EEOC ADA research project

Data compiled by the US Equal Employment Opportunity Commission (EEOC), in its Integrated Mission System, provide documentation regarding the employment discrimination experience of Americans who are deaf or hard of hearing. This paper presents an analysis of 8,936 allegations filed by persons with hearing impairment and closed by EEOC between July 26, 1992 and September 30, 2003, as compared to 165,674 allegations filed by individuals with other physical or sensory disabilities. The investigators compare and contrast demographic characteristics of Charging Parties, characteristics of Respondents, the nature of allegations, and the outcomes of the allegations in order to illustrate how these variables differ between the two groups, herein referred to as HEARING (deaf, hard of hearing, or other hearing impairment) and GENDIS (general disability). Most allegations derived from both groups were filed against larger Respondents (those with 500+ workers). The most common allegation issues in the HEARING group involved matters of discharge, reasonable accommodation, and hiring. Outcomes derived from HEARING allegations were more likely to result in merit resolutions when compared to GENDIS, by a 25% to 21% margin.     

Empowerment, Identity and Participatory Research: using social action research to challenge isolation for deaf and hard of hearing people from minority ethnic communities

This paper considers the practice of empowerment within a social action approach, and the importance of an analysis of issues of identity, for an understanding of the experience of individuals and their communities. The discussion is grounded in the experience of conducting a research project on the 'needs of deaf and hard of hearing people from minority ethnic communities', living in the London Borough of Merton. The theme of 'isolation' is taken as a focus for the discussion. It was identified by respondents to be of central importance to an understanding of their experience. The Social Model of Disability and the concept of Deaf Culture are used to explore the complex set of relationships that characterise the day-to-day reality for deaf and hard of hearing people from minority ethnic communities, and recommendations are made to assist researchers and service providers in developing a more empowering practice.     

Culturally responsive social work practice with D/deaf clients

ABSTRACT

D/deaf individuals are often marginalized in our society. A lack of cultural understanding among social workers serving this population, coupled with communication barriers, inconsistent access to interpreters, or misperceptions of culture, adds to the potential for further marginalization. D/deaf individuals seeking mental health and social services live in a unique cultural context with which social workers may not be familiar and experience persistent issues surrounding access to mental health and social services. This article reviews some useful best practices, cultural points to be aware of, and suggests some strategies for providing culturally responsive social work when working D/deaf clients.     

Communication barriers for deaf employees: Needs assessment and problem-solving strategies

Deaf people experience higher rates of unemployment and underemployment and earn lifetime wages that are between $356,000 and $609,000 less than their comparably educated normally hearing counterparts. This results in a substantial loss of earning power and career identity for members of this underutilized population of workers. This article examines how communication difficulties pose a major barrier to employment retention and advancement for deaf employees. These barriers exist (a) within the employee in terms of nonfluent use of English and reliance upon American Sign Language, (b) with the employment site, and (c) with agency service personnel. Primarily, these barriers reflect a lack of understanding of the cultural and communication needs of deaf people. Strategies to ameliorate these barriers include a model of long-term employment support using an ecological framework.     

New managerialism in the academy: Gender bias and precarity

In the era of global competition, academic institutions are increasingly being managed as efficient organizations where early career academics are the most vulnerable group in the academic hierarchy. We use gender budgeting to deconstruct the financial and managerial processes and procedures in a selected academic institution in Iceland. Drawing on multiple data collection methods, we argue that new managerialism enhances the precarious position of early career academics, especially women and those in the more feminized fields. Furthermore, we show that the system's bias in favour of so‐called hard science generates gendered consequences for early career academics. We demonstrate this structural gender bias in each of the first three stages of an academic career: PhD, postdoc and other temporary positions, and assistant professorship. By highlighting the gendered consequences of new managerialism, we want to direct attention to the need to include a gender perspective in the budgeting and all the decision‐making processes in academic institutions.     

Carrières et contradictions en sciences de la vie : réponses du corps académique aux transformations de la connaissance et de ses utilisations

Drawing on interviews with more than 80 scientists on two university campuses, we create a typology that offers insights into how transformations in the nature and locus of life science innovation influence academic careers and work practices. Our analyses suggest that a strong outcome of increased academic concern with research commercialization is the appearance of new fault lines among faculty, between faculty and students, and even between scientists' interests and those of their institutions. We argue that life science commercialization is driven by a mix of new funding opportunities, changing institutional mandates for universities, and novel research technologies that bring basic research and product development into much closer contact. The rise of patenting and commercially motivated technology transfer on U.S. campuses is altering faculty work practices and relationships, while transforming the criteria by which success is determined and rewards are allocated. Through close analysis of interviews with four researchers who typify a range of academic responses to commercialism, we demonstrate emerging patterns of conflict and agreement in faculty responses to commercial opportunities in the life sciences.     

Focusing on Disability and Access in the Built Environment

This paper provides a documentation and discussion of the diverse experiences that different disabled people have with regards to access in the built environment. It begins by outlining the various ways in which disabled people's access needs and requirements are articulated in public policies and practices towards the development and regulation of the built environment. As the material indicates, disabled people's needs are poorly articulated and/or represented in the design and development of the built environment while the regulatory controls which oversee disabled people's access are weak. In the second part of the paper, disabled people's values, attitudes and practices towards access in the built environment are discussed by referring to the findings of focus group research. The material shows that many disabled people feel estranged and oppressed by facets of the built environment and generally feel powerless to do anything about it. We conclude by suggesting a number of ways of interconnecting the design and implementation of public policy towards the built environment with the daily lived experiences of disabled people.