The Ethics of Human Reproductive Cloning: When World Views Collide

Two camps in bioethics with seemingly opposing world views have staked out conflicting positions regarding the ethics of human reproductive cloning. These camps do not appear to share common concepts or ways of reasoning through which to exchange views and come to a meeting of minds about uses of this technology. Yet analysis of their respective approaches to several issues surrounding reproductive cloning, such as where the ethical limits of individual reproductive choice lie, whether the use of this technology would violate human dignity, whether it would create risks to the resulting fetuses and children that would make its use intolerable, and whether it would challenge certain core social values, reveals that they are not wholly opposed to one another. Indeed, it displays that they hold certain beliefs, values, and concerns in common. Moreover, it indicates that the different world views that they each presuppose, while flawed in certain respects, do not collide in every respect, but can be reconciled in significant ways that provide fertile ground for agreement about several issues related to human reproductive cloning.     

The ethics of human reproductive cloning: when world views collide

Two camps in bioethics with seemingly opposing world views have staked out conflicting positions regarding the ethics of human reproductive cloning. These camps do not appear to share common concepts or ways of reasoning through which to exchange views and come to a meeting of minds about uses of this technology. Yet analysis of their respective approaches to several issues surrounding reproductive cloning, such as where the ethical limits of individual reproductive choice lie, whether the use of this technology would violate human dignity, whether it would create risks to the resulting fetuses and children that would make its use intolerable, and whether it would challenge certain core social values, reveals that they are not wholly opposed to one another. Indeed, it displays that they hold certain beliefs, values, and concerns in common. Moreover, it indicates that the different world views that they each presuppose, while flawed in certain respects, do not collide in every respect, but can be reconciled in significant ways that provide fertile ground for agreement about several issues related to human reproductive cloning.     

Ethical Beliefs of Social Work Researchers

Abstract

The purpose of this study is to examine the beliefs of social work researchers about ethical practices. Surveys were mailed to a random sample of 240 members of the Society for Social Work and Research (SSWR) to elicit their views about ethical practices in social work research. Responses from 160 members (67% response rate) yielded information regarding the appropriateness of dual relationships, authorship practices, informed consent procedures, and other conduct in social work research. Age, gender, educational level, years of social work research experience, and current teaching of social work research were related to respondents' ethical views about practices with students and sexual relationships with research subjects. The need for additional resources on ethics in social work research is highlighted.     

Ethical guidelines for research with children: A review of current research ethics documentation in New Zealand

Abstract

Children's rights to participate in matters affecting them, including research, have gained increasing recognition over recent decades. This recognition, and the growth in research with children as participants, has given rise to greater attention from researchers to ethical issues related to child research. This article reviews the current ethics documentation in New Zealand. The findings indicate that considerable variation exists between ethical codes and guidelines in relation to research with children. The dominant focus is on attending to issues of consent and protection from harm, at the outset of the research, rather than recognition of the ongoing nature of ethical issues throughout the research process. Although the findings indicate an increase in the consideration of ethical issues, the existing documentation is inconsistent and inadequate in attending to specific child‐related issues. Suggestions are made to enhance children's participation in research and demonstrate a respect for their participation rights.     

Is failure to raise concerns about misconduct a breach of integrity? Researchers’ reflections on reporting misconduct

This article describes and discusses the views of researchers on the significance of raising concerns about scientific misconduct in their work environment and the reasons or circumstances that might deter them from doing so. In this exploratory qualitative research study, we conducted in-depth interviews with 33 researchers working in life sciences and medicine. They represent three seniority levels and five universities across Switzerland. A large majority of respondents in this research study argued that failure to raise concerns about scientific misconduct compromises research integrity. This is an encouraging result demonstrating that researchers try to adhere to high ethical standards. However, further interaction with respondents highlighted that this correct ethical assessment does not lead researchers to take the consequent action of raising concerns. The factors that discourage researchers from raising concerns need to be addressed at the level of research groups, institutions, and by setting a positive precedent which helps them to believe in the system’s ability to investigate concerns raised in a timely and professional manner. Training of researchers in research integrity related issues will have limited utility unless it is coupled with the creation of research culture where raising concerns is a standard practice of scientific and research activities.     

Centralized and non-centralized ethics review: a five nation study

The research ethics review process is now an inherent part of conducting research and a topic of much discussion. On the negative side it has been presented as cumbersome, expensive, time consuming, and potentially a system that does not adequately deal with the concerns it was set up to address. One common, but often controversial, proposal to address some of these concerns has been the institutionalization of centralized systems of review. This paper uses data on the review systems in place in five countries (Australia, Canada, New Zealand, the USA and the U.K.), some with and some without versions of centralized review, to explore issues related to centralization of the review process. It suggests that there are at least three types of systems (fully centralized, dual, and decentralized or multicommittee) in place; all are made up of two, interrelated components (the administrative and ethics review). We suggest that both components need to be considered in discussions about centralized review. Serious consideration of centralization of the administrative component may address many concerns. Centralization of the ethics review may provide a context that deals with other issues and may encourage reviews that more effectively focus on the ethical issues involved.     

Ethical Sharing and Reuse of Qualitative Data

The objective of this paper is to attempt to move beyond the impasse of ethical objections to reusing qualitative data. In doing so, there is no intention of dismissing the importance of ethical debates, in fact, quite the opposite. The debate about ethical reuse needs to be deepened and broadened. First, the current terrain of research ethics will be summarised and situated in the context of broader philosophical ethical frameworks. In contrast, the debates around ethics of archiving have often been narrowly focused on participants' rights. The framework of debate should be broadened first by recognising other entities traditionally deemed within the scope of research ethics, namely the scholarly community and the public. The second useful broadening of the framework is provided by a deontological ethical stance with its focus on duties. In the final section, this expanded framework will be used to rebut several common ethical arguments against archiving qualitative data: archiving violates confidentiality; informed consent for reusing data is impossible; reusing data violates trust between researcher and participant; and, archiving creates an unacceptably high risk of data misrepresentation. If a more general philosophical debate on ethics has something to contribute, the central message must be that no single ethical claim is incontestable. The conclusion will position these debates in a wider context by asking what is at stake when the boundaries of ethical discourse about sharing data are drawn too narrowly.     

Ethical Challenges in International HIV Prevention Research

Members of an HIV-prevention research network were asked to describe ethical challenges faced in their work. Major themes included acceptable standards of care for participants, defining research of relevance to host countries, reducing risks related to stigma, designing research that meets local needs without contributing to an inadequate status quo, and ensuring informed consent for complex research with potentially vulnerable participants. The challenges are interrelated and highlight the need for innovative, practical strategies to be incorporated into the planning, design, and conduct of HIV prevention trials. Research in applied ethics to support decision-making about HIV prevention research is needed, along with ethics training, mechanisms to support community-wide benefit from research, and expanded dialog on the ethics surrounding HIV prevention and public health research.     

Navigating uncharted terrain: Domestic adoptions in Kenya

Over 2 million children are cared for in kinship care in Kenya, and approximately 100,000 are believed to be living in residential care centres. Under leading international policy instruments ratified and domesticated by Kenya, domestic adoption is considered an option to be promoted and regulated in ensuring children's right to family‐based care. In this qualitative study, the authors interviewed 21 participants regarding the cultural and social contexts of domestic adoption in Kenya. Common beliefs and attitudes reflect a misunderstanding of the legal implications of adoption, the centrality of lineage as a vehicle for defining family membership and inheritance, and strong stigma regarding infertility. Main barriers to adoption include fear of exposing infertility, worry about corrupt practices, and reluctance to grant full inheritance rights to a child unrelated by blood. Despite these challenges, some couples are adopting to fulfil their desire for a child, as an expression of charity, and in some cases for practical reasons such as obtaining insurance for a kin child. The authors recommend placing children in adoption only with proper preparation and ethical procedures and suggest long‐term approaches to promoting adoptions that will ensure full rights of family membership for the child.     

Ethical challenges in international HIV prevention research

Members of an HIV-prevention research network were asked to describe ethical challenges faced in their work. Major themes included acceptable standards of care for participants, defining research of relevance to host countries, reducing risks related to stigma, designing research that meets local needs without contributing to an inadequate status quo, and ensuring informed consent for complex research with potentially vulnerable participants. The challenges are interrelated and highlight the need for innovative, practical strategies to be incorporated into the planning, design, and conduct of HIV prevention trials. Research in applied ethics to support decision-making about HIV prevention research is needed, along with ethics training, mechanisms to support community-wide benefit from research, and expanded dialog on ethics surrounding HIV prevention and public health research.     

Defending parenthood: A look at parents' legal argumentation in Norwegian care order appeal proceedings

This paper examines parents' legal argumentation in 15 appealed care order (child removal) cases in one Norwegian district court, asking on what grounds parents appeal their case. I investigate the pragmatic, ethical, and moral bases in arguments by applying a discourse ethics framework, viewing argumentation as either justifications or excuses of the parenting in question. The analysis reveals complex reasons for appealing, displaying parents both justifying and excusing both specific situations and the totality of their parenthood. Parents primarily apply pragmatic and ethical adversarialism, followed by pragmatic blaming and claims of change, moral justifications about due process, and ethical excuses about age and own life histories. Interestingly, normalization emerges as a third strategy, where parents explicitly aim to widen the scope of parental normality and adequacy, challenging the common defense dichotomy. The study provides new insight into an important and sensitive field, and indicates that parents engage in similar concrete strategies when, most often unsuccessfully, defending their parenthood.     

Planning for future research participation: Ethical and practical considerations

This paper addresses the concept of advance planning for future research participation during episodic or permanent decisional incapacity. First, the concept and its historical origins are described. Second, the concept's ethical justifications are presented. Third, commentary raising ethical and practical concerns about advance research planning is discussed. The paper concludes with the author's views on advance research planning and on the relevant recommendations of the National Bioethics Advisory Commission.     

非人类中心环境伦理学的若干理论问题

非人类中心环境伦理的建立需要在理论上对传统的伦理思想有一些重大的突破。从历史上人类道德意识发展的趋势看 ,人们将道德关怀的范围扩展到人类之外是有可能的 ;但从道德行为的性质看 ,非人类中心的环境伦理得面对一些重要的理论难题。解决这些难题的关键 ,不在于根据既有的伦理原则进行逻辑的推衍 ,而在于人们通过跟非人类生命形式的沟通而建立起与它们的认同。这种认同在程度和范围上受到的限制意味着非人类中心的环境伦理可能也只能在有限的意义上建立。     

中国传统伦理的当代构建

在新的时代背景下,中国传统伦理必须进行当代构建.这种构建至少可以从三个方面展开.其一,针对中国传统伦理立足于狭隘的血缘而缺少普遍性展开公共伦理的构建;其二,是针对中国传统伦理立足于外在的律法而具有强制性展开德性伦理的构建;其三,是针对中国传统伦理立足于形式的义务而忽略人文性展开情感伦理的构建.     

Families formed as a result of donor insemination: the views of semen donors

This paper reports the views and feelings of semen donors at two London donor insemination (Dl) programmes regarding the recipients of Dl and the families created by this method. In particular it reports on: the types of recipients that donors wish to assist; their understanding of the legal position of donors and Di fathers; their views on the'matching' of donors and Dl fathers; their perception of Dl offspring's need or desire for information about the donor; their views on whether parents should tell their offspring about their Dl conception and regarding the secrecy surrounding Dl in general; and what they believe the community thinks about Dl. Overall, the donors perceive Dl families as being normal, and are very supportive of the autonomy and privacy of these families, but they also have concerns about the needs of the offspring. The authors draw attention to the need to take into account the views of donors in forming assisted reproduction policies, and also the need for the interests of the child to be paramount, as they are in the case of adoption.     

Rethinking social work ethics: what is the real question? Responding to Stephen Webb's ‘Against difference and diversity in social work’

Jose J. Rethinking social work ethics: what is the real question? Responding to Stephen Webb's ‘Against difference and diversity in social work’ Int J Soc Welfare 2010: 19: 246–252 © 2009 The Author(s), Journal compilation © 2009 Blackwell Publishing Ltd and the International Journal of Social Welfare. In his recent article, Stephen Webb argued that the real question for social work ethics concerns ‘recognising the Same and of restoring the principles of equality and social justice’. This argument also included raising questions about what should be considered an appropriate philosophical basis for progressive social work ethics. In his view, social work's emancipatory potential has been blunted by overstated and philosophically ill‐informed human rights claims about difference and diversity. He suggested that French philosopher Alain Badiou offers social workers a ‘set of conceptual devices for rethinking social work ethics’. I argue that pressing his points into Badiou's philosophical mould is unlikely to lead to a progressive social work practice, let alone solve the issues identified by Webb. Badiou's philosophical pronouncements about ethics are of questionable value and offer little or no assistance to social workers seeking to establish an ethical grounding for their professional practice.     

论信念伦理在公共危机管理中的意义

马克斯·韦伯将信念伦理和责任伦理视为人类活动中的两种基本伦理导向。其中,信念伦理强调善良动机的重要性和目的对于行为选择的支配性。公共危机管理理念之下,需要有信念伦理的自律,作为公共管理者的行为导向与约束,这既出于公共事务管理本身的需要,也基于公共危机应对的要求。同时,在公共危机管理中,应当将信念伦理和责任伦理两种行为导向有机地结合起来。     

Toward increased public representation on bioethics committees: Lessons from Judging the cold war human radiation experiments∗

The process of judging the Cold War Human Radiation Experiments illuminates a need to develop a model for an appropriate public role on bioethics committees. A citizen representative was appointed to the President's Advisory Committee on Human Radiation Experiments, and the Committee solicited broad public participation in their investigation. However, many members of the affected and interested public desired further representation on the Committee, as they tended towards stronger ethical condemnations of the experiments than the Committee expressed. I offer an account of a testimony before the Committee by a radiation experiment subject's survivor to illustrate this contrast in moral perspective. I consider some the contributions that “non‐expert”; public members can add to committee deliberations, and suggest that concerns about public representatives may be overcome with the guidance of clearer principles for selecting public members. Further efforts to increase membership by the general and affected public on bioethics committees will enhance deliberations and help realize the democratic ideals of bioethics.     

Beyond Women,Children, and Families: Gender,Representation, and Public Funding for the Arts*

Objectives. Research on the impact of female legislators has found that in their voting records women in elective office tend to be more liberal and more supportive of issues of concern to women, children, and families than are men, differences that conform to gender stereotypes held by voters. This article examines another well‐established gender stereotype that is not linked to the traditional concerns of women as conventionally defined by scholars: that women in public office will be more supportive of the arts. Method. The 40 votes taken on arts legislation in the U.S. House of Representatives, 1983–2002, are examined using negative binomial regression in a model that includes district and personal characteristics. Results. Democratic Party membership and support, citizen ideology, urban residence, and gender are significant factors in explaining support for public funding for the arts. Female representatives are more likely than their male colleagues to support the arts, a finding that primarily reflects the greater support of Republican women for the arts in comparison with their male counterparts. Conclusion. This study suggests that substantive representation of women by female elected officials may extend to more policy issues than previous research has documented. Research on issues that are recognized as gendered (e.g., arts policy) but are not traditionally defined as women's issues is an area for further exploration.