Informed Consent with Children and Young People in Social Research: Is There Scope for Innovation?

Over 20 years of research has enhanced our understanding about the methodological and ethical benefits and challenges of involving children and young people in research. Concurrently, the increasing bureaucratisation of research ethics governance within UK universities has reified expectations about the methods used to gain informed consent for research participation. This paper explores how social researchers in the UK are navigating this tension and whether there is any scope for innovation through the use of technologies in how children and young people provide informed consent to take part in research. We conclude there is a need for the co‐creation of research information with children and young people and greater transparency by sharing creative solutions.     

“Adding Their Flavour to the Mix”: Involving Children and Young People in Care in Research Design

Abstract

Children and young people are often the subjects of research but are not usually thought of as codesigners of research projects contributing to the development of tools and resources so that research about them and their peers is more likely to be appropriate and effective. This paper describes and analyses the involvement of a group of 14 children and young people who have been in out-of-home care. They assisted in the design of a research project that sought their views on what makes a “good” foster carer. The impetus for this study arose from a desire to include children and young people as stakeholders in improving the foster care system and a long-held belief that they could and should be active partners in creating change. The study demonstrated how children and young people could be engaged creatively in individual and group conversations and activities in relation to potential research questions and research methods and tools. The paper concluded that capturing their views will ensure that research will be of benefit to other children and young people and to policy makers and practitioners working in the field.     

Voices of 65 Young People Leaving Care in Sweden: “There Is So Much I Need to Know!”

Abstract

The purpose of this study is to examine young care leavers’ experiences of supportive and nonsupportive factors after leaving care. Telephone interviews were conducted with 65 young people, between 18 and 26 years old, who had left care in Sweden within the previous 3 months to 3 years. The care-leaving process was in many cases described by the young people as badly planned and compressed. Some interviewees received support from the formal network (social services, foster carers, residential homes, contact persons) for housing (37) and financial matters (36), but few received support from the formal network concerning employment (14) and education (11). Emotional support was mainly provided by partners and friends. Altogether, the results suggest that access to support is a helpful factor for young people leaving care, but also that many of our interviewees had no such access, from neither formal nor informal networks.     

Rules or No Rules? Three Strategies for Engagement with Young People in Mandated Services

A qualitative study of 61 youth receiving mandated services (child welfare, mental health, probation) or services where there were no alternatives (residential care for homeless youth) explored worker-client relationships from the perspective of young people themselves. Findings suggest three different but related roles played by workers that successfully engage adolescent clients: (1) “Informal supporters” de-professionalize their role and flatten hierarchies, emphasizing empathy and enforcing few rules; (2) “Administrators” enforce rules that are in the child’s best interest but do so with little emotional engagement; and (3) “Caregivers” who hold reasonable expectations and impose structures but are flexible in their negotiations with youth when rules were broken. While youth spoke most positively about their workers when they acted as informal supporters, a deeper analysis of the data showed that youth also engaged well with workers who enforced rules when those rules were necessary for the child’s safety, applied flexibly, age-appropriate, and fit with cultural norms. Use of all three approaches to youth engagement may help workers create better therapeutic relationships with youth receiving mandated services.     

Approved Social Work Training in Northern Ireland: Using Research to Examine Competence‐based Learning and Influence Policy Change

This article reports on how research activity helped describe and analyse ASW (Approved Social Worker) learning experience as well as acting as a catalyst for change and development in policy and practice in Northern Ireland. The paper contextualizes the study by outlining the legislation, the main features of the ASW role and the approach to ASW training in Northern Ireland, and by reviewing the literature on the efficacy and value of competence‐based learning. While the findings do not provide conclusive evidence that a competence‐based approach is inherently more effective than previous courses, they do indicate that candidates who were trained in this way were moderately more satisfied than those who had participated in non‐competence based programmes. The research also highlights the importance of the interrelationship between training, practice experience and support in developing and sustaining competence. The paper concludes with a review of the recommendations arising from the study and an analysis of the developments in training and regulations relating to practice experience and re‐approval of ASWs since publication of the research. The study is of contemporary interest given the proposed changes to the role of ASWs/Mental Health Officers in the context of the reviews of UK mental health law.     

Investigating the Effects of Pre‐school Provision: Using Mixed Methods in the EPPE Research

The Effective Provision of Pre‐school Education (EPPE) project is a longitudinal study of young children between the ages of 3 and 7 years. Research began in 1997 and both quantitative and qualitative methods were used to explore the effects of pre‐school education on children’s attainment and social/behavioural development at entry to school, and of any continuing effects on such outcomes at the end of Key Stage 1 (age 7). The sample included over 3,000 children and 141 pre‐school centres drawn from six different types of providers. In addition, a home sample of children who had not attended a pre‐school centre was included. In order to identify the processes that might influence centre effectiveness, observational data were collected and centre managers interviewed. In‐depth case studies of 12 more effective centres were used to explore and illuminate the processes, particularly in relation to pedagogy, associated with better child outcomes. A mixed method approach was adopted to simultaneously answer both confirmatory and exploratory questions, to support user engagement and provide triangulation. The paper argues that the mixed method approach supported the development of stronger research inferences.     

Utilizing Web‐based Databases to Introduce Social Work Content in Research Statistics Courses

Masters level statistics is often not a course of choice for social work students. Teaching it in such a way that students' anxiety is reduced while facilitating their recognition of the importance of empirical knowledge in their social work practice and their need to have fundamental research skills, can be quite challenging. The purpose of this paper is to introduce a pedagogical tool used in a course on bivariate statistics that involves students throughout the semester in the process of developing and testing their own hypotheses regarding fluctuations in reported hate crimes/capita by states (as reported by the Federal Bureau of Investigation). This technique provides continuity throughout the semester and is easily adapted to other issues equally important to social work. The data's unintuitive findings that disagree with most students' hypotheses also challenges students to consider methodological issues and the validity of the data. Because most students do not have a strong knowledge base of hate crimes, students often have to grapple with how their own preconceptions might bias their understanding of an issue and potentially their work with a client or client system. From an instructional standpoint, the method is contained and manageable, and the data are easily accessible.     

Reduction of Face‐to‐Face Contact Hours in Foundation Research Courses: Impact on Students' Knowledge Gained and Course Satisfaction

This study investigated the impact of reducing the number of face‐to‐face contact hours in a Masters of Science in Social Work (MSSW) foundation research course in an urban school of social work on students' knowledge gained and course satisfaction. A quasi‐experimental pretest/posttest comparison group design was used to test the following hypothesis: reducing the number of face‐to‐face contact hours will not negatively impact knowledge gain and course satisfaction in a foundation research course. The findings of this study suggest that reducing the number of face‐to‐face contact hours does not negatively affect student learning as both the comparison and the experimental group demonstrated an increase in foundation research knowledge. The level of course satisfaction was influenced by the number of hours completed in the program, age, and the number of hours worked in paid employment. Students who are especially vulnerable are younger students who have completed less course hours. They tend to struggle at the beginning to get used to new technology as part of their educational experience. This paper demonstrates that it is no longer ‘if’ web‐based and distance learning technologies are appropriate for social work education but rather ‘when’ and the degree to which their integration yields greatest educational value.     

Staff responses to age‐related health changes in people with an intellectual disability in group homes

The purpose of this study was to explore how supervisors in group homes caring for people with intellectual disability responded to the development of age‐related health changes in their residents. Ten group home supervisors working in the disability sector were interviewed once. Data were analysed using Dimensional Analysis. The study identified several factors related to whether a resident could stay ‘at home’ or would need to be moved to residential aged care (nursing home) including: nature and extent of group home resources, group home staff comfort with residents’ health changes, staff skill at navigating the intersection between the disability and ageing sectors, and the supervisor’s philosophy of care. The ability of older people with an intellectual disability to ‘age in place’ is affected by staff knowledge about and comfort with age‐related illnesses, staff skills at navigating formal services, staffing flexibility, and the philosophy of group home supervisors. Despite the growing international concern for the rights of people with disability, particularly in relation to decision making, questions about the older person’s choice of residence and participation in decision making about what was best for them, were almost nonexistent. Rather, decisions were made based on what was considered to be in ‘the best interest’.     

Barriers in Access to the Treatment for People with Gambling Disorders. Are They Different from Those Experienced by People with Alcohol and/or Drug Dependence?

A prevalence of gambling disorders is diversified depending on the region of the world. Almost three quarters of pathological gamblers had never sought a professional treatment as well as an assistance in self-help groups. Reasons why they do not initiate a treatment are complex. The aim of the article is to compare barriers to the treatment for people with gambling disorders found in presented study and barriers to alcohol and drug treatment identified in the available literature. The semi structured interviews were applied and conducted with people with gambling disorders, social workers, therapists employed in the addiction treatment facilities, General Practitioners and psychiatrists. Selection of the respondents was based on purposive sampling. In total, 90 interviews were completed. Respondents identified individual barriers as well as structural ones. Individual barriers include internal resistance and a fear of the treatment. In turn structural barriers apply to the organization of the therapy, infrastructure, personnel, and the therapeutic program. A comparison of barriers experienced by people with gambling disorders and substance use disorders showed that they are largely similar, but people with gambling disorders also experience specific barriers. Empirical studies focused specifically on treatment needs of people experiencing gambling disorders may improve an offer of help for them. More adequate treatment options could contribute to the increasing in the number of people who start the treatment. It can result in improving their quality of life and may have positive impact on public health.     

Young adults’ hopes for the long-term future: from re-enchantment with technology to faith in humanity

Recent scholarly research has claimed that young people are predominantly concerned with their immediate ‘horizon of planning’, resulting in an outlook upon the future that is dominated by present-day concerns. By distinguishing between choices and plans, on the one hand, and hope and faith, on the other, this article analyses how young people relate to the future through their attitudes about responsibility and technology in order to complicate this narrative. The data are drawn from an interview project in which 28 young adults (aged 18–34) discuss both their own future and a general idea of the future of society. Two key findings are discussed. Firstly, respondents are found to place faith in the potential of technology to mitigate future predicaments, and secondly, respondents are found to ascribe mystical or magical qualities to technology. Drawing on these findings, this article suggests that the oft-cited attitude that technology will develop in time to meet the needs of the future does not simply signify a deferral of responsibility onto future generations. Instead, by drawing on scholarship on re-enchantment it is argued that for young adults technological development can represent a refuge of faith and hope for the future.     

‘Young People Took to the Streets and all of a Sudden all of the Political Parties Got Old’: The 15M Movement in Spain

This profile looks at the emergence of the 15M Movement in Spain. It analyses the role played by social networks in the movement's formation and identifies the grievances that mobilised a broad coalition of groups and individuals including dissatisfaction with the two-party political system, the venality of political and economic elites, widespread corruption, the economic crisis and the politics of austerity. The profile also looks at the action repertoire employed by the movement and its organisational structure. In terms of the former, it focuses attention on the role played by protest camps and assemblies in giving a voice to the excluded and building the bonds of solidarity necessary to sustain activists through protest. In terms of organisation, it describes a structure that is highly decentralised, has been influenced by protest movements in other parts of the world such as Latin America and has marked regional differences. It concludes with observations about what the 15M means for Spanish politics and the direction it might take in its struggle against the political and economic elites that have dominated Spain since the transition to democracy in the 1970s.     

How Have Other Journals Compared to “The Top Seven” Journals in Family Social Science with Respect to LGBT-Related Research and Reviews? A Comment on “A Content Analysis of LGBT Research in Top Family Journals 2000–2015”? An Editorial Analysis

Van Eeden-Moorefield, Few-Demo, Benson, Bible, and Lummer (2018) recently reviewed the content of seven family social science journals with respect to theory and methods used in 153 articles featuring LGBT research or reviews of LGBT research. They concluded that less than three percent of 6,832 articles published in those journals between 2000 and 2015 were LGBT-related and that most had not used explicit theory and had used purposive cross-sectional samples consisting mostly of White and middle-class participants. During the tenure of the present editor, between 2010 and 2017, Marriage & Family Review featured 14 research reports, reviews, or commentary on LGBT-related issues out of 250 articles, not counting brief editorials or biographies between 2010 and 2017, an odds ratio of over 2.0 compared to the other “top-tier” journals. Likewise, the Journal of Family Theory & Review published at least 15 articles, mainly reviews or commentaries, on LGBT-related issues between 2009 and 2017. Articles in Marriage & Family Review and Journal of Family Theory & Review were more likely to be reviews of the literature, or feature explicit theory, to be qualitative in methodology, or to involve interviews or surveys, while other characteristics were similar to those in the other seven journals. Thus, even if some mainstream family journals did not publish often on LGBT-related issues, other important family science journals have done so. Furthermore, there are numerous scholarly journals that welcome LGBT-related research and reviews almost exclusively.     

“So They’ll Have Somewhere to Go”: Establishing Non-governmental Organizations (NGOs) for Children with Autism in the People’s Republic of China

Despite policy calling for compulsory education in China, many children with autism are not in school. This article examines the establishment of autism-related non-governmental organizations (NGOs) in China to meet needs not being met by the state. We focus on the background and motivation in founding and running these NGOs, after first considering the broader context of state decentralization and NGOs roles in supplementing welfare needs in reforming societies, and the educational policy context of China. This study used mixed methods, including questionnaires with open-ended and limited choice questions, and follow-up discussion email. The goals of NGO leaders—more than 50% of whom are parents of children with autism—are to make up for where government implementation of educational policy is insufficient; help others and advocate for inclusion in society; and do meaningful work. Implications from these findings are discussed.