Making choices in my life: Listening to the ideas and experiences of young people in the UK who communicate non-verbally

Service user participation and making choices are frequently advocated, however, they are complex concepts and how they are translated and/or experienced in everyday life can vary amongst different groups of service users. Recognising the importance of participation in current international guidance and UK government policy this paper seeks to explore how research can include a frequently marginalised group of disabled young people, in particular young people with learning disabilities and/or who communicate non-verbally. The paper discusses the use of non-traditional research methods, especially symbol based interviews developed in an ongoing English longitudinal study exploring choices and decision-making processes for young people with life-limiting conditions. The paper then presents some research findings and concludes by discussing their implications. In particular, it demonstrates how the use of symbol based interviews can inform policy makers about how these young people can be included in research and that listening to them can inform our understanding of decision-making processes.     

Reflections on citizen-state child welfare partnerships: Listening to citizen review panel volunteers and agency liaisons

Objective

Previous research pertaining to the citizen review panel (CRP) initiative indicates that discrepancies exist between panel member and state agency liaison perceptions of CRP effectiveness in fulfilling the CAPTA CRP mandate. This study explores the impressions of both CRP members and liaisons involving barriers to effective CRP-state child welfare partnerships and recommendations to improve the relationship, provided through narrative survey responses from CRP liaisons from 30 states and D.C. and panel members from 32 states and D.C. Thematic categories which emerged from analyses of these responses are discussed, and a conceptual model and substantive-level theory of the CRP-child protective services (CPS) relationship developed from the results are presented.

Results

The complex nature of CRP-CPS relationships emerged as the central theme among CRP members' and liaisons' responses. Liaisons and CRP members identified a need for CRP members to become more educated globally on child welfare despite the relatively high level of education and experience of much of the sample. Difficulties encountered by panel members in the effort to partner surfaced in themes of mistrust and skepticism about the worth of citizen participation in child protection. Negative agency attitudes, lack of role clarity, and lack of commitment to authentic partnership were cited as negative influences upon the relationship by both liaisons and CRP members. The most important preferred outcome of the partnership was that citizen volunteers would become more knowledgeable partners who could meaningfully contribute to child welfare efforts. A second desired outcome important to CRP members was to form a shared vision with CPS.

Conclusions

Findings imply that when key components of mutual respect, legitimacy, CPS knowledge, shared vision, authenticity, citizen engagement, honest communication, and a serious, deliberative process are in any way impeded, the partnership is vulnerable to breakdown, and intended outcomes may be compromised.

Implications

Important relational difficulties that have formed barriers between volunteers and CPS agencies have been identified, and results suggest specific issues to target for improvement. These findings can prompt a more informed discourse about the challenges and opportunities presented when attempting to engage citizens in child welfare practice and policy-making, and can lead to new research paths. Suggestions for such efforts are offered.     

Listening to children: Evaluation of a positive parenting programme through art-based research

This paper presents data from a unique programme evaluation of the parenting programme titled ‘Learning together, growing as a family’ applied in 14 cities in Spain and targeting families at risk of neglectful behaviour. The programme evaluation is based on the voices of children using the qualitative methodology of art-based research. Eighty-six children 6–12 years of age were interviewed in groups. The outcomes of the evaluation reveal that children perceive improvements in the parental competencies of their parents and in themselves and that these changes serve as a catalyst for positive family change.     

Participation and accountability in corporate community involvement programmes: a research agenda

Corporate community involvement (CCI) is catching up among businessesoperating in developing countries under the wave of corporatesocial responsibility (CSR). Significantly, CCI discourse theworld over is shifting from ‘involvement’ to ‘investment’,the latter advancing the business case. This shifting paradigmdepicts a calculative approach to CCI based on costs and benefits,revealing reciprocal yet unequal corporate–community relationships.This approach when implemented in already disadvantaged communitiesraises fears of exploitation rather than community empowerment.This article critiques the predominant approaches applied inCCI and their implications towards poverty reduction and sustainablecommunity development efforts in developing countries.     

Key considerations for logic model development in research partnerships: a Canadian case study

Community-academic partnership research is a fairly new genre of community-based participatory research. It has arisen in part, from recognition of the potential role of alliances in the development and translation of applied knowledge and the elimination of health disparities. This paper reports on the learning process of academic and community members who worked together in developing a logic model for a research program focusing on partnerships with vulnerable populations. The Partners in Community Health Research is a 6-year training program that seeks to combine research, training, and practice through the work of its "learning clusters". As these types of partnerships proliferate, the articulation and exploration of clear models will assist in their implementation. The authors, coming from both academia and community agencies, present a logic model meant to facilitate program management. Key considerations in the model's development are discussed in the context of an ongoing research partnership; namely, the complexity of the research partnership, power and accountability, alignment with health promotion policy, and the iterative nature of program design. Recommendations challenge academics, policy-makers, service providers, and community members to reflect on the elements needed to support and manage research partnerships and the tools necessary to ensure continued collaboration.     

The needs and experiences of injured workers: a participatory research study

This paper reports on the findings of a participatory research study in which 290 injured workers in Ontario, Canada responded to a survey that was developed and administered by a group of university researchers in partnership with injured worker peer researchers. The objectives of the study were to gain a broad view of the needs and experiences of injured workers and to develop strategies for change. Findings indicated that many injured workers experience undue financial, emotional and physical hardship during the compensation, treatment and rehabilitation process. These hardships are experienced due to perceived lack of respect, insufficient information concerning rights and the return-to-work process, and limited opportunities for input into the medical or rehabilitation process. Recommendations for increasing the power of workers and creating a more supportive climate are included.     

Compassionate Listening: A Framework for Listening to the Seriously Ill

Present conceptions of listening, such as empathic or therapeutic listening, do not provide a way of alleviating the sense of being alone felt by individuals who are seriously ill or suffering in some other way. Compassionate listening, a kind of dialogic listening, provides a framework for approaching these significant listening situations that emphasizes our interconnectedness and our shared humanity and that seeks to overcome the isolation so commonly felt during serious illness.     

Forging and sustaining research-minded professionals: teaching undergraduate research through student-community partnerships

The teaching of research is a well-established core component of social work curricula around the world. While educators in social work recognize the value, and need for research they have encountered persistent discomfort and reluctance from students to recognize this need. Practitioners in the field of social work often share this reserve either due to limited self-efficacy with regard to research knowledge and skills or practical constraints. With the growing need for practice-based knowledge, accountability and evidence-based practices to drive outcomes and service effectiveness, it is becoming imperative to not only prepare future social work professionals with the required skill sets but also support current professionals to meet these expectations. This paper showcases a pedagogical endeavor with an undergraduate research course in an American rural university, designed and implemented to create and support research-minded professionals through student–agency research partnerships. Through a collaborative, service-oriented learning, students have gained a new appreciation for research and agency connections while agencies have welcomed the path created to pursue their research agenda. This experience has valuable implications for research capacity building, and for community engaged research empowering future and current professionals to suitably use research toward effective and meaningful service provision.     

Listening in Mediated Contexts: Introduction to a Special Issue

New communication technologies, applications, and software have fundamentally changed how we communicate. However, listening research and scholarship has not kept pace – conceptually, methodologically, or theoretically – with this emerging area of research. This special issue takes an important step toward addressing the intricacies and complexities associated with mediated listening.     

A model of impacts of research partnerships in health and social services

Alliances have long been an important strategy for health promotion and community development. They are now becoming an important approach to generating research that is thought to have real-world relevance and easy applicability because of the involvement of community members. A comprehensive, dynamic model of community impacts of research partnerships in social or health services is presented. This process-oriented, systems model outlines three major domains of mid-term impact (Enhanced Knowledge, Enhanced Research Skills, and Use of Information) that correspond to the core functions of collaborative research partnerships discussed in the literature (i.e. knowledge generation, research education and training, and knowledge sharing). The model will assist research partners, intended recipients, and funders to understand and evaluate the real-world impacts of community–university research partnerships. The model provides research partnerships with a tool to demonstrate their accountability and to improve their operations and impacts, and evaluators with a tool to guide planning and evaluation efforts.     

Case study as a research method to study life histories of elderly people: Some ideas and a case study of a case study

The article explores conditions under which life history interviewing, based on case study research, may become a valuable research instrument. Validity and reliability of case study as a form of qualitative research are discussed. It is shown that neither triangulation nor internal consistency methods can guarantee a single interpretation. As an example a case study of Zina, an immigrant from Russia, is used, and two explanations of her behavior are proposed. The choice between them is made through construction of a holistic image of Zina, which essentially means introduction of a new dimension—theory, worldview—as a criterion of validity and reliability of case studies. Relations of a case study to a theory are discussed, and the conclusion is made that a case study enables a researcher to utilize the most the diversity of life histories of elderly people.     

User satisfaction and user experiences with Access Grid as a medium for social science research: a research note

Access Grid (AG) is a state-of-the-art video conferencing system that operates over computer networks such as the Internet. In the research sphere it has principally been used to conduct meetings of natural scientists in large international collaborations, such as physicists collaborating over the Large Hadron Collider. Social scientists have recently begun exploring the use of AG to conduct ‘virtual fieldwork' where researchers carry out interviews or moderate group discussions involving participants at remote sites. There have also been experiments in using AG to deliver social research methods training and to facilitate meetings between social researchers and government researchers who are collaborating on research projects. This article provides a quantitative analysis of the experiences of a sample of participants in such AG sessions. It finds a high degree of satisfaction with the technical affordances of the medium, and identifies differences in perspective according to whether a session is research-oriented or has a ‘real world' purpose.     

24 Hours in a Day: A Listening Update to the Time Studies

Time is an important communication variable that has been impacted by new technology and changed the way people communicate. This study of communication time use by college students provides an update to earlier studies by factoring in computer and telephone use—media that have forced a multitasking approach to communication. Undergraduate students (N = 680) at a large Eastern university reported that they spend most of their time (48%) communicating with their friends, followed by time in school, at work, and with families. Students spend 24% of their time listening, 20% speaking, 13% using the Internet, 9% writing, and 8% reading.     

Introduction to Listening,Ethics, and Dialogue: Between the Ear and the Eye: A Synaesthetic Introduction to Listening Ethics

Listening is the one language activity which is used most during the day. The empirical basis for this statement has some problems, as some of it dates back a long time or is based on self-report data which may not be accurate as far as the objective proportion of time, in which listening is expected, is concerned. The current study uses classroom observation to collect data on how much listening is required in primary education and in the transition to secondary education. A sample of 48 class periods from grades 1–4 and of 18 class periods from grade 5 was taken to specify listening tasks. Results confirm earlier studies that reported listening is required in about two-thirds of instructional time. As to the source of oral information, it is still true today that the teacher out-talks the students at a considerable rate. Results are discussed with reference to listening education, and it is assumed that much needs to be done to raise awareness for the teaching of listening skills and the arrangement of an appropriate learning environment which provides for a sufficient and challenging variety of listening situations.     

Participating in community research: exploring the experiences of lay researchers in Bradford

Considerable attention has been given in recent years to the merits of involving community members in the research process and the resulting benefits in terms of research outcomes. Far less is known about the experiences of individuals taking on the role of lay researchers within their own community. This research investigates the experiences of six young Asian women who, following training, undertook a community health needs assessment in a neighbourhood in Bradford. Semi-structured interviews were conducted. Findings indicated that participating was overall a positive experience, having an impact on the women in two main ways. Firstly, a positive change in perception relating to their own capabilities and influence, resulting in increased confidence, self-esteem, and a greater understanding of the research process. Secondly, the women developed greater awareness of and interest in issues affecting their community coupled with greater empathy towards fellow residents, inspiring a determination to work towards achieving positive changes. However, the women expressed concerns that the needs assessment had raised expectations within the community and they would be held responsible for delivering change. Further research is recommended into the experiences of lay researchers, particularly the longer term impact of being involved both to themselves individually and the wider community.     

Aligning research and practice: The role of academic-community partnerships for improving measurement and process

ObjectiveCommunity programs addressing social determinants of health are growing in prominence and are increasingly expected to provide metrics of success. Our objective is to assess the role of an academic-community partnership for a community health worker program targeting social and medical needs, and determine factors impacting its effectiveness.MethodsWe draw on a 4.5-year partnership that includes both quantitative and qualitative data collection and analysis. Quantitative data collection mechanisms evolved as a result of the partnership. Qualitative interviews were conducted with community health workers and leadership.ResultsTo align medical and social support services in a sustainable and measurable manner, our academic-community partnership found that creating and maintaining a mutually beneficial space through small wins enabled us to then address larger problems and needs. Ongoing self-study and process evaluation allowed quick adjustments. Unique partnership elements such as having consistent funding and flexible timelines and objectives were essential.ConclusionsWhen integrating health and social services, academic-community partnerships create pathways for bidirectional learning than can quickly turn research into practice and support sustainability, especially when based on incrementally built trust and a history of small wins.