Interviewing vulnerable old people: ethical and methodological implications of imagining our subjects

It is sometimes argued that interview research with vulnerable social groups, such as frail, lonely, older people, has distinctive ethical and methodological requirements. The conventional one-off, professional interview is seen to be both inadequate as a method of data collection and inimical to the interest of research subjects. While ideologically persuasive, such a view is not derived from systematic analysis of actual interviews. In this article, I describe a research project on social isolation in which the conceptualization of elderly interviewees as "vulnerable subjects" had a number of critical but intended impacts on the course and outcomes of the research. I offer an empirically grounded analysis of the interview situation that suggests an alternative reading of the relationship between social representation of aging persons and the methods we use to study them.     

Research Methods with Disabled Populations

Abstract

Although social work and related fields need more research involving people with disabilities, such studies can pose special challenges due to lack of understanding of disability issues, the disempowerment and invisibility of many who are disabled, and communication barriers. This article discusses ways of eliminating bias and maintaining ethical safeguards when designing and conducting research on people with disabilities. Participatory action research, which engages those studied in the design and conduct of research, is discussed as a model, as is the use of qualitative methods. Recent methodological innovations in survey research with deaf populations are also described and illustrated.     

The construction of communicative (in)competence in autism: a focus on methodological decisions

Research on people diagnosed with autism spectrum disorder (henceforth autism) is often based upon biomedical understanding. Such understanding tends to view the characteristics related to autism diagnosis, such as the lack of or atypical use of speech, as a sign of incompetence that can be reduced as an underlying pathology of an individual. However, little research has explicitly investigated how methodological decisions in research might influence the perception of these characteristics. This paper draws on two separate research cases involving minimally verbal children with autism to examine how methodological decisions in research design, data collection, data analysis, and data interpretation influence the construction of communicative (in)competence in these children. The paper encourages researchers to carefully consider and reflect on the methodological decisions they make throughout the research process.     

A comparative study on Italian new communities abroad: the cases of Tunisia and South Africa1

This paper presents two case studies about Italian new communities abroad: one Tunisian and one South African. These case studies were conducted – in a larger international research project on 14 countries – with different types of interview: focus interviews, in-depth interviews, focus groups, etc. The mixed interview modes brought to light how – with a different research strategy (methodological triangulation): quantitative and qualitative data – our complex social experience can be inquired into, in particular migration processes. The authors decided to utilise semi-standardised and non-standardised techniques. This paper discusses how the mixed research logic – utilised in both of these cases – is very productive in terms of knowledge. It seems that focus group interviewing techniques (and others) have been used progressively more and more over the past years as both a self-contained method for conducting qualitative research and in combination with other research methods. In the authors’ opinion, mixed-methods research (or multiple research strategies) represents a smaller corpus of literature that is getting increased attention. The essays in our paper are grouped along four themes: (a) economic development and globalisation; (b) perceptions and discourses; (c) the new migration phenomenon; and (d) fragmentation of identity. The authors believe that rebuilding a morceau de vie of Italian emigration helps to better analyse the role of the communities of immigrants in the construction of national processes. As a result of this, their survey introduces reflections on theoretical—methodological logic and concurs with placing such aspects in a global and social structural dimension. However, the universal and social structural dimension can be extended to the specific case. Its contribution in the first part investigates a variety of linkages of migration with broader processes of social–economic development and social globalisation. That global patterns of migration and the processes of globalisation are linked in various ways has long been recognised. The second part of the paper stresses the meaning of perceptions and discourses linked with the migration phenomenon and underlines the importance of an accurate methodological approach in order to provide new sociological points of view and appropriate research strategies.     

Observational practice in virtual worlds: revisiting and expanding the methodological discussion

Virtual worlds, such as World of Warcraft and Second Life, have seen remarkable mainstream uptake in the last decade. Such environments have grown from hosting niche interest groups to providing sites for leisure, business and education for tens of millions of Internet users. Concurrently, a multi-disciplinary research field exploring the application of such spaces has emerged. This article examines in detail one data collection practice – observation in virtual worlds – that has been applied extensively, but without extensive methodological discussion. By revisiting and extending earlier work on this topic, the article presents four key considerations for those conducting observational research in virtual worlds: defining and delimiting field sites, discerning attention, charting actions and attributing intention. It is concluded that researchers must both ward against flawed assumptions about virtual world observation and consider multi-method strategies to overcome limitations in observational data.     

TAKING THE DEBATE ON REFLEXIVITY FURTHER

Much has been written on the presence of researcher subjectivity in qualitative research and the concept of reflexivity, and efforts to account for researcher influence abound. A vast proportion of this literature examines interviewer effects and is confined to the relationship between researcher and respondent in the interview interaction. The present paper extends this focus. It contributes insights from a collaborative team project by presenting a case study of a biographical‐narrative interview in an organisational setting. The psychodynamically informed panel analysis considered dynamics not only in the interview, but also in the research team and the organisation. This proved valuable in making explicit latent ways in which the interviewer, subject to such wider dynamics, shaped the interview accordingly. The paper shows that awareness of the nature of researcher influence can lead to important insights about the phenomenon studied.     

Post‐socialist language ideologies in action: Linking interview context and language ideology through stance

Changes associated with the post‐socialist period in Albania have complicated the legacy of language ideologies grounded in Ottoman‐era and socialist‐era politics. In this article, I analyze two metalinguistic interviews with young adults in the Albanian capital of Tirana in order to investigate the status of standardizing and anti‐standardizing language ideologies while also raising a methodological question regarding interview context and researcher role as persistent issues in sociolinguistic research. As acts of evaluation, language ideologies can be linked to interactional positionings and alignments via stance, which is significant for understanding aspects of identity and context in the interview. I argue that this framework provides a better understanding of interview dynamics than previous style shifting approaches, as any explanation of differences in interview interactions must simultaneously consider macro‐level influences of ideology and micro‐level interactional developments.     

The problems and prospects in the teaching of mixed methods research

There are pedagogical challenges USA students and instructors face within mixed methods classrooms. Instructors of mixed methods are often self-taught, lacking adequate training in both qualitative and quantitative approaches to research. Students are not often trained in both research approaches. These dual training gaps can result in deep pedagogical issues compromising students’ ability to fully understand mixed methods research praxis and leaving teachers feeling ill equipped to address students’ learning concerns. To tackle the myriad of challenges confronted in the mixed methods classroom requires structural changes to the current way graduate training programs in social research methods are organized and taught. Developing a team-based teaching approach to mixed methods research that provides students with instructors who have the requisite qualitative and quantitative knowledge can serve as a pedagogical model that can begin at least to address the current methods and methodological skills gap in the teaching of mixed methods research.     

Researching ethnic ‘others’: conducting critical ethnographic research in Australia and Scotland

In many parts of the world, classrooms are characterised by cultural and ethnic diversity. Increasingly, researchers are interested in exploring these rich and socially complex contexts. However, research into ‘the ethnic other’ can present complex ethical and methodological challenges. In this paper, the authors discuss, with reference to their respective studies in Australia and Scotland, their mission to give voice and agency to research participants and develop research relationships that reduce the power imbalance between researcher and researched. They conclude by suggesting that critical ethnographic research methods can assist in alleviating some of the difficulties inherent in research conducted in contexts where researchers are cultural outsiders. The authors also argue the need for protocols to be developed for research into ethnic minority communities.     

Erratum

This study explores research methodology courses and their potential impact on the doctoral process in one university in Spain. Specifically, it analyses the role and usefulness of research methodologies courses for students as they prepare for their dissertation work. Data were collected using semi‐structured interviews with 11 students. Syllabi from five different doctoral programmes and 54 educational research projects conducted by students were also analysed. Contrary to prior research, our results indicate that students are motivated and interested in methodological matters. These courses are a valuable component to the doctoral programme providing general orientation to inquiry and aiding students in becoming educational researchers. Furthermore, we found that methodological pluralism was adopted and used by students in their research projects when this same pluralism was covered in their coursework. Implications for teaching research methodology courses are included.     

On “Methodological Monism” in Rural Sociology1

Abstract This paper is a brief outline of the history of methods in rural sociology which suggests that the dominant methodological practice results from institutional arrangements and the traditions of the academic culture, as well as commitment to a scientific sociology. I note oft-stated critiques of the positivist model relevant to rural sociology's “methodological monism,” including imprecise measurement, low levels of predictability, and a social psychological orientation. I suggest, in addition, that methodological homogeneity in rural sociology presents social life as social facts rather than social process, leads to a simplistic understanding of the interview, and separates the researcher from the experience of research. A wider methodological orientation would, I suggest, encourage the examination of a wider range of issues and encourage wider participation in a subdiscipline which, because of its particular history, has developed in isolation from mainstream sociology.     

Pushing back the margins: power,identity and marginalia in survey research with young people

The study of marginalia has not been widely discussed in social sciences research and occupies a marginal space in terms of methodological legitimacy. We highlight the value of paying attention to the ways in which participants speak back to the researcher. This paper draws on marginalia found in surveys written or drawn by young people in classrooms across South Wales, demonstrating how various notes and marks made spontaneously by participants can tell us something important and worthwhile about how young people engage with research. We position marginalia as a manifestation of complex power dynamics in the research process that illuminate participants’ negotiation of complex and multiple subjectivities in the literal margins and between the lines of the survey pages. Whilst the sensitive and rigorous analysis of marginalia is fraught with ethical and methodological challenges, we argue that paying closer attention to marginalia presents an opportunity for deeper engagement with participants when undertaking survey research.     

A toolkit for accessible and respectful engagement in research

Social, scientific, and ethical factors underscore the value of respectfully including people with intellectual/developmental disabilities in research despite significant barriers to their research participation. In pursuit of this goal, we worked with two research advisors with intellectual/developmental disabilities to develop a qualitative study toolkit emphasizing accessibility, flexibility, variety, and responsiveness. The toolkit includes procedures and materials for recruitment, consent, interview locations and questions, breaks, and incentives. We recommend that future research utilizes insights of individuals with intellectual/developmental disabilities in research that impacts their lives, and that researchers systematically improve the use of procedures and toolkits.     

Research with Gay Drug Users and the Interface with HIV

Abstract

Studying the co-occurrence of drug use and sexual risk behaviors among gay men poses special challenges for research. The importance of conducting such research, however, is underscored by current trends in the gay community, including increases in methamphetamine and club drug use. This increase has been associated with high-risk behavior for the transmission of HIV and other diseases (e.g., hepatitis B and hepatitis C). The author describes methodological issues related to initiating and conducting research among gay male drug users, and discusses how such research can guide more effective prevention, treatment, and policy initiatives related to drug abuse and HIV/AIDS.     

Advancing towards inclusive social research: visual methods as opportunities for people with severe mental illness to participate in research

This article explores the possibilities offered by visual methods in the move towards inclusive research, reviewing some methodological implications of said research and reflecting on the potential of visual methods to meet these methodological requirements. A study into the impact of work on social inclusion and the social relationships of people suffering from severe mental illness (SMI) serves to illustrate the use of visual methods such as photo elicitation and graphic elicitation in the context of in-depth interviews with the aim of improving the aforementioned target group’s participation in research, participation understood as one of the basic elements of inclusive approaches. On the basis of this study, we reflect on the potential of visual methods to improve the inclusive approach to research and conclude that these methods are open and flexible in awarding participantsa voice, allowingpeople with SMI to express their needs, and therefore adding value to said approach.     

The history of academic research in public relations: Tracking research trends over nearly four decades

This study analyzed the history of public relations scholarship over 39 years of research published in two journals: the Journal of Public Relations Research and the Public Relations Review. By examining the topical, theoretical, and methodological themes, this study found new research topics, theoretical and methodological trends. These revealing themes provided a comprehensive picture of research trends and patterns of public relations scholarship, thus providing insights for future research agendas aimed at improving the breadth and depth in public relations.     

The social shaping of digital research

The social shaping of technology (SST) has become a broad umbrella term to cover a variety of theoretical and methodological perspectives in the social sciences. It has also defined a set of funded projects in the UK focused on a particular technical initiative around e-social science – digital social research. It is increasingly understood that social science research and work on the SST, in particular, should be applied to the study of innovations in digital research and their implications for the sciences and humanities. This overview is designed to help introduce the diversity of perspectives that the social sciences can bring to bear, such as under the social shaping umbrella and explain why this set of perspectives is of value to policy and practice in this field. The continuing advance and diffusion of digital research make it ever more important to strengthen the role of the social sciences in this area of multi-disciplinary research, policy, and practice.     

Researching paramilitary violence in Northern Ireland

This paper examines methodological challenges in researching paramilitary violence, with particular reference to the author's examination of paramilitary 'punishment' activity in Northern Ireland. The author notes the dearth of published work on methodological issues in social science research of violence generally. The range of major qualitative studies on paramilitary violence is presented and discussed. The paper explains the context of conducting such research in Northern Ireland in terms of the broader political conflict. It then examines several key challenges in researching paramilitary violence based primarily on the author's research. These included maintenance of political sensitivity, good faith and cautious security protocols. Potential legal and ethical difficulties were addressed through design of interview schedules that minimized risk of disclosure of the names or identities of those subject to 'punishment' or the perpetrators of offences. Those subject to paramilitary 'punishment' proved 'hard-to-reach', requiring greater time and effort in meeting the initial target sample, and a consequent need to research across a wide range of voluntary and community-based organizations. While risks of physical injury were minimal, successful research in the field was achieved through transparency about the impartiality and funding independence of the researchers, and a strategic sensitivity towards community and political backgrounds.     

Stancetaking and the joint construction of zine producer identities in a research interview

This article examines the construction of zine producer identities (self and other) during a research interview. Zines are self‐published texts that circulate in mainly underground communities. In this study, I draw on dialogic understandings of the notion of ‘stance’ to show how a zine producer accomplishes a situated identity performance in the interview that also functions as an interdiscursive move in a larger conversation about the role Do‐It‐Yourself (DIY) ethics should play in zine communities. Specifically, I show how this speaker displays stances in relation to recognizable social types within zine communities but also the canonical stances associated with these social types. I unpack the features that work in support of this stancetaking, including discourse markers, constructed dialogue, referring terms, and prosodic cues. The analysis also foregrounds how the interviewer's turns contributed to these emergent stance displays, which furthers our understanding of the dynamic social context of the research interview.