Theorising everyday life after acquired brain injury

This paper provides a conceptual argument for the sociological analysis of the everyday experiences of disabled people through the example of acquired brain injury (ABI) survivors. Most research concerning ABI has been carried out within a medical framework. This paper adds a new dimension to research concerning ABI, and indeed, to my knowledge, is the first to explore a long-term, interdisciplinary view of both ABI and neurological rehabilitation. This paper sets out how the use of critical sociological theory can provide thorough analyses of disabled people’s experiences that are free from the pre-judgement of traditional discourses.     

Interorganizational Groups in Human Services: Environmental and Interpersonal Relationships

Despite the frequent use of interorganizational groups in human services, their performance tends to be uneven. A dual focus on both environmental and interpersonal dimensions is required to understand variations in the development and outcomes of these groups. The author proposes a conceputal framework, grounded in open systems theory, exchange theory, and small group theory, to integrate both external and internal perspectives. Four types of interorganizational groups are identified based on their origin (mandated vs. voluntary) and the source of task structure (externally directed vs. internally developed). The four group types are illustrated with scenarios that highlight potential benefits and concerns. Characteristics of each group type are discussed. Further, administrative and policy guidelines are suggested for improving the performance of each type of group.     

Physically disabled women and sexual identity: a PhotoVoice study

The issue of sexuality for young disabled women is not often talked about in society. Our study aimed to explore four young physically disabled women’s experiences and perspectives regarding sexuality and disability. We used PhotoVoice, a participatory action research method which uses photographs, to capture and convey our participants’ concerns. Through their photographs they showed that everyday interactions with others, particularly strangers or meeting people for the first time, were made difficult by how they were always seen as having a disability. Other parts of their identity were not recognised. The change the young women wanted was for people to see them as young women and not just as disabled.     

Disability and democracy in Cambodia: an integrative approach to community building and civic engagement

The political framework through which the various communities of disabled persons in Cambodia advocate for and claim their rights is complex and confusing. Both governmental and non‐governmental actors engage this political framework through the mobilization of persons from the various disabled communities, competing in the civic sphere through issue‐oriented advocacy in ways that seek to influence the process of democratic governance. While the status of disabled rights in Cambodia is still comparatively weak, it is argued here that this civic engagement has allowed disabled communities to find common cause with non‐disabled persons and groups in the project of deepening the roots of democracy in Cambodia. This article discusses the demographic composition of disability, the framework of political action that addresses disability issues and the practice of civic engagement and activism by disabled and non‐disabled communities in Cambodia.     

Aging, disability, and disabled older people in India

India is witnessing a demographic revolution, leading to a considerable increase in the proportion of older people in the population. Similarly, life expectancy of both the mentally and physically disabled has improved considerably. About 5% of Indian older people have problems with physical mobility. Aging has become a gender issue in India not only because more women are surviving into old age; they are also vulnerable and disadvantaged in many ways. In most cases they are the only caregivers available for the old and disabled. Older Indians are considered a high-risk group for multiple morbidity. It is estimated that nearly four million Indians suffer from mental problems. India has around 12 million people designated as "handicapped." However, little information is available about disabled people who grow older. The National Policy on Older Persons, which has been recently formulated, aims at providing an improved quality of life for millions of older Indians. However, the concerns of older disabled and of the disabled who grow old are still treated separately in both policy and practice.     

Aging,Disability, and Disabled Older People in India

Summary

India is witnessing a demographic revolution, leading to a considerable increase in the proportion of older people in the population. Similarly, life expectancy of both the mentally and physically disabled has improved considerably. About 5% of Indian older people have problems with physical mobility. Aging has become a gender issue in India not only because more women are surviving into old age; they are also vulnerable and disadvantaged in many ways. In most cases they are the only caregivers available for the old and disabled. Older Indians are considered a high-risk group for multiple morbidity. It is estimated that nearly four million Indians suffer from mental problems. India has around 12 million people designated as “handicapped.” However, little information is available about disabled people who grow older. The National Policy on Older Persons, which has been recently formulated, aims at providing an improved quality of life for millions of older Indians. However, the concerns of older disabled and of the disabled who grow old are still treated separately in both policy and practice.     

ARE THE DISABLED LESS LOSS AVERSE? EVIDENCE FROM A NATURAL POLICY EXPERIMENT

Research findings show that disabled persons often develop physical and psychological mechanisms to compensate for disabilities. Coping mechanisms may not be limited to the psychophysiological domain and may extend to cognitive bias and loss aversion. In this study, we apply unique microdata from a natural policy experiment to assess the role of loss aversion in home purchase among nondisabled and disabled households. Results of survival analysis indicate that the physically disabled are substantially less loss averse in home purchase. Furthermore, loss aversion varies with other population characteristics and attenuates with degree of disability. Findings provide new evidence of diminished cognitive bias and more rational economic decision‐making among the physically disabled. (JEL D03, C9, R38)     

Information and Communication Technologies and the Opportunities of Disabled Persons in the Swedish Labour Market

This article attempts to outline the prospects of disabled persons to gain and retain employment within the Information Society by presenting and discussing the results of a labour market policy programme in Sweden based on information technology. The effects of Information and Communication Technologies (ICTs) for unemployed and employed persons with disabilities can be assessed on the micro, as well as on the macro levels. Technological optimism has given rise to expectations about the great potential of ICTs in creating employment opportunities for disabled persons. Technological optimism, however, derives from a deterministic point of view, i.e. ICTs are regarded as an independent variable. This article suggests that ICTs must be regarded as a variable dependent by the economic, social and cultural order. Its effects on disabled persons employment opportunities are not independent by the power relations at a given time.     

A framework for evaluating eHealth research

Health care is in the midst of a consumer-oriented technology explosion. Individuals of all ages and backgrounds have discovered eHealth. But the challenges of implementing and evaluating eHealth are just beginning to surface, and, as technology changes, new challenges emerge. Evaluation is critical to the future of eHealth. This article addresses four dimensions of eHealth evaluation: (1) design and methodology issues; (2) challenges related to the technology itself; (3) environmental issues that are not specific to eHealth but pose special problems for eHealth researchers; and (4) logistic or administrative concerns of the evaluation methodology selected. We suggest that these four dimensions must be integrated to provide a holistic framework for designing and implementing eHealth research projects, as well as for understanding the totality of the eHealth intervention. The framework must be flexible enough to adapt to a variety of end users, regardless of whether the end user is a healthcare organization, a for-profit business, a community organization, or an individual. The framework is depicted as a puzzle with four interlocking pieces.     

What Disability Civil Rights Cannot Do: employment and political economy

The Americans with Disabilities Act is both a liberal civil rights bill and a labour economics bill meant to increase the employment of disabled persons. It identifies the source of unemployment in discriminatory attitudes of employers and physical barriers in the work environment, and promotes inclusion through the establishment of regulations that are intended to create 'equal opportunity' in the labour market. Such liberal reforms primarily focus on 'irrational' discriminatory attitudes. Operating within an individualist framework, civil rights have not given sufficient attention to structural barriers, which 'rational' business practices, the economic system and class power relationships erect. This paper will both micro- and macro-economic realities of US capitalism, which directly impede disabled peoples' employment and perpetuate a disabling society. The failure of rights legislation to increase disabled people's employment exposes the contradictions of promoting equal opportunity in a class-based (unequal) society.     

Becoming en‐wheeled: the situated accomplishment of re‐embodiment as a wheelchair user after spinal cord injury

This paper discusses the creative process of re‐embodiment experienced by physically disabled adults who become wheelchair users. Interviews and observational data of adults (rehabilitation patients and persons living in the community) who use wheelchairs show how they redefine, re‐examine or modify past experiences, abilities, lifestyles and habits in their efforts towards re‐embodiment. The aim of this paper is to document the process of learning to use a wheelchair and making it a part of one's embodied existence. The paper shows that this process involves the negotiation of past and new habits, abilities and ways of doing. It argues against conceptualizing disability as an all encompassing state of being. Rather, the competence and abilities required to achieve wheelchair embodiment are analyzed as a situated accomplishment with social and political consequences.     

Personal Computer Based Clinical Systems

Abstract

This paper presents the author's research on designing, developing, ana testing a computerized case management system aimed at enhancing the employability of physically disabled adults engaged in vocational rehabilitation. The theoretical framework of this system is found in the goal oriented theory for clinical practice and includes a comprehensive assessment, case planning, goal attainment scaling, ana monitoring modules. It is written in dBASE 111 +, and compiled in Clipper. Its feasibility was tested in a clinical setting and the results indicate that clinicians are finding (he system facultative and easy to follow.     

Inheritance,poverty, and disability

Inheritance is a significant means of transferring wealth from one generation to the next, and therefore increasingly attracts attention from researchers and policy-makers working on intergenerational and multidimensional poverty. However, until now disabled persons have been overlooked in these discussions. This oversight is particularly unfortunate because, as a group, the estimated one billion people with disabilities (some 15% of the world’s population) are among the poorest and most marginalized of the global population. Over the past decade, a small but growing literature has examined the recursive connections between poverty and disability throughout the developing world. In this paper, we argue that disabled individuals are routinely denied inheritance rights in many low-income and middle-income countries, and that this is a significant and largely unrecognized contributor to their indigence. The denial of inheritance is both a social justice issue and a practice that can no longer be overlooked if disabled persons are to be brought into the development mainstream.     

New Disability Services: The Critical Role of Staff in a Consumer-directed Empowerment Model of Service for Physically Disabled People

Australian disability services have undergone a major review. Initiated by the government and now enshrined in new legislation, this review has significant implications for non-government social welfare organisations as major service providers in that it demands a significant service delivery reorientation. This paper describes one demonstration project involving four physically disabled persons, one female and three males, located in one domiciliary unit which signposts this new service direction and identifies it as a consumer-directed and empowering model. This is contrasted with previous institutional and care models of service. It identifies the staff role as important in this client-empowering model of service and raises a range of critical issues in the consumer-staff interface which enhances such empowerment. The paper suggests that where these staffing features and empowerment processes are lacking deinstitutionalisation may well have occurred without consumer empowerment being achieved.     

Independent lives and the relevance of lifetime homes

A problem for disabled people, particularly individuals dependent on the use of a wheelchair, is housing that is not easily usable due to physical barriers. A proposed solution by government is the adoption of lifetime homes (LTH) standards that are likely to become mandatory for all newly constructed dwellings in the private sector in England by 2008. It is, therefore, an appropriate time to take stock of LTH standards, and to evaluate to what extent they are able to address the problems for disabled people caused by physically inaccessible housing. In doing so, the article provides a critique of LTH standards, and suggests that while they are, in some respects, a positive development, they are not, in and of themselves, a panacea in relation to rectifying the shortfall of accessible dwellings.     

Institutional woes of participation: Bulgarian disabled people’s organisations and policy‐making

This paper presents a critical study of the participation of Bulgarian disabled people’s organisations in the policy‐making process on a national level. It describes how the ‘representatives’ of disabled Bulgarians become depoliticised and even depersonalised when their participation becomes institutionalised through the National Council on Integration of People with Disabilities. It is argued that such an instance of ‘participation’ actually sustains the status quo of underdevelopment and dependency. A parallel is drawn with the concerns of the British disability movement. The paper ends by suggesting some tentative solutions to the highlighted problems.     

Claiming loss in disability

Pervasive representations of disability carry associations with the idea of loss. These have been strongly rejected by the social model movement as stereotyping, which may perpetuate views of disabled people as ‘incomplete’, ‘vulnerable’ or needing rehabilitation. Discourses of ‘loss’, ‘acceptance’ and ‘denial’ remain a lens through which disabled persons are misknown. It is posited that ascribed notions of ‘loss’ serve to maintain feelings of control and mastery within the observer, quieting the destablising psychic threat which disability poses. Further, disabled people positioned as having to ‘deny’ imputed loss may be at risk of suffering self‐alienation relating to a mode of being which is (necessarily, understandably) preoccupied with ‘not being’ the personification of stereotype, at the expense of exploring aspects of identity and self; such an orientation embodies unstable foundations for an entitled, articulate disability movement. Conceptual ideas are based on the author’s experience as a disabled group psychotherapist working with severely physically impaired adults.     

‘It’s better if someone can see me for who I am’: stories of (in)visibility for students with a visual impairment within South African Universities

Issues of visibility, invisibility and the non-disabled gaze are very relevant to the lives of many disabled persons. With this article we tentatively show that, despite the physical ‘over’-visibility of disabled bodies, many intricate parts of their personhood remain obscured and invisible. Interviews with 23 students with a visual impairment revealed that they sometimes experienced stares and averted gazes from their sighted counterparts. In response, they often hid their entire impairment, or parts thereof, in an effort to conform and gain acceptance and to earn membership to a non-disabled peer group. Acceptance was often found in companionship with fellow disabled peers. Since these stories told of continuing exclusion for disabled students on tertiary grounds, further participatory research is recommended.     

Disabled persons’ job interview experiences: stories of discrimination,uncertainty and recognition

This paper explores disabled persons’ narrated experiences from job interviews. Based on interviews with employed disabled persons in the United States and Norway, the analysis investigates how the informants understand and deal with employers’ interpretations of disability. Three kinds of stories are identified: discrimination, uncertainty and recognition. In the first two stories, informants portrayed employers who used a non-inclusive discourse of disability. In the story of recognition, informants perceived employers to be primarily interested in their competence, and disability was dealt with in an inclusive manner. The comparison between American and Norwegian accounts reveals striking similarities in disabled persons’ narratives.     

Counseling severely dysfunctional families of mentally and physically disabled persons

Some families of mentally and physically disabled persons behave in an extremely self-destructive or resistant manner. These severely dysfunctional families pose a formidable obstacle to their disabled relatives' habilitation. Because such families are particularly frustrating to work with, little professional assistance has been provided to them. This article examines probable causes of severely dysfunctional family behavior, details several maladaptive family patterns and suggests practical treatment strategies for helping these families.