Simulation Exercises in Disability Awareness Training: A Critique

This paper takes a critical look at simulation exercises. Little evidence exists that these exercises have a positive effect on either attitudes or behaviour but, despite this, they are used extensively in disability awareness training, both for children and adults. It is argued in this paper that by individualising and medicalising disability, and by focusing excessively on problems and difficulties, simulation exercises provide false and misleading information, and inculcate negative, rather than positive, attitudes towards disabled people. It is suggested that simulation exercises fail to simulate impairment correctly, and address neither the coping strategies and skills disabled people develop in living with impairment, nor the cumulative social and psychological effect of encountering social and physical barriers over a lifetime. Rather than using simulation as a means of attempting to understand the experience of disability, the paper concludes by advocating the use of disability equality training, which is devised and run by disabled people themselves.     

The Systems Theory Concept of Disability: one is not born a disabled person, one is observed to be one

The article aims at the theoretical development of the concept of disability, with particular reference to its integration with social systems theory. The concept of disability is discussed by suggesting that the predominant models within disability research cannot communicate with each other because they represent different observation points, all of them describing disability from within a specific system. It is the thesis of this article that the distinction between individual and society, which constitute the basis of the well-known scheme of observed differences between impairment, disability and 'handicap', is a distinction based on nai¨ve realism and obscures the problems within disability research. In line with a long tradition within sociology, social system theory rejects the belief that our concepts are representations of reality: the categories and concepts we use are distinctions that are system specific. It is through those distinctions that the phenomenon is observed. This implies that observations are not absolute but relative to the observer's perspective.     

Who Shall Decide? The Relevance of Theory and Research to Decision-making by People with an Intellectual Disability

In the context of normalisation and rights recognition, capacity for decision-making by people with an intellectual disability has emerged as an important but potentially contentious issue. Although increased community integration has opened up many new options, opportunities for greater autonomy are still unnecessarily constrained. Perceptions of limited competence, the issue of who has control over choices, and organisational structures are some of the factors which influence the extent to which clients are able to make decisions. This paper argues that, in order to resolve these issues, decision-making by people with an intellectual disability should be studied within the broader context of psychological theories of decision-making and human behaviour. Theoretical findings are reviewed and areas identified in which decision-making behaviour may break down. The relevance of theoretical research to issues of competence and empowerment, and to the small body of research on decision-making and choice by people with an intellectual disability is discussed. It is concluded that future research should focus on contextual variables, including the nature of the decision to be made, which affect decision-making competence in people with an intellectual disability.     

Some psychological themes in social work education: A black perspective

In this brief article, I have argued that little of the current psychological literature on issues of importance to Black people has been approached from an articulated theory-based Black perspective. Traditional principles and theories in psychology have not had sufficient explanatory power to account for the behaviour of Black people. Black psychologists have, therefore, presented alternative perspectives of black child development, black families, black education, and personality development. However, most of the psychological research on black children and black families has concentrated on Afro-American families. It may be some time before such perspectives are developed and articulated in Britain but, in the meantime, some understanding of present research and theory is needed. It must be stressed that a Black perspective is not totally incompatible with Euro-American psychology. It is concerned with redefining existing psychological principles and concepts, and developing models that will reveal the strengths of black people.

The ability to practice in an anti-discriminatory way is a fundamental theme running through CCETSW's statement of requirements for qualification in social work (CCETSW, 1991a). It therefore follows that explanations of Black behaviour which are alternative to White perspectives need to be developed in social work education. Black behaviour must be understood in its appropriate historical, social, cultural, political, and economic contexts.     

Parents with a Learning Disability: research issues and informed practice

This paper commences with an examination of the concept of parenting and then applies its findings to parents who have a learning disability. It is argued that views on parenting, drawn from mainstream developmental psychology from parents who do not have a learning disability can inform our thinking about parents who do have a learning disability and provide an agenda for future research. In particular, we look at skills-based approaches to parenting, parenting as a motivated activity, cultural and historical factors influencing parenting, and lay views on children and childhood. The conclusion was reached that, although an audit of what people with a learning disability believe and expect about children is valuable research, the critical issue is how this knowledge is applied in parenting practice.     

Dementia,disability rights and disablism: understanding the social position of people living with dementia

This article considers the recent history and consequences of positioning people living with dementia in the realms of disability, disablism and disability rights. The geo-political focus is the United Kingdom and neighbouring resource-rich nations in the Global North. The first section examines the growing trend of identifying ‘dementia’ with ‘disability’, a trend fuelled by the expansion of dementia-related activism and research. The second section focuses on how researchers who have published in Disability & Society and other journals have applied the social model of disability to individuals living with dementia. The third section discusses three conceptual challenges that lie ahead for those who choose to research and theorise the dementia/disability connection. These challenges concern: theorising dementia as disability; understanding intersectionality in dementia contexts; and understanding ‘abuse’ in dementia contexts.     

Understanding Social Movements: theorising the disability movement in conditions of late modernity

This article draws upon qualitative research carried out by the author and funded by the ESRC. One of the central aims of this research was to investigate the nature of the UK disability movement's ‘struggle’ and to evaluate critically the idea that it is a ‘new’ social movement. Consideration of the disability movement in relation to both ‘new’ social movements and to wider social movement theorising has suggested that it may not be possible to understand this movement, entirely, by using any of the existing models. This article concludes by outlining the possible starting point for a new approach to understanding the disability movement based upon forging a closer link between citizenship and social movement theory and upon a focus on the nature of engagement. Empirical evidence from the research is included in this article in the form of quotations from respondents, all of whom are/were members of organisations that are run by disabled people. All respondents' names have been removed to maintain their anonymity.     

Disabled People,Health Professionals and the Social Model of Disability: Can there be a research relationship?

The social model of disability is proposed as an alternative to models that have viewed disability as an individual, rather than a socio-political issue. The use of this model to guide both research theory and practice is proposed in order to equalise research power relationships, and involve and empower disabled people. Health professionals have traditionally reinforced the medical model of disability in both research and practice, and this has been seen as contributing to the oppression and marginalisation of disabled people. If the social model is to achieve wider dissemination, it would appear important to develop a dialogue between disabled people and health professionals. However, because of negative perceptions it can be difficult for health professionals to find an appropriate position in relation to disabled people, research and the social model of disability. While not denying the past, it appears essential to look at ways in which disabled people and health professionals can work together to overcome the oppression and marginalisation that has been linked to the provision of health services.     

Pushing the boundaries of our understanding of disability and violence: voices from the Global South (Guyana)

Our knowledge about disabled people’s lives is largely based on research in the Global North. This article considers disability and violence in the Global South, specifically in Guyana. It aims to push conceptual and empirical boundaries of our understanding of violence and disability. Conceptually, it argues for a social model materialist theory of disability attuned to how material barriers to disabled people’s inclusion in society and space are reproduced through processes of exclusion unfolding across geographic scales ranging from the global, to the inter-personal and intra-personal. It argues that Lacanian psycho-analytic theory provides a complimentary lens for understanding why people engage in acts that construct disabled people as ‘deserving’ of violence. Empirically, the article broadens our understanding of disability and violence by focusing on poverty, violence as a cause of impairment and disability, and disabled women’s and men’s experiences of violence in a majority world context.     

Counting Us Out: A Discussion of the OPCS Disability Surveys

This paper provides a summary of the main findings of the first two OPCS reports on disability and a critique of the methodology employed. Whilst the first report highlights the systematic underestimation of the prevalence of disability which was enshrined in previous government research, it should by no means be interpreted as providing the 'true' figure. Such a project is an impossible one, since 'disability' is a social construct, and definitions dependent upon the interests, intentions and presuppositions of those with the power to define. As far as the severity scales are concerned, a wholly spurious 'objectivity' is identified. The second report, on financial circumstances, does implicitly provide official recognition that disability causes poverty. Because of the research methods employed, however, it fails even to approach an adequate quantification of the financial disadvantages experienced by disabled people. A critical understanding of the deficiencies of the OPCS surveys, in terms both of overall approach and of method, can provide a salutary example of how not to research issues of disability.     

Constructions and Creations: idealism, materialism and disability theory

This paper suggests that a proper understanding of disability theory requires more than a distinction between individual and social model approaches. It is also helpful to distinguish between materialist and idealist explanations. These two dimensions are used to generate a four-fold typology which highlights important differences between the main approaches. Social models are distinguished as those premised upon commonality. However, it is argued that recent discourses of 'difference' do not detract from social model theory. Social model approaches are examined in more detail and the paper concludes that although social constructionist accounts have been useful they do not provide a sufficient level of explanation. Disabling social values reflect material relations of power and may be better explained as 'ideology'.     

Income characteristics and the use of microfinance services: evidence from economically active persons with disabilities

The purpose of this empirical research from Uganda is to provide initial insight into the ‘black box’ of understanding the economic behaviour of persons with disabilities and about their use of microfinance services. First, we analyse the income levels of persons with disabilities in relation to their sources of income. Second, we study the income sources and income levels for different types of disabilities. Finally, we analyse how income level and income source relate to the use of microfinance services for persons with disabilities. We present evidence that farmers with disabilities and persons with visual impairments have lower income levels than other persons with disabilities. We then document that those with the lowest income levels have the least access to microfinance services, in particular services from formal institutions. Moreover, respondents involved in farming and manufacturing have less access to formal microfinance services than those involved in retail/wholesale or service activities.     

Navigating the ethical maze in disability research: ethical contestations in an African context

Despite changes in how disability is viewed, ethical requirements for disability research have hardly changed. Some ethical clearance procedures, processes and practices still consider persons with disabilities as not able, creating unease among researchers and research participants with disabilities themselves. This paper considers five ethical contestations arising from research in the area of disability in an African context: positionality, vulnerability, signed consent, anonymity, and research committee composition. We argue that ethical requirements in practice are still largely based on a medical model of disability and propose that culturally sensitive social and human rights models should influence disability research ethics.     

Disability as a Phenomenon: a discourse of social and biological understanding

This paper addresses conceptualisations of disability and what it constitutes as a category in a social security system. It argues that the conceptualisation of disability involves a discourse about definitions. This means it is an ongoing debate about principles or which determinators to use presenting the 'correct' understanding of disability as a phenomenon. The disability discourse involves a contest between a biological and social understanding of disability. This paper discusses which domains of interest are produced by each of these understandings. They are based on empirical findings when analysing rights of entitlement to a disability programme in the Swedish social security system. The study followed documentation of the public debates for a period of 25 years and extracted what was communicated as constituting disability in these debates. Which definition to give disability by this social security programme appeared as being a continuous contest between medical and social understanding. The paper argues that, rather than approaching the biological understanding as representing an antiquated concept to disability and the social model as a modern conceptualisation, these understandings are competitive. This makes disability into a flexible and heterogeneous concept, a term difficult to give a specified and limited meaning.     

Toward a Holistic View of Health and Health Promotion in Social Work with People with Disabilities

Abstract

The individual medically oriented model of disability suggests that people with disabilities seldom achieve health and wellness because of their impairments and disabilities. This paper provides an alternative to the tendency in social work to focus on the medicalization of disability without a due consideration of the social context. It draws insights from the social model that asserts disability is a form of social restriction encountered by people with disabilities and that social barriers of disability must be removed through collective action. Also, this model posits that people with disabilities can be healthy if the barriers preventing good health are removed. However, medical aspects of a person with a disability should not be forsaken entirely. Therefore, this article proposes a holistic view that converges insights of the individual and social models toward a better understanding of health issues for people with disabilities. It shows the implications for social work that follow from the convergence.     

The Biodemography of Fertility: A Review and Future Research Frontiers

The social sciences have been reticent to integrate a biodemographic approach to the study of fertility choice and behaviour, resulting in theories and findings that are largely socially-deterministic. The aim of this paper is to first reflect on reasons for this lack of integration, provide a review of previous examinations, take stock of what we have learned until now and propose future research frontiers. We review the early foundations of proximate determinants followed by behavioural genetic (family and twin) studies that isolated the extent of genetic influence on fertility traits. We then discuss research that considers gene and environment interaction and the importance of cohort and country-specific estimates, followed by multivariate models that explore motivational precursors to fertility and education. The next section on molecular genetics reviews fertility-related candidate gene studies and their shortcomings and on-going work on genome wide association studies. Work in evolutionary anthropology and biology is then briefly examined, focusing on evidence for natural selection. Biological and genetic factors are relevant in explaining and predicting fertility traits, with socio-environmental factors and their interaction still key in understanding outcomes. Studying the interplay between genes and the environment, new data sources and integration of new methods will be central to understanding and predicting future fertility trends.     

Real Men,Real Women,Real Lives? Gender issues in learning disabilities and challenging behaviour

This article seeks to define gender issues and explores the significance of these issues for challenging behaviour in the field of learning disability. It is argued that lack of awareness about these issues contributes to the development of challenging behaviour and to difficulties in identifying the needs expressed through these behaviours, whatever their origin. Specific areas examined include models of residential provision for adults, prioritisation of service activities, attribution processes (needs identification), and the sexuality of people with learning disabilities. In each area issues are raised and the implications for service practice defined.     

Embodying and enacting disability as siblings: experiencing disability in relationships between young adult siblings with and without disabilities

Abstract

Where one sibling has a disability, research has examined the role of disability in sibling relationships; however, the majority has reflected a normative understanding of sibling relationships and a deficit understanding of disability. Reacting to this history, this paper draws on the concepts of embodiment (absorption of bodily experience into self/identity) and enactment (performance of self/identity) to provide a new way of understanding the role of disability in sibling relationships. Using data from an Australian study of young adult siblings with and without disabilities, the paper discusses how disability is embodied and enacted in: how siblings engage in supportive and conflictual talk and everyday chat with each other; how they enact recreation and seek connection with each other; and how they strive to understand and experience their emotions about each other. The paper ends by discussing how embodiment and enactment allow a clearer understanding of disability in sibling relationships, which may be empowering for siblings.     

Unruly bodies at conference

Academic conferences embody a set of prescribed regulative practices. This article considers some of the tensions that arise when these normative expectations are disrupted by unruly bodies. As scholars of disability studies we lament the lack of understanding within an ableist society that is resistant to change. In this article, however, I invite us to explore closer to home to consider how unruly bodies might enable reflection on how disability is created even within our own ‘expert’ environments. It is argued here that new ways of conceptualising and accommodating behaviour at conference are required if these are to exemplify the inclusive and welcoming spaces desired by us all.     

Public health,research and rights: the perspectives of deliberation panels with politically and socially active disabled people

Public health research purports to provide the evidence base for policies, programmes and interventions to improve the health of a population. However, there is increasing awareness that the experiences of disabled people have played little part in informing this evidence base. This paper discusses one aspect of a study commissioned by England’s National Institute for Health Research (NIHR) to review the implications for public health of theories and models of disability. This part of the study focused on the development of a tool or decision aid to promote ethical inclusion of disabled people in public health randomised controlled trials (RCTs) and evaluative research. The tool was introduced at four regional ‘deliberating panels’ involving politically and socially active disabled people. In addition, we held a panel with public health professionals. The deliberation panels debated how the focus of public health was narrowing, why disability was excluded and positive and negative issues with using rights to guide research and evaluative practice. Politically active disabled people argued for a social model of human rights to guide any rights based tools or decision aids in public health and disability research.