Disclosure of Individualized Research Results: A Precautionary Approach

Assessing and managing risks to participants is a central point of contention in the debate about disclosing individualized research results. Those who favor disclosure of only clinically significant results think that disclosing clinically insignificant results is risky and costly, and that harm prevention should take precedence over other ethical considerations. Those who favor giving participants the option of full disclosure regard these risks as insubstantial, and think that obligations to benefit participants and promote their autonomy and right to know outweigh the obligation to prevent harm or financial considerations. The risks of disclosing clinically insignificant research results are currently not quantifiable, due to lack of empirical data. The precautionary principle provides some insight into this debate because it applies to decision-making concerning risks that are plausible but not quantifiable. A precautionary approach would favor full disclosure of individualized results with appropriate safeguards to prevent, minimize, or mitigate risks to participants, such as: validating testing methods; informing participants about their options for receiving tests results and the potential benefits and risks related to receiving results; assessing participants' comfort with handling uncertainty; providing counseling and advice to participants; following-up with individuals who receive tests results; and forming community advisory boards to help investigators deal with issues related to disclosure.     

Children's Beliefs About Self‐disclosure to Friends Regarding Academic Achievement

Self‐disclosure to friends is a potentially useful way for children to pursue a range of desired goals. Here we examined reasoning about the appropriateness of disclosing one's own academic outcomes in a sample of 7‐, 9‐, 11‐, 13‐, and 15‐year‐old Chinese participants (N = 150). The valence of (1) the outcomes to be disclosed and (2) the corresponding outcomes for the potential audience for the disclosure was manipulated factorially, and participants judged whether disclosure was advisable and explained their responses. Disclosure was seen as more appropriate under valence‐matching conditions than valence‐mismatching conditions. How participants judged each type of disclosure under valence‐mismatching conditions varied as a function of participant age: As compared with younger participants, older participants considered disclosure of weak performance to a stronger performer more acceptable and disclosure of strong performance to a weaker performer less acceptable. These findings suggest that older children are more likely than younger children to appreciate that self‐disclosing positive performance outcomes can bring social costs, and that self‐disclosing negative performance outcomes can bring social benefits.     

Characteristics of female perpetrators of domestic violence in group therapy

This report is based on a set of clinical observations that identified unique characteristics of 12 female perpetrators of domestic violence in court ordered 52‐week group treatment. The observations are primarily based on the experiences of two therapists who treated a group of 12 female participants, concurrent with two male groups, each of which consisted of 10 participants. A number of comparative clinical observations are made in relation to the treatment of these male and female perpetrators. The group leaders identified three characteristics specific to female perpetrators of domestic violence: compulsive and premature disclosure by more than half the participants in the woman's group, versus minimal or deferred disclosure in the men's groups; perception of self as perpetrator and ambivalent perception of self as victim in the women's group, versus perception of self as either victim or perpetrator in the men's groups; and devaluation of self in the women's group, versus devaluation of the partner in the men's groups. The group leaders also observed that the perceptions and attitudes of the younger, poorer, less well‐educated participants often conflicted with those of their more affluent counterparts.

Therapists who treat mandated perpetrators of domestic violence in groups must contend with direct expressions of hostility. They must also help clients recognize and understand reasons for their dysfunctional partnerships and begin to think about how they can develop healthier relationships. The clinical observations from this group strongly suggest that psychological and socio‐economic factors interact to significantly influence treatment process and outcomes.     

Impact on Parents of Receiving Individualized Feedback of Psychological Testing Conducted with Children as Part of a Research Study

While many researchers accept the principle that participants have a right to receive information learned from their participation in research, there are few studies examining the impact of receiving results on participants. This study was developed to examine the impact on parents of the receipt of individual results of research-based psychological testing of their children. A summary of the child's individual results of standardized measures of language and development was sent by mail with the questionnaire designed to assess the impact of receiving results. Response rate from the mailed questionnaire was 55.6% (n?=?74/133). Most parents reported the results as helpful and positive. The majority would receive results again. Overall, the sharing of individualized feedback from psychological testing conducted as part of a research study was well accepted by parents. This practice appears ethically permissible with appropriate support options for addressing participant concerns upon receiving the results as well options for clinical follow-up for the child.     

Beliefs about overconfidence

This experiment elicits beliefs about other people’s overconfidence and abilities. We find that most people believe that others are unbiased, and only few think that others are overconfident. There is a remarkable heterogeneity between these groups. Those people who think others are underconfident or unbiased are overconfident themselves. Those who think others are overconfident are underconfident themselves. Despite this heterogeneity, people overestimate on average the abilities of others as they do their own ability. One driving force behind this result is the refusal to process information about oneself: not only does this lead to overestimation of one’s own ability, but by means of social projection also to overestimation of others’ abilities.     

Utilization of child helpline (CHL) among adolescents in Saudi Arabia: Results from a national survey

This study determines the rate of adolescents' interest in disclosing their exposure to abuse or neglect through a child helpline (CHL) and identifies the factors influencing disclosure through the line. A cross‐sectional, national survey utilizing ISPCAN Child Abuse Screening Tool‐Children's Home Version was conducted in secondary high schools in the main 5 provinces of Saudi Arabia. Boys and girls from public and private schools were selected to participate. Students (N = 16,010) aged 15–18 years were invited to complete the survey. The relationship between willingness to utilize CHL and demographic characteristics of the participants were evaluated using chi‐square test. Approximately, half (48%) of the participants reported their willingness to utilize a future CHL if they experienced any type of abuse in the past. Significant difference in age, gender, areas of residence, and abuse experience were found in terms of willingness to utilize CHL, and it was more likely among older age (17–18 years), boys, urban area, and abused participants (p < .01). Participants who reported experiencing multiple forms of abuse, neglect, and psychological abuse were 1.3, 1.9, and 1.2 times, respectively, more likely willing to utilize CHL. Educating adolescents about the utilization of CHL through awareness‐raising activities might reduce the prevalence of child abuse.     

Impact of Combat on the Mental Health and Well‐Being of Soldiers and Marines

This presentation introduces a summary of leading edge research and recommendations for a number of changes regarding mental health needs and services for Veterans. Those Veterans who experienced combat exposure and those who have perceived their leadership negatively have greater risks for developing subsequent PTSD. Research data provide support for the use of Battlemind Training as a useful approach to prevent mental health issues at all phases of the deployment cycle. The author also challenges the current use of DSM–IVTR diagnoses with combat Veterans.     

Impact on parents of receiving individualized feedback of psychological testing conducted with children as part of a research study

While many researchers accept the principle that participants have a right to receive information learned from their participation in research, there are few studies examining the impact of receiving results on participants. This study was developed to examine the impact on parents of the receipt of individual results of research-based psychological testing of their children. A summary of the child's individual results of standardized measures of language and development was sent by mail with the questionnaire designed to assess the impact of receiving results. Response rate from the mailed questionnaire was 55.6% (n=74/133). Most parents reported the results as helpful and positive. The majority would receive results again. Overall, the sharing of individualized feedback from psychological testing conducted as part of a research study was well accepted by parents. This practice appears ethically permissible with appropriate support options for addressing participant concerns upon receiving the results as well options for clinical follow-up for the child.     

反思研究生教育的价值取向

研究生教育的快速发展要求我们对研究生教育的发展定位和价值取向进行反思,从哲学层面思考研究生教育本质内涵。研究生教育是全人格的教育,而不是片面人格的教育,是研究性教育而不是知识性的教育,是开放的教育而不是封闭的教育,是多样化的教育而不是单一化的教育。     

To Disclose or Not to Disclose Biracial Identity: The Effect of Biracial Disclosure on Perceiver Evaluations and Target Responses

Are biracial people perceived more negatively than their monoracial counterparts? Across two studies, we compared ratings of warmth, competence, and minority scholarship worthiness for biracial (Study 1: Black/White, Study 2: Asian/White), White, and minority (Study 1: Black, Study 2: Asian) college applicants. Findings suggest that both biracial applicants were perceived as colder and sometimes less competent than both White and corresponding minority applicants. Moreover, biracial people were also perceived as less qualified for minority scholarships than other racial minorities, which is partially explained by penalties to warmth and competence. Study 3 shows that disclosing one's biracial identity makes biracial people vulnerable to negative feedback. Taken together, these studies suggest that biracial people who disclose their biracial identity experience bias from perceivers and may be more vulnerable to that bias because of the personal nature of racial disclosure. Findings are discussed considering the stereotype content model ( Cuddy, Fiske, & Glick, 2007 ), cultural stereotypes about biracial people ( Jackman, Wagner, & Johnson, 2001 ), and the costs of disclosing devalued identities.     

Research ethics review for the use of anonymized samples and data: A systematic review of normative documents

While the anonymization of biological samples and data may help protect participant privacy, there is still debate over whether this alone is a sufficient safeguard to ensure the ethical conduct of research. The purpose of this systematic review is to examine whether the review of an ethics committee is necessary in the context of anonymized research, and what the considerations in said ethics review would be. The review of normative documents issued by both national and international level organizations reveals a growing concern over the ability of anonymization procedures to prevent against reidentification. This is particularly true in the context of genomic research where genetic material’s uniquely identifying nature along with advances in technology have complicated previous standards of identifiability. Even where individual identities may not be identifiable, there is the risk of group harm that may not be protected by anonymization alone. We conclude that the majority of normative documents support that the review of an ethics committee is necessary to address the concerns associated with the use of anonymized samples and data for research.     

Unmet needs in self-directed HCBS programs

ABSTRACT

Unmet need for long-term services and supports has been linked to a variety of harmful health outcomes. One suggested strategy for ameliorating unmet need is to give participants control of a budget and let them construct individualized plans. The evaluation of the Cash and Counseling controlled experiment (CCDE) documented a marked reduction in unmet need when compared to traditional agency-based solutions, but it also showed significant unmet needs remained. This paper reanalyzes 76 case studies from the CCDE to, for the first time gain an understanding of what those unmet needs are, who sees them, and what participants, caregivers and support brokers think might reduce this problem. Using a collective or multiple case study approach to understand this phenomenon, unmet needs were sorted into five categories using real life experiences of respondents. Unmet needs for assistance in managing the employer and budget tasks of self-direction were also captured.This paper discusses situations where the clinician researchers documented needs that were not expressed by the care recipients and provides a picture of where and why unmet needs remain.The paper concludes with strategies for reducing unmet needs and training future social workers.     

逃税行为的经济学分析

逃税是一种普遍的社会现象,尤其在发展中国家更为严重.纳税人在进行逃税活动时,总是权衡了风险和收益的情况下,选择最优的收入申报量,而使它的预期收入最大化.当逃税被稽查的概率与被查处所受惩罚的力度之积大于和等于1时,纳税人会倾向完全纳税,相反会倾向逃税.同时,逃税人的预期收入还受到收入、税率、稽查概率和惩罚力度等参数的影响.要遏制逃税行为,应采取适当提高稽查概率,加大惩罚力度和提高收入的显性化等措施,才能使它的危害程度降到最小.     

金融服务者风险揭示义务的法律规制

金融商品尤其是金融投资型商品,其无形性及高风险性要求金融服务者在销售及推介时必须进行信息披露,其中,对于金融投资型商品的风险揭示义务应成为金融服务者的首要义务。作为信息优势的一方,金融服务者应在适宜性原则之下,尽到善良管理人的谨慎注意义务,将金融商品的使用风险以适合的方式使金融消费者知悉,辅之以一般性反欺诈条款的引入,使之承担相应的法律责任。同时,亦应考虑金融服务业本身的特质,以利益衡平理念限定风险揭示义务的边界,不宜扩大解释以免贻害行业发展而最终损害金融消费者利益。     

Strategic uncertainty,coordination failure and emergence: A game theory study on agency‐structure interactions

In the social sciences there is a long standing debate over the primacy of structure or agency in shaping human behavior. Structurationists like Giddens think of individuals' agency and collective features as two sides of the same coin while emergentists including Archer and Elder‐Vass claim that structurationists are blurring an important ontological distinction——they argue for effective social analysis, we should think of structures and individuals as different things because emergence happens when the properties of the collective are not reducible to the properties of the parts that constitute them. This paper contributes to the agency‐structure debate by showing how production and reproduction of emergent properties of social groups sharing same normative commitments (norm circles) can be empirically studied using two behavioral game theory experiments, adding a previously neglected insight that strategic uncertainty can lead to coordination failures of individual behaviors within norm circles, manifested as unintended outcomes of interdependent actions that are difficult to predict. Here the synchronic relation between the unpredictable collective outcomes of each game round and agential reactions of the participants to them defines emergence——the previous outcomes are diachronic inputs but they appear in the new outcome only through their effects on the individual decisions.     

建立与完善法律机制 促进“中国—东盟自由贸易区”建设

建立"中国—东盟自由贸易区"法律、政策、关税减让等与投资及经贸相关的信息披露机制和区域法律法规信息应用服务体系,有效服务于中国—东盟区域经贸合作与安全,保障各方合法权益、防止和减少投资、商贸风险与纠纷,逐步完善东盟国家的经济贸易法律法规,促进司法协助,推动中国—东盟自由贸易区建设进程,有着重要现实意义和深远的历史意义。     

Adult children of parents with mental illness: navigating stigma

The experiences of children who live with parental mental illness are becoming increasingly recognized. However, there remains a limited body of knowledge in relation to an individual's longer term experiences. This study sought adult children's experiences of childhood parental mental illness. It generated reflections of 13 adult children who had lived with parents with mental illness during their childhood. The narrative design of the study facilitated a voice for participants. The paper presents one main theme of the findings. The findings offer a unique insight into childhood awareness of social stigmas and children's behavioural changes to avoid disclosure of parental mental illness. Participants noted that they were aware of social stigmas associated with mental illness during their childhood. This contributed to their fear of disclosure to others that fuelled a culture of familial secrecy, reinforcing the children's own sense of difference. Further work is required to enhance community understanding about the familial journeys of parental mental illness and the impact of negative‐natured stigmas.     

Psychodynamic and Neurological Perspectives on ADHD: Exploring Strategies for Defining a Phenomenon

This article is a discourse analysis of two historical inquiries into what clinici-ans today call attention deficit hyperactivity disorder (ADHD). Of primary con-cern in this regard are psychodynamic perspectives towards ADHD symptoms, championed by psychoanalysts and psychologists, and neurological perspectives towards ADHD, which continue to favor a purely physiological approach to understanding the disorder. Those within the psychodynamic camp are inclined to view ADHD as an interactional difficulty between self and social environment - a condition best remedied by psychotherapy. Those within the neurological camp see ADHD as a specific brain process, whose effective treatment depends upon adequate psychopharmacology. This essay argues that both psychodynamic and neurological perspectives towards ADHD have strategized to legitimate one perspective through the expulsion of the other. Within the current era of ADHD nomenclature and treatment it is clear that neurological perspectives dominate the debate. However, neurological perspectives continue to be haunted by a considerable amount of skepticism, both nationally and internationally. Because of this it would be difficult to assert that neurological perspectives, though winning the "legitimation race" in contemporary understandings of ADHD, are entirely monolithic sources of ADHD knowledge.     

When Is It Okay to Exclude a Member of the Ingroup? Children's and Adolescents’ Social Reasoning

Social exclusion of those who challenge group norms was investigated by asking children and adolescents, adolescents, age 9–13 years (N = 381), to evaluate exclusion of group members who deviated from group norms. Testing predictions from social reasoning developmental theories of group‐based exclusion, children and adolescents evaluated exclusion based on group norms involving allocation of resources and group traditions about dress code. Exclusion of deviant members was viewed as increasingly wrong with age, but also varied by the type of norm the deviant challenged. Participants who reported disliking a deviant member who wanted to distribute money unequally also found it acceptable to exclude them. Those who disliked deviants who went against norms about dress codes did not think exclusion was warranted. These findings are discussed in the context of children's social‐cognitive development regarding peer rejection as well as the role played by moral judgment and group dynamics.     

Factors influencing the acceptance of volunteer home-visiting support offered to families with new babies

This study investigated the characteristics of families with a new baby, screened to identify families with vulnerability, who did not take up the offer of home‐visiting support from a community volunteer. Using logistic regression, background factors were compared with those families receiving support. Those not receiving support, 59.1% of those referred, were more socially, educationally and economically disadvantaged, living in more disadvantaged neighbourhoods. Those who received support were more likely to have larger families, no local support network, or had family members with health or mental health problems. One in nine families referred had not been reached by the support service. In brief qualitative telephone interviews, mothers who did not take up the offer of support reported changing their mind, wanting to cope without help and in some cases feeling that the support offered did not meet their specific needs. Policy implications are suggested, in particular offering support to new parents thought to be vulnerable within a statutory framework, with sufficient infrastructure and resources to conduct outreach work. Research implications include making a concerted effort to find out about families who decide not to take part in service evaluation studies, or who drop out after initial agreement.