'I Now Feel That I'm Not Just a Bit of Left Luggage': the experiences of older women with arthritis attending a Personal Independence Course

Few interventions have directly addressed the needs of older people with arthritis. One exception is a recent initiative developed by Arthritis Care, a voluntary organisation working with and for people with arthritis in the UK. The initiative comprised two Phases. In Phase 1, older people attended a well established course designed to increase participants' sense of control over their own ability to orchestrate the management of their arthritis-related needs. The focus of this paper is on Phase 2 of the initiative, a Personal Independence Course, which introduced older people to the social model of disability and encouraged them to take an active role in the community. Although Arthritis Care have considerable experience of working within a social model framework with younger people, this paper presents the results of the first Personal Independence Course targeting older adults with arthritis. Data were collected in a series of semi-structured interviews yielding rich insight into the lives of this often neglected group of older people.     

The Experience of Disability from the Perspective of Parents of Children with Profound Impairment: Is it time for an alternative model of disability?

This article considers the significance of a model of disability in relation to the child with profound impairment and examines the individual and social models of disability in connection with this. It is argued that although these two models cannot be completely dismissed, the models largely ignore the experience and perspective of the profoundly impaired child, their parent(s) and family. Following in-depth interviews with four parents I attempted to elicit the experience of disability from this perspective. I invited the parents to tell me the ways in which they experience disability, how they viewed the nature and cause of disability in their lives and the relationship between themselves and the various professionals involved in the care of their child. This article endeavours to implement the interview 'findings' to inform an alternative model of disability, the 'Alliance' model, which is briefly discussed and critiqued.     

“We’re Just Family,You Know?” Exploring the Discourses of Family in Gay Parents’ Relational Talk

ABSTRACT

To date, little is known about how gay male parents discursively create and sustain family identity and how they position themselves in relation to the dominant heteronormative discourses of the traditional family. Framed relational dialectics theory – this study explored the meaning(s) of family and fatherhood in married gay fathers’ relational talk. I interviewed 13 married gay parent dyads and conducted follow-up interviews to collect data across time as well as member check initial results. Using contrapuntal analysis, I identified the discourses of traditional family structure and nontraditional family structure at play. I argue that the couples’ talk reflected discursive struggles to generate relational meanings for their family identities.     

Leaving Behind What We are Not: Applying a Systems Thinking Perspective to Present Unlearning as an Enabler for Finding the Best Version of the Self

In response to criticism on the concept of ‘unlearning’, we suggested that unlearning on an individual level should be defined as the reduction of the influence of old knowledge on cognitive and/or behavioural processes. In this article, we apply a systems thinking perspective on this definition to explore how far this kind of unlearning can possibly go and what happens if this process is inward-directed, i.e. affects the cognitive and behavioural patterns that define who we are. We take a knowledge perspective on the concept of the self and suggest that unlearning could trigger a disequilibrium, which in turn, enables a deep learning process and guides us to what is referred to as ideal or best version of the self. This does not only have implications for the individual level but it can initiate fundamental change processes in organizations.     

The Social Experiences of Children with Disability and the Influence of Environment: a framework for intervention

This paper explores the influence of environment on the quality of social experiences of children with disability in Sydney, Australia. The social experiences of four children with fragile X syndrome were described using ethnographic methods that included participant observation at 'special' and regular schools and in-depth interviews with parents, teachers and occupational therapists. An environmental perspective is presented here to complement existing individualist perspectives that address the social problems faced by children with disability. The environmental perspective involves (i) perceptions of disability, (ii) the child's family (relations, advocacy, encouragement, education, identity creation, dependence and separation), and (iii) the child's school (physical environment, other children, principal, teachers, therapists, policy and ethos). The paper serves as a basic framework to be adapted in further research and practice into the environmental influence of children's social experiences.     

A Case Study of a Parents' Self-advocacy Group in Malta. The Concepts of 'Inclusion, Exclusion and Disabling Barriers' are Analysed in the Relationship that Parents have with Professionals

This paper attempts to develop a conceptual framework to understand how parents of a particular support and self-advocacy group in Malta, the National Parents' Society for Persons with Disability, experience difference and difficulty. The objective of this case study with the Parents' Society is to: (1) explore the historical and social context; (2) examine the concepts of inclusion and exclusion; (3) analyse the relationship between parents and professionals, from the former's point of view; (4) define whether the disabling barriers of parents are an issue of voice impediment. Ultimately, the purpose of this paper is to reflect on the experience of parents in this group. The tools used to validate this paper are literature review, my own experiences and involvement with the Parents' Society, documentation review and a mail questionnaire.     

Reply to the Commentaries: Of Course,We Do Not Yet Know What it is All About,But Functional Contextualism is a Good Place to Start

In this reply to the commentaries, we note several points of disagreement with Johnson and Greenman on theoretical and empirical grounds. We are particularly surprised by their assumption that attachment has already been established as the key mechanism of change in couple therapy, as our present findings do not support this idea. We also elaborate on Gurman's functional contextualist views and describe why IBCT may be a particularly helpful model for training new couple therapists in a contextualist way.     

Applications of a Capability Approach to Disability and the International Classification of Functioning,Disability and Health (ICF) in Social Work Practice

Abstract

As disability rates increase more social workers will require greater preparation to practice effectively with individuals with disabilities. The Capability approach and the International Classification of Functioning, Disability and Health provide helpful tools for social worker training. The capability approach emphasizes the need to assess what individuals are able to do in their real-life environments (capabilities) rather than capacity or functional status. The ICF provides helpful disability-related terminology and an actual classification to assist social workers to develop appropriate interventions that facilitate capability development among individuals with disabilities. Using the capability framework with the ICF will contribute to improved understanding of disability among social work students and practitioners.     

The Contribution of Voluntary Organizations to the Care of Children with Life-limiting Incurable Disorders and their Families

A national postal survey of voluntay organizations providing for children with life-limiting incurable disorders (n = 147) is described. The majority of organizations originated from the motivation of parents or care workers in response to deficiencies in service provision from other agencies. A wide variety of services were available from the organizations with over half providing an information service, emotional support and counselling, patient and family support and a telephone helpline. The provision of some services, for example respite care, was, hoverer, associated with the size of annual budgets. Publicity, referral and funding arrangements are also discussed. The role of voluntary organizations as partners in care with statutory agencies is discussed in the light of instability of funding arrangements and the use of health and social work staff as the main source of information about voluntary services to parents. Areas of further research in this field are suggested.     

Not Such an 'Ordinary' Relationship: the role of women support staff in relation to men with learning disabilities who have difficult sexual behaviour

This paper brings together some preliminary data on the management of men with learning disabilities who have unacceptable/abusive sexual behaviour patterns with a small pilot study which specifically explores the roles of women support workers in relation to difficult sexual behaviour. A specific focus on the behaviour of men with learning disabilities is justified because of consistent evidence that it is men, rather than women, service users who challenge services in this way. The studies explore with staff the boundaries of what is considered acceptable sexual behaviour and how breaches of these are responded to within services. One issue which we have chosen to highlight is the frequent exposure of women staff to the men's sexual behaviour, sometimes precipitated by the unusual relationship that exists between the two parties, and exacerbated by the lack of clear management guidance within the gendered hierarchies found in service agencies.     

Bringing Disability into the Sociological Frame: a comparison of disability with race, sex, and sexual orientation statuses

Applying a social constructionist perspective, this paper explores the shared characteristics of American constructions of race, sex, sexual orientation, and disability. The discussion considers how each of these statuses is constructed through social processes in which categories of people are (1) named, (2) aggregated and disaggregated, (3) dichotomized and stigmatized, and (4) denied the attributes valued in the culture. The apparent utility of the social constructionist perspective - and its dominance in American sociology - is contrasted with its infrequent application to the study of disability.     

St. Clair Drake,the Chicago School,and the Emergence of a New Urban Black Perspective

St. Clair Drake was responsible for a major shift in the way urban sociologists studied cities. While educated by Chicago school scholars in sociology and anthropology, such as Robert Park and Ernest Burgess, Drake was one of many Black doctoral students who veered from the dominant perspective of his White teachers on race. His skills in ethnographic research were indebted not only to Park and Burgess, but also to the work of Black scholars who came before him, such as W. E. B. Du Bois and E. Franklin Frazier. His unique personal approach to cities and their racial problems transitioned into a more global focus on the Black diaspora, colonialism and the history of African people, and cultures which connected him to a world of social action.     

Value,attitude, and belief determinants of willingness to accept a facility for the homeless

Basic values, attitudes toward the homeless, and specific beliefs about a proposed facility were examined, along with the NIMBY (Not In My BackYard) phenomenon, to explore if, and to what degree, these factors affect community acceptance or rejection of a facility for the homeless. Previously designed Protestant ethic (PE) and Humanitarian-Egalitarian (HE) scales were used to measure two basic values (Katz & Hass, 1988). Scales to measure attitudes toward the homeless and beliefs about a planned facility were developed. As predicted, values, attitudes, and beliefs correlated with each other and were related to plan acceptance, so that HE, pro-homeless attitudes, and positive beliefs about the plan were positively related to acceptance, and PE, anti-homeless attitudes, and negative beliefs about the plan were positively related to rejection. Also as predicted, four proximity measures were all related to acceptance of the plan.     

Value,Attitude, and Belief Determinants of Willingness to Accept a Facility for the Homeless

Basic values, attitudes toward the homeless, and specific beliefs about a proposed facility were examined, along with the NIMBY (Not In My BackYard) phenomenon, to explore if, and to what degree, these factors affect community acceptance or rejection of a facility for the homeless. Previously designed Protestant ethic (PE) and Humanitarian-Egalitarian (HE) scales were used to measure two basic values (Katz & Hass, 1988). Scales to measure attitudes toward the homeless and beliefs about a planned facility were developed. As predicted, values, attitudes, and beliefs correlated with each other and were related to plan acceptance, so that HE, pro-homeless attitudes, and positive beliefs about the plan were positively related to acceptance, and PE, anti-homeless attitudes, and negative beliefs about the plan were positively related to rejection. Also as predicted, four proximity measures were all related to acceptance of the plan.