Re-defining 'norms': D/deaf young people's transitions to independence

Traditionally, young people's transitions from a state of dependent childhood to an independent adult identity have been measured in terms of a developmental stage model. However, it is increasingly being recognised that young people are not a universal category and that their transitions need to be understood within the diverse context of peers, family, and communities. This paper draws on a rich body of work from the interdisciplinary field of Deaf studies and original research with D/deaf young people – a group generally overlooked by sociological research – to challenge and to advance conventional interdisciplinary debates about youth transitions in two ways. In the first half of the paper we examine D/deaf young people's conventional school‐to‐work, housing and domestic transitions and in doing so reflect upon the ways that their experiences shed a new light on understandings of these traditional markers of independent adulthood. In the second half of the paper we challenge conventional definitions of what marks an important transition by focusing on the transition that many D/deaf young people themselves define as the most significant in their lives, learning BSL and the transition to an independent D/deaf identity that this enables them to make. In doing so the paper mainstreams within sociology an important body of research about D/deaf people's experiences from Deaf studies.     

‘I am bodied’. ‘I am sexual’. ‘I am human’. Experiencing deafness and gayness: a story of a young man

This paper examines experiences of Deaf gay people through the eyes of a young Deaf man growing up in the predominantly hearing and heterosexual society of the Czech Republic. In the current disability and gender studies discourse there are several personal accounts of people with disabilities who also identify as gay or lesbian, but narratives about Deafness and gayness are rare or missing. To ‘queer’ the issue of Deafness and disability a little further, most Deaf people claim to be a linguistic and cultural minority, not disabled. Being Deaf and gay suggests a double identity and quite often exclusion from the majority hearing and heterosexual society. The story of 24‐year‐old Jan illustrates the struggle and challenges of a minority within a minority.     

New sign language new(S): the globalization of sign language in the smartphone era

Languages are dynamic and change over the years. Changes in sign languages have been usually initiated to accommodate the needs of the local Deaf community. With the increase in smartphone use, sign languages are influenced not only by the local Deaf community, but also by foreign Deaf people on the other side of the screen, regardless of their location. Smartphones influence the sign language itself and the Deaf community by connecting different communities of Deaf people through messages, shared information and experiences, and news delivery. The popularity of this technology among Deaf communities is a social phenomenon emerging from Deaf people themselves. Smartphones may promote the globalization of sign language, shortening distances between Deaf communities around the world.     

Deaf identity construction in Malaysia

This paper focuses on the identity creation processes of Deaf people in Malaysian society using an intersectionality approach to issues of identity, disability, and Deaf studies. Deaf people belong to a marginalized community and typically experience stereotyped, prejudiced, and stigmatized treatment from the hearing community, which has a serious impact on their social and personal identity development. Without sufficient information about the process of identity creation for Deaf people, the hearing community cannot reduce inequality nor can it increase social integration and stability for the Deaf community. There is a paucity of research about this identity creation process in Malaysia, and few studies have used identity-related theories and Deaf studies to examine the issue. This study uses a constructivist point of view, employing an interpretive phenomenological epistemology in order to construct insightful accounts of participants’ personal and interpersonal experience in mainstream society. The data was analyzed using methods associated with grounded theory and constant comparative analysis in order to reveal the extent to which they identify themselves, that is linguistic minority or PWD. The findings suggest that, on the one hand, mainstream society categorizes Deaf people as Persons with Disabilities rather than as a linguistic minority; on the other hand, without realizing it, Deaf people typically accept society's evaluation by identifying with it and playing the expected roles of PWD.     

Cultural Differences: Deaf and Hearing Researchers Working together

This article is based on several years of research done by the two authors, one of whom is Deaf and the other hearing. The paper discusses research done within the Deaf community using sign language. This is an estimated 50,000 people-the same number as those whose first language is Welsh. The Deaf community sees itself as a linguistic and cultural minority and as such is quite distinct from people with an acquired hearing loss, or those who are hard of hearing and who usually rely on written and spoken English through lipreading or writing things down. The paper sets this research in the context of cross-cultural research and looks at its connections with emancipatory research. The central discussion is in the form of a dialogue between the Deaf and hearing researchers and their personal responses to cultural differences. In the past Deaf people have been denied the opportunity of making their opinions known because research has used written or spoken language. Our research, using videocameras to record sign language and Deaf research using sign language to interview, provides a means of interviewing more suited to Deaf people than to hearing researchers. However, as the hearing culture is likely to be perceived as the dominant culture, there are bound to be differences when a hearing and Deaf researcher are working together within the Deaf community. These are the issues which we discuss within Deaf research.     

Turn-taking patterns in deaf conversation

This paper will focus on the turn-taking patterns of Deaf signers and will compare them with turn-taking patterns found in spoken interaction. Turn-taking in the conversation of hearing people has been the subject of considerable attention, but the way conversation is organised by Deaf conversationalists has received less attention. This paper reports on a small project involving conversational data obtained from two Deaf friendship groups, one all-female and one all-male. Our main aim was to establish whether Deaf interactants orient to a one-at-a-time model of turn-taking, or whether there was any evidence to suggest they can also orient to a more collaborative model. It has been assumed by researchers in the field of Deaf Studies that Deaf interactants orient to a one-at-a-time model since, where the medium of communication is visual rather than sound based, participants can attend to only those sources of talk that they can see. The paper also examines the data to see if there are any gender differences in the way Deaf interactants organise conversation.     

Compounding the trauma: the coercive treatment of voice hearers

For more than a hundred years, voice hearing has been treated as a symptom of serious mental illnesses with biological origins. Pharmaceutical companies have expanded the range of products targeted at treating these illnesses and the diagnosis of schizophrenia now underpins a multi-billion dollar, world-wide business. Throughout the western world, nation states have vested an authority in psychiatry to compulsorily treat people who meet a set of diagnostic criteria that is widely discredited. There is considerable evidence that more effective ways of responding to people experiencing psychosis can be provided without coercion. These approaches differ in essence to traditional Kraepelinian psychiatry in that they acknowledge the role of people's life experiences in creating the problems they face, and the professionals work in partnership with the service users. The approaches recognise that people have histories which often include considerable trauma and social workers are in an ideal position to work with voice hearers to help them understand their experiences and to develop ways of coping. The authority vested in psychiatry is not static and within Europe mental health professionals can contribute to changing what is meant by ‘unsound mind’ and extending the right of liberty to voice hearers. In doing this, social workers can ensure that they do not compound the trauma by devaluing and discrediting people's experience.     

Is There a Disability Culture? A Syncretisation of Three Possible World Views

Is there a disability culture? Or are disabled people simply individuals-or at best a socio/political minority group-striving to fit in to the dominant culture (whatever that is)? The author challenges Lois Bragg's contention that Deaf Culture exists, but not Disability Culture. The paper first traces historically the different conceptualisations of culture, beginning with E. B. Tylor's Primitive Cultures (1871) through to post-modern accounts by Kuper, Giroux and McLaren. Using a wide range of these concepts, three possible world views of disability culture are developed: Culture as Historical/Linguistic, Culture as Socio/Political, and Culture as Personal/Aesthetic. From these alternatives, a macro-sociological framework is set forth to evaluate each of these world views, as well as a set of ethical questions to consider in choosing which one might be most robust. The paper concludes with a proposal for a syncretized view of disability culture and asserts that the experience of disability culture is a thriving cross-cultural phenomenon which knows no national boundaries-and in particular, is not limited to Martha's Vineyard and American Deaf people.     

The Uphill Struggle: services for Deaf and hard of hearing people - issues of equality, participation and access

This article focuses upon the ways in which Deaf and hard of hearing people are excluded from participation in society. In particular, the focus is upon the ordinary expectations that members of society have in terms of participating as citizens and performing socially sanctioned, adult roles. The roles of 'citizen', 'employee', 'parent' and 'patient' are discussed. The data illustrate how the organisation and delivery of services can undermine, rather than facilitate, the performance of these roles. Despite policy emphasis on social inclusion, current services and legislation fail to provide a firm basis for the full participation of Deaf and hard of hearing people in British society.     

Deaf Children and Young People’s Experiences of Using Specialist Mental Health Services

Deaf children have an increased prevalence of mental health problems compared with hearing children. Generic Child And Adolescent Mental Health Services do not have the skills or expertise to meet the mental health needs of this group of children. Three teams in England provide specialist mental health services for deaf children. This research explored children’s experiences of using these services. Twenty‐four deaf children participated in the study. Overall children valued and benefited from the service. The expertise of the staff and the presence of deaf clinicians were key to these positive experiences.     

Transition planning for d/Deaf young people from mainstream schools: professionals’ views on the implementation of policy

This article presents the experiences of professionals working with d/Deaf young people from mainstream schools through those young people’s transitions to adulthood. Transitions to further and higher education and employment and social transitions to independence are explored in the context of the transition planning process outlined in the 2001 SEN Code of Practice, with suggestions for lessons to be learned for the introduction of Education Health and Care plans in 2014. It is concluded that more consideration should be given to the specific needs of d/Deaf young people in transition planning, and the unique knowledge and experience of d/Deaf professionals should be harnessed more effectively in creating policy that affects young d/Deaf people.     

Deaf access to justice in Northern Ireland: rethinking ‘Reasonable Adjustment’ in the Disability Discrimination Act

Abstract

This article provides findings of a qualitative study exploring the interactions of eight Deaf participants and one hearing ally with the justice system in Northern Ireland, where the Disability Discrimination Act requires solicitors to make ‘reasonable adjustments’ in order to provide effective access to Deaf clients. Three thematic categories emerged: (a) barriers to accessing justice, (b) work Deaf people do for access, and (c) the need to educate solicitors about access. A central strain ran through these themes: the idea that ‘reasonable adjustment’ must reflect the value of sign language interpreters in facilitating effective communication access for all the parties.     

The warrants of parenting: emotionality and reflexivity in economically disadvantaged families

Despite the popularity of the education model in parenting work, parents' capacity for reflexive inner dialogue is becoming a newly sought virtue for handling parent–child difficulties. Based on a study of parenting experiences among Chinese parents in Hong Kong, this paper argues for a departure from the education model to incorporate reflexive parenting in the parental role. Reflexive parenting promises idiosyncratic solutions for the dynamic problems that parenting in contemporary society must address. Warrants of reflexive parenting are proposed as a framework with which helping professionals can adjust their strategies to help parents better handle the challenge of contemporary parenting.     

Toward a social relational model of Deaf childhood

This paper advances a social relational model of Deaf childhood as a guiding framework for working with Deaf children in a present-day universal neonatal hearing screening and early intervention context. The authors discuss how Deaf children are contextualized in a medical model discourse, in a social model of Deaf childhood, and in a Deaf culture discourse. A social relational model is then discussed in with reference to a capability approach and to findings from the first author’s study of parents and young children participating in an American Sign Language shared reading program in Ontario, Canada.     

Addiction Treatment with Deaf and Hard of Hearing People: An Application of the CENAPS Model

ABSTRACT

Alcohol and drug addiction is a significant problem among deaf and hard of hearing people. Looking through a Deaf culture lens, treatment for alcohol and drug addiction is key for providing care for deaf and hard of hearing clients. Using the CENAPS model, an applied cognitive-behavioral therapy program is recommended for addiction treatment. The CENAPS model provides clinicians with tools for stabilizing deaf and hard of hearing clients, supporting their transition to early recovery. Educating the client about the stages of relapse and the stages of recovery, clinicians using this model can better treat and prepare deaf and hard of hearing clients for long-term recovery.     

Reflections of a Group of Deaf Adults on Their Experiences in Mainstream and Residential School Programs in the United States

The purpose of this study was to learn about mainstream and residential school programs for deaf students in the United States from the perspective of the deaf person, and to present the experiences of clients of educational services in their own words. Data for this paper were collected through open-ended, in-depth interviews with 25 graduates from the National Technical Institute for the Deaf at Rochester Institute of Technology (NTID at RIT). The comments of informants suggest that there are advantages and disadvantages inherent in each educational model. For example, the selection of one model over another may involve 'trading' academic for social opportunity. In particular, it is suggested that both kinds of school experiences play a critical role in the socialization of deaf people and the development of deaf community. It is recommended that further research be conducted to learn more about the perspectives of deaf people on educational services and to explore with them the long term as well as the immediate impact of different kinds of school environments.     

Implants and ethnocide: learning from the cochlear implant controversy

This paper uses the fictional case of the ‘Babel fish’ to explore and illustrate the issues involved in the controversy about the use of cochlear implants in prelinguistically deaf children. Analysis of this controversy suggests that the development of genetic tests for deafness poses a serious threat to the continued flourishing of Deaf culture. I argue that the relationships between Deaf and hearing cultures that are revealed and constructed in debates about genetic testing are themselves deserving of ethical evaluation. Making good policy about genetic testing for deafness will require addressing questions in political philosophy and anthropology about the value of culture and also thinking hard about what sorts of experiences and achievements make a human life worthwhile.     

Young people's explanations for youth suicide in New Zealand: a thematic analysis

New Zealand has one of the highest youth suicide rates in the developed world and dominant approaches to prevention do not always take into account the views of young people. The purpose of this research was to update our understanding of young people's explanations of suicide in order to inform suicide prevention efforts. Focus groups were conducted with 38 young people, including 30 young women and 8 young men aged 15–22. The data was analysed thematically to identify the range of explanations young people ascribe to youth suicide. Five themes were identified by the analysis including that suicide could be explained by inescapable difficulties, constant pressure, emotional distress and could also be seen as a cry for help. In contrast to these normalised experiences, participants also expressed the view that mental illness might also account for suicide. The findings suggest that young people recognise suicide as a complex problem with multiple causes. While they recognised mental health problems as contributing, youth suicide was primarily understood by young people as a normal response to emotional distress and pressure. Prevention programmes should address the full range of explanations that young people give for suicide in order to promote their engagement in prevention programmes.     

Paying Forward and Paying Back

Twenty years after the conclusion of a fieldwork study, a member of the family that once served as my informant came to live with me. This reflexive account of Ari's stay in our home juxtaposes his socialist kibbutz life with that of my own hypercommodified individualistic urban life. His experiences of working in the illegal economy raise questions about my own hiring practices. In short, we confront ourselves through our respondents' cultural vision. Ultimately, in revisiting a study I had thought complete, this account raises the question of what we owe those people who help us to gain knowledge about their culture, the currency of our careers.     

Self-Care Practices and the Professional Self

ABSTRACT

Consistently and actively engaging in self-care has been shown to improve the performance of mental health practitioners by reducing burnout, vicarious trauma, compassion fatigue, and other stress-related psychological problems. Not only is this important to the individual practitioner’s well-being, but ethical standards also mandate the recognition and remediation of any physical, mental, or emotional self-impairment to maintain high standards of care for clients. Professionals in small communities, like the Deaf community, however, confront unique challenges in attending to their self-care. This article investigates these challenges—as well as the rewards—experienced by Deaf and hearing counselors working in mental health care with deaf clients.