Cultivating citizen science for all: ethical considerations for research projects involving diverse and marginalized populations

ABSTRACT

In this paper we argue that investigators using citizen science should attend, as much as possible, to certain ethical considerations when conceptualizing projects by embracing 1) inclusivity (finding ways to include those who have traditionally been excluded), 2) adaptation (modifying projects to provide greater opportunities for varied participation), 3) sensitivity (ensuring projects take into account and respect cultural traditions and beliefs), 4) safety (protocols that protect the physical, psychological, and cultural safety of citizen scientists and society at large), and 5) reciprocity (benefits for citizen scientists). These recommendations are particularly important when engaging in collaborative or co-created citizen science projects with marginalized groups. We provide examples of how citizen science projects can be designed and adapted in ways that ensure that they follow The Golden Rule, and make them appealing to, and achievable for, a greater number of individuals in our diverse global society.     

CULTIVATING SOCIETY'S CIVIC INTELLIGENCE: PATTERNS FOR A NEW 'WORLD BRAIN'

In spite of remarkable advances in science and technology, humankind is beset with a number of serious problems. These are not just problems that 'won't go away'; they are problems that are worsening considerably. These problems include the growing gap between rich and poor, between those who have too much and those who have too little, as well as a broad range of environmental issues that may have major consequences but, at the same time, are little understood. This essay explores the idea of 'civic intelligence'. What projects, perspectives, policy and technology might humankind develop that would help us collectively address these problems? This essay discusses six aspects of 'civic intelligence' (orientation, organization, engagement, intelligence, products and projects, and resources) as well as ways to make cultivating our 'civic intelligence' a practical - non-utopian - enterprise.     

The Effects of Prevailing Wage Laws: A Comparison of Individual Workers'' Wages Earned on and off Prevailing Wage Construction Projects

I evaluate the effects of prevailing wage laws using a unique data set that shows the wages paid to workers on prevailing wage projects and the wages paid to the same workers during the same time period for work on projects not covered by prevailing wage regulations. The wage comparison shows that workers are generally paid more for work on prevailing wage projects than they are for work on non-prevailing wage projects. Thus, prevailing wage laws likely do increase the cost of public construction. In addition, to the extent that the quality of construction is improved, prevailing wage laws appear to be an inefficient mechanism by which to achieve additional quality, as the regulations often result in workers being paid more than they earn in the private market.     

Preservation Education for the Next Generation

Students participate in historic preservation projects that fall along a continuum of student participation. Adults and students need to work to push more projects to be student led rather than students working for adults. A variety of example projects are presented and show how they fall on the continuum. In addition, an example of projects that resulted in being demolished is provided to show what happens when students and adults do not work effectively together.     

Identifying and working with older male victims of abuse in England

The abuse of men is still very much a taboo subject, so identifying older men who have been abused in childhood or adulthood can be very difficult. This paper discusses the problems in identifying older male victims by drawing on the findings of two research projects. Statistical evidence is presented regarding the victims and the abuse they have experienced. It is argued that in general resources are not readily available to facilitate disclosure or to help men through the healing process. An example of good practice is presented by discussing the work undertaken with an older man through group work.     

Identifying and Working with Older Male Victims of Abuse in England

SUMMARY

The abuse of men is still very much a taboo subject, so identifying older men who have been abused in childhood or adulthood can be very difficult. This paper discusses the problems in identifying older male victims by drawing on the findings of two research projects. Statistical evidence is presented regarding the victims and the abuse they have experienced. It is argued that in general resources are not readily available to facilitate disclosure or to help men through the healing process. An example of good practice is presented by discussing the work undertaken with an older man through group work.     

Service Learning and The Compass Trail

Students used a compass trail to show how they could perform service to their school. When students performed service learning, they completed a real task that was needed for a grateful audience conjoined with academic content in the lesson. Students worked on the school grounds and used content from their regular curriculum while looking for real-life connections to academic applications. Students became involved in real projects that they found meaningful while making contributions to the community. Students learned about geographic tools and used those tools to accomplish their service projects. The students realized that the experience was real from their preparations, through the execution of the project, and the formative evaluation.     

The effects of prevailing wage laws: A comparison of individual workers’ wages earned on and off prevailing wage construction projects

I evaluate the effects of prevailing wage laws using a unique data set that shows the wages paid to workers on prevailing wage projects and the wages paid to the same workers during the same time period for work on projects not covered by prevailing wage regulations. The wage comparison shows that workers are generally paid more for work on prevailing wage projects than they are for work on nonprevailing wage projects. Thus, prevailing wage laws likely do increase the cost of public construction. In addition, to the extent that the quality of construction is improved, prevailing wage laws appear to be an inefficient mechanism by which to achieve additional quality, as the regulations often result in workers being paid more than they earn in the private market. This research was done originally for the Program Review and Investigations Committee of the Kentucky State Legislature. I thank the staff of the Program Review and Investigations Committee and the Legisla-tive Research Commission for assistance with data collection and Mark Berger for helpful comments. Due to confidentiality requirements, the data cannot be made available.     

Whose photo? Whose voice? Who listens? ‘Giving,’ silencing and listening to voice in participatory visual projects

This article examines participatory visual projects that aspire to enable social change by providing communities with a platform through photography. It argues that projects are sites for negotiating rather ‘giving’ voice and calls for practitioners and researchers to be transparent and reflexive about these negotiated processes. Examining two sets of participant-produced images by refugee youth, one of which was shown publically and one of which went unseen, this article explores issues of control and the biases that shape editorial decisions in NGO-linked participatory visual projects. It demonstrates how voices that do not fit into dominant visual frames tend to be silenced. It is argued that this negates the critical potential of participatory visual work to enable political listening and undermines the plurality of unheard voices that participatory visual work aspires to facilitate. The article raises the central question of listening to the conception of ‘voice’ in participatory visual initiatives. It argues that the political and ideological promise of these projects relates not only to the voices they give rise to but to the kind of listening they enable.     

Let the countdown begin — Aging experiences of young adults in countdown blogs

This paper examines a particular blog phenomenon that has not yet received much attention: Countdown blogs which are written before a significant birthday (in this paper, it is the thirtieth birthday). The bloggers fill the remaining time, often a year, with the accomplishment of particular tasks, reflections on their lives or photo projects. In their blogs, the young adults demonstrate an age awareness that is often overlooked in aging studies. The paper argues that young adults use countdown blogs to cope with their aging experiences and, in doing so, they apply a particular economic rhetoric and emerge as entrepreneurs of themselves - an identity concept that Foucault presented in the late 1970s. Foucault, however, did not consider the themes of age as symbolic capital nor the marketing strategies that entrepreneurship of the self imply. In a close reading of a sample of twenty-one countdown blogs, the paper suggests new complexities in Foucault's concept. At the same time, it argues that young adults today have developed creative strategies in terms of multimedia projects and heightened self-scrutiny to cope with the finitude of time, the expectations of age-appropriate behavior and the coercions of neoliberal consumer culture.     

Beyond access and supply: youth-led strategies to captivate young people's interest in and demand for youth programs and opportunities

Increasing access, even increasing supply, may not be sufficient to attract young teens who do not typically participate in youth programs. Several youth mapping projects in rural and urban communities have led to these conclusions: youth do not know what is available even in their own neighborhoods, young teens have a strong voice in how they spend their discretionary time, and we need to learn how to market youth programs much more effectively. This author reviews important findings from youth community-mapping experiences and showcases a project attempting to move beyond access and supply issues to increasing young people's interest and engagement in community youth development programs.     

Northern Ireland children and cross-community holiday projects

SUMMARY: Holiday projects have made a contribution to cross-community relations in Northern Ireland for 20 years. During that troubled time they have evolved approaches which have increasingly featured contact between the children involved. This paper. bared largely on interviews with organisers and children on holiday projects visiting America in 1989, concentrates upon the essential follow-up component arranged back in the Province. While some emphasis is made on the application of the so-called ‘contact hypothesis’ to this area within the voluntary sector, the study reveals the challenge that holiday projects must now face in raising and handling controversial issues among children from different cultural backgrounds in a conflict society.     

The ambient intelligence for the sake of accessibility in residential projects: a proper study to the Brazilian scene

The concept of Ambient Intelligence consists of intuitive interfaces embedded in everyday objects that interact with the user and function in an integrated and discrete generating and transmitting information. This article has as objective to present applications that when focused on accessibility criteria, can contribute to the work of architects during the design of residential projects. In Brazil, pioneering projects are already being developed and the use of Ambient Intelligence systems are already widespread, both by private and public, however much care technologies developed in other countries.     

Something new in old Europe?

This paper investigates whether EU research programmes have led to innovations in European social research. This is based on an assessment of a group of EU‐funded projects on the changing nature of work in Europe. EU‐funded projects have contributed to the creation of a European social space for European researchers, but at the cost of consolidating English as the lingua franca of European social research. Such projects tend to involve heterogeneous research actors and are oriented towards policy issues. To some extent they are therefore representative of a ‘Mode 2’ form of knowledge production. More clearly, they have ensured that social research about Europe is no longer simply comparative research. The new EU Sixth Framework Programme on RTD will undermine many of these achievements through its focus on conventional definitions of ‘excellence’ and the insistence on large‐scale research instruments.     

The challenge of creating ‘alternative’ images of ageing: Lessons from a project with older women

This article analyses two participatory projects designed to engage older women in the creation of new imagery of old age. While it was hoped that this imagery would offer an ‘alternative’ to mainstream depictions or indeed offer older women a presence amidst the much noted absence of images of older women, the brief left it open to the professional photographers recruited to the project and to the participants themselves to direct the representations. In recent years, critical gerontologists have repeatedly called for artistic challenges to conventional ways of imaging old age. By working with two groups of older women, the intention was that ‘ordinary’ older women (non-celebrity, non-artist) could be included in that challenge and imagery created which would show the lives of older women honestly. In the case of the two projects described here, professional photographers were enlisted to give visual form to the women's views on ageing and their lives as older women and deliver ‘exhibition quality’ images. Important factors in determining the types of images produced included the artistic style and preferences of the photographers and their respective ages, both of which are explored here. In-depth analysis of some of the images produced shows that while they did not succumb to the usual ‘heroes of ageing’/‘bodily decline’ binary (Featherstone & Hepworth, 2005), they did not escape other dualistic categorisations. The images can be broadly viewed as nostalgic/melancholic or humorously carnivalesque. This finding is evidence of how difficult it is to create ‘alternative’ images of older women which defy established modes of categorisation.     

Planning for the worst: risk, uncertainty and the Olympic Games

Security for the Olympic Games has become undeniably visible in recent years. A certain degree of this visibility became unavoidable after the 1972 Munich Olympics when military personnel and hardware became standard elements of Olympic security. Yet, this visibility is qualitatively different today in that it is often deliberately fashioned for public consumption. This article argues that this expressive dimension of security at the Games provides a window into wider issues of how authorities 'show' that they can deliver on the promise of maximum security under conditions of radical uncertainty. The latter sections of this article examine three ways in which this promise is extended: the discursive work of managers of unease, the staging of highly stylized demonstration projects, and the fabrication of fantasy documents. We focus on how officials emphasize that they have contemplated and planned for all possible security threats, especially catastrophic threats and worst-case scenarios. Actually planning for these events is epistemologically and practically impossible, but saying and showing that authorities are 'planning for the worst' are discursive ways of transforming uncertainty into apparently manageable risks that are independent of the functional activities they describe. As such, our analysis provides insights into the much broader issue of how authorities sustain the appearance of maximum security in order to maintain rhetorical control over what are deemed to be highly uncertain and insecure situations. Such performances may paradoxically amplify uncertainty, thus recreating the conditions that foster the ongoing securitization of everyday life.     

Changing Indigeneity Politics in Indonesia: From Revival to Projects

Through the discourse of indigeneity, rural communities around the world are joining a global network of rural justice seekers. By articulating grievances collectively, they demand state recognition while seeking support from NGOs and international development organisations. In Indonesia, the manifestation of indigenous ‘adat’ politics is no longer confined to the national struggle for the recognition of land rights, but instead, has proliferated into many localised short term ‘adat projects’. This introduction to the TAPJA special issue on adat demonstrates that both the rural poor and local elites can be the initiators or recipients of these adat projects but, at the current juncture, the latter are better positioned to benefit from such projects. The special issue shows that in Indonesia, where adat is often firmly entrenched in the state, the promotion of indigeneity claims can work in contradictory ways. Findings from across the special issue show that adat projects tend to reinforce the power of the state, rather than challenging it.     

Promoting supervisory practice change in public child welfare: lessons from university/agency collaborative research in four states

This article describes qualitative findings regarding lessons learned from research and demonstration projects in four states focused on the implementation of clinical supervision within their public child welfare agencies. This was part of a larger mixed methods study of the effectiveness of these new clinical supervision models on practice, organizational, and client outcomes. Themes from 15 focus groups with frontline supervisors participating in the projects are provided; they focused on the challenges experienced while participating and working to use clinical supervision techniques, recommendations regarding implementing such projects in the public child welfare environment, and those aspects of the implementation that were most effective in supporting their work. These themes provide direction for states and localities wishing to shift frontline supervision to a more clinical model within the public child welfare setting.