Not lazy,not faking: teaching and learning experiences of university students with disabilities

This study explores the learning and teaching experiences of 105 disabled students mostly based in England, but with international voices. Students with disabilities are under-represented in universities and tend to have worse post-degree outcomes despite similar attainment rates to their peers. This presents a social justice issue. This article focuses on classroom experiences of these students. Using a survey with qualitative and quantitative elements, students were asked to give details about their experiences in taught settings, about their relationships with academic staff, and about their aspirations. Their responses have been analysed thematically and have been discussed in the context of the discourse around epistemic ignorance and social justice. The study finds that students may feel concerned about anonymity in disclosing disabilities and may be concerned about the way that others perceive them. The study finds that students perceive academic staff as often improperly trained for inclusive teaching.     

Narrative accounts of university education: socio-cultural perspectives of students with disabilities

Research in higher education, linked to national and international policy, suggests the need for educationalists to show greater understanding and awareness of the lived experiences of undergraduate students with disabilities. These sources argue that this knowledge should then be used to inform their understandings as tutors and facilitate inclusive and effective teaching strategies. This research had a primary focus on first-year students with disabilities’ learning experiences; their transitions from school or college to university and their feedback on positive and negative learning experiences at both levels. Rich, complex stories were uncovered taking the research beyond the lecture theatre and seminar room, into the students’ union bar and back to the Year 10 classroom. It is the intention of this paper to relay some of the stories shared, in particular drawing out findings related to effective learning practices and to note the significance of placing a socio-cultural lens on the question of inclusion in education.     

The experiences of university students with a mood disorder

Mood disorders typically materialise in young adulthood, a life-stage when many enter university. However, Padron notes that few studies have examined the experiences of students with a mood disorder. The current study offers a thematic analysis of semi-structured interviews with five university students who had personal experience of such a disorder. Participants described how symptoms affected their academic and social experiences of university based around the themes of: Social and family support, Powerful symptoms, Stigma and labelling, and Inter-professional dynamic. It was concluded that stigma and lack of information prevented students from obtaining sufficient support, whilst the addition of key staff such as a university-wide mental health trainer is identified as a potential way forward to help such students negotiate the higher education environment.     

Disadvantagement-related correlates of career optimism among college and university students with disabilities

This paper describes research regarding factors predicting career optimism for a group of postsecondary students with disabilities (N = 208) who were enrolled in seven colleges and universities in four states. Career optimism was defined as a student's self-confidence regarding his or her ability to choose, maintain, and advance in an appropriate career. The proposed model incorporated variables related to employment discrimination and disincentives such as perceived impact of disability on one's education and quality of life, racial/ethnic status, gender, and presence of disability benefits. Results indicated that two aspects of "disadvantagement," specifically severity of perceived impact of disability and racial/ethnic status, were significant predictors of career optimism. Implications of the findings were discussed in terms of informational interventions, curricula, development of self-advocacy and self-determination, and research topics.     

Negotiating Identities, Negotiating Environments: an interpretation of the experiences of students with disabilities

This paper explores the experiences of nine students with disabilities pursuing degrees at a large Canadian university. An ethnographic approach was followed using face-to-face, unstructured interviews and a focus group to generate data. The analysis focuses on how these students negotiate disabled and non-disabled identities while negotiating the physical environment of the university campus. I argue that these negotiatory processes are necessarily interconnected and inherently contradictory.     

Identity challenges and social experiences of higher education students with disabilities in Slovenia

This article focuses on the experiences and experiencing of disability, policies of self-understanding, and the life plans and aspirations of students with disabilities. The article draws on the results of a qualitative survey of students with disabilities taking courses in various faculties of the University of Ljubljana. The results show that students with disabilities are able to reshape their identities in a way that does not consist of the disability experienced, but is independent of it, and they are able to accept their disability as the reality of life without losing their own purpose of living and life plans. This experience is a significant part of the identity formation of people with disabilities, and the social experience of people with disabilities strengthens their selfhood while also producing new responses and challenges to contemporary issues of identity formation and identity policies.     

The lived experience of students with an invisible disability at a Canadian university

University institutions are required by law to make their services accessible to students with disabilities. Canadian universities have gone a long way to eliminate the physical obstacles that present barriers for students. Many students with disabilities have invisible disabilities that require different types of adjustments. Although some researchers have evaluated the needs of students with disabilities in higher education, the unique needs of students with invisible disabilities have received less attention. The best means of assessing these needs is through direct consultation with students with disabilities. Thus, in-depth interviews were conducted with university students with dyslexia, attention-deficit hyperactivity disorder, and mental illness. Themes were developed that related to the nature of the disability, the accessibility of the university context, the social and organizational barriers, and recommendations for change. This research lends insight into how individuals with invisible disabilities believe that they are perceived within the university context.     

Out of the Disability Closet: strategic use of perception management by select university students with disabilities

This study examines the ways in which university students with apparent and hidden disabilities actively manage the perceptions of others. Interview data were collected and analysed by theme. Students indicated that they valued their own experience of disability, but were aware that knowledge of their disability altered the behaviors of others toward them. Whereas some perception management strategies have previously been called denial and 'passing,' for our participants these behaviors constituted a set of interpersonal skills. Participants evaluated themselves positively while struggling to project an image as complex individuals rather than stereotypes. Within deviance theory, passing as non-disabled has been conceptualised as a reactive social behavior that is motivated by low self-regard or fear. Our findings do not support this model. We, therefore, examine perception management within the framework of social identity theory.     

Lived employment experiences of college students and graduates with physical disabilities in the United States

This phenomenological study aims at understanding lived experiences of college seniors and recent college graduates with physical disabilities seeking employment opportunities after graduation in the USA The extensive interviews revealed that participants’ attitudes about and experiences with disability are diverse (pain to pride, denied accommodation to support); their major areas of concern are their own marketable skills and credentials as well as accessibility and accommodation in workplaces; continued education beyond the baccalaureate is a priority for many participants rather than an immediate transition to work; and the Office of Disability and professors were considered important advising agencies. Even among participants with similar physical disabilities, the symptoms, needs, and experiences varied.     

Likes,dislikes, supports and barriers: the experience of students with disabilities in university in Ireland

There are more students with disabilities going to college than ever before. It is important that colleges understand the experiences of students with disabilities when in university. This research project was carried out by 12 students with intellectual disabilities who are enrolled in an Irish university, under the guidance of their lecturers. The project looked at four research questions: (1) what do we like about going to college; (2) what do we dislike about going to college; (3) what supports do students with disabilities experience to participation in college; and (4) what barriers do students with disabilities experience to participation in college? The results show many interesting findings about what students with disabilities experience in college and this information can be used to help colleges better support students with disabilities.     

Assistive technology and employment: experiences of Californians with disabilities

For people with disabilities, work remains the best route to independence and enacting one's own choices. Assistive technology (AT) is often crucial in removing barriers to employment, and in enabling workers with disabilities to work more productively. A participatory action research project known as Community Research for Assistive Technology surveyed people with disabilities using Independent Living Centers throughout California, in part to identify barriers to employment and study use of job-related AT to overcome such barriers. Across disability groups, disability itself was cited as the primary barrier to employment, with potential loss of benefits and lack of education cited as secondary barriers. A majority of working respondents reported using assistive technology (such as adapted telephones, wheelchairs, magnifiers, and adapted computer equipment) or services to perform job functions. The vast majority of those using job-related AT reported substantial benefits to their productivity and self-esteem. Employees' requests for AT as a workplace accommodation were granted more often than not, but many other employees had to pay for their own workplace AT.     

Ambivalent subjectivities: experiences of mothers with disabilities in Russia

Women with disabilities are still rarely imagined in the role of a mother. Narratives about motherhood that promote traditional gender roles and the primary role of motherhood in women’s lives (pronatalism) in countries like Russia emphasize the value of non-disabled and heteronormative bodies and minds. The lived experiences and the lived citizenship of mothers with disabilities disrupt societal assumptions about motherhood. However, the structural environment of pronatalism inevitably influences the ways in which mothers with disabilities understand motherhood and construct their sense of selves (subjectivities). Drawing on the framework of citizenship and the feminist disability studies literature, this article analyzes how the personal and the political are intertwined. The analysis is based on empirical data obtained from qualitative interviews with 14 mothers with disabilities in a provincial city of Russia.     

'Doing Motherhood': some experiences of mothers with physical disabilities

In this paper, we discuss the experiences of physically disabled mothers. We interviewed 30 women in the age group 28-49 with medical diagnoses such as: multiple sclerosis, neuromuscular diseases, cerebral palsy and spinal cord injury Becoming a mother implied for many 'capturing' a gender or 'recapturing' a lost gender. They women felt they had to go to great lengths to 'present' themselves and their children as managing 'normally' in order to be accepted as 'ordinary' mothers. Eventually, they feared that their children might be taken away from them if they did not live up to other people's expectations. One possible explanation for what they experienced as other people's scepticism might be that disabled people on the whole are primarily still looked upon as being dependent on other people's help and care. In short, they are often looked upon by professionals and lay people as receivers, and not as carers.     

Belonging: women living with intellectual disabilities and experiences of domestic violence

Women with an intellectual disability are under-represented in domestic violence research, yet they are one of the most vulnerable groups who are at risk of violence and abuse. This article aims to contribute to the domestic violence field by reporting on a narrative dialogic performative study, which utilised a feminist poststructural perspective to explore significant relationships and the concept of belonging in the lives of women with a mild intellectual disability. Four in-depth narrative interviews were conducted. The study found that the women shared similar stories of devaluation and rejection in childhood and hence the women’s search for belonging contributed to their vulnerability to exploitation and abuse in domestic violence relationships. The paper argues that gendered discourses and constructions of intellectual disability regulate domestic violence as a personal problem or way of life for women with intellectual disabilities.     

Children's experiences of disability: pointers to a social model of childhood disability

The social model of disability has paid little attention to disabled children, with few attempts to explore how far it provides an adequate explanatory framework for their experiences. This paper reports findings from a two-year study exploring the lived experiences of 26 disabled children aged 7-15. They experienced disability in four ways—in terms of impairment, difference, other people's behaviour towards them, and material barriers. Most young people presented themselves as similar to non-disabled children: it is suggested they may have lacked a positive language with which to discuss difference. It is further argued that Thomas's (1999) social relational model of disability can help inform understandings of children's experiences, with 'barriers to being' having particular significance.     

Self- and caregiver-reported experiences of young adults with developmental disabilities

The purpose of this study was to describe the experiences of young adults with developmental disabilities (DD) who were living in community settings with the aid of government-supported services. Six male and 10 female volunteer subjects (mean age = 24 years) were interviewed and the narrative data were analyzed revealing themes in six categories: (1) Home Life, (2) Relationships, (3) Health and Health Care, (4) Personal Growth and Accomplishments, (5) Occupation, and (6) Transportation. Subjects' most positive experiences were associated with integrated, comprehensive and timely services delivered by knowledgeable and sensitive service providers. Strong parental advocacy facilitated these features. Additionally, experiences were most positive when daily activities occurred within the sphere of either family or the disability community, as opposed to the broader community. Research is suggested to further understand the dynamics of integration in the broader community and to devise strategies to successfully facilitate this integration.     

An African-American woman with disabilities: the intersection of gender, race and disability

This qualitative study explores the educational experiences of an African‐American adult woman with disabilities. The intersections of gender, race and disability are theorized through the lenses of disability, feminist and critical theory. Specifically, I address the following three questions. What are the experiences of an African‐American woman with disabilities in schools? How might these experiences be theorized? Do these experiences offer new ways of understanding oppression that may contribute to empowering individuals labeled with multiple, intersecting identities?     

Embodying and enacting disability as siblings: experiencing disability in relationships between young adult siblings with and without disabilities

Abstract

Where one sibling has a disability, research has examined the role of disability in sibling relationships; however, the majority has reflected a normative understanding of sibling relationships and a deficit understanding of disability. Reacting to this history, this paper draws on the concepts of embodiment (absorption of bodily experience into self/identity) and enactment (performance of self/identity) to provide a new way of understanding the role of disability in sibling relationships. Using data from an Australian study of young adult siblings with and without disabilities, the paper discusses how disability is embodied and enacted in: how siblings engage in supportive and conflictual talk and everyday chat with each other; how they enact recreation and seek connection with each other; and how they strive to understand and experience their emotions about each other. The paper ends by discussing how embodiment and enactment allow a clearer understanding of disability in sibling relationships, which may be empowering for siblings.     

The cost of disability advocacy: adjusting the self-sufficiency standard for children with disabilities

This article proposes a theoretical model for adapting, for families of children with disabilities, Brooks and Pearce's Self-Sufficiency Standard [(2000). “Meeting Needs, Measuring Outcomes: The Self-Sufficiency Standard as a Tool for Policy-Making, Evaluation, and Client Counseling.” The Clearinghouse Review 34 (2000–2001): 34]. With regard to such families, three additional components are considered: increased out-of-pocket expenditures, lost wages for caregiving, and cost of advocacy. Like the Self-Sufficiency Standard itself, this adaptation does not propose an extravagant or even comfortable lifestyle. Instead, this model extends Brooks and Pearce's advocacy agenda by estimating the relative costs of obtaining basic necessities and supports for families raising children with disabilities and by providing clear direction for community engagement in family economic policy.