Exploring how the social model of disability can be re-invigorated: in response to Mike Oliver

In his 2013 article in Disability & Society, Oliver recommended that the social model should either be replaced or re-invigorated. I argue here that the social model’s current emphasis reflects the social conditions in which it was introduced, and that the model’s impact on disabled people’s lives would increase if its emphasis was to more accurately reflect the current social conditions in the geographical regions in which it is applied. In order to help foster its re-invigoration, I ask five questions for discussion on the way forward for the social model. I identified my questions through examining published writing on the scope of the social model and on the model’s relationship with other models of disability.     

Achievements of and challenges facing the Korean Disabled People’s Movement

Abstract

This paper provides a critical review of the development of the disabled people’s movement in South Korea since 1945, reflecting both its achievements and the obstacles it has faced. In particular, political positions and responses to the movement’s agitation against socio-cultural discrimination and inequality are discussed. Further, three key theoretical foundations of the movement are examined in order to describe the diversity inherent therein. This paper concludes that the disabled people’s movement has heavily influenced the values, norms, and systems of Korean society, but it has predominantly focused on integrating disability issues into policy and legislation, not on changing society and culture. Hence, the Korean Disabled People’s Movement is currently facing many challenges that are major threats towards its future development.     

‘Stuck In The Middle With You’: Towards Enabling Social Work with Disabled People

This article explores progress to date in embedding enabling social work understandings and practices with disabled people by reviewing the UK social work curriculum. Based on these observations and the ideas from UK disability studies, it will offer possible solutions or at least better pathways to enabling practice with disabled people. As Meekosha has pointed out in a global context, to date social work has been experienced as an ambivalent practice [Meekosha, H. & Dowse, L. (2007) ‘Integrating critical disability studies into social work education and practice: an Australian perspective’, Practice, vol. 19, no. 3, pp. 59–72], often both enabling and disabling; an intervention that can both lock and unlock resources, and challenge and reaffirm traditional notions of the ‘disability problem’ [Finkelstein, V. (1993) ‘Disability: A Social Challenge or an Administrative Responsibility?’, in Disabiling Barriers ‐ Enabling Environments, eds J. Swain, V. Finkelstein, S. French and M. Oliver, Sage Publications in association with the Open University, London]. Social work also has the potential to both challenge, but also be an (inadvertent) apologist for contemporary social support and welfare systems. Indeed it is clear that social work as a profession and social care as a policy area have been the poor relations of healthcare and health professions [King's Fund (2011) Social Care Funding and the NHS: An Impending Crisis?, King's Fund, London]. Viewed anthropologically, social work remains a largely non-disabled workforce ‘ministering’ to disabled clients (BCODP, 1997). This might reinforce the perception of ‘us and them’ in some social work encounters. As Paul Longmore questioned, can we begin to go ‘beyond affliction’ (2003) in our work with disabled people? Can social work help support the collective struggles of disabled people or is their role inevitably to reinforce that of individual(ised) clients?

The development of the personalisation agenda and self-directed support is clearly welcome in this context [DoH (2006) Our Health, Our Care, Our Say: A New Direction for Community Services, Department of Health, London; DoH (2007) Independence, Choice and Risk: A Guide to Best Practice in Supported Decision-Making, Department of Health, London; DoH (2009) Personalisation of Social Care Services, Department of Health, London]. Such developments reflect the changing service user–professional relationship. The temptation to see these developments as the icing on the social support cake needs, however, to be resisted. Arguably, with the increased rationing of social support, the continued role of social workers in assessment and monitoring of support could be seen to require a yet more reflexive and enabling professional education and training in an age of austerity, one where previously supported disabled people are being told that their needs can no longer be met.     

Social policy and transitions to training and work for disabled young people in the United Kingdom: neo-liberalism for better and for worse?

Although New Labour distanced itself from the neo-liberal ‘underclass’ discourses of its predecessors, its approach to disabled young people maintained key aspects of neo-liberalism, particularly an emphasis on individuals’ human capital, aspirations and self-investments as causes of and solutions to disabled young people’s unemployment. This is also apparent in early Coalition government statements. Since the 1990s, policies have focused on providing individually-tailored advice, developing individuals’ skills, and motivating appropriate self-investment. We examine recent evidence that highlights a number of problems with this focus. Notably, it entails a simplistic and individualised notion of ‘barriers’ to employment that cannot account for the complex impacts of disablement and inequality; moves towards open-market models of training and work support create perverse incentives that divert support away from those most in need; employment success is dependent on unpredictable local opportunity structures; and the focus on paid employment undermines other social contributions made by disabled young people.     

‘Unjust,inhumane and highly inaccurate’: the impact of changes to disability benefits and services – social media as a tool in research and activism

This article details research carried out as part of an MA in Social Research at the University of Leeds (UK). The research was concerned with two key issues: documenting the impact of recent cuts in benefits and services on disabled people; and the role of disabled people’s organisations in responding to this impact. It also explored the use of social media in recruiting research participants. Working with Hammersmith and Fulham Action on Disability, the experiences of 95 disabled people were gathered using focus groups and an online questionnaire distributed via social media. The use of social media to gather participants is something I felt was particularly interesting in relation to disabled people, especially in light of social media’s role in current disability rights campaigns, and a method I feel should be explored further.     

Reorientalism and globalisation: transnational artists from India and representations of the ‘other’

In this article, I discuss some artists who have emigrated from India to the United States and the United Kingdom whose more recent work contains ‘Orientalising’ imagery influenced by the conjoined forces of the art market, collectors, biennales, globalisation, the Internet, the rapid development of India’s economy and its impact on the global art scene. It seems that fame and fortune for some Indian artists living in the West entails capitulating to the desire for exotic, ornate, sexual and stereotypical representations associated with Indian culture and religion. In contrast, I consider the direction taken by other artists who remain in their country of origin and portray life lived there without being particularly attentive to being Indian, although they may concentrate on social and political issues.     

Named social workers – better social work for learning disabled people?

In 2016, the Department of Health in England announced that it would pilot the role of Named Social Worker. We chose to be part of the pilot because we regularly witness too many people’s lives being defined by restrictions imposed by professionals. Erroneous associations between the concepts of risk and danger have become the norm in how learning disabled people’s decision-making is perceived and managed. However, we believe social workers educated in the social model of disability and grounded more generally in disability studies offer an alternative perspective. The pilot is an opportunity to test our hypothesis that social work practice rooted in social model thinking can successfully challenge oppressive practice and disabling barriers, thus providing the opportunity for social workers to genuinely be ‘servants not masters’ in the lives of disabled people.     

Claiming loss in disability

Pervasive representations of disability carry associations with the idea of loss. These have been strongly rejected by the social model movement as stereotyping, which may perpetuate views of disabled people as ‘incomplete’, ‘vulnerable’ or needing rehabilitation. Discourses of ‘loss’, ‘acceptance’ and ‘denial’ remain a lens through which disabled persons are misknown. It is posited that ascribed notions of ‘loss’ serve to maintain feelings of control and mastery within the observer, quieting the destablising psychic threat which disability poses. Further, disabled people positioned as having to ‘deny’ imputed loss may be at risk of suffering self‐alienation relating to a mode of being which is (necessarily, understandably) preoccupied with ‘not being’ the personification of stereotype, at the expense of exploring aspects of identity and self; such an orientation embodies unstable foundations for an entitled, articulate disability movement. Conceptual ideas are based on the author’s experience as a disabled group psychotherapist working with severely physically impaired adults.     

Disabled people's self-organisation: a new social movement?

This article will examine the ways in which disabled people, world-wide but especially in the USA and Britain, have emerged as a coherent political force in the last 20 years. Furthermore, in looking at disability from the perspective afforded by new social movement arguments, I wish to explore the implications of this development: the fact that disabled people in the 1990s are 'doing it for themselves', and to develop comparisons between the disabled people's movement and the movements of black people, women, and gays and lesbians, for autonomy, recognition and resources. I will suggest that new social movement theory, while useful in the analysis of environmentalism, post-materialism, and some varieties of nationalism, cannot fully grasp the essence of liberation politics.     

Environmental hazard and disabled people: from vulnerable to expert to interconnected

Why are disabled people disproportionately affected by the impacts of environmental hazard, and is it really only their relative poverty that makes them so vulnerable? What might disabled people contribute from their experience of negotiating barriers to designing responses to the challenges of environmental hazard? Can the lived experience of inter-dependency, as opposed to individual independence, contribute to the radical rethinking of our relationships with the environment, other sentient beings and each other? Drawing on a short scoping study, this article reviews the multiple causes of disabled people’s vulnerability, and goes on to ask whether the experience disabled people enables them to become valued contributors, rather than just members of a vulnerable group. We also explore possible reasons for the lack of inclusion and diversity within the environmental movement, and suggest that the disability and environmental movements might make a more common cause.     

A personalised approach in activation. Workfare volunteers’ experiences with activation practitioners

ABSTRACT

In activation work – supporting jobless people to perform activities that are supposed to lead them back to paid work – a personalised approach is deemed crucial. What a personalised approach entails, however, remains unclear. In this article, we try to further develop the notion of a personalised approach in activation work, by analysing Dutch workfare volunteers’ experiences with activation. Our interviews show that a personalised approach appears as a process with three stages. In the first stage, personalised means paying attention to welfare clients’ personal histories, particularly their ‘violated life story’. In the second stage, personalised means being sensitive to the new reality of them being volunteers. In the third stage, personalised means paying attention to the future, especially to the prospect of paid work. Our findings contribute to the theorisation of a personalised approach in activation work to which time turns out to be a crucial dimension.     

The mental health peer worker as informant: performing authenticity and the paradoxes of passing

The inclusion imperative in community care means that disabled people are now increasingly being employed as peer workers in the service systems that manage them. This article offers a timely inquiry into the role of the peer worker in mental health and homeless service sectors. Drawing on a four-year ethnography and in-depth qualitative interviews with fellow peer workers, I explore the paradoxical nature of new expectations for peer ‘authenticity,’ and the ways in which peer workers learn to manage the requirement to perform identity in our work roles. This analysis thus denaturalizes peer identity, and works to develop possibilities for doing disability identity-based work differently.     

From ‘for’ to ‘of’: a typology of Maltese disability organisations

The main aim of this article is to adapt the Typology of Disability Organisations that Oliver devised, and subsequently developed further in 1990, to a different context, in this case the Maltese disability sector. The paper first traces the history of the disabled people’s movement and presents Oliver’s Typology, which makes a clear distinction between organisations for and of disabled persons. The article then highlights the main characteristics of the Maltese disability sector and develops the Typology of the organisations operating within that sector. It shows how it is non-disabled people that are mostly in control of disability organisations, and suggests ways in which there can be a stronger movement towards the development and strengthening of disabled people’s organisations. The article shows how Oliver’s Typology can be used flexibly and adapted to various contexts. It also shows how drawing up a Typology of Disability Organisations can shed light on the environment within which these organisations operate, identifying areas of strength and possible areas for growth.     

From multiple barriers to a co-prosperity society: the development of a legal system for disabled people in China

Abstract

The legal system for disabled people has progressed significantly since China’s government signed the United Nations Convention on the Rights of Persons with Disabilities 10 years ago. The newly released ‘New Progress in the Legal Protection of Human Rights in China’ has attracted widespread attention because it advocates that the protection of human rights for disabled people should be reflected not only in legislative and judicial aspects but also in administrative sectors and international affairs. This article explains that the legal system involving dozens of laws and decrees in China aims to break through multiple barriers experienced by disabled persons and is beneficial to building a co-prosperity society in China. With the vigorous development of the international disability rights movement, ways to seize domestic and international opportunities to build a disabled-friendly social atmosphere deserve additional research.     

‘Talking about us without us?’. A response to Neil Crowther

In Volume 22 Number 7 of Disability & Society Neil Crowther of the recently formed Equality and Human Rights Commission provided his interpretation of the current situation of disability politics in the UK. Besides acknowledging the pioneering role organisations controlled and run by disabled people had played in the struggle for the eradication of disabling barriers, he suggests that the challenges facing disabled people are increasingly different from those of the early 1990s, and that despite the incorporation of a disability rights agenda into the formal mechanisms of Government many disabled people remain amongst the most economically and socially disadvantaged in Britain. This he ascribes to the disabled people's movement's ‘ideological purity’ and failure to engage in productive partnerships with other disability organisations. Here we argue that these assertions are based on a lack of clarity of meaning and a partial reading of the difficulties encountered by the disabled people's movement as a consequence of its early success and the activities of the agencies he urges the movement to engage with.     

Disability and dirty workers: stories of physical,social and moral taint

Returning to classics on dirty work and stigma, I offer another perspective on the difficulties that disabled people experience in employment. I claim that disabled workers with multiple sclerosis (MS) feel like ‘dirty workers’ not because of the work that they do, but because of their MS. Secondary analysis of phenomenological interview data revealed workers with MS feeling physical, social and moral taints normally associated with being a ‘dirty worker’ – but because of their MS-related impairments and disabilities. Two respondent stories are shared to illustrate this association.     

Can a Fat Woman Call Herself Disabled?

As an ostensibly able-bodied fat woman I discuss my experimental usage of 'disabled' to self-define, asserting that this is a problematic label. I criticise some of the mutual misconceptions fat and disabled people share, especially the role of medicalisation, and I explore some similarities and differences in our respective struggles for civil rights. I suggest that identifying as disabled is political in origin, and that disability politics offer an important precedent for fat people.     

Integrating youth participation and ecosocial work: New possibilities to advance environmental and social justice

ABSTRACT

This article reveals possibilities to expand the role of youth within ecosocial work practice. The Where I Stand Youth Summit held in Chicago, Illinois, provided a safe space for young people to reflect upon their understanding of, and roles within, social and environmental justice movements. Drawing upon critical youth empowerment theory and participant observation, we note that youth shared experiences of oppression across unique social identities, while displaying authentic communication, acceptance, and desire for solidarity. Re-defining what knowledge matters, along with intention and self-restoration, also emerged as critical to building young people’s agency and power to effect social change.     

Overcoming disabling barriers: disability and attitudes to disability within the Maltese context: an insider’s perspective

This article explores the way a number of disabled people and a parent of a disabled child living in Malta, a small island in the Mediterranean, look at their daily experiences of disability and talk about what changes they would like to see in Maltese society for them to feel more equal and included. While participants acknowledge that much progress has been made in terms of inclusion, they still feel that there are still disabling attitudes that are posing limits to their choices. Lacking a true disabled people’s movement, disabled people express the need for more unity within the disabled community. Even if the article offers hope for the development of a grassroots disabled people’s movement, this possibility remains inconclusive – but the report does offer hope for future action.     

‘A frog in a well’: the exclusion of disabled people from work in Cambodia

Based on ethnographic research conducted in north‐west Cambodia in 2000–2001, this paper examines why disabled people experience systematic marginalisation in the labour market. Although there are no official data on the relationship between disability and employment status in Cambodia, this research suggests that disabled people are more likely than their able‐bodied counterparts to be unemployed, in low status occupations, earn less or be out of the labour market altogether. Consequently, disabled people are more likely to live in poverty, experience social isolation and poor mental health. I argue that disabled people’s social status effectively shapes their work patterns through (mis)conceptions that associate ‘disability’ with ‘inability’ to work and to be employable. This paper illustrates how geographical processes fix disabled people in their socio‐spatial place, which together with ideological and structural inequalities distinguish and entrench their poverty from that of other social groups.