'I wanna tell you a story': Exploring the application of vignettes in qualitative research with children and young people

Few methodological papers exist which examine the use of vignettes within qualitative research and more specifically, with children and young people. The paper will briefly discuss the application of vignettes within quantitative and qualitative research traditions derived from the available literature before outlining the major theoretical and methodological issues relating to the use of this technique in social research. Using empirical examples of young people's responses to a selected vignette, we then go on to explore the various benefits of vignettes that can ensue when employing this technique in isolation or as part of a multi-method approach. This discussion concludes with an exploration of how vignettes can be harnessed to engage young people, particularly in the discussion of sensitive topics, whilst enabling them to retain a high level of control over the research process.     

Producing and Using Video Data in the Early Years: Ethical Questions and Practical Consequences in Research with Young Children

This article considers ethical questions and practical challenges arising from the production of video data with young children, and suggests that such considerations are reciprocal and that video data should be seen as constructed collaboratively by all participants. Video data can be a valuable means of eliciting children’s perspectives, but it raises particular issues of consent and confidentiality. Opportunities for young children to use video cameras are helpful in supporting informed consent and active participation, whilst the visual nature of video renders anonymity and confidentiality more difficult, and anonymisation of images may impact upon data quality. Video, like all research data, is influenced by the actions and biases of participants, and young children’s experiences as consumers of television will influence their reading of, and responses to, video data. An advantage of video is that it can provide participants with feedback about their participation. Challenges remain with regard to ownership.     

Exploring the deployment and reintegration experiences of active duty military families with young children

Active duty military families are experiencing increased stress as service members deploy to and return from lengthy and repeated deployments to multiple war zones. These deployments have a cumulative impact on the behavioral health and well-being of not only the service member, but also the family, particularly in families with very young children (Lester et al., 2016). Emergent research concerning families with young suggests that greater attention to the military spouse is needed to ensure effective, supportive service provision for these families. The purpose of the present study is threefold: (1) to identify the challenges faced by families with young children during and after deployment, (2) to understand resource utilization by these families, and (3) to explore the strengths and strategies used during these experiences. Data were collected through semi-structured interviews with 19 active duty Marine Corps family members with young children (under 5 years old) and 10 key program providers on or near a large military base in the southeast region of the United States. Findings reveal significant social isolation, which is consistent with the literature, the need for formal and informal social supports as well as self-care for the at-home parent, challenges in co-parenting and utilizing known resources, and a range of strategies used to manage deployment and reintegration. Implications for practice are discussed.     

The Everyday Costs of Poverty in Childhood: A Review of Qualitative Research Exploring the Lives and Experiences of Low‐Income Children in the UK

This review of 10 years of qualitative research with disadvantaged children in the UK shows that despite some gaps in the knowledge base, there is now a substantive body of evidence exploring children’s lives and experiences from their own perspectives. The review reveals that poverty penetrates deep into the heart of childhood, permeating every facet of children’s lives from economic and material disadvantage, through the structuring and limiting of social relationships and social participation to the most personal often hidden aspects of disadvantage associated with shame, sadness and the fear of social difference and marginalisation.     

Children as co-researchers in pandemic times: Power and participation in the use of digital dialogues with children during the COVID-19 lockdown

This paper documents co-participatory research with children in six primary schools in Ireland during the COVID-19 pandemic. It explores the use of what we term digital dialogues with diverse groups of children aged 9–10 years as members of Child Research Advisory Groups. The paper conceptualises the digital dialogues as sites of resistance as well as constraint, empowering children to articulate their voices in relation to schooling and the pandemic, whilst mediated by power dynamics—between adults and children, and between children, in the articulation of those voices.     

Pockets of Participation: Revisiting Child‐Centred Participation Research

This article revisits the theme of the clash of interests and power relations at work in participatory research which is prescribed from above. It offers a possible route toward solving conflict between adult‐led research carried out by young researchers, funding requirements and organisational constraints. The article explores issues of participation in child‐centred research in a cross‐cultural context and gives examples from research carried out with young refugees. The author discusses what might be the best way forward for researchers against a backdrop of critical dialogues concerning child participation on the one hand and funders’ frequent calls for participatory methodologies on the other. In doing participatory research with children and young people on the margins of society, issues of power, knowledge, ethical relations, funding processes and research methodologies and practices may seem at odds and difficult to resolve. In this article a methodology of creating pockets of participation that can be owned by the young researchers is suggested as a possible route.     

Engaging with children as co-researchers: challenges,counter-challenges and solutions

Participatory approaches have become de rigueur in social research involving children. A growing trend is research by children where researchers engage (or employ) children as co-researchers or primary researchers. In this paper, we critique the ethical, methodological and practical issues associated with this participatory approach. The discussion is framed around six challenges: (1) Children lack research competence; (2) A comprehensive training programme is required; (3) Insider/outsider perspectives are difficult to balance; (4) Remuneration is complex; (5) Power differentials need to be overcome; and (6) Children need to be protected. For each challenge we propose a counter-challenge. Additionally, we offer pragmatic solutions to the issues raised, so that the paper holds practical utility to social researchers who utilise this type of participatory approach. Overall we argue that despite the approach’s inherent challenges, children as researchers are a powerful conduit for other children’s voices.     

The pen,the receiver and the pump: Exploring young children's experiences of having a parent with type 1 diabetes

In this article, we explore young children's experiences of having a parent with type 1 diabetes (T1D). In our research we found that the children's knowledge about T1D was not age related, and that some had more in-depth knowledge than others. This seemed related to how and what the parents taught them about diabetes, the individual child's curiosity and interest, and the parent's history with fluctuating blood sugar levels. Several children were affected by their parents' diabetes in their daily life. Our research contributes to knowledge about how children's lives can be affected by having a parent with chronic illness.     

Involving Young Disabled People in the Research Process: The Experiences of the PIE Research Project Team

Young disabled people are still rarely involved in the research process, despite an increasing emphasis on their inclusion as participants. The Participation in Education (PIE) project examined how disabled children with little or no speech could be involved in their education. The project team worked with an existing group of young disabled people to develop ways in which they could take part in the research process. The group was involved in developing the methodology, group work, observation, commenting on findings and in the dissemination process. Their involvement undoubtedly enriched the research and the benefits of working with an established group were manifold.     

Agency policy and the participation of children and young people in the child protection process

This article explores agency policy in relation to children's participation in the child protection process. This was done by examining policy documents and conference minutes and by interviewing social workers and conference chairs working in child protection in Wales. Issues and dilemmas surrounding the participation of children and young people in the child protection process are identified and examined. The lack of children's more direct participation was noted, but many agencies were taking action to inform themselves of children's views indirectly. Advocacy was being more frequently used, and highly valued where it was available, but did raise some role dilemmas. The essentially child‐unfriendly nature of child protection processes (particularly the conferences) was identified as a significant barrier to promoting children's voices. The contradiction of trying to promote children's direct participation in a process that is inherently not geared towards their direct involvement was noted. The total lack of children's input into service planning for child protection services was seen as significant. Copyright © 2006 John Wiley & Sons, Ltd.     

Situating Children's Voices: Considering the Context When Conducting Research with Young Children

I problematise my own concept of children's voices in research by reflecting on certain practices in a study that I conducted in a kindergarten classroom in a city in Saudi Arabia. I examine the cultural and social contexts of my research by drawing on my experience of obtaining children's assent or dissent, my assumptions regarding the possibility of reducing power differentials, and finally, my understanding of the ways children voice their feelings and views. I conclude that voices manifest themselves in multiple ways that extend beyond visual or verbal media. Voices are constructed socially and are shaped culturally to reflect norms regarding how individuals should express their views and feelings within a particular setting and time.     

Insights and recommendations for recruitment and retention of low socio-economic parents with overweight children

Low socio-economic groups are typically difficult to recruit and retain in health research, which makes it difficult to investigate their health-related beliefs and behaviours. Low socio-economic parents with overweight or obese children took part in a longitudinal qualitative child obesity study over 12?months. These parents’ views of and recommendations for appropriate recruitment and retention strategies are reported. Their interpretations and suggestions are considered in the light of the difficulties that were experienced in designing the study to meet their needs and the approaches that were found to be more effective in achieving and maintaining a viable study cohort. Relevant aspects of recruitment included remuneration, recruitment locations and the use of appropriate weight-related terminology. Retention factors included protocol flexibility, ongoing remuneration and learning opportunities. Barriers to ongoing participation are also discussed. Suggestions are provided for future qualitative research with low socio-economic families.     

Ethics in context: essential flexibility in an international photo-elicitation project with children and young people

ABSTRACT

Existing literatures have discussed both ethical issues in visual research with young people, and the problems associated with applying ‘universal’ ethical guidelines across varied cultural contexts. There has been little consideration, however, of specific issues raised in projects where visual research is being conducted with young people simultaneously in multiple national contexts. This paper contributes to knowledge in this area. We reflect on our experiences of planning and conducting the International CYCLES project involving photo elicitation with young people in Bangladesh, Brazil, India, Japan, New Zealand, South Africa and the UK. While some issues such as varying access to technology for taking and sharing photos and diverse cultural sensitivities around the use of photography were anticipated in advance, others were more unexpected. Balancing the need for methods to be appropriate, ethical and feasible within each setting with the desire for sufficient consistency across the project is challenging. We argue that an ‘ethics in context’ approach and an attitude of ‘methodological immaturity’ is critical in international visual research projects with young people.     

Working with autistic children and young people: sense, experience and the challenges for services, policies and practices

This paper aims to create narratives of autistic experience that are not restricted by a primary consideration of impairments or deficits but rather related to ideas about 'assets' as a means of developing professional practice. It is argued that children's rights legislation (UN Convention on Children's Rights, 1989, and in the UK, the Special Educational Needs and Disability Act, 2001) can encourage professionals working with autistic young people to search imaginatively for ways of conceptualising and accessing not only those assets but also the thoughts and feelings of their clients. Examples are taken from the author's own casework as well as from autistic 'insider' accounts which, it is argued, are providing insights into the inherently social contexts for the development of human feelings, thinking and meaning. While primarily directed at professionals, the intention is to encourage theories and the development of practices which are responsive to the wishes and views of disabled people and as such assist in their 'fight for full equality and social inclusion'.     

The use of photovoice with people with intellectual disabilities: reflections,challenges and opportunities

Photovoice is part of the growing use of participatory research approaches with people with intellectual disabilities. In this paper we explore the process, opportunities and challenges associated with the use of photovoice with people with intellectual disabilities, illustrated through a research project entitled ‘This Is Me’. Photovoice requires researchers to share power and control in the research process and to tolerate uncertainty. Large investments in time and money are also required. These challenges, however, are outweighed by the benefits of the use of photovoice with people with intellectual disabilities. Photovoice creates a space where people with intellectual disabilities can meaningfully participate and exert control in the research process, and as such is an empowering experience. As a participatory research approach, photovoice is accessible and offers the opportunity for people with intellectual disabilities to develop new skills, confidence and experience inclusiveness in their own terms.     

Commercial and sexual exploitation of children and young people in the UK—a review

This paper reviews recent information and data relevant to the commercial sexual exploitation of children and young people in the UK. Three main aspects of exploitation are addressed: abuse through prostitution; abuse through pornography; and the trafficking of children and young people to and through the UK for the purposes of commercial sexual exploitation. Most published research in this area relates to young people exploited through prostitution. The review explores the range of vulnerability factors, the processes used to engage young people in prostitution and the types of support strategies for those being exploited. Rather less information is currently available on the scale of child pornography, or the links between the use of pornography and other forms of sexual abuse. The internet as a modern technology for proliferating child pornography is discussed, alongside its role in providing opportunities for paedophiles to access and ‘groom’ children for sexual purposes. Finally, the review provides a summary of research on trafficking of children to and through the UK for the purposes of commercial sexual exploitation and demonstrates the limited knowledge about this topic. Copyright © 2005 John Wiley & Sons, Ltd.     

Toxic stress in children and youth: Exploring the role of community-based programming to support health and well-being in the United States

Children and youth exposed to toxic stress are at a greater risk for negative outcomes on health, well-being and occupational performance. Focus groups were conducted to gain understanding of the experiences and perspectives of youth at-risk who were currently receiving services from a community-based agency in a small city in the Western United States. Participants discussed acquiring life skills through agency programming including social skills and coping/self-regulation skills. Participants also reported a positive culture of the agency, expressing feelings of safety, trust and supportive relationships. Community-based programming may be in a pivotal position to provide services and supports that act as buffering protection against the effects of toxic stress.     

Research Note: The LIVITY study: research challenges and strategies for engaging with the black caribbean community in a study of HIV infection

There is an increasing incidence of new HIV‐1 diagnoses among black Caribbeans in the UK, but there has been limited research in this area. The LIVITY study is the first in‐depth epidemiological and behavioural study to examine the impact of HIV among black Caribbeans in the UK. The UK black Caribbean community has traditionally been regarded as less likely to participate in clinical research and surveys. We identified three major challenges to recruitment to the LIVITY study: general distrust of the research process; the considerable stigma surrounding HIV in the black Caribbean community and the sensitivity of obtaining detailed sexual histories. The strategies devised to help overcome these barriers to optimise recruitment included: the establishment of a black Caribbean Community Advisory Group to facilitate communication between the community and the researchers and assist in questionnaire design to improve acceptability to the participants; use of healthcare practitioners as gatekeepers; extensive piloting and modification of the questionnaire among black Caribbean patients; reassurances of confidentiality during recruitment; and ethnic matching between interviewer and study participants. Another challenge was the high rate of loss to follow‐up among eligible patients, potentially compromising the study’s generalisability. Nevertheless, use of the above strategies resulted in a satisfactory enrolment rate of 57%, who were representative of all eligible patients.     

A rights-based conceptual framework for the social inclusion of children and young persons with an intellectual disability

There is a basic principle that all children and young persons with intellectual disabilities should be able to enjoy citizenship on an equal basis with others. This includes enjoying personal dignity and exercising choice, control and freedom in social, community and cultural life, in keeping with their individual lifestyle preferences and aspirations. There is a need for a stronger human rights narrative to achieve this. This article identifies a conceptual framework for a rights-based approach to the integration of children and young persons with disabilities. Seven components of such a framework are identified: citizenship and social inclusion; recognition; agency; voice; capabilities; equality; and self-realisation. This framework was developed as part of an Irish case study involving consultation with young persons with intellectual disabilities, their parents or guardians and professional staff delivering support services. The rights of children/young persons with intellectual disabilities are essentially those of children generally. While this principle may be obvious in many respects, its implementation presents significant challenges. The need for a transformative narrative and its components are outlined.     

Preventing the residential placement of young children: A multidisciplinary investigation of challenges and opportunities in a rural state

Estimates suggest that most children placed in state custody have mental or behavioral health problems. Many of these children are difficult to place with foster families and ultimately are referred for residential care. Residential care is expensive relative to other alternatives and the effects on child outcomes do not seem to justify the expense. This study identifies systemic factors contributing to the residential placement of young children and opportunities for service improvement in a rural state. Key informant interviews and surveys were used to synthesize a broad array of professional perspectives. Remarkable consensus across multiple groups suggests that young children are best served in a family setting. Strategies to reduce residential placement and improve outcomes of young children are discussed.