Help across the spectrum: a developmental pediatrician's perspective on diagnosing and treating autism spectrum disorders

Autism spectrum disorders (ASD), a group of neurodevelopmental disorders characterized by marked deficits in social interaction and communication with unusually restricted interests, have a tremendous impact on society and are increasingly being diagnosed. Increased developmental screening, use of standardized diagnostic tests, and a broadening of Diagnostic and Statistical Manual of Mental Disorders (American Psychiatric Association, 2000) criteria might account for the increased incidence. Evidence-based treatments for children with ASD, reviewed by the National Standards Project, are primarily behavioral interventions with foundations in the sciences of applied behavior analysis and developmental psychology and emphasize improved functional communication and social reciprocity.     

Neurodiversity, neurological disability and the public sector: notes on the autism spectrum

Neurodiversity and neurological disabilities reflect rising public sector challenges. Both refer to the same set of medical conditions, but speak to different aspects of diversity affecting the public sector. Neurodiversity describes features of neurological difference associated with individual or community identity that is a more or less elective choice of those experiencing neurological difference. Neurological disability refers to impairment of socially determined major life functions caused by observable, diagnosable difference in an individual's brain. Both neurodiversity and neurological disability produce challenges and opportunities for public programs and societies. This article employs findings from a survey of families with children with autism to examine administrative implications of neurodiversity and neurological disability. The findings suggest that in managing new (and rising) kinds of diversity, public administrators must navigate sharpening divides between interests related to inclusion and those related to identity.     

The British Ugandan Asian diaspora: multiple and contested belongings

In this article, I map the diverse allegiances and changing conceptions of home expressed by British Ugandan Asians. Drawing on in‐depth interviews, I situate the analysis within the wider literature on diaspora, belonging and home. By revealing their different trajectories of belonging, I challenge much of the current literature on the South Asian diaspora, which focuses on connections to India as the principal homeland. Their complex relationship to Britain in the aftermath of the expulsion provides an alternative insight to previous research, which has stressed their commitment to the UK. I trace how they constructed their sense of ‘home’ in Uganda, how their forced migration transformed this and how they responded to their contested and multiple belongings. The respondents' emphasis on their previous attachments to Uganda helps to challenge stereotypes about South Asians in Uganda and can partly be seen as an attempt to reclaim their place in Uganda's history.     

Google Street View: navigating the operative image

Via a close navigation of a Google Street View (GSV) scene in Oslo, this article investigates the role the photographic image plays in what has come to be known as ‘locative media’ – an entire range of image software that runs on mobile devices using GPS signals to locate the user, and that emerged after the United States government decided to end the intentional degradation of the public GPS signal in 2001, fostering the development of navigable photo-maps such as GSV, photo-synths and other location-based image applications such as Augmented Reality. The authors first address the temporal discontinuities and gaps of the GSV database, which the user navigates as a spatially continuous image. Second, they show that the city is experienced as one and the same data space, simultaneously traversed both on-site and on-screen. Third, they critically interrogate the navigability of the GSV image afforded by real-time data processing based on mutual data exchanges between user location, hardware, software, network and database. They argue that the GSV image is what Harun Farocki, in an article on cybernetic warfare, has called an ‘operative image’, an image that no longer represents an object but is part of an operation. In fact, the users’ trajectories feeding back into the database initiate a reverse operativity, which proves to be the more problematic side of ubiquitous locative media applications such as GSV.     

Spirituality in Latino families of children with autism spectrum disorder

Research on Latino parents of children with intellectual and developmental disabilities (IDD) suggests that these parents often use spirituality to conceptualize and to cope with their child’s diagnosis. However, there are no studies that examine religion among Latino parents of children with autism spectrum disorders (ASD). The current study explores how Latino parents of children with ASD incorporate spirituality into their conceptualizations of their child’s disability. In the current study, 34 Latina mothers of children with ASD were interviewed about autism-related services, family characteristics, and cultural beliefs including spiritual beliefs. Thematic analysis of the transcribed interview data relating to spiritual beliefs was conducted for the present study. Most mothers endorsed beliefs that their child with a disability was a message from God. Within this theme, mothers reported beliefs that their child was a blessing from God, a test from God, a sign from God or that the parent was special. Other parents believed that having a child with a disability was not an act of God, but related to biomedical factors, and another group of parents was unsure about the spiritual meaning of their child with a disability. Lastly, some mothers reported that their larger cultural group believed that having a child with a disability was a punishment or a negative sign from God but they markedly rejected that conception. These findings suggest that providers working with Latino families of children with ASD should acknowledge the importance of spirituality for these families.     

Enabling and disabling emotional diversity: Negotiating autism spectrum disorder in therapeutic encounters

Autistic youth are often understood as emotionally suspect in schools, workplaces and households, and autistic behaviour is strongly regulated. In contrast, neurodiversity advocates suggest that all sociality exists on a spectrum, and that autistic people represent the diversity of that spectrum. Situated within this debate, this paper examines the narratives of specialists who navigate pedagogies of emotional suspicion in their work with autistic youth. I draw on interviews with autism professionals in Massachusetts, USA to elucidate how they negotiate the tensions between regulating emotional behaviour and recognising emotional diversity as they mediate the construction of autistic youth as emotional suspects.     

Informal employment: Two contested policy issues

This article addresses two contested issues of crucial importance to policy, namely: formal labour regulations as a cause of informal employment, and so‐called “voluntary” informal employment. The authors provide theoretical overviews on both issues and an extensive survey of empirical studies on the effects of formal labour regulations on informal employment. The article closes with observations on the relevance of the ILO's four decent work objectives for informal employment and economic development, with particular emphasis on the significance of – and potential for – organizing workers in the informal economy.     

The lie of race: the politics of evil

Abstract

This is a paper about a world without racism; it addresses the tenacity of racism as equivalence to privilege. The biology of love as a conversation is explored. Organization theory is juxtaposed as a system of Others. Some language of quantum theory is used to present a hypothesis about why systems of privilege are created and conserved through self-reference. The God metaphor is posed as the penultimate organization enabling privilege. This is offset by seeing that love is not a choice, thus freeing both gods and humans to the universe of possibilities. Threads for further research in organization theory are suggested.     

Communicating with children with autism spectrum disorder and their families: a practical introduction

Impaired communication and social interaction are symptoms central to autism spectrum disorder (ASD). Children or young people with ASD have varied intellectual ability, learning difficulty, and needs. For caregivers and health care professionals providing care to children with ASD, many challenges are encountered in everyday conversations. Enhanced knowledge of the spectrum and understanding the child or young person with ASD may improve conversation and social experiences. This article provides a practical introduction for health professionals seeking to improve their interaction with young people with ASD. Fictional vignettes, in which children with ASD are seeking care and support are presented, followed by discussion on communicating with children with ASD.     

Walk-in clinic counselling for emotional regulation with low-needs youth on the autism spectrum

A single-session consultation model for low-needs youth on the autism spectrum is presented with the mental health concern of emotional self-regulation, a common issue in family psychotherapy. This research is contextualised within the growing field of short-term therapy as it intersects the growing demand to therapeutically address clients on the autism spectrum. The treatment intervention is delineated through five sequential phases within the walk-in clinic setting for the practitioner clinician. A rationale, overview, and instruction for the practitioner clinician utilising this novel model is provided through a case study format. By using a more structured and integrated approach to treatment, organised through an externalised metaphor, it is suggested that the current model will be more effective for this specific clinical population. Additionally, a case illustration is provided that scaffolds the treatment model, which includes table formats and pictures. The case study illustrates the self-regulation map metaphor visually and interactively linking client challenges, strategies, and motivations simultaneously on multiple electronic devices in session. Relevant works were selected to explore the effectiveness of single-session consultation models for those presenting on the autism spectrum. Treatment interventions for specific clinical populations are recommended, especially within walk-in clinic therapy. This clinical research introduces a paradigm shift towards therapeutically addressing emotional self-regulation with low-needs youth on the spectrum through virtual, interactive technology.     

The meaning of autism: beyond disorder

The incidence of autism spectrum disorders has increased dramatically over the past two decades, yet these disorders are still poorly understood. By considering the viewpoints of autistics themselves, together with evidence from the scientific literature, it becomes clear that autism spectrum disorders are not always the debilitating conditions that they are sometimes portrayed as. In fact, they are often associated with a number of strengths. With a focus on the areas of intelligence, communication, social skills and stereotyped/repetitive behaviours, this article calls into question the idea that autism is a traditional disorder and argues that a new inclusive dialogue on the meaning of autism should be considered.     

Contested boundaries,contested places: The Natura 2000 network in Ireland

Where to draw the boundary line between ‘nature’ and ‘society’ has perplexed sociologists, ecologists and geographers through the ages. This paper was inspired by environmental sociologist, Alan Irwin, who suggests that we shift our focus from asking ‘where to draw the line’ between what is considered ‘natural’ and ‘social’ to exploring the ‘very process of line-drawing’ as it occurs within specific socio-ecological contexts (Irwin, 2001). Nature conservation initiatives in the form of “protected areas” provide remarkable insights into attempts to devise and manage conceptual and spatial-geographic boundaries between nature and society. Here, I discuss Ireland’s contribution to the Natura 2000 network of protected ecological sites. I show how line-drawing in Natura 2000, from EU right down to local levels, is a highly contingent, contested and uncertain process; how both ‘nature’ and ‘society’ can frustrate attempts to draw and maintain these boundaries and the conflicts, uncertainties and dilemmas thrown up in the process. The paper ends by considering the extent to which this “boundary-work” analysis provides an insightful, though incomplete picture of the experiences of and challenges posed by Natura 2000 on-the ground, while posing some more philosophical questions about nature–society boundaries and the challenges they pose to nature conservationism.     

Drifting down the gulf stream: navigating the cultures of disability studies

This paper explores the divergent theoretical developments in the UK and US disability studies and posits some explanations for these differing trajectories. History, politics, space, place and the search for identity have all played important roles. These emergent and hotly debated developments add a wealth of material to the epistemological project. The recent collections by Barnes et al. (2002) Disability studies today, and Snyder et al. (2002) Disability studies: enabling the humanities, will be used as pivotal works. However, the question remains as to what explanatory power discourses developed within western metropolitan national cultures have for exploring the experience of disability in cultures on the peripheries. This analysis is being undertaken by an English born academic, who has been living in Australia for over 20 years and has been keenly watching and participating in the transatlantic battles over the past decade.