Responsive expression in living bodies: The power of invisible ‘real presences’ within our everyday lives together

In the past, in our talk of meanings, we have been used to thinking of them as working in terms of inner mental representations, and to thinking of such representations as passive objects of thought requiring interpretation in terms of shared rules, conventions or principles if their meaning is to be understood. This view of communication and understanding as ‘information processing’ has been hegemonic in social theory now for quite some time. Here, however, this paper will explore an alternative to it: the realm of expressive-responsive bodily activities occurring spontaneously between people in their meetings with each other. The spontaneous understandings occurring in this sphere ‘pre-date’, so to speak, the more self-conscious understandings we have as autonomous individuals. In this realm, in such meetings, direct and immediate, non-interpretational physiognomic or gestural forms of understanding can occur. Indeed, central to activities occurring between us in this sphere, is the emergence of dynamically unfolding structures of activity – ‘real presences’ in Steiner’s terms – in which all involved participate in ‘shaping’, and to all involved must be responsive in giving shape to their own actions. It is the agentic influence of these invisible but nonetheless felt presences that is explored in the paper. Their influence can be felt as acting upon us in a way similar to the expressions of more visible, and authoritative beings – in that they can directly ‘call’ us into action, issue us with ‘action guiding advisories’ and judge our subsequent actions accordingly with their ‘facial’ expressions or ‘tones’ of voice. This paper will explore how this form of participatory thought and understanding can help us to understand the ‘inner’ nature of our social lives together and the part played by our expressive-responsive activities in their creation.     

Visualizing ‘community’: an experiment in participatory photography among Kurdish diasporic workers in London

Most accounts of research methods in academic journals give an impression that research progresses in an orderly, logical and linear manner. Yet, in reality it is often more ‘messy’ than we admit. This paper reports on an experiment on the use of visual photographic methods in a study of Kurdish migrant workers in London who have had problems at work. The aim was to understand the type of problems workers faced and how they attempted to solve or deal with the issues they encountered. We were interested in the extent to which workers looked to local communities for support and if or how their identity impacted on the actions they took. The use of participant‐generated photography developed while the research was in progress and was utilized in addition to individual and group interviews in order to explore if this was helpful (to us and to research participants) in explaining issues, such as identity and ‘community’, which can often be difficult to verbalize or articulate. As a first foray into incorporating visual methods we struggled at first with ways to explain to participants the type of data we wanted, before learning that it was important to ‘lose control’ and allow participants to ‘speak’ for themselves using the lens of their cameras. The paper explores theoretical justifications that influenced our approach in our first attempt at participatory photography. It will look at the use of images constructed by research participants and how these were used in focus group situations to explore how or whether individual meanings of work, identity, community and belonging have resonance in the wider Kurdish community.     

Being and Landscape: An Ontological Inquiry into a Japanese Rural Community

This essay aims to reflect on the idea of landscape and our relationship with it by taking the Japanese notion of furusato (native place) in its ontological dimension. Grounded in Heidegger’s ‘phenomenology of Being’ and ‘ontology’, a phenomenological understanding of fieldwork experience in a Japanese rural community will be developed in order to rethink both the furusato and the ‘Being-landscape’ relation. As a consequence, we will be concerned not with how people speak about landscape, but with how the landscape speaks through people. What will be brought to light are the landscape’s moral and relational dimensions: namely, (i) the responsibility towards both our communities and future generations and (ii) a more-than-physical understanding of landscape that alerts us to our belonging to a common world comprised of relationships and tasks.     

From ‘not a big deal’ to ‘hellish’: Experiences of older people with dementia

Research on subjective experiences of dementia has paid scant attention to social location, due to fairly homogeneous samples and an inattention to socio-cultural diversity in data analysis. This article addresses this gap by presenting findings from a grounded theory study of the relationships between the experiences of older people with dementia and the intersections of ‘race’, ethnicity, class, and gender. Data generation occurred through a series of interviews, participant observation sessions, and focus groups with eight older people with dementia whose social locations varied from multiply marginalized to multiply privileged plus over 50 members of their social worlds. Their experiences of dementia were found to be varied, ranging from ‘not a big deal’ to ‘a nuisance’ to ‘hellish’, and to be related to their social locations. Negative views of life with dementia were not nearly as universal as past literature suggests and social location was found to mediate experiences of dementia.     

Dementia,disability rights and disablism: understanding the social position of people living with dementia

This article considers the recent history and consequences of positioning people living with dementia in the realms of disability, disablism and disability rights. The geo-political focus is the United Kingdom and neighbouring resource-rich nations in the Global North. The first section examines the growing trend of identifying ‘dementia’ with ‘disability’, a trend fuelled by the expansion of dementia-related activism and research. The second section focuses on how researchers who have published in Disability & Society and other journals have applied the social model of disability to individuals living with dementia. The third section discusses three conceptual challenges that lie ahead for those who choose to research and theorise the dementia/disability connection. These challenges concern: theorising dementia as disability; understanding intersectionality in dementia contexts; and understanding ‘abuse’ in dementia contexts.     

Health care,social care or both? A qualitative explorative study of different focuses in long-term care of older people in France,Portugal and Sweden

Challenges with an ageing population are increasingly becoming a reality in the Western world. Since cognitive impairment increases with age, we can expect an increasing number of older people in need of care. The aim of this article is to describe, analyse and compare different focuses on care of older people with dementia, using examples from France, Portugal and Sweden. The questions are principally focused on the participants’ view about their tasks, the organisation of work, the professional role and cooperation with other professions. Everyday care was studied through observations and participant observations and the staff's opinion was explored by means of interviews. Twenty-two care settings for older people were included. The findings showed that France provided mainly ‘health care’, Sweden ‘social care’ and Portugal an integrated ‘health care and social care’. In a comparative perspective the Portuguese general care of older people, which focuses on integration of health care, social care and social work, also seems to provide care for older people suffering from dementia which best corresponds to the previously developed group living model.     

The exclusionary side effects of the civic integration paradigm: boundary processes among youth in Swiss schools

Civic integration policies have become common in many European states and require that immigrants commit to integrating into the host society. This article draws on a study with young people in Swiss schools and investigates how these new political debates around civic integration find resonance in everyday narratives about immigration. The boundary approach is used as a framework to study the daily (re)production of the ‘Swiss–foreigner divide’. It reveals that assimilation into ‘Swiss culture’ (e.g. speak the local language and conform to social norms) remains a criterion defining who can become a legitimate member of Swiss society. Nonetheless, integration deficits are often perceived as the rule and transformed into a stigma so that ‘foreigners’ are frequently not recognised as legitimate members of society. This study indicates how the Swiss youth in this study legitimise and (re)produce exclusion and how this exclusion is embedded within past and current Swiss immigration policies.     

Speaking for herself: Andrea Dunbar and Bradford on film

In October 2010, the radio broadcaster Philip Dodd interviewed Clio Barnard about her new documentary, The Arbor (2010), based on the life of the late playwright Andrea Dunbar. As part of the film-making process, Barnard recorded audio interviews with Dunbar’s family then hired professional actors to lip-synch the responses in the film. Dodd had a major problem with this method: The Arbor is rooted in the lives of working-class Northern women, yet for Dodd, ‘they’re not good enough to be seen’. In a passionate defence, Barnard argued ‘I wanted people to speak for themselves’. This article examines Barnard’s film in conjunction with Rita, Sue and Bob Too!, for which Dunbar wrote the screenplay. A paradox is considered, where the ‘real’ and ‘authentic’ female voices of Dunbar, her family and neighbours are then mediated by cinematic form; this is placed within a wider argument about how issues around realism and representation in documentary and fiction film contribute to our understanding of the North in popular culture. The analysis then situates this thinking in terms of the representation of Northern writers and spaces, considering how the site-specific locations of writers affect the kind of cultural texts that they are able to produce.     

Constructing citizenship at the margins: the case of young graffiti writers in Melbourne

Young people engaging in graffiti are often portrayed as the anti-thesis of the ‘good citizen’. As politicians and the media fight the ‘war on graffiti’, these young people are tagged as criminals and misfits, overlooking the ways this arts practice reclaims their ability to tell stories and unhinge traditional ways of practicing citizenship. Using ideas from Michelle Fine et al.’s social psychology of spatiality as a conceptual lens, this paper explores the tensions, contradictions and binaries these young people find themselves caught between, particularly; art or vandalism, professional or amateur, artist or criminal, and legitimate or illegitimate citizens as young people and transgressors of ‘normal behaviour’ in public spaces. Using multiple methods, including ‘hanging out’ and participatory visual methods, this study explores how young graffiti artists’ experiences in and out of a legal ‘street art’ programme, speak back to ‘normative’ conceptualisations of citizenship. Their experiences of differential belonging and contested citizenship, which are played out in public spaces (and beyond), highlight the importance of alterative arts programmes and the creation of sanctioned spaces in negotiating young people’s ‘right to the city’.     

Radicalising ‘disability’ in conflict and post-conflict situations

In this article, a radical social model of disability lens is taken to illustrate what counts as ‘disability’ within a neoliberal mindset. The South African and disabled activist Vic Finkelstein describes both an ‘outside-in approach’ that looks at the material conditions of how ‘disability’ is constructed and an ‘idealist’ ‘inside-out’ approach, or how people describe experiences of inequality and disablement. The ‘outside-in’ approach is where the focus of a social model of disability should be in terms of trying to understand how global capitalism or neoliberalism is (dis)ablest and creating impairment. The ‘inside-out’ approach is ‘idealist’ and where the other ‘components’ of the model such as ‘rights’ are located. This article begins with an overview of the relationship between disability and conflict. The article then moves to an inside-out framework to examine how disability is still viewed and created through a medical humanitarianism. Using an outside-in framework, I illustrate how states become disabled through neoliberalism. Lastly, I discuss how ensuring greater participation and rethinking neoliberalism in terms of sustainability may provide us with a way forward in a humanitarian setting and rethinking of disability.     

Beyond words: Older people with dementia using and interpreting nonverbal behaviour

This article addresses a gap in research on nonverbal communication and dementia. It presents findings from a study that explored ways in which older people with dementia used and interpreted nonverbal behaviour within the context of social interactions. Two researchers, using an ethnographic approach, jointly observed nonverbal communicative behaviours occurring in a day-care centre. The findings show that older people with dementia used nonverbal behaviour in meaningful ways for others to interpret, and as a way of self-communication; and that they actively interpreted others' nonverbal behaviour. In specific situations, these people acted in the context of shared meanings, possessed a ‘self’, and took on the ‘role’ of others. This approach has implications for understanding the social experience of dementia and for the ways that care is organised. The role of nonverbal behaviour offers potential for carers to preserve older people's self-identity and improve their quality of life and care.     

Recruiting young people to sensitive research: turning the ‘wheels within wheels’

Abstract

This article contributes to a growing literature that takes a more nuanced approach to exploring the complexities of relationships and negotiations with gatekeepers. Using our study of young people living with a parent at the end of life as a ‘critical case’ of sensitive qualitative research, we discuss how far from being a smooth, linear process, participant recruitment was experienced as a series of overlapping challenges, characterised here as ‘wheels within wheels’. Each component of this multi-faceted process relied on identifying and engaging with key practitioners who acted as gatekeepers. We discuss how researcher and gatekeeper positionality influenced the outcome of negotiations with gatekeepers, and highlight potential implications for young people in exigent sets of circumstances. If the routes ‘in’ to access young people are difficult, then this also raises questions about routes ‘out’ for young people and their access to support when living through challenging times.     

Migrant narratives as photo stories: on the properties of photography and the mediation of migrant voices

This article examines how the properties of photography might mediate voice, defined as the capacity to speak and to be heard speaking about one’s life and the social conditions in which one’s life is embedded. It focuses on the affordances that the image provides for migrant cultural minorities to articulate such a voice within the context of collaborative research. I look at the case of Shutter Stories, a collaborative photography exhibition featuring the photo stories of Indian and Korean migrants from Manila, The Philippines. Using participant observation data, I show that it was photography’s ability to be all at once indexical, iconic, and symbolic that became important in voice as ‘speaking’. It allowed migrants to tell rich, multimodal narratives about their lives, albeit with some key limitations. I also show that it was photography’s inability to fix meanings with finality that mattered in voice as ‘being heard’. Although the locals who visited the exhibition engaged with the photo stories in an overwhelmingly positive manner, they often did not completely grasp the migrants’ complex narratives. All these data indicate that collaborative photography exhibition projects should not just be about how migrants speak and are heard. They should also be about how migrants can listen, so that they can adjust what they say to how they are being heard. This is a valuable reminder that in conceptualising photography and migrant cultural minority voices, we also need to take into account the broader process of multicultural dialogue.     

What makes a Gael? Identity,language and ancestry in the Scottish Gàidhealtachd

Scholars know far less about ‘national identity’ than ‘nations’ and ‘nationalism’. The authors argue that the concept is sociologically important and briefly discuss its relationship with language. They examine empirically how people living in the Gàidhealtachd, the area of Scotland associated with Gaelic language and culture, whether they are Gaelic speakers or not, whether incomers or not, go about their territorial identity business. The article shows how respondents’ Gaelic identity relates to their British and Scottish identity; how people living in the Gàidhealtachd assess putative claims to a Gaelic identity based variously on language, residence and ancestry; and how they see the balance between ‘cultural’ and ‘political’ elements in Gaelic. The authors argue that to study ‘what makes a Gael?’ highlights the key role territorial identity plays in connecting social structure to social action, and also that identity provides a set of meanings and understandings through which people experience social structure and feel empowered to act.     

A room with a view: a metaphor analysis of Vietnamese women’s representations of living with depression using photo elicitation

Depression is complex and it is known that how people name and give meaning to this experience when they are from cross cultural backgrounds differs to that of dominant Anglo cultures. Yet surprisingly very little is known about the naming and meaning-making conventions particularly for Vietnamese communities. In Anglo cultures, people commonly describe their experiences of depression as ‘travelling through dark tunnels toward a light’; ‘climbing out of a hole’; ‘a black dog’, and the ‘descent of a black cloud’. These metaphoric representations provide us with visual messages and new meanings about the experience of depression and how it impacts individuals. In this article, we describe a study that aimed to examine if a photo elicitation method could provide a group of women from Vietnamese backgrounds with another language set by which to represent their experience of depression in the face-to-face interview context. Women were provided with a digital camera and asked to take a minimum of 10 photos about their everyday experiences of living with depression. Recruitment and face-to-face interviews were completed with an interpreter already known to participants employed at the community health centre. Participants were asked to select five key photos for discussion within the interpreted interview. In the following article, a metaphor analysis is presented to reflect on how the photos enabled further insight into Vietnamese women’s representations of living with depression and examine the application of this participatory visual method for cross cultural research settings.     

Feeling special: Language in the lives of Polish people

In this article I use findings from an ESRC funded project on language and identity in the narratives of Polish people to challenge a narrow approach to language in debates about integration. I argue that decisions about learning languages are influenced by wider concerns of self and other identification rather then simply being issues of instrumental need. I show how research participants viewed speaking Polish as an important part of being Polish, that is, of their identity. They recognised that changing the language they spoke involved questioning the way they presented themselves and how they related to others. I discuss how language was used to differentiate between ‘us’ and ‘others’, including in terms of values and the ways in which these perceptions of difference influenced social interactions.     

The world we have made? Individualisation and personal life in the 1950s

This paper focuses on a fundamental problem with individualisation theories – the assumption that contemporary personal lives are radically new and different from those in the past. This is a particularly important issue for individualisation theories because they essentially depend on the idea of epochal, even revolutionary, historical change. Empirically, I examine the experience of personal life in Britain in the late 1940s and early 1950s (where a number of excellent sources exist) and compare it with today. Looking first at the personal life of gay and lesbian people, and of heterosexual spouses, I find substantial, but not unambiguous, ‘improvement’– in terms of equality, openness and diversity – over the period. But this improvement does not necessarily mean transformation in how people think about their personal lives and how they ought to conduct them. The paper goes on, therefore, to examine ‘tradition’ and ‘individualisation’ through the lens of ideas around extra‐marital sex and divorce. Rather than some duality between ‘traditional’ and ‘individualising’ people in the two periods, I find that how people thought, and the range of their thoughts, about how to conduct personal life seem similar in 1949/50 to the present day – given the debates and issues of the time. In both periods the married, older and more religious were the more ‘traditional’, and the young and the more professional were more ‘progressive’. But the bulk of both samples were ‘pragmatists’, holding practical views of what was reasonably proper and possible in adapting to, and improvising around, their circumstances.     

Re-approaching interview data through qualitative secondary analysis: interviews with internet gamblers

ABSTRACT

This paper addresses two interrelated questions concerning what interview data are and how researchers might use them. The first considers the value of a shift from a predominant or exclusive focus upon how data are constructed and produced at interview, and towards how such data might be apprehended through different forms of engagement. The second question relates to how and what qualitative secondary analysis (QSA) might be used to tell about the social world. In exploring this, we advance a critique of the divide between primary and secondary analysis, recasting the debate in terms of different degrees and qualities of ‘proximity’ and ‘distance’ from the formative contexts of data generation, and the distinctive analytical affordances that relate to these. Using QSA of interview data from a study of problem internet gambling as an empirical crucible, we consider the kinds of participation that interviewees develop through reciprocal engagement with interviewers. We illustrate how participants reflexively negotiate the affordances and limits to the narratives through which they frame and recount their experiences. Finally, we show how interview data can be used both to speak of the temporal, relational, spatial, epistemic contexts of their production, and also to contexts and questions beyond these.     

Being alone or becoming lonely? The complexity of portraying ‘unaccompanied children’ as being alone in Sweden

Research has largely focused on ‘unaccompanied minors’ as a vulnerable group at risk of developing psychological problems that affect their health. Separation from primary caregivers is considered one of the foremost reasons for these young people’s proposed loneliness. Thus, the official and ascribed identity is that they are lonely and that loneliness is their major problem. But research has seldom given the young people themselves an opportunity to express their views in an attempt to trace the often situational, dynamic and complex nature of social and emotional life. The present article analyses how ‘unaccompanied minors’ talk about everyday life and themes related to loneliness. The authors followed 23 ‘unaccompanied minors’ during a period of a year through ethnographic observations and qualitative interviews. Results: Loneliness may occur when these young people experience lack of control in managing life and when they feel no one grieves for them; loneliness may be dealt with by creating new social contacts and friends; loneliness may be reinforced or reduced in encounters with representatives from ‘the system’; the young people may experience frustration about being repeatedly labeled ‘unaccompanied’ and they may create a resistance to and critical reflexivity towards this labeling.     

Spiralling Up or Spinning Out: A Guide for Reflecting on Action Research Practice

This paper offers a theoretical ‘action research spiral’ model to guide reflection on the dual client focus of action research. While theoretically exploring and highlighting the tensions and dilemmas created by this dual client focus, this paper will argue for a greater degree of reflection on action research practice and utilize vignettes from action research cases to illustrate those reflective processes. It is concluded that further discussion and reflection on the process of action research is an important component of social science’s contribution to phronetic knowledge.

I saw the University as helping us to reflect on what we are doing—they are the expert reflectors. This is particularly what I saw as X’s role. Sometimes his interjections go above their heads and his ‘nine words or less’ statements need to have some explanation, and I should feed this back to him. I also see the University as playing a visionary role, helping to show us new things about what is possible. I don’t see the University as helping to pull the team together—that is when it gets confusing. They are observing us, they are looking at us as the rats, and when they see something that they think needs to be addressed, they can feed this back to us—and this is where teaching and formal learning comes in. This is a difficult role for the University. I can see some of the University people just squirming—you can see it in their face that they want to intervene. They know something about what we are doing but are not imparting the knowledge. This can piss people off. They are withholding what they know and not helping. But it can also piss people off if they come in too early and tell us what is going on and what to do and not let us wallow around for a while, and learn. This is what I see as a major problem for the University. As you observe us, at what point do you reflect the learning and feedback, and yet not prostitute the learning or dirty the data. …We are the rats, the factory is your laboratory. But when we are looking at the role of the University, you are the rats. (Plant Manager and Industry Sponsor of an Action Research Project, 2000)