Tales from the frontline: The experiences of early childhood practitioners working with an ‘embedded’ research team

In late 2006, SDN Children’s Services, an Australian not-for-profit provider of services for children, families and communities, engaged a research team that was ‘embedded’ within the organisation for 1 year. This action represented a significant investment of resources, such as staff time and organisational funds, and demonstrates SDN’s strong commitment to research and evaluation as a means of supporting organisational learning and development. This paper highlights the innovative nature of the approach by positioning the role of the embedded researcher within the current theoretical and socio-political context. It also provides evidence of the success of the approach by reporting on the findings of a study that investigated staff’s experiences of being involved in this type of collaborative investigation of their work. I argue that the employment of an embedded researcher can have positive benefits both for the organisation and the practitioners—but who the researchers are really matters.     

Ethical challenges of life story research with ex‐prisoners with intellectual disability

This paper outlines the ethical considerations when engaging in life story research with ex‐prisoners with intellectual disability. Based on a study conducted in Queensland, Australia, the authors explore some of the challenges that have arisen through the lens of principle‐based ethics. The significant disadvantage experienced by ex‐prisoners with intellectual disability warrants further attention by social researchers, and care must be taken not to further harm this group through the research process. Issues pertaining to the broad ethical concepts of integrity, justice, respect for persons and beneficence are examined to identify the degree to which they can guide the actions of the life story researcher. Examples are given as to how the researcher responded to difficulties as they arose and the authors discuss ways forward from a principle‐based approach.     

Looking inside the bag of tools: creating research encounters with parents with an intellectual disability

This paper examines the development of fieldwork methodology in a study that investigated the parenting experiences and parent support needs of a group of parents with an intellectual disability. It considers the ways in which the original planning for the project changed as the fieldwork unfolded, requiring adaptations to our methodological expectations and in the process deepening our understanding of the phenomena we were studying and reinforcing for us the importance of relationships in fieldwork‐based research. Three themes in particular are considered that became central to this research: research relationships; safety for participants/positioning of the researcher; suspending assumptions about impairment and disability and influences on life experiences.     

TAKING THE DEBATE ON REFLEXIVITY FURTHER

Much has been written on the presence of researcher subjectivity in qualitative research and the concept of reflexivity, and efforts to account for researcher influence abound. A vast proportion of this literature examines interviewer effects and is confined to the relationship between researcher and respondent in the interview interaction. The present paper extends this focus. It contributes insights from a collaborative team project by presenting a case study of a biographical‐narrative interview in an organisational setting. The psychodynamically informed panel analysis considered dynamics not only in the interview, but also in the research team and the organisation. This proved valuable in making explicit latent ways in which the interviewer, subject to such wider dynamics, shaped the interview accordingly. The paper shows that awareness of the nature of researcher influence can lead to important insights about the phenomenon studied.     

‘He was a secret’: family narratives and the institutionalization of people with intellectual disabilities

This article examines family narratives concerning the existence of an institutionalized family member with an intellectual disability. A research study investigating the experiences of institutional survivors and members of their families in post-World War II Ontario, Canada reveals ambiguous family narratives in which the story of an institutionalized family member with an intellectual disability was absent or uncertain. Secretive family narratives and their impact on family life are discussed from the perspectives of siblings of institutional survivors. Drawing from narrative enquiry literature, the potential repercussions of false or ambiguous narratives on the lives of people with intellectual disabilities are also examined.     

Assessing research impact: Australian Research Council criteria and the case of Family Wellbeing research

Researchers worldwide are increasingly reporting the societal impact of their research as part of national research productivity assessments. However, the challenges they encounter in developing their impact case studies against specified government assessment criteria and how pitfalls can be mitigated are not reported. This paper examines the key steps taken to develop an Aboriginal Family Wellbeing (FWB) empowerment research impact case study in the context of an Australian Research Council (ARC) pilot research impact assessment exercise and the challenges involved in applying the ARC criteria. The requirement that researchers demonstrate how their institutions support them to conduct impactful research has the potential to create supportive environments for researchers to be more responsive to the needs of users outside academia. However, the 15-year reference period for the associated research underpinning the reported impact and the focus on researcher’s current institutional affiliation constitute potential constraints to demonstrating the true impact of research. For researchers working with Indigenous people, relationships that build over long periods of time, irrespective of university affiliation, are critical to conducting impactful research. A more open-ended time-frame, with no institutional restrictions for the ‘associated research’ provides the best opportunity to demonstrate the true benefits of research not only for Indigenous people but for Australian society more broadly.     

Female researcher safety: the difficulties of recruiting participants at conventions for people with dwarfism

Disability research often favours the use of disabled researchers carrying out research with disabled participants. It is believed to empower disabled people and create results that are more valid. However, little consideration has been given to the ethical implications of this type of research process, including in relation to female researcher safety. This paper provides an autoethnography of my experience of being sexually assaulted when recruiting participants for my doctoral research, at a convention held by an association for people with dwarfism (The term used to refer to someone with this impairment often differs. In this research project terms participants preferred included; dwarf, person with dwarfism, short stature and restricted growth. I use the term ‘person with dwarfism’ as it fits in with the social model of disability by demonstrating that a person is ‘dwarfed’ by a built environment, which is constructed for the average sized person and is therefore disabled). Focusing on gender, disability and sexuality, situated in space, this paper explores the problems encountered when trying to recruit participants within a particular space. This paper suggests that the safety of the researcher, needs more consideration and offers recommendations to increase researcher safety.     

Isolated, invisible, and in the closet: the life story of a Scottish Muslim lesbian

In the last three decades, there has been a significant growth in the literature on lesbian identity and relationships, but the study of lesbians from a Muslim background is conspicuously absent. This article was prompted partly by the relative absence of research into the lives of Muslim lesbians in Britain, and partly by the fact that much of the literature on Islam and homosexuality has tended to focus on homosexual men, ignoring the position of lesbian sexuality in Islam. It also charts the difficulties faced by a heterosexual researcher in conducting an interview with a lesbian and calls attention to the invisibility of self-identified Muslim lesbians in Glasgow. The life story interview is used to explore the very hidden and untold story of a Muslim lesbian; as such the article draws heavily on the subject's narrative.     

That time I punched a boy in the forehead: sibling stories ahead of research

In the past month, I have been building relationships with community members at a prairie-based research site in Canada by telling a story about my own sibling advocacy. Namely, the story about that time I punched a boy in the forehead when I was a kid. I observe that this story helps build trust between me and the families invested in a new research project. This is a current issue because recent research on the utility of sibling stories suggests that these narrative accounts, diverse as they may be, are foundational to knowledge creation about disability. Yet these stories are under threat of pathologization when they are understood through a clinical lens, rather than a critical disability studies lens. I conclude by suggesting that sibling stories ought to be claimed as pivotal to critical understandings of disability experiences.     

Let the Sunshine in: An Analysis of the Placement and Pay of University Presidents and the Effects of Open Records Statutes

This paper examines how personal, institutional, and legal factors affect where college presidents are placed and how much they earn given their placements. We find that controlling for selection into institutional type is important, suggesting that presidents nonrandomly sort into institutions based on unobserved characteristics that also relate to wages. We also find evidence that state “sunshine” laws governing whether applicants’ names must be disclosed in searches are related to placements and wages. Presidents hired in states that exempt the names of all but finalists from disclosure are more likely to be placed in public research universities and less likely to be placed in private institutions. There is also evidence that presidents hired in open records states earn compensating differentials, but we are ultimately unable to distinguish this from a state-specific effect. We also find wage discounts for presidents hired at times with larger numbers of states with open records and with exemptions to disclosure for non-finalists. Thus, presidents and institutions appear to respond to market-wide incentives created by sunshine laws.     

Researcher Emotions: A Way Into The Experiences of Frail Older People

This paper explores the importance of the researcher's emotional experience in practice-near research. It details a journey towards positioning researcher emotions within a doctoral project exploring the everyday stories of older people deemed frail. Data from the experiences of interviewing and analysing the story of one couple are used to exemplify the emergent method. The method combines the Biographic Narrative Interpretive Method with the psychoanalytically informed Tavistock Observation Method. The paper details the utilisation of the method and the frame it gives the researcher to move beyond the purely text based, cognitive responses of participant and researcher, to the less rational, and unspoken aspects of the research encounter.

The paper argues that the emotional experiences of the researcher as well as the participant are important data in understanding the experience of ‘being frail’. However, there is the need for an over-arching theoretical framework to give validity to these emotional processes. It argues that psychoanalytical approaches, which emphasise the quality of the emotions experienced and the internal psychological processes which mediate social experience, are helpful in underpinning both methodology and methods of practice-near research.     

Transition from school for youths with a disability: issues and challenges

Australian research has demonstrated that students with a disability are more likely to remain out of the full‐time workforce. These research findings have been the catalyst for a call for a comprehensive career development and transition planning approach for all students with disabilities in schools as well as for employers to rethink the role of people with disabilities in the workforce. In the Australian context the transition from school for individuals with a disability is complicated by a disparate and fragmented group of service agencies providing a range of services, including employment, supported accommodation, recreation and leisure pursuits, as well as training and placement, along with, at times, a deep‐seated prejudice towards people with disabilities in the market place. This paper reviews a number of issues and challenges confronting individuals with a disability making the transition from school to the post‐school environment.     

Wheeling uphill? Reflections of practical and methodological difficulties encountered in researching the experiences of disabled volunteers

This paper focuses on methodological and practical issues surrounding research into disabled volunteers. It focuses on three key methodological and practical issues which were encountered by the author in preparing for and conducting fieldwork: difficulties in conceptualising disability for the purpose of the study; problems of access; and problems of reflexivity. Attention is also given to how the researcher responded to the problems and difficulties as they emerged throughout the research. The paper concludes by commenting that the overall commitment, social entrepreneurship and social advocacy of wheelchair users who volunteer is in stark contrast to the negative images of vulnerability and dependency often associated with disability.     

Researching religion: The vocation of the sociologist of religion

This paper reflects on the vocation or 'calling' of the researcher in the sociology of religion in the light of his experiences of researching transformations in English Catholicism in the last quarter of the twentieth century. It takes as its starting point Weber's two essays. A consideration of religious perspectives on the lay vocation leads to an evaluation of the advantages and disadvantages of insider research. The paper reflects on research mistakes, threats and attempts to co-opt the researcher, unexpected surprises and serendipity, and the need for the social scientist to retain control of his/her research. It concludes with inspiration from Havel that the calling of the sociological researcher is socially important and urges renewed commitment to seeking with integrity the extension of certified knowledge and the demystification of powerful institutional structures.     

Disability Studies as Ethnographic Research and Text: Research strategies and roles for promoting social change?

This paper problematises the notion of research production within disability studies by comparing literature on emancipatory research with concepts of reflexivity, authority and empowerment employed within ethnographic research. It critically examines a number of proposals within disability studies on how researchers can stimulate or contribute to processes which improve their respondents life conditions. A variety of strategies for change are discussed within the context of how ethnographers do fieldwork, and write up and disseminate their findings. This discussion also questions the role of the researcher and respondent as 'expert', suggesting that ethnographers should not privilege their own perspectives over that of respondents. It is concluded that the variety of research strategies and roles outlined in this paper need not be mutually exclusive and therefore, that there are a number of different yet complementary ways in which researchers can contribute to the conditions within which self-emancipation flourishes.     

The choice agenda in the Australian supported housing context: a timely reflection

The last 30 years has seen significant developments in the Australian housing sector for people with disabilities. Despite much change in the sector, and advancements in disability services, the range of current supported housing options for younger Australian adults with a neurological disability remains vastly under-developed. This is despite a widely accepted and endorsed recognition that, as is the general population, people with all forms of disability have a right to housing of their choice. This paper presents a timely critique of the key actions made by the Australian disability and housing sectors and subsequently proposes a more informed approach to supported housing design and development: one that is based on a comprehensive understanding of consumer housing priorities and preferences, and is conducive to a person’s biopsychosocial health.     

Families with Children with Disabilities - Inequalities and the Social Model

This article suggests that families with children with disabilities experience a range of inequalities that families with children without disabilities do not suffer. It draws on a recent qualitative study to illustrate the way in which it is not just disabled people, but in the case of disabled children, whole families that suffer from unequal opportunities and outcomes. We draw on the social model of disability to show that the lives of these families are often characterised by financial hardship, stress and anxiety as a result of social barriers, prejudices and poorly conceived service provision. The social model of disability is usually drawn upon to illustrate the way in which social organisation disables people with impairments. In this instance, we illustrate the way in which social organisation disables not just the family member who has an impairment but the whole family unit. By applying this model of disability, new ways of creating practices and policies for these families can be developed which incorporate their views into the heart of the policy-making process.     

Understanding Social Movements: theorising the disability movement in conditions of late modernity

This article draws upon qualitative research carried out by the author and funded by the ESRC. One of the central aims of this research was to investigate the nature of the UK disability movement's ‘struggle’ and to evaluate critically the idea that it is a ‘new’ social movement. Consideration of the disability movement in relation to both ‘new’ social movements and to wider social movement theorising has suggested that it may not be possible to understand this movement, entirely, by using any of the existing models. This article concludes by outlining the possible starting point for a new approach to understanding the disability movement based upon forging a closer link between citizenship and social movement theory and upon a focus on the nature of engagement. Empirical evidence from the research is included in this article in the form of quotations from respondents, all of whom are/were members of organisations that are run by disabled people. All respondents' names have been removed to maintain their anonymity.     

The effect of Phase One training on young recruits' personal and professional development in the British army

This paper focuses on young men in the British army and their attitudes towards, and experiences of, Phase One basic training. The research, which took place in 2008–2011, used a longitudinal design. Using mixed methods, the findings draw on qualitative data from semi-structured interviews with 26 young trainees, and interviews and quantitative survey data with 1518 recruits, with an average age of 19.6 years. It reports on recruits’ motivations for enlisting and then tells a story of socialisation, transition and change from both civilian to soldier and from adolescent to man. Drawing on Goffman's theory of the ‘total institution’ the research is centred around two contexts – the outside training ranges and the indoor barracks. It argues that the army has a set of highly effective structures and processes that socialise individuals into the culture of the military organisation. By the time they pass out of Phase One training, recruits are in the possession of a set of norms, values, knowledge and skills, and have not only been transformed into competent members of the military organisation, but have also begun to take on and construct new forms of self-image and identity.     

Story‐Making as Methodology: Disrupting Dominant Stories through Multimedia Storytelling

In this essay, we discuss multimedia story‐making methodologies developed through Re?Vision: The Centre for Art and Social Justice that investigates the power of the arts, especially story, to positively influence decision makers in diverse sectors. Our story‐making methodology brings together majority and minoritized creators to represent previously unattended experiences (e.g., around mind‐body differences, queer sexuality, urban Indigenous identity, and Inuit cultural voice) with an aim to building understanding and shifting policies/practices that create barriers to social inclusion and justice. We analyze our ongoing efforts to rework our storytelling methodology, spotlighting acts of revising carried out by facilitators and researchers as they/we redefine methodological terms for each storytelling context, by researcher‐storytellers as they/we rework material from our lives, and by receivers of the stories as we revise our assumptions about particular embodied histories and how they are defined within dominant cultural narratives and institutional structures. This methodology, we argue, contributes to the existing qualitative lexicon by providing innovative new approaches not only for chronicling marginalized/misrepresented experiences and critically researching selves, but also for scaffolding intersectional alliances and for imagining more just futures.