‘He was a secret’: family narratives and the institutionalization of people with intellectual disabilities

This article examines family narratives concerning the existence of an institutionalized family member with an intellectual disability. A research study investigating the experiences of institutional survivors and members of their families in post-World War II Ontario, Canada reveals ambiguous family narratives in which the story of an institutionalized family member with an intellectual disability was absent or uncertain. Secretive family narratives and their impact on family life are discussed from the perspectives of siblings of institutional survivors. Drawing from narrative enquiry literature, the potential repercussions of false or ambiguous narratives on the lives of people with intellectual disabilities are also examined.     

Tracking ‘the transnational’: studying transnational organizations and managements,and the management of cohesion

This article argues for greater clarity in researching transnational organizations and management, and the need for gendered multi‐level theory and gendered multi‐actor analysis. It examines different understandings and conceptualizations of ‘the transnational’ in studying transnational organizations and management, and their implications for understanding and conceptualizing the ‘management of cohesion’. In so doing, three conceptual and theoretical questions are considered: what are the major meanings of ‘the transnational’ in studying transnational organizations and management? What are the major different disciplinary frameworks in studying transnational organizations and management? What are the major epistemological debates in studying transnational organizations and management? Particular emphasis is placed on: the field of studies on transnational organizations and management; transnational research projects on transnational organizations and management; and the lives of transnational researchers. Two ongoing research projects – on gender relations in transnational organizations and managements, and men's changing organizational practices in Europe – are focused on to illustrate these issues. The theme of gender critique is developed throughout.     

What mattered ten years on? Young people's reflections on their involvement with a charitable youth participation project

Youth work in England is experiencing ongoing rapid and significant change, fuelling debate about its very function. This paper contributes to this debate by presenting original research on what young people themselves prioritised as significant in-service provision and highlights the longer-term impact that engagement with a voluntary sector organisation can have on the lives of vulnerable young people. Drawing on qualitative interviews with ten former youth participants involved in youth participation projects, the findings presented in this paper suggest that participants felt the support they received was, in many cases, ‘transformative’. However, they primarily defined their experiences and the impact through their relationships with individuals supporting them, through the sense of achievement and ability to effect change they developed and through finding a voice to affect community decisions.     

The particularity of the universal: critical reflections on Bourdieu’s theory of symbolic power and the state

A critical review of Bourdieu’s theory of the state is developed here against the backdrop of both his wider theoretical project and empirical studies. Elaborating the concepts of symbolic capital, symbolic violence, and symbolic domination, the centrality that Bourdieu accords to symbolic forms is compared to benchmark Weberian accounts that start with the state monopoly of violence. Reviewing also some of the burgeoning secondary literature discussing his theory of the state, Bourdieu’s writings, which encompass various antinomies, are shown to vacillate between two distinct perspectives—a strong and a weak theory of the state. His rejection of the “physicalist” approaches of Marx, Elias, and Tilly is elaborated and subject to a counter-critique, particularly in relation to the notion of symbolic “violence.” Bourdieu’s account of the state is shown to be as much a political as theoretical intervention. His antagonism towards Marxist accounts in particular is shown to be rooted in a pragmatic interest in the role of the “left hand of the state” in progressive reform; and this perspective is traced back to the twin influences of Durkheim and Hegel, French republicanism, and in particular the potential of the state to express a universal interest. At the same time, compared with sophisticated Marxist and Weberian accounts and the work of Norbert Elias and Gramsci, Bourdieu’s theory is shown to be severely lacking in the way that he deals with violence and coercion. His “expanded materialism,” particularly with the “strong theory,” bends the stick too far and overplays the symbolic basis of consent. Nevertheless, Bourdieu’s insights with regard to the pervasive influences of state practices of classification, taxonomy, delegation, and naming are shown to have real utility with regard to focused empirical investigations of the state in modern societies.     

From the multi-sited to the in-between: ethnography as a way of delving into migrants’ transnational relationships

Multi-sited ethnography has been extensively applied to migrants’ transnational family life and to the underlying care practices. Its methodological underpinnings and dilemmas, though, are relatively under-reflected. How can the relational and affective spaces between migrants and left-behind kin be ethnographically appreciated? Against this question, I revisit my fieldwork on a migration flow between Ecuador and Italy. This is an instance of the development of transnational social relationships, based on the circulation of material, cognitive and emotional resources, whereby people living ‘here’ and ‘there’ negotiate mutual affections, concerns and expectations. The challenge for ethnographers, under similar circumstances, lies less in staying in more sites than in sensing and understanding the relationships between them and the social practices on which this connectedness relies. The attendant methodological implications are discussed, ultimately pointing to the significance of relationality and in-betweenness for ethnographies of migration, transnationalism and mobilities.     

The significance of uprightness: parents’ reflections on children’s responses to a hands-free walker for children

The benefits and drawbacks of facilitating independent walking in children with physical mobility impairments, such as cerebral palsy, remain to be determined. This knowledge gap creates decision dilemmas about which mobility practices parents and children should adopt and rehabilitation professionals should foster. These dilemmas are reflected in continuing debates about allocation of time, effort and resources to optimize walking versus encouraging use of manual or powered wheelchairs. Recent studies have reported only modest measurable walking progress for severely disabled children using hands-free walkers. Despite these seemingly disappointing results, parents remained highly motivated to encourage their children to use these walking devices and appraised them very positively. In the present paper, we suggest that parents’ symbolic value of their children assuming upright comportment may explain why they perceive hands-free walkers positively and why they are so motivated to devote much time and effort to improving independent, walking-based mobility of their children.     

Lay people’s models of the economy: A study based on surveys of consumer sentiments

The purpose of this paper is to use a large data set comprising individual’s responses to survey questions about future economic conditions, unemployment and prices to explore lay people’s models of the economy and specifically their understanding of the relationship between unemployment and economic activity and also between unemployment and prices. The data is taken from the questionnaires used to form monthly indexes of consumer sentiments in Australia. We ask if the implied bivariate relationships are rational in the sense used by Muth (1961) and if they are consistent with the good-begets-good heuristic proposed by Leiser and Aroch (2009). We also ask if they are consistent with the actual operation of economic – and especially monetary – policy in Australia. We find that the data does provide some support for these hypotheses and for recent work in behavioural macroeconomics utilising the good-begets-good heuristic.     

Effectiveness of water-based exercise in people living with Parkinson’s disease: a systematic review

This systematic review summarizes the relatively scant literature concerning the effectiveness of water-based exercise (WBE) interventions in people with Parkinson’s disease (PD). Databases MEDLINE, EMBASE, PEDro, Scopus, and SportDiscus were searched from the earliest available date to December 2011. Studies had to meet the following selection criteria: (1) the target population was patients with PD; (2) the effects of a WBE intervention (as the primary intervention) were tested; (3) the abstract of the research was available in English. Selected studies were subject to unmasked quality assessment by applying a methodological scoring with a possible maximum score of 15 points. Twelve studies met the inclusion criteria, although only three of them achieved a methodological quality score above 10 points. Collectively, the data showed that WBE has some beneficial short-term effects on the impact that PD has on the patients (mainly on their motor symptoms and on their functional mobility), as well as on their quality of life. This review provides evidence that WBE is safe for patients with PD, but there is a lack of hard evidence regarding its beneficial effects. Further randomized and controlled trials with larger sample sizes are required.     

Pyramid schemes and programmatic management: Critical reflections on the ‘guru industry’

This paper offers a critical review of the ‘guru industry’. Analysing its orientations and its related attempts to engage practitioners in a programme of re‐education designed to off‐set the excesses of guru theorising, this papers argues that the educational agenda so produced is simultaneously elitist, depoliticised and out of step with recent analytical developments. Reviewing accounts of consulting which highlight the interpretative flexibility of guru theorising, we will suggest that calls for practitioner re‐education remain deadlocked in a paradigm, which fails to acknowledge the local editing and translation of consulting products. In an attempt to break out of this limiting framework the paper suggests the need for an account of consultancy at work designed to acknowledge: a) workplace politics, b) the complexities of consumption, and c) the externalities associated with the production of a management education designed to reflect the orientations of an élite organizational cadre.     

Older people’s perspectives on dignity: the benefits and challenges of a qualitative longitudinal approach to researching experiences of later life

Abstract

This article discusses findings from a qualitative longitudinal study of dignity in later life, which focused on the perspectives of older people at a time when their need for help and support was increasing as a result of long-term illness. It reflects critically on the methodology for its ability to generate knowledge about this eventful and unstable period of the life-course. It is argued that a longitudinal qualitative approach provides the optimum conditions for researching older people’s perspectives on their health and illness as well as on their experiences of being helped and supported. It sheds light on the changes they faced in their relationships, their home environments and their daily lives as well as how they dealt with these changes while maintaining their dignity.     

Social work students’ reflections on a solution-focused approach to child protection assessment: a qualitative study

This exploratory study examines how Estonian graduate social work students’ reflections of the solution-focused approach in the context of child protection assessment can change as a result of coursework in this model. Students’ responses indicate some changes in the nature of responses after the solution-focused training course, including the adoption of techniques that help to focus on solutions (e.g. miracle question and scaling questions). Following the training, students underscored the importance of changing problem-focused ‘traditional thinking’. The findings highlight a challenge in social work education, suggesting a need to target goal-directed talk throughout the social work curriculum to support competence in conducting comprehensive, strength-based assessments.     

Life at Trastad Gård: on the experiences of the former inmates of a large institution for people with learning difficulties in northern Norway

In Norway, institutionalised care for people with learning disabilities ended in the 1990s. The aim of this article is to discuss the living conditions at Trastad Gård as described by some of its former inmates. The biographical approach was adopted to capture and discuss the experiences of six former inmates at the institution. Four main but interconnected issues evolving from the stories of our informants were discussed. These include their experiences on coming to the institution, feelings of homesickness, loneliness and lessons of everyday life. The findings were primarily discussed with reference to theoretical perspectives of power and power relations.     

Revisiting the question of the transnational state: A comment on William Robinson’s “Social theory and globalization”

Theory and Society -     

Gauging the interests of birth mother and child: a qualitative study of Swedish social workers’ experiences of transnational gestational surrogacy

There are few studies on how social workers deal with cases regarding transnational surrogacy. Our study intends to contribute to filling this gap. In Sweden, surrogacy as an assisted reproductive technology method is not permitted. As a result, many prospective parents have turned abroad, mainly to India, for surrogacy. There are no laws regulating surrogacy in Sweden, and difficulties have arisen in establishing legal parenthood when the parents return with the child. This qualitative interview study with social workers found that legal uncertainty and ethical issues surrounded their handling. With no guidelines, the constructions of parenthood will continue to depend on individual social workers’ conflicting views on how to best meet the surrogate mother’s interest and the best interest of the child. Regulation is thus needed to better protect those involved and minimize the contingent aspects of legal handling by individual officials.     

Intercultural education through a bilingual children’s rights project: reflections on its possibilities and challenges with young learners

Despite the growing importance of intercultural education, literature is still lacking in related research with young learners. This study reports on a yearlong university–school collaborative research project that aimed to promote students’ intercultural competence and critical bi-literacy skills through their exploration of the issue of children’s rights. Grounded in the critical perspectives of intercultural pedagogy and dynamic bi-/multilingualism, the two collaborating Grade 3 teachers engaged their students in critical inquiry of children’s rights in both English and French. Through a range of hybrid translanguage literacy practices and experiential learning activities, students came to understand what children’s rights are and appreciate the importance of solidarity, equity, and compassion. Apart from highlighting some activities developed during this project and the impact of the activities on student participants, the study also attempts to critically reflect on some of the challenges in conducting intercultural education with young learners, in particular their emergent but conflicted understanding of other cultures. Further, the study speaks to the issue of how such an important education can be practiced in a non-reductionist and non-simplistic manner yet still be accessible to young learners.     

‘Some people are not allowed to love’: intimate citizenship in the lives of people labelled with intellectual disabilities

Disability helps us think differently about the ‘ideal’ neoliberal-able citizen who may not equate to ideas of productive, sexual, ‘normal’. Intimate citizenship – our rights and access to intimacy – is often ignored by those working with people labelled with intellectual disabilities and in research. In this article, we discuss the outcome of a dialogue between self-advocates labelled with intellectual disabilities, academics, service providers, Aboriginal leaders, students and artists about intimate citizenship through love, intimate work and consumption.     

Lights of disenchantment: a study of Max Weber’s thesis on the ‘disenchantment of the world’ from the perspective of visual studies

At the end of 1917, during a conference at Munich University, the German sociologist Max Weber (1864–1920) made a bold announcement: ‘The fate of our times is characterized by rationalization and intellectualization and, above all, by the “disenchantment of the world”.’ In this article, I provide an interpretation of the notion of ‘disenchantment of the world.’ Subsequently, I present visual material that might further illuminate Weber’s idea. In the third part, I strictly concentrate my attention on one argument suggested by Weber: in ‘disenchanted’ societies ‘mysterious incalculable forces do not come into play anymore.’ Through two exemplary sculptures by the Danish artist Bertel Thorvaldsen (1770–1884), I continue my visual excursus on the ‘disenchantment’ thesis by connecting Weber’s account on the intellectualisation of religious world-views with the autonomisation of the aesthetic sphere. The overall ambition of this article lies in providing an introductory account to an important intellectual problem and historical process through visual and textual analysis.     

The influence of accountability for the crisis and type of crisis communication on people’s behavior,feelings and relationship with the government

In this paper we investigated to what extent the willingness of people to take advice from the local government, people’s feelings of collective efficacy and empowerment, and their relationship with the local government, is dependent on whether the local government was accountable for the crisis or not. In addition, we were interested in the influence of empathic versus neutral crisis information on people’s behavior, feelings and their relationship with the local government. The results indicate that people’s intention to follow the advice of the local government is generally high, even when the local government is held accountable for the crisis. However, accountability negatively influenced people’s relationship with the local government, as well as collective efficacy. Our research shows that this negative outcome for people’s relationship with the local government cannot be countered by empathic crisis information. However, conveying empathic concern in the crisis information did enhance level of collective efficacy.     

‘A frog in a well’: the exclusion of disabled people from work in Cambodia

Based on ethnographic research conducted in north‐west Cambodia in 2000–2001, this paper examines why disabled people experience systematic marginalisation in the labour market. Although there are no official data on the relationship between disability and employment status in Cambodia, this research suggests that disabled people are more likely than their able‐bodied counterparts to be unemployed, in low status occupations, earn less or be out of the labour market altogether. Consequently, disabled people are more likely to live in poverty, experience social isolation and poor mental health. I argue that disabled people’s social status effectively shapes their work patterns through (mis)conceptions that associate ‘disability’ with ‘inability’ to work and to be employable. This paper illustrates how geographical processes fix disabled people in their socio‐spatial place, which together with ideological and structural inequalities distinguish and entrench their poverty from that of other social groups.     

Poetics of cartography: globalism and the “oil enclave” in Ibiwari Ikiriko’s Oily Tears of the Delta

This paper examines the ways in which ideas and discourses generated by global phenomena (such as the Oil Encounter) travel and get reframed in local topographies. It asks how one might reposition hermeneutics appropriate to a particular context without falling into the trap of an epistemology that is purportedly global but representing other interests? The environment in which crude oil is extracted has been termed heterogeneous and international. Amitav Ghosh describes it as one that is “lacking in a sense of place,” while James Ferguson considers it an “insular and socially thin neoliberal landscape of deregulated enterprises.” This paper goes against the grain by challenging the formations that undergird some of these assumptions. It takes the Niger Delta as a landscape in which quotidian life and the oil infrastructure are intimately intertwined and asks what insights might literary depictions of this context give about the form of globalism that operates within the industrial complex through which oil is extracted. Reading Ibiwari Ikiriko’s poetry collection Oily Tears of the Delta, the paper reflects on how the text stages a dialogue with the global by addressing itself to the oil infrastructure in that environment. It discusses Ikiriko’s poetry as one that encourages the reader to think about locality and geopolitics as possible sites of conflict, as sites of understanding power and the kinds of agency that they enable in the environments where oil is extracted to feed global consumption.