Understanding Ambiguous Loss in the Context of Dementia Care

Abstract

This study examined the experience of ambiguous loss for family members caring for a person with dementia living in a long-term care facility. Data for this study came from in-depth, active interviews conducted with 38 adult daughters and 23 adult sons caring for a parent with dementia living in a long-term care facility. The stories shared by the adult children revealed that ambiguous loss in the dementia context involves a long, on-going process of several phases including anticipatory loss, progressive loss and acknowledged loss. The nature of the ambiguity shifts and the experience changes for families as they journey through the ambiguous loss process. Acceptance and avoidance were the two most common coping strategies used in dealing with acknowledged loss.     

Addressing the Vision Challenges of Residents at a Retirement Community: Collaborative Research with a Community Partner

ABSTRACT

Staff members at a community retirement village were concerned about the demise of a support group for residents with vision loss, and requested help developing effective services for residents with vision challenges. This study explored past barriers to support group participation, as they were perceived by residents, family members, and employees. The community partner worked collaboratively with the researcher in all phases of the study. Questionnaires were designed to elicit demographic data, diagnosed vision problems, level of adjustment to vision loss, well-being, and motivation for attending institutional programs about vision challenges. Residents responded to standardized vision and depression scales; qualitative questions were posed to all 3 groups concerning motivations for resident participation in program activities. Results indicated that, although many residents had diagnosed vision conditions, they were, in general, coping well with vision loss and did not report depressive symptoms. Participants considered ongoing personal contact and follow-up, a group design that offered the choice of educational presentations and/or process discussions, and individualized assistance with practical challenges to be critical to an effective program. This case study, utilizing a collaborative research process, generated requests for expanded social work services and an increased valuing of the social work role.     

Pentimento

Abstract

When asked to consider writing a personal essay about a transformational moment in the development of myself as a clinician, this unfolding of events immediately came to mind. This moment captures a story about my development as a clinical social worker through my personal psychoanalysis. Sometimes, when one can contain his/her anxiety about receiving, a spontaneous and wonderful gift may present itself for the opening. This is my offering-a gift to students of clinical process.     

Differential treatment in unemployment relief cases 1

Abstract

Trauma therapy influences the personal and professional lives of therapists as they cope with the secondary traumatic stress associated with treating trauma survivors. Therapists go through an internal process as they try both to make sense out of the stories they hear from clients, and to integrate those stories into their own existing cognitive schemas. During this process of integration, trauma therapists often experience secondary traumatic stress reactions that negatively impact the treatment process, as well as their own experiences of self. Secondary traumatic stress, vicarious traumitization, and worker burnout are distinctly different processes that practitioners need to differentiate, even though they are often similar in their initial presentation.     

Personal prelude to pandemic 2020

ABSTRACT

This essay is a personal story, that also serves as my prelude to pandemic 2020, as well as my decision to issue a June 2020 Call for Papers on Group Work Stories About Pandemic 2020, that this Issue of the Journal launches.     

The Work Experiences of Social Workers: Factors Impacting Compassion Satisfaction and Workplace Stress

Abstract

In 2015, over 6,000 licensed social workers in 13?US states responded to an online survey regarding perceptions and feelings about their work, as well as numerous personal and practice issues. Specifically, this study examined participants’ levels of compassion satisfaction and workplace stress, and then determined through multivariate analyses what demographic factors, behavioral and physical health problems, practice issues, fields of practice, and workplace environment issues impacted these two variables.

The findings indicate that participants demonstrated high levels of compassion satisfaction, with a wide range of workplace stress levels. Workplace environment issues had the greatest impact on both variables, with social workers’ mental health problems, physical health status, and certain demographic factors such as race also influencing them. Over 82% of respondents expressed agreement that they were glad that they chose social work as a profession. The results appear to demonstrate that despite being a potentially stressful occupation, licensed social workers tend to experience significant emotional satisfaction from their work. On the other hand, the results also highlight the need for further research to determine how to enhance support for social workers in the workplace in order to not only reduce workplace stress, but also to increase compassion satisfaction.     

What factors may assist social workers to promote life satisfaction and personal growth among first‐time grandfathers?

Drawing on positive psychology and the perception of families as systems, the current study examined the contribution of variables regarding first‐time grandfathers and their sons, who have become first‐time fathers, to grandfathers' life satisfaction and personal growth. In addition, the association between the frequency of meetings between grandfather and grandchild to grandfathers' life satisfaction and personal growth was examined. The sample consisted of 106 pairs of first‐time Jewish Israeli grandfathers and their sons (n = 212). The grandfathers completed questionnaires relating to personal variables such as narcissism, family relations and frequency of meetings with the grandchild, and reported on their sense of life satisfaction and personal growth. The fathers completed questionnaires relating to personal variables, narcissism and family relations. Higher levels of grandfathers' life satisfaction were associated with their own perception of good family relations; higher levels of grandfathers' personal growth were related to their narcissism. The grandfather's perception of the frequency of meetings with the grandchild was found to moderate between the father's narcissism and the grandfather's life satisfaction and personal growth. The findings point to the crucial role social workers may play in enhancing life satisfaction and enabling personal growth through dedicated intergenerational interventions.     

Parents’ verbal communications with schizophrenic offspring∗

Abstract

Current research findings as well as both public protests and lawsuits by parent groups demonstrate the increasing dissatisfaction with prevailing approaches to the diagnosis and treatment of the syndrome termed “childhood hyperactivity.” First, this study summarizes a comprehensive review of research about the syndrome, and elaborates the research and practice issues that give rise to the contemporary controversy. Then, a promising, comprehensive new theory of child development, psychopathology, and treatment — intrapsychic humanism — is applied to the psychosocial treatment of children labelled hyperactive and their families in mental health, educational, and child welfare settings.     

Toward Empowerment: ReVisioning Family Support Groups

ABSTRACT

Family support groups (FSG) have been recognized as an important and viable means for responding to the needs of family caregivers. How these groups work, however, is not well understood. The purpose of this qualitative exploratory study was to explore the impact of attending a family support group on the caregiving experience from the perspective of the family member. Personal, semi-structured interviews took place with eleven family members who had participated in at least one FSG. Data was analyzed for themes, using a constant comparative categorizing strategy. This analysis suggests that attending a FSG impacts the caregiving experience in four important ways: helping the family member to construct a self-identity as a ‘caregiver’; promoting a sense of personal competence; fostering the use of formal support groups; and creating a community context within which to experience the caregiving role. Cumulatively, these have the potential to contribute to a sense of empowerment for the family member by helping him or her to reposition the caregiving experience as more than a personal issue and promoting the emergence of a more collective voice.     

Senior Citizens Centers

Abstract

This study extends exploration of what senior centers offer, who participates, and what they gain. Center staff surveyed 856 participants in 27 senior centers regarding personal characteristics, program participation, and acquisition of vital information. Although senior centers are considered conduits for group activities and enrichment for older citizens, this investigation indicates that personal characteristics of participants exert a notable influence on the experience and perceived benefits of activities engaged in at senior centers. These findings should interest providers of aging services and advocates who view the senior center as an important vehicle for enhancing independent living for older adults.     

John Coltrane and Me

Abstract

In this essay, I consider the role that cultural objects play in one's personal development by taking a closer look at the relationship between people and the creative products of their fellows. As a launching point to this study, I examine my own relationship with the music of two jazz icons, Ornette Coleman and John Coltrane, viewing the differences in my reactions to, and uses of, their musical offerings over times as a reflection of my own personal growth. My contention is that under the right conditions people can use cultural objects to reconnect with disavowed aspects of their experiences.     

I'm Gone When You're Gone: How a Group Can Survive When Its Leader Takes a Leave of Absence

SUMMARY

As the roles and demands on social workers increase in their agencies and their personal lives, there is a greater chance that they will need to take a leave of absence. This is also true for social workers who lead groups. This article presents a process to allow the primary worker to take a leave of absence while the group continues with an interim worker. The author's personal experience of a leave of absence from a HIV+ adolescent support group will be used to illustrate this transfer process. In providing ample time and a thoughtful process of transfer, this leave of absence was successful in maintaining group attendance and participation.     

Research Subject Advocate: A New Protector of Research Participants

In 2001, the National Center for Research Resources (NCRR) directed the 78 General Clinical Research Centers (GCRC) to develop a Research Subject Advocate (RSA) position. The RSA would report directly to the Principal Investigator (PI) of each GCRC and assure compliance of studies conducted on the GCRC with federal regulations and policies. Seven RSAs agreed to be interviewed about their new role. Website documents, electronic correspondence, and presentations at the first annual national meeting of RSAs were scrutinized using discursive analysis to shed light on this new organizational form and its potential for increased protection of human research participants. The RSA role actualizes the ethical principles of respect for persons, justice, and beneficence that are the foundation of the protection of research participants. The results also reveal the regulatory, institutional, collegial, and personal resources and barriers that assist the RSA in the successful implementation of the RSA role. In addition, issues important to the RSAs are described.     

The therapeutic misconception,beneficence, and respect

In order to provide benefits to society, human medical trials must place subjects at risk of harm. This activity is thought to be justified in part by the consent of the subjects involved. But, studies have shown that most such consents are based on a therapeutic misconception (TM); the false belief of subjects that their researchers will act as their personal physicians (seeking their benefit and protecting them from harm), rather than placing them at risk of harm for the good of others. Toleration by researchers of the TM in their subjects is a form of “informational manipulation”; that renders consent procedures disrespectful to subject autonomy. Consent obtained from subjects who labor under a TM is neither voluntary nor informed; as long as they have not been disabused of the TM, the action they take in enrolling in a trial is not the one they intend nor is it autonomously chosen. Changes in consent procedures should be adopted to ensure that all subjects are aware inter alia that (a) the health interests of future patients (as well as the researchers’ and their sponsors’ financial interests) may be more important to researchers than the interest of a subject in his or her health, and (b) normal subjects neither understand nor believe this when told. Close attention to the response of prospective subjects to this information should allow for the exclusion of all but the truly altruistic. However, the result of conscientious implementation of such policies would likely be that human medical research could no longer be conducted on more than a minimal level.     

Perfumer,chemist, machine: gas chromatography and the industrial search to “improve” flavor

Abstract

Drawing from published accounts of the use of gas chromatography (GC) in the food industry, found in industry-specific journals, this article examines the role of GC in changing how perfumers and flavorists think about and shape the sense-able world. It shows that the development of a novel twist on GC – the use of an expert’s nose as a detecting device directly connected to the exit gasses of the gas chromatograph, rather than an instrumental detector – opened the door to a new way of categorizing aromatic molecules that changed the purpose of expert practices of smelling within the industrial context. The marriage of human and machine not only offered those tasked with developing the perfect flavor the tools for gaining information about what aspects of a flavor they wished to keep, it also helped identify what aspects they ought to discard or obfuscate in their search to improve the natural world of tastes and smells.     

A Study of Youth Services Networks from a Political-Economy Perspective

ABSTRACT

Volunteers play a vital role in modern societies by boosting the labor force within both the public and private sectors. While the factors that may lead people to volunteer have been investigated in a number of studies, the means by which volunteering contributes to the well-being of such volunteers is poorly understood. It has been suggested through studies that focus on the absence of depression in volunteers that self-esteem and sense of control may be major determinants of the increased well-being reported by volunteers. This is consistent with the homeostatic model of subjective well-being, which proposes that self-esteem, optimism, and perceived control act as buffers that mediate the relationship between environmental experience and subjective well-being (SWB). Using personal well-being as a more positive measure of well-being than absence of depression, this study further explored the possible mediating role of self-esteem, optimism, and perceived control in the relationship between volunteer status and well-being. Participants (N = 1,219) completed a 97-item survey as part of the Australian Unity Wellbeing project. Variables measured included personal well-being, self-esteem, optimism, and a number of personality and psychological adjustment factors. Analyses revealed that perceived control and optimism, but not self-esteem, mediated the relationship between volunteer status and personal well-being.     

Mothers’ Experience of Post-Traumatic Growth in Pediatric Kidney Transplantation

ABSTRACT

Parenting a child with chronic kidney disease has a profound impact on the parental caregivers across social, emotional, and physical functioning. As the survival rates for children with chronic kidney disease increase, the demands on parents caring for these children intensify. The aim of this study was to understand the lived experience of being a mother of a child who has undergone kidney transplantation. Seven mothers caring for children with chronic kidney disease in Ontario, Canada participated in in-depth interviews that were analyzed according to the principles of hermeneutic phenomenology. The present study presents the findings concerning post-traumatic growth: personal strength, new possibilities, enhanced relationships, appreciation of life and spiritual change. Recognizing positive aspects of stressful situations and the potential for growth can impact the practice of social workers and other health-care professionals. Ultimately the assistance that is provided to parent caregivers can be improved with a better understanding of the whole experience.     

Family and Friends of People with HIV/AIDS Support Group

ABSTRACT

Those who are supporting a loved one with HIV/AIDS are under a great deal of stress and need support too. This article describes a support group for family and friends living with HIV/AIDS in which members share their personal experiences, educate one another, and in the process, realize they are not alone as they learn to cope with the diagnosis of AIDS or HIV+ in someone they love. The struggles, conflicts, and emotions of the group members and of the group facilitators are discussed.