Dreams as Empirical Data: Siblings' Dreams and Fantasies About Their Disabled Sisters and Brothers

Until recently, most experts in the area of dreams and dream analysis held the view that dreams must be analyzed and worked with by professionals in the area of psychoanalysis or psychology, or by sleep experts. For sociologists, subjective, nonquantifiable topics such as dreams and daydreams were not considered valid areas of inquiry. But these areas can provide a way-of-knowing that has not been explored; these nighttime visions can contribute a new source of data about issues that deeply concern people. This article uses dreams and conscious daydreams about disabled brothers and sisters as an example of the type of information that could be gleaned if we used dreams as empirical data. Siblings of disabled individuals, originally recruited for another research project, were queried about their dreams and fantasies of the disabled sister or brother. In the respondents' dreams (both awake and sleeping) a number of themes emerged: issues that came up only when they discussed their dreams. These themes seem connected with the waking reality of having a disabled siblings; they include: (1) previews of anticipated experiences, (2) a desire to be a savior and, consequently, to be respected for rescuing the handicapperl person, (3) a wish to have the handicapper sibling escape from the dilemma of disability, (4) the notion that someone or something (a fairy godmother) will change things, (5) sorrow about the disability or death, and (6) guilt that they were “normal” and the sibling was disabled.     

The challenges of inclusive education in Lebanon

This article reports on a study conducted in Lebanon by four non-governmental organizations, primarily on the topic of inclusion of people with disabilities in education, with a secondary focus on inclusion in employment. This article reports on some of the findings of the assessment process that was four months in duration and aimed, through interviews and focus groups, to identify available information, current policies and legislation, main stakeholders and existing programmes. Findings of the assessment generated themes that are unique to each of the two groups: parents and children, and educators. However, there are some common themes, such as a perceived need for raising awareness on disability issues and a perceived lack of adequate teacher training. The article concludes by arguing for change efforts on various levels to support inclusion: awareness-raising; policy change; capacity-building; and community-building.     

From comedy targets to comedy-makers: disability and comedy in live performance

The stand-up comedy landscape has been transformed in recent years with an increased number of disabled comedians performing. Using semi-structured interviews with disabled comedians, this article provides a thematic analysis of the material and ideological motives, intentions and lived experiences of disabled comedians. Two themes are discussed: comedy management and control; and affirming disability through comedy. These themes are characterised by complexity and contradictions. The article concludes that, although not a straightforward process, stand-up comedy enacted by disabled comedians is potentially a powerful tool through which hegemonic norms around disability can be challenged and renegotiated.     

Disability and employment: towards an understanding of discourse and policy

This article explores the nature of disability employment policy drawing on evidence from fifteen countries. In line with earlier sociological approaches to disability it describes two ways of framing policy in the area. These two paradigms are developed and used to critically evaluate employment policy under the headings: legislative measures, open employment-financial employment support services and sheltered/supported provision. The dilemmas that may arise during implementation of policy are discussed and the consequences for the construction of an emancipatory employment policy. Finally, the article suggests some themes or dimensions that a coherent disability policy should have.     

Parents’ Decision Making and Their Information Needs Concerning Treatments for Child Anxiety: Implications for Family-Centered Practice

Collaborative decision making is a central feature of family-centered practice and is important to families in treatment planning. This study explored parents’ preferences for decision making involvement and their information needs regarding treatment for child anxiety. Qualitative interviews conducted with 19 parents revealed four main themes: (1) parents regard themselves as protectors, (2) parents desire involvement in decision making, (3) information is key in decision making, and (4) not all treatments are perceived as equal. Parents reported a strong desire to maintain control over the final treatment decision. They preferred a wide range of information about treatment and the health-care provider. Implications for implementing family-centered practice are discussed.     

Social constructions of fatness: legal proceedings in Canada as a case in point

This article uses reports of cases of Canadian legal processes to explore social constructions of fatness as disability, as well as illness, cultural aesthetic, and blame. The review of cases in Canadian human rights, civil, administrative, and employment law suggests that fatness has been constructed as a disability in Canadian law. This has led to favourable outcomes for fat persons seeking redress for discrimination. Illness, cultural aesthetic, and blame also surface as recurrent themes. To consider all four themes, a concept of mythopoeia – myth-making process – is introduced. This adds to models of social construction by focusing on where ‘un-reality’ is constructed in a non-hierarchical view of marginal identities. Fatness constructions/mythopoeia of disability, illness, cultural aesthetic, and blame overlap as well as diverge. This suggests that fatness may be an incomplete fit with current classifications in human rights law.     

Private Tragedy in Social Context? Reflections on Disability,Illness and Suffering

This article reviews aspects of the debate about the contested divide between disability and illness. It considers this divide in the context of three main themes: political efficacy; contradictions between the project of accommodation and that of cure; and Western cultural concerns with bodily control. It suggests that attempts to specify a distinction between disability and illness simply shift the boundaries of social and conceptual exclusion. Chronically sick people remain stigmatised, with their strengths unrecognised and measures to improve their lives unformulated. While acknowledging the serious difficulties involved, the article argues for a more inclusive and diverse movement, which can encompass those whose suffering is resistant to social accommodation.     

A preliminary study of some broad disability related themes within the Edinburgh Festival Fringe

The Edinburgh Festival Fringe is the inspiration for this article which offers an initial consideration of some broad disability related themes (by disabled performers and by others). Comedy is covered in most detail with some concentration on a particular performer. Reference is made to other performance categories, such as drama, and to some influences from beyond the fringe. Disablism, othering and the freak show genre are amongst the themes which emerge from this exploration which includes consideration of whether disabled comedians can be disablist and whether disability equality legislation is impacting on what happens in performance. From the perspective of a disability aware audience member, unreconstructed disablism in comedy appeared to be fairly widespread within the fringe, mainly manifesting itself via the idle use of othering language such as the word ‘spaz’. This paper represents a snap shot from a huge and varied festival and is presented as a starting point which has inspired future deeper research.     

The embodied experience of episodic disability among women with multiple sclerosis

This paper explores the embodied experience of three women living with an episodic or fluctuating disability within the context of relapsing–remitting multiple sclerosis. I argue that this shifting embodiment is subjectively, performatively, and interpretively experienced in discrediting ways across social, organizational, and local contexts in women's lives. Drawing on findings from my doctoral thesis, three interpretive themes inform the analysis: not looking disabled, more than meets the eye, and institutional bafflement. Respectively, these themes pertain to a woman's physical appearance, cultural assumptions about disabled embodiment, and the contestation of social, organizational, and local institutional practices shaping women's lives. These themes hold implications for an ‘embodied politics' in rethinking the manner in which episodic disability is experientially, conceptually, and socio-politically recognized as a legitimate tier of the experience of disability.     

Pretending to be a normal human being: Peep Show,sitcom, and the momentary invocation of disability

This interdisciplinary article presents research about the place of disability in the British sitcom Peep Show, whose 54 episodes span more than a decade in their transmission (2003–2015). The methodology of critical discourse analysis is employed to probe the relationship between casual word choice and broader themes such as normalcy, humour, and social attitudes. This analysis is informed by classic and new work in cultural disability studies, as well as by work in literary studies and television studies. The conclusion is that, despite its apparent irrelevance to disability studies, Peep Show reveals much about conversational invocations of disability.     

Child Welfare Workers’ Perspectives on Contributing Factors to Retention and Turnover: Recommendations for Improvement

Rates of turnover are high in child welfare settings, impacting the organization, remaining workers and the children and families under their care. A number of demographic, psychological, social and organizational features have been associated with increased staff turnover, although we have limited understanding about how and why these factors are important; differences in influence at varying levels of seniority and career duration; and workers’ perspectives on how to address workplace issues. This qualitative study assessed how factors impact employee retention and turnover in focus groups with 25 employees at different stages of employment: resigned case managers, case managers employed for less than one year and more than three years, and supervisors. Results suggested few differences in themes identified by groups. Two broad themes emerged for retention: supportive environment (including themes relating to children/parents, co-workers, and the organization) and opportunities within the agency (including new positions, experience and knowledge and job security). Two broad themes emerged for turnover: organizational issues (including themes about low compensation, challenging work demands, and system issues) and stress. Workers’ perspectives and recommendations on how to address workplace problems were reported. Results are consistent with the existing literature, although a number of unique issues were identified, including workers’ desire for clear communication flow through hierarchies, increased collaboration, and revisions to the way data is used/integrated. Workers expressed a strong desire to be heard by management, and this study reflects an important effort to provide feedback. These findings are relevant for informing organizational policy in child welfare agencies.     

How do Spanish disability support offices contribute to inclusive education in the university?

This article analyzes the functioning of disability support offices and their contribution to inclusive education in seven Spanish universities from the perspective of staff. Using a qualitative methodology, interviews with office staff were conducted, and data were analyzed through an inductive coding system. The results are organized around five themes: characteristics of disability support offices, staff training, functions performed by different services, barriers and opportunities identified by office staff, and proposals to improve attention given to disabled students. Information gathered leads to the conclusion that the work carried out in disability support offices must receive support from universities, as these offices are a key element for the access and retention of students with disabilities in the university and for the successful completion of their studies.     

The Embarrassment of Co-Presence: AU Pairs and their Rooms

ABSTRACT

This article explores the ways Slovak au pairs living in London relate to their rooms through decoration and alternative aesthetic strategies. In this article the theme is neither the appropriation nor the refusal of personal spaces, but rather an ambivalence that becomes evident through the detailed study of au pairs' material culture. The source of this ambivalence lies both in the transience of their residence and in the contradictions inherent in the au pair scheme, causing a relationship that I explore as the embarrassment of co-presence. The evidence suggests that au pairs find themselves torn between a desire to settle and appropriate a space and an equal desire not to be present or not to make an impact upon this space. This emerges not only from strategies of (non-)decoration, but also from au pairs' exploitation of the parameters of tidiness and mess, and alternative foci of self-expression such as the individual body.     

‘But I can do the job’: examining disability employment practice through human rights complaint cases

Natural data on the Australian Human Rights Commission’s website outlining the complaint cases generated from Disability Discrimination Act, 1992 (DDA) were used to examine the social construction of disability employment discrimination. Using a social model and human rights citizenship lens, some 987 complaint cases were analysed to assess the prevalence of disability discrimination in employment, and its relationship to the types of disability, gender, entity undertaking the actions and organisational context. Of all complaint cases across the Australian Human Rights Commission’s operations, by far the largest proportion involves disability discrimination. Within the disability discrimination complaint cases, employment makes up the greatest proportion of these cases. In examining the patterns of discrimination seven major themes emerged involving: distinctive patterns across disability type; access to premises; human resource mismanagement; selection of new employees; integration of assistive technology; perception of cost of disability inclusions; and inflexible organisational workplace practices. The discussion examines the underlying reasons for the emergent themes where employers misunderstood key legal concepts that underpin the DDA including: unjustifiable hardship; inherent requirements; reasonable adjustment; direct; and indirect discrimination. The paper concludes by discussing the implications of the findings as a way of understanding the social construction of disability discrimination in employment to signal ways to better develop inclusive organisational practice.     

Is Disney Disabling?

Abstract

This article discusses ongoing lawsuits against Disney Parks and Resorts U.S., brought by people with autism and their families. These lawsuits illuminate an ethical dilemma about the appropriate scope of disability equality. This article suggests that Disney and the courts have adopted a standard of simple equality where all theme park patrons are treated the same way, regardless of ability. I argue, however, that the standard of equality that should be used moving forward is equal access to advantage – specifically, equal access to opportunities that enable people with disabilities to have an enjoyable theme park experience.     

Queer Selfhoods in the Shadow of Neoliberal Urbanism

This article explores the political and performative shift in representations of same-sex desire within the context of neoliberal urbanism in Bengaluru, India. The affective shift from labile sexual practices to defiant assertions of sexual identity over the past two decades warrants a conjunctural analysis that tracks the intersections between neoliberal cultures of consumption and liberal rhetorics of equal rights and freedom of choice. Focusing on the queer subject in Mahesh Dattani's dramatic oevre, this article considers progressivist accounts of same-sex desire in neoliberal Bengaluru over the past two decades. By examining how non-normative sexual practices are disciplined into the epistemological categories of LGBT identity politics, the essay charts the itineraries of “queer” as it travels to India.     

Capabilities and disability: the capabilities framework and the social model of disability

This article seeks to illuminate the complementarity between the capabilities framework, developed by Amartya Sen and others, and the social model of disability. Common themes include the relationship between social barriers and individual limitations, the importance of autonomy and the value of freedom, and dissatisfaction with income as a measure of well-being. Bringing the two approaches together has implications for analysis (for example in identifying poverty or disadvantage), and for policy, which are briefly illustrated. The article concludes that the capabilities framework provides a more general theoretical framework in which to locate the social model of disability, without compromising any of its central tenets; and the social model provides a thorough-going application of the capabilities framework. Each can benefit from exposure to the other.     

Friend or foe: the media’s power to inform and shape societal attitudes towards people with acquired brain injury

Media representations play an integral role in modern society, informing the public about a range of issues affecting their communities. Using qualitative content analysis, this article reports on the study of a sample of Australian media coverage, spanning 30 years, covering issues associated with acquired brain injury (ABI) and related cognitive disabilities. The analysis explores how the media both portray and actively shape public perceptions about people living with ABI, the lived experience of the condition, and its broader social implications. The authors identify a range of themes arising in the sample that communicate specific ideas about ABI, disability, and deviance. Importantly, they identify how these themes are able to either construct or reinforce dominant understandings of disability and deviance through both their content and structure.