The construction of intellectual disability by parents and teachers

This study examines how disability is constructed by significant adults in the lives of young people with intellectual disability. Specifically, we are examined how parents of those affected by intellectual disability and teachers in special schools construct intellectual disability in talk. Using focus group interviews, we examined whether stigma might be recreated or sustained within the family and school settings of those affected by intellectual disability. Parents and school staff constructed disability as negative, articulating difference from ‘the norm’, which was claimed to drive social isolation for affected young people. There was also evidence that parents and teachers attributed less agency to young people affected by intellectual disability. Discussion orients to how parents and teachers, see themselves as advocates for those with intellectual disability highlight, whilst at the same time recreating pervasive and subtle distinctions between children with and without intellectual disability.     

Risk and parenting assessments in child welfare court proceedings – a psychodynamic approach

This article discusses a court directed parenting and risk assessment of a mother who has a chronic history of trauma and abuse. It addresses the complex unconscious dynamics that need to be managed by social workers when working with parents in court proceedings regarding their children. Often such parents present with their own complex histories of trauma and abuse and despite their conscious intentions to do so this has contributed to their inability to provide adequate care for their own children. An understanding of the powerful unconscious processes in operation more effectively gauges the risk factors that such parents present. However, such cases and enactments on behalf of parents can be bewildering to social work practioners. This may potentially lead to the social worker feeling persecuted during the process, resulting in impulsive, unprocessed and poor decision-making despite their best conscious intentions. To mitigate these challenges there is discussion of the support needs required for social workers, who engage with such complex unconscious dynamics.     

Doing Anti-Oppressive Practice: Building Transformative Politicized Social Work

Abstract

Evidence shows that children and young people with disability experience violence, abuse, and neglect at rates considerably higher than their peers. Despite persistent efforts to address it, these rates do not appear to be declining over time. As Australia moves towards implementing a national policy of personalised disability support, new opportunities and risks arise concerning personal safety in young people's lives. This paper reviews the existing evidence on abuse and neglect of children and young people with disability to help identify the nature of these risks and potential ways of thinking about and responding to these. Applying a social ecological lens, the discussion points to the importance of working productively with the multidimensional realities of these children's lives at a time when the policy and services designed to support them are also in a state of flux. The paper invites and challenges researchers, policymakers, and practitioners to engage critically with the knowledge already available and to question more deeply why abuse and neglect continue to diminish the lives of children and young people with disability.     

Social support characteristics among nonclinical African-American and Filipino-American parents with school-age children

This study is the first phase of a project to develop a culturally-appropriate, family-mediated social support intervention program. This phase consisted of in-home interviews with 26 African-American (AF) and 26 Filipino-American (FA) parents who were not receiving counseling or social services for parent-child conflict, and self-reported adequate personal and family functioning. In general, parents were college educated and employed full-time and had house-hold incomes of over $25,000. On average, AF parents were 35 years old, with 4 people in the household, including 2 children (mean AGE = 10 years). FA parents were older, averaging 45 years, and had 6 people in the household, including 3 children (mean AGE = 12 years). Mean scores on standardized measures reflected high self-esteem and positive attitudes toward their children and families. Social network size averaged 32 and 38 members for AF and FA mothers respectively, and 24 and 29 members for AF and FA fathers. Most parents reported that fewer than 50% of their network members knew each other. Data also suggested that parents reported a generally positive orientation to utilizing support resources, and favorable perceptions of and satisfaction with support form family and friends. Analyzes revealed that only functional support variables were significantly associated with parent well-being. Study limitations, service implications, and further research directions are discussed.     

Time for work,commuting, and parenting? Commuting parents' involvement with their children

For most Australian parents, there is continuing tension between work and family commitments. This tension is exacerbated by the need not only to have sufficient time available to children in the family but also for that time to be characterized by nurturance and guidance. This article reports on a qualitative study that explored how 21 part-time or full-time working parents, who also commute 10–15 hours a week to work, manage both the quantity and quality of their time with their young children (0–5 years). The study revealed the difficult conditions of commuting and the importance of social support to parents' well-being, as well as a significant pattern of parent–child interaction which we have described as ‘attentive parenting.’ Parents felt these activities contributed to the parent–child bond and their children's well-being in spite of an acknowledged lack of interactive time.     

Spirituality in Latino families of children with autism spectrum disorder

Research on Latino parents of children with intellectual and developmental disabilities (IDD) suggests that these parents often use spirituality to conceptualize and to cope with their child’s diagnosis. However, there are no studies that examine religion among Latino parents of children with autism spectrum disorders (ASD). The current study explores how Latino parents of children with ASD incorporate spirituality into their conceptualizations of their child’s disability. In the current study, 34 Latina mothers of children with ASD were interviewed about autism-related services, family characteristics, and cultural beliefs including spiritual beliefs. Thematic analysis of the transcribed interview data relating to spiritual beliefs was conducted for the present study. Most mothers endorsed beliefs that their child with a disability was a message from God. Within this theme, mothers reported beliefs that their child was a blessing from God, a test from God, a sign from God or that the parent was special. Other parents believed that having a child with a disability was not an act of God, but related to biomedical factors, and another group of parents was unsure about the spiritual meaning of their child with a disability. Lastly, some mothers reported that their larger cultural group believed that having a child with a disability was a punishment or a negative sign from God but they markedly rejected that conception. These findings suggest that providers working with Latino families of children with ASD should acknowledge the importance of spirituality for these families.     

Social networks, informal child care, and inadequate supervision by mothers

The purpose of this study is to determine whether less informal child care support from family and friends is related to supervisory neglect and, if there is a relationship, to test several explanations for why some mothers receive less child care. Thirty-two low-income mothers who did not adequately supervise their children were matched to 32 mothers who provided adequate supervision. The results showed the mothers who provided inadequate supervision received less child care support from their partners and relatives, but not their friends. These differences appear to be linked to several properties of the mothers' social networks. For example, the majority of the mothers who provided inadequate supervision either did not have a partner or knew them for less than one year. They had fewer family members living nearby and more negative relationships with them than the mothers who provided adequate supervision. To reduce chronic supervisory neglect, mothers may need assistance with both informal and formal child care support.     

Pathways from neighborhood to neglect: The mediating effects of social support and parenting stress

Neighborhood social cohesion relates to common bonds and feelings of trust between neighbors. The everyday demands of caregiving can take a toll on parents and increase their levels of stress and in some cases can lead to maltreatment. The current study seeks to understand how the support networks of parents relate to child maltreatment. Specifically, using structural equation modeling path analysis and a sample of 1045 families from Franklin County, Ohio, we examine the direct relationship between neighborhood social cohesion and child neglect as well as the indirect relationship between the two, mediated by social support and parenting stress. We find no significant direct association between neighborhood social cohesion and neglect. However, we find important indirect effects. Specifically, parents who reported higher levels of neighborhood social cohesion had higher levels of social support, lower levels of parenting stress, and consequently, lower levels of neglect.     

Negotiating with Gatekeepers in Research with Disadvantaged Children: A Case Study of Children of Mothers with Intellectual Disability

Child‐oriented researchers have long recognised children's right to be heard in research about their lives and, as experts about childhood, their perspectives should inform social policy and research. While it is encouraging that more children are consulted about matters of importance to them, some children's voices remain silenced. When researchers have to liaise with adults, such as parents and social workers, to recruit children, these adults make decisions about who participates. An account of recruiting children of mothers with intellectual disability, a potentially disadvantaged group, is presented. The reasons for gatekeeping and the implications of this are explored.     

“Parent Advocacy” as an Ideological Code: LGBTQ Parents Engage with Disability Services

What does the work that LGBTQ parents do to find resources for their disabled children reveal about the social organization of services? This article presents findings from an institutional ethnography study based on interviews with 15 lesbian, gay, bisexual, transgender, and/or queer (LGBTQ) parents and six key community informants in Toronto, Canada. The analysis focused on the work parents did to engage with disability service systems on behalf of their children, and the ways in which families’ social privilege and/or marginalization affected their experiences. Particular attention was paid to the ways in which “parent advocacy” was taken up, responded to, and critiqued in these interviews. “Parent advocacy” was found to operate as what Dorothy Smith has called an “ideological code” (Smith 1999), offloading systemic responsibilities onto parents, shielding inequities, and promoting individualized competition between service users. This study suggests that the systemic organization that makes “parent advocacy” necessary also renders parents’ relative privilege or marginality central to what their children receive.     

New Voices in Iceland. Parents and Adult Children: juggling supports and choices in time and space

This paper deals with parents' perspectives and experiences of bringing up children with a variety of impairments in Iceland, and how they impact the young disabled adults' approach to the status of adulthood. The paper is based on a qualitative study that explored perspectives and experiences of 36 young disabled adults (16-24 years old), their parents, friends and teachers. The purpose of this paper is to share themes related to patterns of parents' reactions and choices when coming to terms with parenting a disabled child, the support they found from their social network and professionals, and their sons or daughters' subsequent views of themselves and their prospects as young adults. The paper includes different perspectives on adulthood and the extent to which the young disabled people expect to reach that status or remain as 'eternal youth' enmeshed in segregated services. Findings show that the type and nature of early support for parents of disabled children is critical for the young adults' approaching adulthood in regular society or expecting to remain in the limbo of 'eternal youth' within segregated settings. Early 'betrayals' may, however, be revisited at each subsequent transition point. Furthermore, parents and their disabled children who struggled for social inclusion could obtain full active membership in society, even against social and physical barriers, and medically defined disability labels.     

The relationship between criminality and home background

There are two extensive literatures which deal with this subject. One is that on criminality, defining the distinctions between morality and cultural definitions. The other is on how parents ought to influence their offspring. And there is also a smaller literative on the causal or statistical relationship between the two. This research tradition attempts to isolate particular hypotheses—like lone parents or genetics. What is missing is both a study of why certain influences are significant, and a connection between the actual cases of criminality and criminals' own experiences of their parents. For this purpose lengthy semistructured interviews with young offenders were carried out, exploring their memories and perceptions of home life and their attitudes to their parents and their subsequent experiences. This paper discusses the factors that the interviewees raised consistently, openly and articulately; violence in the home, neglect, laissez-faire: and turning to peer groups for alternative support. At the heart of the evidence lies a lack of dialogue and the perception of a lack of active interest in them by parents. The consequences are discussed, including the inability to develop normal social relationships, leading to frustration and the repetition of violence in the home in different circumstances.     

Overprotection in the lives of people with intellectual disability in Malta: knowing what is control and what is enabling support

A study of overprotection in the lives of persons with intellectual disability in Malta was carried out on the principles of inclusive research. Focus groups were held with people with intellectual disability, parents of people with intellectual disability, and those working with persons with intellectual disability. Overprotection is a disabling barrier. Its effects were identified in employment, leisure time, intimate relationships, and the use of public transport, money, and mobile phones. People with intellectual disability who experience overprotection live very structured lives. They cannot develop their skills, abilities, and potential. Furthermore, they cannot live their life on their own terms, but on terms determined by others. This creates a sustained dependence on others, especially the family. It is important that a balance is achieved between protection and enabling support. Persons with intellectual disability should be given the support they need to express their wishes and act on them.     

Finnish children in foster care: evaluating the breakdown of long-term placements.

Save the Children studied risk factors associated with placement disruption or breakdown in cases where long-term foster care was intended. Before their placement in 180 foster families, most of the 234 children studied (75%) had experienced neglect. The followup time after initial placement averaged four years and two months. Achieving long-term beneficial foster care placement of children of varied ages and experiences with abuse and neglect, involved considering the needs of the foster parents who may or may not have their own children or other children in their care. Some children were reunified with their parents; careful evaluation is needed before such reunion.     

Disability,caregiving and interpellation: migrant and non‐migrant families of children with disabilities in urban Australia

The process of interpellation (and its opposite, misinterpellation) is taken as a metaphor for understanding the lived experience of personal difference. This research focuses on two interpellative experiences: disability and migrant status. Parents of children with moderate to profound intellectual disabilities were asked about their engagement with the community; their access to support programs; and their sense of well‐being. Responses were divided between the non‐migrants (who were misinterpellated once) and migrants (who were misinterpellated twice). Were the migrant parents doubly isolated due to migrant status and carer status? What differences were there between migrant and non‐migrant responses to their parental experience? Although migrant parents were more negative about their children’s future, they rated themselves as equally happy and socially connected as non‐migrant parents.     

Parental Depression in the Context of Divorce and the Impact on Children

The impact of divorce on children has been well documented over the past 30 years. Divorcing parents who are also experiencing clinical depression often have a compromised ability to parent well and to give the children needed support. Children are then impacted both by the divorce itself and the effects of parental depression. They are at higher risk of numerous problems including poorer physical health, deficits in academic performance not attributable to intellectual limitations, poor social functioning, conduct disorder and other disruptive behavior problems, phobias, and other anxiety disorders. Because children of depressed parents are at higher risk for depression themselves, they should be monitored for depressive symptoms. If there are concerns, the child should be assessed by a mental health professional.     

Disentangling over-representation of parents with disabilities in the child welfare system: Exploring child maltreatment risk factors of parents with disabilities

The study explores the risk factors for child maltreatment and self-reported child maltreatment among a population-based sample of parents with disabilities. Drawing on a nationally-representative, population-based data file that oversampled people of color, income-adjusted odds ratio tests were conducted to establish population differences among parents with and without limitations in activities of daily living (ADLs). Results suggest that parents with disabilities were more likely to report many of the risk factors associated with child maltreatment than parents without disabilities, including witnessing interpersonal violence as a child; experiencing violence, neglect or a foster care stay as a child; mood or substance use disorders; and engaging in or receiving interpersonal violence as an adult. Before controlling for income, parents with disabilities had only a negligibly higher rate of engaging in violence against their children. After controlling for income, parents with disabilities were 2.5 times more likely to engage in violence against their children. Parents with disabilities who did engage in violence against their children had greater amounts of some of the child maltreatment risk factors in comparison to parents with disabilities who did not engage in violence, particularly their own childhood experiences of maltreatment, witnessing of interpersonal violence as a child, childhood stays in foster care, and experiences with interpersonal violence as an adult. Findings add to the understanding of the risk factors for child maltreatment that are related to the collateral effects of having a disability, and through the use of income-adjusted data, help disentangle why parents with disabilities are over-represented in the child welfare system. The findings highlight the need for the child welfare system to increase its disability competence in working with both children and parents with disabilities.     

'Young Carers' and Disabled Parents: Time for a change of direction?

In less than a decade, children who provide care for ill or disabled parents and siblings have become a major target of social welfare services. 'Young carers' suffer, it is suggested, from a degradation in mental and physical health, have damaged educational careers, restricted social networks, and will suffer long-term consequences in adult life as a result of their childhood caring roles. This paper argues that limited empirical evidence exists for these claims and that, where legitimate concerns arise, they are frequently related to poverty, social exclusion, and unsupported or inadequate parenting, and have no direct relationship to illness or impairment. While dedicated services to young carers have made a valuable contribution in highlighting an important social issue, a radical review of their place in the overall structure of support services for families affected by illness or disability is long overdue.