Public health policy and social support for immigrant mothers raising disabled children in Canada

A literature review regarding the social support of immigrant mothers of disabled children in Canada was undertaken with a focus on settings where supports need to be shored up. An integrative review of published papers and policy reports concerning key aspects of social supports for immigrant mothers and disabled children was undertaken. Immigrant mothers experience numerous barriers to social supports for themselves and their disabled children. Maternal immigrant populations experience unique challenges in the setting of childhood disability as well as the challenges of mothers in the dominant culture. There are negative impacts on maternal health as a result of inadequate policy offerings. Public health policy needs to be refashioned in light of weak systems and supports for both immigrant mothers and disabled children and to acknowledge that the current system poses concerning implications for the long-term health of both groups.     

Permanence for disabled children and young people through foster care and adoption: A selective review of international literature

Children who have been removed from their parents need stability and permanence; this is as true for disabled children as it is for others. Yet many children are subject to extended periods of uncertainty and instability. Growing attention has been paid to the need to achieve permanence within a timescale which meets children's needs. As disabled children are over-represented in looked after (in care) populations it is especially important that their needs are considered when formulating policy and practice in this area.This review of literature covers international material related to stability and permanence for disabled children, in particular permanence achieved through fostering and adoption. A scoping method was used to identify and analyse a broad range of material. Ninety texts were included in the review, including material from the US, the UK, Canada, Australia, China and the Netherlands. Empirical research included quantitative, mixed methods and qualitative studies. Other sources included literature reviews and a small number of research-based ‘think pieces’ and briefings.Disabled children often have permanence outcomes and experiences which differ from those of other children; most often they are disadvantaged by systematic features of services and by the latent disablism of decision-makers, professionals, carers and potential carers. The findings also show that disabled children are not a homogenous group and that characteristics such as age, gender, ethnicity and impairment type show complex relationships with permanence through adoption and foster care.Important gaps in current knowledge are identified, including disabled children's views and experiences in relation to achieving permanence. Several areas of policy and practice are highlighted where effort to improve permanence needs to be made. These range from tackling negative professional attitudes about the prospects of placing disabled children to further development of non-traditional approaches to the recruitment of foster carers and adopters.     

Repositioning mothers: mothers,disabled children and disability studies

In this article we set out to review the ways in which mothers of disabled children have been portrayed within disability studies and the more broader academic literature. We argue that within disability studies mothers of disabled children occupy a liminal position because they are often not disabled and yet they can experience forms of disablism. Their experiences can differ markedly from the experiences of mothers of non‐disabled children and yet the consequences and outcomes of these experiences, such as developing a ‘special competence’ is largely overlooked. Mothers can work to effect change on behalf of their children and, in some cases, for disabled people more generally, however, this role of activist mother is largely undervalued. The review of literature presented here leads us to conclude that further research needs to be undertaken exploring and highlighting the ways in which mothers of disabled children negotiate, manage and approach their daily lives, operating within what are described by feminist scholars as oppressive mothering ideologies and disabling environments.     

Lone Mother‐led Families: Exemplifying the Structuring of Social Inequality

Almost 25% of Canadian families are headed by a lone parent (Jensen 2003) and over 90% of poor lone parents are women (National Council of Welfare 2002). In Canada lone mother‐led families have been significantly impacted by two major and interrelated changes in Canada; welfare reforms that resulted in the elimination of a separate family benefit and includes the imposition of a work requirement combined with dramatic changes to the labor market. The reduction of welfare benefits and the increase in precarious or non‐standard work have created a high level of social jeopardy for lone mothers and their children. This paper explores the different realms of life where lone‐mothers are particularly disadvantaged and argues that governments need to clearly identify areas of policy intersection before the inequalities that lone mother‐led families face can be ameliorated.     

Aging, disability, and disabled older people in India

India is witnessing a demographic revolution, leading to a considerable increase in the proportion of older people in the population. Similarly, life expectancy of both the mentally and physically disabled has improved considerably. About 5% of Indian older people have problems with physical mobility. Aging has become a gender issue in India not only because more women are surviving into old age; they are also vulnerable and disadvantaged in many ways. In most cases they are the only caregivers available for the old and disabled. Older Indians are considered a high-risk group for multiple morbidity. It is estimated that nearly four million Indians suffer from mental problems. India has around 12 million people designated as "handicapped." However, little information is available about disabled people who grow older. The National Policy on Older Persons, which has been recently formulated, aims at providing an improved quality of life for millions of older Indians. However, the concerns of older disabled and of the disabled who grow old are still treated separately in both policy and practice.     

Combining Dyslexia and Mothering: Perceived Impacts on Work

Previous studies have provided an insight into the lives of disabled mothers, but little attention has been paid to disabled working mothers. This paper draws on interviews with women who had a formal diagnosis of dyslexia, to discuss: particular difficulties when combining work and mothering; the perceived positive impacts on work and education, of becoming a mother; unsupportive managers; what some mothers found helpful in order to maintain work; and the diversity between experiences. We conclude that for those already on a career path before having children, some of their experiences could have been seen as an amplification of what other working mothers face. However, a difference was that the added time taken up with mothering meant they became more vulnerable to ‘exposing’ their impairment at work. In contrast, for dyslexic women who were yet to attain a high status in education and work, motherhood encouraged them to initiate their career.     

Disabled men and fathering: opportunities and constraints

Over the last decade in the UK and elsewhere, fathers have become a visible presence in research and social welfare policy and practice agendas. While there is an increasing awareness of the heterogeneity of fathering contexts and experiences, disability as a dimension of difference among fathers has received little attention. This is so across all relevant bodies of research, including those on fathering, masculinities, disability, and parenting. In this paper, we seek to contribute to filling this gap by exploring the experiences of disabled men in relation to their fathering experiences. We draw on the findings from two qualitative research projects conducted in the UK, one on the experiences of disabled parents (mothers and fathers), the other on the experiences of disabled fathers. The findings suggest that the experience of impairment and disability positions men in relation to fathering in ways which can be both constraining of their fathering practices, as well as opportunistic in terms of re-articulating more ‘traditional’ fathering identities and practices. We suggest that while disability intersects with other important social divisions, there is a need for further research focused on the shared experiences of disabled fathers, particularly to inform family and child welfare policy and practice agendas.     

Aging,Disability, and Disabled Older People in India

Summary

India is witnessing a demographic revolution, leading to a considerable increase in the proportion of older people in the population. Similarly, life expectancy of both the mentally and physically disabled has improved considerably. About 5% of Indian older people have problems with physical mobility. Aging has become a gender issue in India not only because more women are surviving into old age; they are also vulnerable and disadvantaged in many ways. In most cases they are the only caregivers available for the old and disabled. Older Indians are considered a high-risk group for multiple morbidity. It is estimated that nearly four million Indians suffer from mental problems. India has around 12 million people designated as “handicapped.” However, little information is available about disabled people who grow older. The National Policy on Older Persons, which has been recently formulated, aims at providing an improved quality of life for millions of older Indians. However, the concerns of older disabled and of the disabled who grow old are still treated separately in both policy and practice.     

LESS ACCESS,WORSE QUALITY

High-quality child care is a boon for children and buffers some of the long-term negative effects of growing up in straitened circumstances. Yet, just one in seven Canadian children has access to regulated care. Within this, poor children have worse access and are over-represented in lower-quality care arrangements. Canada's policy architecture, as reviews of Winnipeg, Quebec, and Vancouver demonstrate, generates inequities of access and quality that reproduce neighborhood socioeconomic gradients of class and racialization. Poor children are systematically disadvantaged by a national approach that relies on privatized partnerships with the voluntary sector to implement public child care policy. Equalizing poor children's access to quality child care remains a pressing Canadian challenge, and will require policy and delivery redesign.     

Negotiating with Gatekeepers in Research with Disadvantaged Children: A Case Study of Children of Mothers with Intellectual Disability

Child‐oriented researchers have long recognised children's right to be heard in research about their lives and, as experts about childhood, their perspectives should inform social policy and research. While it is encouraging that more children are consulted about matters of importance to them, some children's voices remain silenced. When researchers have to liaise with adults, such as parents and social workers, to recruit children, these adults make decisions about who participates. An account of recruiting children of mothers with intellectual disability, a potentially disadvantaged group, is presented. The reasons for gatekeeping and the implications of this are explored.     

Difficulties in Shifting from Individualistic to Socio-political Policy Regarding Disability in Canada

An individualistic conception of disability has been replaced by a socio-political definition. The socio-political model implies that disability stems from the failure of the social environment to adjust to the needs of people with disabilities rather than from the inability of disabled individuals to adapt to societal demands. This paper will examine the extent to which Canadian policies have changed to embrace this new definition. There has been some progress in policies related to shelter, transportation and recreation. However, policies related to income and employment are still individualistic in nature because policy change in these areas requires a major shift in governmental approach to unemployment and fundamental reform of the Social Assistance system. In a period of high unemployment, people with disabilities are viewed as surplus labour, and the Canadian government has found that high unemployment is politically tolerable. Obstacles to an increase in income support include a strong work ethic, the philosophy that social assistance benefits should be less than could be earned in the work-force, and the private insurance and litigation industries which benefit from the current income system. Other barriers to change are the lack of power of disabled groups and the dominance of professionals.     

Young Mothers’ Experiences of Receiving the Baby Bonus: A Qualitative Study

The year 2014 marked the abolition of the Baby Bonus and its replacement with a substantially reduced parenting payment. While often criticised as “middle-class welfare,” or publicly denounced due to its purported misuse by disadvantaged mothers, this paper argues that the Baby Bonus provided valuable financial assistance to families experiencing high financial stress. To investigate young women's experience of receiving the Baby Bonus, 19 semistructured interviews were conducted with young mothers in Melbourne who had recently had babies. Many were experiencing financial stress and this payment provided much needed financial support for the basic costs arising from having a baby. Several mothers perceived work as a luxury that was out of reach due to high childcare costs relative to their earning capacity and therefore saw Paid Parental Leave as a further privilege unavailable to them. Our results suggest that while the concerns of policymakers to achieve the best use of scarce resources are critical, it should also be acknowledged that the policy change may have serious implications for many young mothers and may exacerbate disadvantage, and young mothers’ sense of alienation, ultimately leading to greater inequalities.     

Disabled academics: a case study in Canadian universities

Though Canadian universities are legally required to accommodate disabled employees, disabled faculty still experience difficulties navigating neoliberal performance standards and medicalized conceptualizations of disability. Drawing on data from a qualitative study with Canadian university faculty, this paper explores the experiences of five disabled academics. Our analysis draws on post-structural understandings of neoliberalism, discourse, disciplinary power, and governmentality, as well as Rosemarie Garland-Thomson’s concepts of the fit and misfit. Though the sample is small, this analysis suggests universities pose disabling contexts for academics. Disability is cast as individual responsibility, leaving disabled academics navigating accommodations without institutional support. The normative academic constructed through a discourse of efficiency and productivity is the measure against which disabled academics are evaluated, requiring self-governance to produce themselves as ‘good enough’ academics. Although higher education environments are increasingly diverse, disabled academics are still having to prove their right to exist in academia, hindering their abilities to participate fully.     

Living with dying and disabilism: death and disabled children

This paper explores the ‘offensive presence’ death has sometimes represented in disability studies. The paper focuses on interviews with three mothers of children with the label of life‐limiting and life‐threatening impairments and positions their experiences within the current policy context for disabled children in England. The narratives are part of a wider on‐going study funded by the Economic and Social Research Council ‘Does Every Child Matter, post‐Blair? The interconnections of disabled childhoods’ (RES‐062‐23‐1138). Findings include: (i) families experience social isolation and poverty; (ii) support from services is lacking and/or inappropriate; (iii) families worry about the future and the (physical, social and emotional) costs of care. The paper concludes by suggesting that social oppression theories of disability have much to offer in terms of challenging the disadvantage disabled children and their families’ experience during life and in death.     

Work Hours,Schedules, and Insufficient Sleep Among Mothers and Their Young Children

Studies have linked parents' employment, work hours, and work schedules to their own sleep quality and quantity, but it is unclear whether these associations extend to children. The authors used data from the 5‐year in‐home survey of the Fragile Families and Child Wellbeing Study (N = 1,818) to examine the associations between maternal work hours and schedule and insufficient sleep among disadvantaged mothers and their young children. They found that mothers who worked more than 35 hours per week were more likely to experience insufficient sleep compared to mothers who worked fewer hours, whereas children were more likely to experience insufficient sleep when their mothers worked between 20 and 40 hours. Nonstandard work schedules were associated with an increased likelihood of insufficient sleep for mothers but not their children. The results highlight a potentially difficult balance between work and family for many disadvantaged working mothers in the United States.     

Disabled People: active or passive citizens - reflections from the Malaysian experience

The concept of citizenship has once again entered centre-stage in the debate among political philosophers, welfare theorists and activists. Marginalised groups, including disabled people around the world, are making a claim for their inclusion, rights and equal opportunities on the basis of citizenship rights. The Malaysian experience of disabled people within a newly-industrialising country draws lessons on how a disadvantaged section of Malaysian society struggle to enhance their rights as citizens of the nation and a share of the nations wealth. While there are difficult challenges, there are also positive indicators for the active citizenship participation of disabled people among fellow Malaysians.     

The contribution of the population of disabled people to the attainment of Europe 2020 Strategy headline targets

This study seeks to quantify the potential contribution of one of the most disadvantaged groups in Europe, namely Europe’s population of disabled people, to the attainment of the Europe 2020 Strategy targets via the monitoring of a number of indicators, at a time when, given the current economic crisis, the majority of European countries are struggling to attain these goals. The impact of changes in the situation of disabled people is simulated using micro data drawn from the 2009 European Union Statistics on Income and Living Conditions. Our results show that improving the socio-economic situation of the disabled population could be crucial for attaining Europe 2020 targets. However, future policy designs at national level will need to take into account the actual definition of disability that is employed, the heterogeneity of circumstances to be found within such a definition, and the gap between the situation of the disabled and non-disabled populations.     

Does SNAP serve as a safety net for mothers facing an economic shock? An analysis of Black and White unwed mothers' responses to paternal imprisonment

In an era of increasing economic insecurity and declining welfare assistance, scholars and policy makers have increasingly recognized the Supplemental Nutrition Assistance Program (SNAP, also known as food stamps) as an important safety net for disadvantaged families facing a loss of income. Research on welfare and race has found that SNAP use is more frequent among Black families than White families. However, scholars have overlooked another potential source of race-based variation in the use of SNAP: differences in how Black and White mothers use SNAP as a safety net when facing an economic shock such as fathers' imprisonment. Analyses using difference-in-difference-in-difference methods suggest that while Black mothers generally receive a higher level of SNAP benefits than White mothers, SNAP benefit increases following fathers' imprisonment are less effective in compensating for the loss of income among Black mothers than among White mothers. Additional analyses, including a propensity score matching model, produce consistent results. The racial difference in income shock to families caused by paternal imprisonment does not account for this racial disparity. These findings highlight an important mechanism through which an income shock such as paternal imprisonment can produce particularly negative consequences for Black children.     

Economic and Psychological Benefits from Employment: the experiences and perspectives of mothers of disabled children

This qualitative research explores the perspectives and experiences of employed mothers of disabled children particularly with respect to the potential benefits of employment. Forty families with at least one disabled child, representing a variety of family structures and work situations, participated in semi-structured interviews. The findings of this study clearly illustrate that the economic, psychological and social benefits for mothers of disabled children from participation in paid work are strikingly similar to those for employed mothers of non-disabled children. This suggests that the low level of labour force participation of mothers of disabled children in comparison with other mothers is most likely a consequence of the inherent ideological and structural barriers these women face, rather than their qualitatively differing needs. Streamlining of the benefits system, integration both within and between health, education and social services, increased flexibility in the workplace, and dialogue and co-ordination between all of these elements, may go some way to providing the support these mothers need.