‘I shouldn’t be living there because I am a sponger’: negotiating everyday geographies by people with learning disabilities

Learning disability policy has for some time been framed by the goal of inclusion which purports to enable people with learning disabilities to lead a ‘life like any other’ person. This article examines the extent to which this is the case in England, by tracing the lived experiences of people with learning disabilities within their communities. The article draws on two interlinked qualitative studies involving interviews that examined their local place-based experiences of inclusion and exclusion. The findings reveal ‘moments of inclusion’ and opportunities for social encounter from peer support, but these were situated amidst wider experiences of exclusion and harassment.     

‘Good faith and effort?’ Perspectives on educational inclusion

This paper considers what might ‘count’ as educational inclusion from the perspectives of six women who are both mothers of and teachers of children with special educational needs (SEN) and/or disabilities. The mother‐teachers draw on their own personal and professional experiences to consider meanings of inclusion in relation to ‘their’ children. Their voices suggest that it is the detail of daily interaction and the commitment to ‘good faith and effort’ on the part of both parents and educational professionals that matters. For the purposes of this paper I shall consider the discourses of SEN, learning difficulties and disability together, although I am aware of the danger of reductionism in doing so.     

The indelible ink of the special stamp: an insider’s research essay on imprints and erasures

The medical profession ascribes otherness to people with disabilities through diagnosis and expertism, which sets in motion discursive powers that oversee their exclusion through schooling and beyond. In this paper, I present a narrative pieced together from personal experiences of ducking and weaving the deficit discourse in ‘inclusive’ education, when seeking employment and in day-to-day family interaction as a person with severely impaired vision. This work builds on previous qualitative research I conducted in Queensland, Australia with a group of young people with impaired vision who attended an inclusive secondary school. I frame this discussion using Foucault’s conception of normalising judgement against the hegemony of normalcy, and consider that inclusion for people with disabilities is reminiscent of a haunting. Through this analysis, I demonstrate how my ideology is formed, and how it in turn shapes a research agenda geared toward seeking greater inclusion for young people with disabilities in schools.     

Pakistani labour migration and masculinity: industrial working life,the body and transnationalism

In this article, I examine the narratives of migrant Pakistani men in their fifties and sixties, who became chronically ill over the course of their working lives in London. The men's life histories show that the body, and in particular the labouring body, needs more sustained attention in migration studies. Their narratives tell of how the physical toll of industrial labour resulted in chronic ill health, unemployment and various forms of ‘redundant masculinities’. Moreover, the impoverishment that frequently followed from ill health ate away at local social status and transnational relationships. I argue that the existing work on transnationalism has normalized the experiences of an entrepreneurial migrant elite and obscured those of migrants who are bound to one place by force of circumstance. Chronic ill health is not merely the experience of a minority who fall between the cracks of epidemiological studies on ‘healthy migrants’, as some have recently suggested, but rather, common to industrial labour migration.     

Reflections on engaging with an advisory network in the context of a ‘sensitive’ research study

This article surfaces issues about the often-used but widely under-reported practice of working with advisory fora. We critically reflect on our experiences working with an advisory network when co-designing a research study about a ‘sensitive’ subject. We discuss the following: 1) How the network evolved as a matter of ethical and pragmatic choices; 2) Potential issues when discussing sensitive issues ‘outside’ of the participatory or participant context; and 3) Practical and epistemic issues involved in (not) ‘taking’ advice. We suggest that although sensitive research is more conventionally aligned with more ‘radical’ forms of participatory practice, advisory networks can present a useful and sometimes more appropriate form of inclusion and engagement for some advisors and for some types of research study. The article should, therefore, be of interest to a wide range of academic and practice-based health and social care staff and, in particular, those who plan to use advisory fora in their work.     

The meaning of workplace discrimination for women with disabilities

Studies have found that persons with disabilities who are also members of other minority groups or women encounter dual discrimination. This paper describes how women with disabilities who are in the workplace experience discrimination. In order to determine whether discrimination was a viable issue, theoretical contexts of feminist theory, disability theory, and attribution theory were examined as well as literature examining employment of women with disabilities. For this study, three women with various disabilities were interviewed regarding the effect of their disability on their typical workday, their employment and job seeking history, and employment opportunities. Qualitative data were also provided through mapping by the participants and pictorial data of worksites. Data were grouped into themes of pre-conceived notions of others, attitudes of others, accommodation issues, inclusion issues and exploitation issues. From these themes definitions of discrimination, nondiscrimination in the workplace were developed. Conclusions include the need for more research on workplace experiences of other or more specific populations that experience discrimination as well as the need for ethical reflection on the part of the researcher regarding vulnerable populations.     

Special Children,Integration and Moral Education

SUMMARY: This paper explores issues concerning the integration of children with disabilities into mainstream schools and draws out the implications of the discussions for moral education. Social and personal theories of disability are reconciled to provide a basis for a moral education which bridges ‘alternative’ moral traditions. I argue that successful integration requires a moral education for teachers and pupils which encourages the development of both a ‘caring justice’ and a ‘judicious care’.     

Voices of youths on engagement in community life: a theoretical framework of belonging

Little is known from the perspectives of youths with intellectual and developmental disabilities themselves about their experiences related to inclusion, engagement in community life and friendship, and their quality of life. The Voices of Youths research project used an inclusive approach to learn from youths about these experiences. Twenty-four youths (age 13–24 years) with a range of intellectual and developmental disabilities diagnostic ‘labels’ participated in three video-recorded, community-based interviews. Constructivist grounded theory data analysis revealed a theoretical framework comprising the core concept of belonging and four associated concepts: engaging with similar people, having social relationships, negotiating meaningful roles, and navigating norms and expectations – finding a good fit. The findings contribute new knowledge about the ways in which these youths experience a sense of belonging from their own perspectives and can inform development/enrichment of policies, programmes, and services for these youths.     

Learning how to be (a) patient: visual analysis of accessible health information leaflets for people with intellectual disabilities

Creation of jargon-free Easy Read health texts, incorporating carefully chosen words and images, is promoted as a way of removing health access barriers for people with intellectual disabilities. Using a social semiotic framework, this article explores the social construction of the patient with intellectual disabilities within a sample of adapted health texts, focusing on the visual images used. Images were coded and analysed according to dimensions suggested by Kress and van Leeuwen’s work on ‘visual grammar’. Images highlight the inclusion of patients with intellectual disabilities in mainstream healthcare settings. However, these patients are depicted as being inserted into somewhat idealized healthcare routines that are pre-determined and micro-managed through to completion. Consideration of risks and choices associated with healthcare use are downplayed. The article concludes that the care of patients with intellectual disabilities continues to constitute potential trouble for mainstream healthcare providers, rather than being an expected aspect of everyday practice.     

Hidden contradictions and conditionality: conceptualisations of inclusive education in international human rights law

The nature of education that children with disabilities should receive has been subject to much debate. This article critically assesses the ways in which the international human rights framework has conceptualised ‘inclusive education’. It argues that the right to education for children with disabilities in international law is constitutive of hidden contradictions and conditionality. This is most evident with respect to conceptualisations of ‘inclusion’ and ‘support’, and their respective emphases upon the extent of individual impairment or ‘deficit’ rather than upon the extent of institutional or structural deficit. It is vital that the new Committee on the Rights of Persons with Disabilities pays close attention to the utilisation of these concepts lest the Convention on the Rights of Persons with Disabilities further legitimises the ‘special needs’ educational discourse to which children with disabilities have been subject.     

Live audience responses to live televised election debates: time series analysis of issue salience and party salience on audience behavior

Televised political debates are the platforms for party leaders to outline their party's political programs and to attack those of their political opponents. At the same time journalists who moderate the debates are testing the party leaders’ ability to clearly outline and defend their programs. Television audiences of election debates evaluate these party leaders and political parties based on their television performances. Prior to the social media era, viewers’ evaluations were collected through phone surveys or web questionnaires. Nowadays viewers share their opinions in real-time on social media. Particularly Twitter is used in the Netherlands as the platform to share these opinions. In this study tweets produced by the audiences of five different televised debates that took place during the campaign for the Dutch 2012 parliamentary elections are analyzed in terms of tweeting about politicians and parties as well as political issues, as well as the content of the debates. This allowed us, using time series analysis, to test the relation between issue salience in debates and issue salience of the audience on Twitter. The issues of ‘Employment and income’ and ‘Europe’ were the most tweeted about, roughly aligning with the attention these issues received in televised debates. Findings further show there are consistent audience reactions to issues discussed in the debates: issues of ‘Housing’, ‘Care for the needy', and ‘Europe’ showing the strongest effects. However, candidates and parties are not explicitly associated by people active on Twitter when certain political issues are being debated on TV.     

Developing Entrepreneurship in Social Work Through International Education. Reflections on a European Intensive Programme

This paper addresses the issue of introducing training on entrepreneurial skills in social work education and illustrates the opportunities offered for doing so by international courses. It presents a critical reflection on the concept of entrepreneurship in social work based on the case of a European Intensive Programme within the Erasmus scheme. It explores the potential of using active experiential learning methods in an international environment and of creating a situation where participants are confronted with ‘real world’ problems so that they can develop entrepreneurial skills. The paper argues that experiences of this kind provide new stimuli and contribute substantially to developing an entrepreneurial mentality, by which is meant innovative and proactive attitudes as well as skills to develop the resources with which to face social problems in an adverse context.     

Voices from Vietnam: experiences of children and youth with disabilities,and their families,from an Agent Orange affected rural region

This study examines the experiences of young people with disabilities from ethnic minorities, and their families, in central Vietnam. The study is set in an area contaminated by Agent Orange during the Vietnam War. Data were gathered from interviews with youth with disabilities and interviews and focus groups with mothers who had children with disabilities. Respondents expressed confronting multiple barriers to inclusion, education, health and well-being similar to other persons with disabilities and their families from around the world. Participants sought broad-ranging human rights as they described experiencing stigmatization and marginalization from negative social reaction toward disabilities and by residing in a location known for dioxin contamination. The participants’ voices are not only important in informing program responses to support implementation of Vietnam’s new National Law on Persons with Disabilities, but also timely as the US government considers proposed legislation providing material support for Vietnamese nationals affected by Agent Orange.     

‘To talk or not to talk?’: Foster youth's experiences of sharing stories about their past and being in foster care

Sharing stories about the past and about being in care, can help adolescents placed in foster families to make meaning of their experiences and connect with their conversation partner. However, what obstacles and opportunities for sharing stories are experienced by foster youth has not been researched, while this holds important implications for research and practice. In an episodic interview, thirteen adolescents and young adults (16–23 years) talked about their experiences with sharing their memories about their past and being in foster care. Using a thematic analysis, two themes were constructed, each containing three sub-themes. The theme ‘When’ included references to the prerequisites for talking and considerations made by participants, and contained the sub-themes ‘How often do I talk’, ‘Conditions’ and ‘Ownership of my story’. The theme ‘Why’ included references to the rationales for sharing or not sharing memories, which contained the sub-themes ‘Protection’, ‘Understanding’ and ‘Processing the past’. The stories of the participants highlight both the opportunities and obstacles for talking. Foster parents and foster care workers should be aware of the needs foster youth have with regard to conversations about their experiences and should try to facilitate the meaning-making processes, although some foster youth prefer managing their memories in a more private way.     

One hundred years of suffering? “Humanitarian crisis photography” and self-representation in the Democratic Republic of the Congo

Humanitarian images streaming from the ongoing conflict in the eastern Democratic Republic of the Congo (DRC) are not “new”. In fact, contemporary aid and journalistic images strikingly mimic photographs created a century earlier during the Congo Reform Association’s humanitarian attack on Leopold II’s actions in the Congo Free State. This article explores the consistency of these photographic forms and their surrounding text, showing how the images of suffering are not simple reproductions of observed reality but carry personal, local and political meaning. By analysing image content as well as the subject and photographer’s experiences of image creation, this article expands beyond realist objectivity to encompass the subjects’ visual embodiment of subjective desires and expectations. Specifically, I examine how the photographic space composed of the photographer, camera and subject, becomes an intersection replete with competing expectations, hopes and tensions. To situate these images and their subjective, political and humanitarian weight within the DRC itself, I conclude with analysis of how the Congolese choose to present themselves to a different audience: themselves.     

Agency in the twenty-first century: the emperor’s new clothes

Ideas about people with disabilities have evolved dramatically since the 1950s – from individuals ‘suffering from illness’ and dependent on others, to today’s credo stressing participation and social inclusion. People with a disability are considered to have capacities and bear responsibility to achieve active citizenship, which is positive in that a person’s capacities are addressed rather than their limitations. The focus on capacities stems from the Independent Living Movement that originated in the 1960s in the USA, advocating self-determination, self-respect and equal opportunities for people with disabilities. They demanded equal access to both the public domain and they requested assistance to enable their participation. As such, their early effort was to strive for agency. This article will explore changing and competing constructions of agency, participation and citizenship.     

Epistemic authority and the gender lens

Researching ‘hidden’ forms of social inequality such as gender often poses particular challenges. Not least of these is how to uncover such dimensions of social life whilst preserving the perspectives of research participants, who may not consider such matters relevant to their lives, particularly if other forms of identity or oppression are more prominent for them. Here, I reflect on these issues in the context of researching user involvement in mental health services from a feminist perspective. I show how ‘uncovering’ gender and other forms of social inequality in the field was aided through adopting a wide analytical lens focusing on power, along with reflexivity and openness in discussing my own political analysis and commitments in relation to the study area with the researched. I also describe how I attempted to resolve the epistemological‐ethical issues involved through conceptualising these in terms of ‘situatedness’ and gender salience and adopting a feminist standpoint which emphasised what researchers can, and indeed should, bring to the research enterprise. Related issues of power and empowerment in the research process are discussed.     

Troubling constructions of Canada as a ‘land of opportunity’ for immigrants: a critical disability lens

This article presents the findings of a critical discourse analysis study of the constructions of people with disabilities within the Canadian immigration system and how this shapes the immigration experiences of people with disabilities, especially those from countries in the Global South. Findings suggest that dominant discourses of opportunities not only construct Canada as a ‘land of dreams’ for immigrants and newcomers but are also used to hide, justify, normalize and facilitate the operation of ableist, racist and colonial discourses that immigrants and newcomers with disabilities experience during their immigration. Recommendations for settlement workers involved in facilitating the settlement and integration process for immigrants and newcomers with disabilities are also presented. The article concludes by emphasizing the actual and potential contributions of postcolonial and critical disability lenses for a social justice-oriented practice at the intersection of disability and immigration.     

The sacred and the profane in life science work: The case of assisted reproduction laboratories

Reproductive medicine and assisted reproduction therapies have been developed over the last decades resulting in over five million babies. The handling of human reproductive materials and patients is based on the ability to combine health care work and techno-scientific expertise in both the clinic and the laboratory setting. This study of Swedish assisted reproductive technology clinics demonstrates that the active day-to-day manipulation of human reproductive materials enact both the ‘profane’, through treating the embryos as raw materials in standardized procedures enabling economies of scale, and the ‘sacred’ through enacting a separation, the potential to human life, the patients ordeals, and seriousness. The enactment of the profane and the sacred is mostly balanced but at certain points in the work procedures, their intersecting becomes particularly salient. Such points provide opportunities for the study of the sense making of professionals in organizational grey zones, during techno-scientific activities.