Aging,Disability, and Disabled Older People in India

Summary

India is witnessing a demographic revolution, leading to a considerable increase in the proportion of older people in the population. Similarly, life expectancy of both the mentally and physically disabled has improved considerably. About 5% of Indian older people have problems with physical mobility. Aging has become a gender issue in India not only because more women are surviving into old age; they are also vulnerable and disadvantaged in many ways. In most cases they are the only caregivers available for the old and disabled. Older Indians are considered a high-risk group for multiple morbidity. It is estimated that nearly four million Indians suffer from mental problems. India has around 12 million people designated as “handicapped.” However, little information is available about disabled people who grow older. The National Policy on Older Persons, which has been recently formulated, aims at providing an improved quality of life for millions of older Indians. However, the concerns of older disabled and of the disabled who grow old are still treated separately in both policy and practice.     

Like Everest: defamiliarization and uncanniness in media representations of inaccessibility

This paper uses phenomenology to explore recent representations of inaccessible architectural environment featured on major Bulgarian television channels. It is argued that by exposing the environmental restrictions faced by disabled people in their everyday activities, Bulgarian media unwittingly engage in an operation described by formalist literary critics as ‘defamiliarization’. As a result, familiar elements of the everyday, lived world are illuminated as strange. In phenomenological terms, this brings about the experience of ‘uncanniness’. The paper concludes by highlighting the transformative potential inherent in this experience; that is, its power to illuminate as artificial and oppressive the taken-for-granted aspects of the world we inhabit.     

Being an inclusive researcher: seeking questions,raising answers

Abstract

In this article, I reflect on three incidents that occurred in my inclusive research work. As a conceptual framework, I use Bourdieu’s call for a reflexive sociology. My reflection is informed by the principles of the disabled people’s movement, especially giving primacy to the experiences and voice of disabled people. It is also informed by the strong link between the disabled people’s movement and disability studies, which requires academics (including non-disabled ones like myself) to be attentive to their activist role. Making sure that this role is carried out effectively, I argue, entails considering the various factors that make our work possible, and being attentive to the impact of our work. It also entails asking questions, of ourselves and others, and being especially attentive to questions that would go unasked unless we stop to reflect about our work, and the possible answers that these reflections can lead to.     

Helping People with Learning Difficulties into Paid Employment

Summary

Welfare to work policies have developed partly from policy rhetoric that argues employment as the best way of ensuring social inclusion for marginalised groups. In the United Kingdom, welfare to work policies for disabled people have developed within an enabling rather than a mandatory system, although organisation and practice have lagged behind. This article explores policies that provide this enabling context for facilitating the transition of people with learning difficulties from benefits to paid employment. It also explores the role of social workers, examining the degree to which their practice reflects the empowering rhetoric of the policy framework and of contemporary social work values.     

Activism and the academy: losing the ideological and material battles

Abstract

In this article written in the summer of 2018 Professor Michael Oliver sought to convey a sense of urgency about the need to reinvigorate the relationship between disability, the academy and activism. In his usual clear unswerving style that is both liberating and enabling in its directness he calls upon all engaged with the journal to remember that the foundations of disability studies emerged out of democratic organisations of disabled people and must remain committed to placing the experiences of disabled people at the centre of academic and activist enterprise. He places emphasis on the original purpose of the journal to build on the social model of disability in order to produce real social change expressing frustration about what he saw as an increasing ineffectualness within the academic community to confront what is really happening to disabled people. He is forthright when describing his hope that disability activists and academics will strengthen the future of disabled people, and the future of disability studies too, by working ever more closely together.     

‘The invisible enemy’: disability,loneliness and isolation

Abstract

The aim of this article is to quantitatively explore the relationship between disability, emotional loneliness and social isolation. The data analysis presents a number of statistically significant findings which illustrate that disabled people (N?=?250) were at increased risk of experiencing emotional loneliness and social isolation compared with the nondisabled group (N?=?355). This study identifies a number of disabling barriers which result in this overrepresentation of disabled people. The study aims to move away from a pathological explanation of linking loneliness and social isolation to disability, in order to explain this occurrence from a barrier-based approach.     

Disabled citizens as researchers – Challenges and benefits of collaboration for effective action and change

ABSTRACT

This article reports on the evaluation of an initial pilot for a collaborative research project undertaken in an English county between a service user-led Coalition of Disabled People, the local authority and local university. The project sought to map the assets and resources for/of disabled people in their local community as well as needs and gaps, to inform the Coalition’s strategic planning and raise awareness of disability issues across the county.

The article discusses an inclusive, co-productive approach using participatory action research. It focuses on experiences from the pilot stage of the project and considers how the authors worked together with the required knowledge exchange and power-sharing to recruit and train researchers with expertise from their personal experience of disability. Recruitment ensured they had relevant qualities and skills that could be developed, to increase their confidence, knowledge and skills set as researchers. They then undertook photo-elicited, semi-structured interviews with other disabled people, analysed findings and created photographic exhibitions for dissemination and awareness raising.

Demonstrating a commitment to emancipatory research and collective action for change, the discussion considers the promotion of shared values within the research team, and explores the benefits and challenges encountered during the process and how the particular stages were managed to achieve the beneficial outcomes of the pilot. The article seeks to add to the literature of participatory/emancipatory action research for social work.     

How context influences the ideologies and strategies of disabled people’s organisations: a case study from Cambodia

Abstract

Studies of disability movements have centred on exploring how movements have emerged and how their strategies have been devised to effectively advocate for the rights of the people with disabilities they represent. However, little attention has been focused on examining their organisational contexts and how they shape ideologies and choice of strategies, which have implications for the success of their advocacy endeavours. This article seeks to contribute to knowledge in this area by studying the case of a disabled people’s organisation in Cambodia. The resource dependency of disabled people’s organisations on international development partners results in their ideologies and strategies being driven by the latter. This has not only fragmented their resources, but also made their endeavours less relevant to the needs of people with disabilities. This may act to prevent such organisations from building a common ground for collective action, and from effectively pressing for social change.     

Managing manipulation: tools and challenges in creative collaborations with intellectually-disabled people

There has long been an ‘us’ and ‘them’ mentality when it comes to the production of disability narratives on screen, driven by an assumption that non-disabled people cannot accurately interpret the disabled experience. Given the appalling history of representations by non-disabled filmmakers, it is easy to understand why many academics and members of the disability community favour the complete control of disability content by disabled people. But this approach has failed the many compelling ‘disabled voices’ that go unheard because they do not reach audiences. The most practical solution is to forge new models of creative collaboration between disabled and non-disabled people, something I attempted to do with my PhD film, a comedy feature entitled Down Under Mystery Tour. I discovered that the most important tool in such collaborations is the utilisation and management of manipulation, one that prioritises skill and experience and best expresses the unique perspective of intellectually-disabled collaborators.     

Recognizing Abuse and Neglect in People with Severe Cognitive and/or Communication Impairments

ABSTRACT

It is widely acknowledged that physical abuse of persons with severe developmental disabilities is prevalent, usually perpetrated by a residential care provider and is rarely reported. However, no solid research on the topic has been reported. This article notes the lack of information about protective services directed to the developmentally disabled population and lack of coordination between agencies serving people with developmental disabilities and those providing protective services. The signs and symptoms of abuse in the developmentally disabled population, the alternative communication strategies required when interviewing, and the special skills needed for case assessment are presented. The author ends with a series of federal, state, and community level policy recommendations.     

From multiple barriers to a co-prosperity society: the development of a legal system for disabled people in China

Abstract

The legal system for disabled people has progressed significantly since China’s government signed the United Nations Convention on the Rights of Persons with Disabilities 10 years ago. The newly released ‘New Progress in the Legal Protection of Human Rights in China’ has attracted widespread attention because it advocates that the protection of human rights for disabled people should be reflected not only in legislative and judicial aspects but also in administrative sectors and international affairs. This article explains that the legal system involving dozens of laws and decrees in China aims to break through multiple barriers experienced by disabled persons and is beneficial to building a co-prosperity society in China. With the vigorous development of the international disability rights movement, ways to seize domestic and international opportunities to build a disabled-friendly social atmosphere deserve additional research.     

Enabling Fictions: Philip Roth's Prosthetic Anne Franks

Abstract

In this article, it is argued that insufficient attention has been paid to Philip Roth's uses of Anne Frank in his work. Concentrating on the 'Zuckerman' and 'Philip Roth' novels in which Anne Frank is discussed, it is illustrated that Anne Frank functions as a 'narrative prosthesis' not only in Roth's work and within American postwar culture, but that all representations of Anne Frank function as narrative prosthesis. The concept of Anne Frank as narrative prosthesis allows for recognition of the fact that Roth characterises writing and identity as prosthesis. Exploration of Roth's uses of Anne Frank also exposes problematics in his own work, particularly in his representations of women.     

Socially disabled: the fight disabled people face against loneliness and stress

Abstract

In 2018, the United Kingdom appointed its first Minister for Loneliness. This article discusses some of the barriers which may contribute to why disabled people were found to be one of the largest groups affected by loneliness. Utilizing ethnographic examples supported by facts, the article demonstrates how even when seeking to fight loneliness, and to reduce the stressors of everyday life, disabled people are often at a disadvantage, or excluded. The article raises questions concerning self-social exclusion and discusses recommended avenues for further research.     

Achievements of and challenges facing the Korean Disabled People’s Movement

Abstract

This paper provides a critical review of the development of the disabled people’s movement in South Korea since 1945, reflecting both its achievements and the obstacles it has faced. In particular, political positions and responses to the movement’s agitation against socio-cultural discrimination and inequality are discussed. Further, three key theoretical foundations of the movement are examined in order to describe the diversity inherent therein. This paper concludes that the disabled people’s movement has heavily influenced the values, norms, and systems of Korean society, but it has predominantly focused on integrating disability issues into policy and legislation, not on changing society and culture. Hence, the Korean Disabled People’s Movement is currently facing many challenges that are major threats towards its future development.     

Knowledge, Power and the Disability Discrimination Bill

This article compares the social model of disability with the individual model upon which the Government's Disability Discrimination Bill is based. It uses Foucault's concepts of Power \ Knowledge and Governance, to develop an analysis which illustrates how both models of disability can impact on the identities of disabled people and local government practices. It suggests that, in order to assist disabled people to 'fashion a purpose', those disabled people and their allies working in local government need to operationalise the social model.     

Talking about The Shape of Water: three women dip their toes in

Abstract

This article is about a film called The Shape of Water by Guillermo del Toro, which was released in 2017 and won the Best Picture award at the 2018 Oscars. The three authors of this article, all friends, had each enjoyed The Shape of Water, so went for a second viewing together. Our enjoyment had been somewhat at odds with criticisms of the film, mostly made by other members of the disabled people’s community/disabled academics. After seeing the film again, we found it to be a ground-breaking portrayal of a disabled woman. This article is a summary of the discussion which ensued. Our discussion of The Shape of Water is a current issue because we found ourselves disagreeing with, and questioning, a number of complaints about the representation of disability and impairment within the film. At a time when the film industry is making noises about inclusion, it is important that we know what we are asking for, and avoid demands which may be counterproductive to the cultural recognition of disabled people. This film is still being shown in cinemas in the UK and elsewhere.     

Claiming loss in disability

Pervasive representations of disability carry associations with the idea of loss. These have been strongly rejected by the social model movement as stereotyping, which may perpetuate views of disabled people as ‘incomplete’, ‘vulnerable’ or needing rehabilitation. Discourses of ‘loss’, ‘acceptance’ and ‘denial’ remain a lens through which disabled persons are misknown. It is posited that ascribed notions of ‘loss’ serve to maintain feelings of control and mastery within the observer, quieting the destablising psychic threat which disability poses. Further, disabled people positioned as having to ‘deny’ imputed loss may be at risk of suffering self‐alienation relating to a mode of being which is (necessarily, understandably) preoccupied with ‘not being’ the personification of stereotype, at the expense of exploring aspects of identity and self; such an orientation embodies unstable foundations for an entitled, articulate disability movement. Conceptual ideas are based on the author’s experience as a disabled group psychotherapist working with severely physically impaired adults.     

Do disabled people need a stronger social model: a social model of human rights?

Abstract

We introduce the social model of disability by reflecting on its origins and legacy, with particular reference to the work of the Union of the Physically Impaired against Segregation. We argue that there has been a gradual rolling back of the rights and entitlements associated with the social model of disability. Yet no alternative for the social model has been proposed in response to such threats to disabled people’s human rights. Disabled people need a stronger social model that acts as a means to a society which enables and ensures their rights; the right to live a dignified life, as well as to live in an environment that enables people to flourish with disability.