Disabled children’s childhood studies: a distinct approach?

This paper suggests that the emergence of disabled children’s childhood studies as an area of study offers a distinct approach to inquiry; it represents a significant shift away from the long-standing deficit discourses of disabled childhoods that have dominated western culture and its reaches. On the one hand, contemporary childhood studies contest normative, Eurocentric mantras around the ‘standard child’; while on the other, disability studies critique the medical discourses and the scope of its authority. However, while drawing on these two approaches, disabled children’s childhood studies provide more than this combined critique. In disabled children’s childhood studies, disabled children are not viewed as necessarily having problems or being problems, but as having childhoods.     

A survey of disabled children and young people’s views about their quality of life

This study aimed to explore disabled children and young people’s perspectives about their quality of life, in terms of physical, mental and social well-being. Ninety-one disabled children, recruited through voluntary organisations in Scotland, completed KIDSCREEN-27, a validated measure of health-related quality of life for children. Findings were compared with those from a European study of predominantly non-disabled children. The children gave largely positive reports about school, family relationships and their physical health. However, one in three reported often feeling ‘sad’ and many were excluded from social activities with their peers. Expectations of achieving academic qualifications, and moving into further or higher education, were generally low. The children’s perceived quality of life was lower than their European counterparts, less so in relation to school but particularly for friendships and peer support. The findings are discussed in the light of the social relational understanding of disability. Policy and practice implications are identified.     

A children’s election—Dilemmas of children’s political participation

In this article, we explore how fifth graders (9–10-year-olds) and their teachers view children's participation in a parliamentary election for children arranged by Save the Children Norway in 2017. The participants draw on available discursive resources when making sense of children's political positions in society. In the discursive resources, longstanding tensions surrounding children, childhood and politics come to the surface. We conclude that although children's position in politics remains marginal, there are ways to move beyond the tensions to be able to imagine children as political actors.     

The accomplishments of disabled women’s advocacy organizations and their future in Korea

Since the late 1990s disabled women’s advocacy organizations have fought against oppression and have made great strides in Korea. This paper aims to describe the accomplishments, challenges and future directions of disabled women’s advocacy organizations in Korea. A qualitative design was employed to explore disabled women’s perspectives. Participants were leaders in disabled women’s advocacy organizations and were recruited from each of the organizations existing in Korea in 2007. Among seven potential participants, five were interviewed. Accomplishments to date include significant gains in the recognition and visibility of disabled women, advances in the use of gender‐sensitive approaches to the development of disability policies and the growth of networks among disabled women’s organizations. Disabled women’s advocacy will continue to become stronger in the future through increased organizational membership, the development of a distinct organizational identity, the articulation of more focused policy concerns and continued network development.     

‘Special offices’: parenthood of disabled children on public display

Based on my own experience of parenting a child with mental disability, I raise the question of how disability unfolds in the spatial organization of work environments, specifically that of academic offices. I scrutinize the role of family pictures placed in offices for public display, and the way this element functions when pictures show your child is disabled. I do so in a provocative and contrasting manner to highlight the point that families with a disabled relative, especially a child, are deprived of a presence in a collectively shared symbolic reality that supplies structure, meaning, and meaningfulness to individual workplace lives. I argue that non-disabled spaces require daily repeated practices and narratives which images of disabled children disrupt.     

The significance of uprightness: parents’ reflections on children’s responses to a hands-free walker for children

The benefits and drawbacks of facilitating independent walking in children with physical mobility impairments, such as cerebral palsy, remain to be determined. This knowledge gap creates decision dilemmas about which mobility practices parents and children should adopt and rehabilitation professionals should foster. These dilemmas are reflected in continuing debates about allocation of time, effort and resources to optimize walking versus encouraging use of manual or powered wheelchairs. Recent studies have reported only modest measurable walking progress for severely disabled children using hands-free walkers. Despite these seemingly disappointing results, parents remained highly motivated to encourage their children to use these walking devices and appraised them very positively. In the present paper, we suggest that parents’ symbolic value of their children assuming upright comportment may explain why they perceive hands-free walkers positively and why they are so motivated to devote much time and effort to improving independent, walking-based mobility of their children.     

Children’s conceptions of the word ‘disabled’: a phenomenographic study

The aim of this study was to investigate the qualitative differences in children’s conceptions of the word ‘disabled’. Two hundred and thirty children, aged 7–12 years of age, were instructed to make a drawing of what came into their minds when they heard the word ‘disabled’. A brief written commentary on their drawing was also requested. The drawings and comments showed that the children had a positive attitude towards the word ‘disabled’. They drew and commented that a disability had medical causes, a technical device was a prerequisite for disabled people, a disability had social consequences and that a disabled person needed support. The children also explained that there were obstacles which impaired disabled people’s performance of activities. Access to some environments and being an active part of society was limited for some disabled people.     

Facilitating and hindering factors in the realization of disabled children’s agency in institutional contexts: literature review

Disabled children’s opportunity to act as agents may be compromised because adults have the power to choose who are entitled to express agency. Disabled children spend much time in institutions and with professionals of different fields. The aim of this literature review was to find out which factors facilitate or hinder the realization of disabled children’s agency in institutional contexts. As data we used 19 research articles and analysed them with inductive content analysis. Key factors relate to professionals’ attitudes towards diversity, children and themselves as well as professionals’ communication skills and institutional factors that enable the child to have an influence or prevent it and which give or do not give room for children’s peer relationships. Rethinking the child and adult view and learning dialogical communication are recommended in the education of all fields that work with disabled children.     

The influence of parents’ social capital on their children’s transition to vocational training in Germany

This study investigates the up-to-now strongly underexplored role of parents’ social capital in the school-to-work transition of adolescents. We base our empirical analyses on unique longitudinal largescale data from the German National Educational Panel Study. Parents’ social capital is measured with a position generator. Results show that adolescents with lower secondary education have better chances of finding an apprenticeship in a company if their parents know many persons with lower-status occupations for which vocational training is sufficient. This is especially the case for parents’ social contacts that have occupations in which many adolescents with lower secondary education are being trained in a company. The contrary is true for adolescents whose parents know many persons with higher-status occupations. Parents’ social networks do not show any effects on the quality of these apprenticeships or on the probability of entering school-based vocational training. Overall, our results indicate that parents’ social networks are important for a smooth school-to-work transition of their children. Moreover, our analyses confirm the idea that social capital is goal and labour market segment specific.     

Risky bodies in risky spaces: disabled people’s pursuit of outdoor leisure

Risk is used to deny disabled people access to many parts of mainstream life. Using qualitative data we explore disabled people’s views and experiences of outdoor recreation, bringing together ideas from two areas of sociology – disability studies and risk using the concepts of edgework and psycho-emotional disablism. Many people felt that the outdoors represented a risky environment. For some, risk was one of the main drivers for going out into the countryside; whilst for others, risk was a major cause of their reluctance to venture into the countryside. Engaging in risk both can disable and can challenge disablist views.     

Exploring narratives of education: disabled young people’s experiences of educational institutions in Ghana

Disabled young people in many low and middle-income countries experience significant levels of educational exclusion due to disabling social and physical environments and are more likely to be illiterate than their non-disabled peers. Most social sciences and development literature, however, tends to homogenise the educational trajectories of disabled young people and focuses predominantly on the perspectives of educationalists, development experts and carers in assessing educational needs and institutions. Consequently, the experiences of young people across multiple categories of social difference, and their agency in shaping their own educational trajectories, remain largely unknown. This article contributes to filling this gap by exploring the educational narratives of young people with different impairments in mainstream, special and integrated schools in Ghana. The article shows how exploring individual narratives provides new insights into the educational needs of and ‘appropriate’ education for disabled young people in the Global South.     

The Effects of Children’s Health on Mothers’ Employment

When children have health problems, mothers face a tradeoff between the decision to work to satisfy increased expenses and the decision to stay home to fulfill enlarged caregiving needs, especially for children with chronic conditions. This research used an instrumental variables approach to investigate the labor market consequences of mothers due to burden to care children with health problems. We found mothers’ employment probability increased by 0.9% for every $100 of increased out-of-pocket medical spending, while employment probability fell by 1.0% for every half day of school/day care a sick child missed. By correcting for endogeneity we addressed a potential empirical bias. Analyses by subgroups showed that Hispanic mothers were less likely to work in the labor market with high caregiving burden. We also found that the effects of time burden on labor market outcomes were magnified for black mothers.     

‘How dare you pretend to be disabled?’ The discounting of transabled people and their claims in disability movements and studies

Although the contours of the ‘disabled person’ category are questioned by anti-ableist activists, they remain rigid regarding transabled people (who want to become disabled). For anti-ableist activists, transabled people do not count as disabled. They are perceived to: be falsely disabled; steal resources from disabled people; and be disrespectful by denying, fetishizing, or appropriating marginalized realities. By combining critical discourse analysis, genealogy, and deconstruction, I examine these negative discourses to encourage alliances between anti-ableist activists and transabled people. Ideas developed in disability and trans studies reveal the limits of these discourses anchored in ableist and cisnormative* assumptions.     

Moving on from ramps? The utility of the social model of disability for facilitating experiences of nature for disabled children

Experiences of nature have been shown to be beneficial for disabled children; however, opportunities for disabled children to experience nature are often limited. The social model of disability may provide a theoretical base for increasing access to nature for pupils at Special Educational Needs (SEN) schools. Using results from interviews conducted with teachers from seven SEN schools, considered alongside responses from interviews with staff from six environmental centres, this paper seeks to identify the specific constraints that may act upon the opportunities for disabled pupils to visit environmental centres. The research finds that a ‘medicalised’ approach to access may impede upon environmental centres’ ability to cater effectively to the needs of SEN school groups. Dialogue between environmental centres and SEN school teachers is recommended as a means of facilitating SEN school group access.     

Institutional woes of participation: Bulgarian disabled people’s organisations and policy‐making

This paper presents a critical study of the participation of Bulgarian disabled people’s organisations in the policy‐making process on a national level. It describes how the ‘representatives’ of disabled Bulgarians become depoliticised and even depersonalised when their participation becomes institutionalised through the National Council on Integration of People with Disabilities. It is argued that such an instance of ‘participation’ actually sustains the status quo of underdevelopment and dependency. A parallel is drawn with the concerns of the British disability movement. The paper ends by suggesting some tentative solutions to the highlighted problems.