Breaking free from siloes: intersectionality as a collective action frame to address toxic exposures and reproductive health

ABSTRACT

There has been increasing interest in collaborative approaches between the environmental justice (EJ) and reproductive justice (RJ) movements to address the higher burden of toxic exposures and associated reproductive health outcomes in vulnerable communities. This study examined the collective action frames (CAFs) of advocates at the EJ/RJ nexus. CAFs highlight how advocates identify problems and solutions, and motivate action. The use of intersectionality was identified as a main CAF used in three key ways: breaking free from identity-based, issue-based, and movement-based siloes. First, interviewees described breaking free from identity-based siloes by identifying risks of toxic exposures that result from intersecting social locations (e.g. gender, race/ethnicity, income, immigration status) and by equally prioritizing multiple aspects of their identities as they engage in advocacy. Second, they described breaking free from issue-based siloes by developing multi-issue agendas that address a complex web of interrelated problems impacting health. Third, they described breaking free from movement-based siloes by developing cross-movement collaborations to address issues of mutual concern. Among multiple reasons given for cross-movement collaborations, advocates perceived them as valuable in order to disrupt social, political, and economic power imbalances that shape environmental reproductive health inequities, as well as other health and social inequities. Based on these findings, we suggest that intersectionality is a master frame, and thus may be useful to advocates in other social movements addressing intersectional issues. Understanding an intersectionality frame can help to inform advocacy approaches to promote health and health equity, particularly those focused on policies and structural drivers of health.     

Understanding the association between time spent caregiving and well-being among employed adults: testing a model of work–life fit and sense of community

This study examines factors associated with work–life fit and sense of geographic community as mediators of the negative association between caregiving demands and well-being among employed informal caregivers. Data were drawn from a larger project assessing well-being among residents of three mid-size cities in Ontario, Canada. A subsample was selected of informal caregivers who worked for pay for at least eight hours/week (n?=?276). Caregiving demands were measured by time spent caring for an adult who was a relative, friend, or neighbour. Well-being followed a holistic conceptualization advanced by the Canadian Index of Wellbeing. The more time spent caregiving, the lower participants’ well-being ratings were. This association was mediated by perceived time adequacy, income adequacy, and sense of community, such that the more time participants spent caregiving, the lower their ratings of these three resources. This explained the initial association of caregiving hours with reduced well-being. Enhanced well-being was more strongly associated with sense of community than any other factor, which supports the importance of the community domain in understanding well-being among employed caregivers and suggests its further testing with other population groups. Policy implications for employers and community organizations are provided.     

Fair or Foul?: The Effects of External, Internal, and Employee Equity on Changes in Performance of Major League Baseball Players

We propose six hypotheses that relate employee,internal, and external inequities to changes inperformance. We test these hypotheses with a sample of362 Major League Baseball players. The findings showed that overpayment (as measured by actualemployee and external inequities) is a significantpredictor of positive performance changes, underpaymentis a significant predictor of negative performancechanges, and employee equity is a greater predictor ofchange in performance than internal equity.     

Exploring the Gaps between Meanings and Practices of Gender Equity in a Sport Organization

This article analyses the explanations organizational members used to make sense of the meanings and practices of gender equity. Studying gender equity as an organizational value provided a way of understanding how gender inequity is perpetuated and embedded in the culture of an organization. This study was informed by post‐structuralist feminist theory as it provided a lens for understanding and critiquing the local meanings and production of gendered knowledge, and encouraged discussion of transforming meanings and practices. This study was situated in a Canadian university athletic department in which gender equity was an espoused organizational value, but gender inequities were evident. Data were collected from in‐depth interviews with administrators, coaches and athletes, observations of practices and competitions, and the analysis of relevant documents. These data were coded and categorized using Atlas.ti. Respondents' explanations for the gap between what was espoused and what was enacted centred on two dominant, but contradictory, themes: a denial of gender inequities and a rationalization of gender inequities. These themes suggested respondents often understood inequities as expected, natural, or normal.     

Predicting supportive behavior of parents and siblings to a family member with intellectual disability living in institutional care

This feasibility study examines whether the theory of planned behavior can predict supportive behavior provided by either parents to their offspring-or adult siblings to their brothers and sisters-with an intellectual disability living in 2 Israeli institutional care facilities. Participants were 67 parents and 63 siblings who were interviewed at baseline regarding their intentions to visit their offspring or sibling in the institutional care facility, to contact the caregiving staff, and to accept visits at home. Parents' and siblings' behavior regarding visitation and supportive behavior was examined after 6 months by caregiving staff. Core findings indicated that subjective norms in siblings and parents predicted frequency of home visits. Perceived behavioral control predicted frequency of contact between siblings and staff. Differences between parents and siblings regarding their supportive behaviors are discussed with respect to social work practice.     

Direct and Moderating Effects of Social Affordances on School Involvement and Delinquency Among Young Adolescents

Using social control theory and attachment theory as guides, this study examined how qualities of young adolescents' social relationships (i.e., mother, sibling, and friend) and dynamic interactions among characteristics of those relationships are associated with school involvement and delinquency. The participants included older siblings (M age=14.3), younger siblings (M age=11.6), and their mothers from 434 families who completed web‐based surveys. Results were largely consistent with tenets of social control theory and attachment theory. Young adolescents' social relationships mostly worked in additive ways, but sometimes in compensatory ways for older siblings, to promote positive adjustment. The results suggest that young adolescents' social relationships may be differently associated with adjustment depending on birth order or developmental stage.     

Theorizing postfeminist communities: How gender‐inclusive meetups address gender inequity in high‐tech industries

Through a qualitative analysis of gender‐inclusive meetup groups in the US technology sector, this article offers a theory of postfeminist communities to identify how community organizing can take a postfeminist turn. Gender‐inclusive meetups are public, often free groups or organizations where participants have access to training, mentorship and support. Groups import postfeminist values of choice, empowerment, individualism and entrepreneurship into their community organizing efforts to address workplace gender inequities. Groups employ three strategies to improve the status of women and non‐binary people in the tech industry: (i) organizing a supportive community rooted in professionalism and entrepreneurialism; (ii) offering skills development in a safe environment; and (iii) training participants on how to take individual action against discrimination. While postfeminist communities are able to successfully cultivate supportive groups of participants who organize outside of the workplace, strategies focused on individual‐level changes ultimately do little to disrupt organization‐level gender inequities.     

Acceptance and Caregiving of Married and Divorced Custodial Mothers and Fathers

The study examined whether differences in gender and family status affect parental caregiving disposition and acceptance of children among parents of children in mid-childhood. The number of participants were 122 divorced-custodial fathers, 107 married fathers, 85 divorced-custodial mothers, and 82 married mothers (n?=?398). A comparison among four groups of parents revealed the following gender differences: mothers scored higher on anxious caregiving and parental acceptance than fathers, and lower on avoidant caregiving. Regression analysis indicated that the higher the caregiving avoidance or anxiety, the lower the parental acceptance. Family status moderated parental acceptance, as avoidant caregiving was associated with reduced parental acceptance among married parents, but not among divorced custodial parents. The finding that avoidant caregiving was not associated with reduced acceptance among divorced custodial parents implies that their parental acceptance behaviors toward their children are affected by their parental status as sole custodial parent, and the associated responsibilities, rather than by gender.     

School Based Vision Centers: striving to optimize learning

As the average age of the Canadian population continues to increase, and providing care at home to frail older adults becomes ever more prevalent, support for family and friend caregivers remains a key social policy issue. Economic support is an important consideration given the impact of caregiving on labour force participation. Yet the caregiving/paid work relationship is not always straightforward. While caregiving often restricts employment, limited attachment to employment may also influence the decision to provide care. Isabel's story, collected as part of a study of sibling views of fairness in sharing parent care as well as parent assets, provides a case study in how siblings give different priority to care work versus career work and what support needs arise including those related to sibling conflict over differing priorities. Isabel claims she sacrificed her career to care for her ailing mother while her siblings argue that through caregiving, Isabel was sheltered from the paid workforce.     

Caregiving and Care Receiving Among Older Lesbian,Gay, and Bisexual Adults

Abstract

A survey research design was used to examine caregiving, care receiving, and the willingness to provide caregiving among lesbian, gay, and bisexual (LGB) older adults recruited from community groups. More than one-third reported receiving care from people other than healthcare providers in the last five years; more than two thirds provided care to other LGB adults. Those who had given care were more likely than non-caregivers to give care in the future. The gender and sexual orientation of recipients of future help affected participants' willingness to provide care, as did their education level and style of coping. Participants willing to provide care to older LGB adults perceived such experiences to be less burdensome and more personally rewarding than those who were un-willing to provide care.     

Sibling caring roles and responsibilities when a child suffers from a chronic illness

Siblings' lives and well-being are potentially affected in profound ways when their brother or sister suffers from a chronic illness in childhood. The shift in the care of chronically ill children from the hospital to the home in recent years has had an impact on family relationships and interactions. Whilst studies on caregiving have focused on the parental care of children who are chronically ill; siblings may nevertheless take on some caring roles and responsibilities. This article intends to make a novel contribution to the sociological literature on siblings, caring, and chronic illness by presenting a review of the literature addressing siblings' caring roles and responsibilities in families of children with a chronic illness. Knowing about the caring roles and responsibilities undertaken by siblings when a brother or sister has a chronic illness, may be beneficial to healthcare professionals and influence their caring practice. In addition, this work may contribute to a better understanding of family relationships and further improve healthcare policies.     

Children's perceptions of their disabled siblings: ‘she's different but it's normal for us’

This paper reports on a two‐year study exploring children's understandings of disability. It focuses on findings from interviews conducted with 24 children, aged 6 to 19, who had disabled siblings, exploring their perceptions of impairment, disability and difference. Most were very aware of their sibling's impairment but the majority did not see that as making their siblings different. Where difference was perceived, this was sometimes attributed to their siblings' experience of disability—unequal treatment and the hostile attitudes of others. Most children saw their disabled sibling as holding various identities and their shared biographies, as members of the same family, may have taken precedence over any perceived differences.     

Listening to the Voices of Lesbians Diagnosed with Cancer

Abstract

This paper focuses on the operations of heterosexism and strategies to counter it in a particular service context: the context of psychosocial support services for women with cancer. The paper draws on findings from a participatory, qualitative study set in Ontario, Canada in which 26 lesbians were interviewed about their experiences of cancer diagnosis, treatment, health care and social support, and their feelings and perceptions about shifts in identity, body, sexuality and relationships. This paper focuses on findings related to the changes research participants perceived as necessary in the provision and organization of cancer support services, in order to increase access and ensure equity for lesbians with cancer and their families.     

The Impact of Low Socioeconomic Status and Perceived Discrimination on Parental Perceptions of the Well-Being of Latino Children

This exploratory study examined the impact of low socioeconomic status (SES) and perceived discrimination on Latino parents’ perceptions of their children’s mental health issues. Anti-immigrant policies and negative public discourse lead to perceived discrimination among Latinos, which may impact mental health. Participants (106), surveyed in 2011, were Latino, predominantly female, had a mean of 14 years living in the United States, and less than 9 years of education. The results of multivariate ordinary-least-squares regressions indicated that participants with lower levels of SES had significantly greater (p < .05) perceptions that their children were angry, had separation anxiety from parents, were fearful, and avoided social situations. Higher levels of perceived discrimination were significantly related (p < .05) to participants’ perceptions of fear among their children. Social service providers must assess for possible mental health issues and develop culturally appropriate intervention strategies to effectively address these issues with parents and children.     

Friendsourcing Peer Support for Alzheimer’s Caregivers Using Facebook Social Media

ABSTRACT

This research piloted an e-health intervention that used social media to friendsource peer support for Alzheimer’s disease (AD) caregivers. Friendsourcing is a variant of crowdsourcing. Crowdsourcing recruits online participants who share a characteristic that makes their volunteerism meaningful when they join to achieve an outcome. Friendsourcing recruits online participants who share membership in a social network that makes their volunteerism meaningful when they join to achieve an outcome. This article introduces our friendsourcing intervention research and examines the effects on the psychological well-being of AD caregivers. After a 6-week intervention, caregivers were found to have significantly decreased burden (Z?=??2.01, p?<?.05) and perceived stress (Z?=??2.95, p?<?.01). Emotional and informational support scores were significantly increased (Z?=??2.32, p?<?.05). Qualitative data analysis of the intervention identified positive effects in new caregiving knowledge acquisition and application and reduced stress in the acceptance of the caregiving role. Joining social networks in support groups through friendsourcing was feasible for AD caregivers who were familiar with social media, and can provide another means of guiding the development of their personal support networks.     

When caregiving ends: the course of depressive symptoms after bereavement

This study describes depressive symptoms among caregivers following bereavement and connects these trajectories to earlier features of caregiving using life course and stress process theory. Data are from a six-wave longitudinal survey (five years) of spouses and adult children caring for someone with Alzheimer's Disease. The analytic subsample (N = 291) is defined by death of the care-recipient after the baseline interview. A latent class mixture model is used to identify distinctive clusters of depressive symptoms over time. Of the four trajectories identified, three represent stable symptom levels over time, with two-thirds being repeatedly symptomatic (medium symptom levels), compared to two smaller groups of repeatedly asymptomatic (effectively absent of symptoms) and repeatedly distressed (severe symptoms). In contrast, about one in five caregivers experiences improved emotional well-being over time, the temporarily distressed, who progress from severe to moderate symptom levels. Caregivers with few symptoms before bereavement tend to maintain these states afterwards, but emotionally distressed caregivers tend to become more distressed. Role overload before bereavement substantially increases the odds of following an unfavorable trajectory afterwards, whereas self-esteem and socioemotional support play protective roles. These results demonstrate that caregivers are not uniform in their emotional responses to bereavement, but follow several distinct trajectories. These trajectories are linked to their previous experiences as caregivers, in particular exposure to stressors and access to resources. These findings suggest that intervention during caregiving may facilitate adaptation following death of a loved one.     

Dimensions of Responsiveness to Women's Policies in the Fifty States

Factor analysis of the simple incidence of 88 "women's public policies" across the 50 states reveals 9 patterns of response. Each of these dimensions reflects a variety of policy concerns; but close examination suggests a range along a continuum from the maintenance of traditional roles (patriarchical protection, workplace protection, vestigial inequities) through the provision of role equity (minimal equity, political equity, credit equity, contemporary legal equity) to the promotion of role change (general sex neutrality, the partnership family).     

Siblings as Providers of Support and Care during Middle Childhood: Children's Perceptions

This article describes some of the findings of a study undertaken to seek the views of 69 Scottish primary school children of their sisters and brothers. The study found that siblings were perceived to be a significant source of support and help to the children. Sibling support was particularly important to children with few other supportive relationships. Sibling caretaking which was viewed primarily positively both by the caretaking and looked after children, was found to be a common experience among the nine to 12–year-old children. Negative consequences of sibling caretaking included annoying, domination and abuse by siblings. Although over a quarter of the children's siblings were not living in the Same household, the majority of children perceived siblings to hold a special importance in their lives. Issues raised for parents and professionals concern the maintenance of relationships between siblings who do not live together; how to enhance the supportive aspects of sibling relationships, while offering protection against the negative aspects of sibling dichotomy; and facing the reality of sibling caretaking. Much more needs to be known about children's everyday experiences of growing up with their sisters and brothers, if we are to understand more fully the complexities of sibling relationships.