Serving the needs of immigrant families of children with autism

The growing influx of immigrant families into the USA necessitates an understanding of how these families manage mental health disorders. Few studies have documented the ways in which autism spectrum disorders (ASD) are understood across different immigrant groups. This lack of knowledge creates barriers for practitioners who are encountering immigrant families in their practice. The present paper provides a conceptual framework of how cultural values and beliefs shape the way diagnosis, etiology and treatment of ASD is perceived by both immigrant families and western practitioners and how differences in perspectives may create obstacles in treatment planning. A review of the literature describing practical and cultural barriers to mental health access and research among immigrant populations is also presented. Finally, recommendations are offered to practitioners, families and individuals with ASD to aid in increasing understanding and collaboration among these populations when designing and implementing treatment interventions.     

An Analysis of Verbal Stimulus Control in Intraverbal Behavior: Implications for Practice and Applied Research

A common characteristic of the language deficits experienced by children with autism (and other developmental disorders) is their failure to acquire a complex intraverbal repertoire. The difficulties with learning intraverbal behaviors may, in part, be related to the fact that the stimulus control for such behaviors usually involves highly complex verbal stimuli. The antecedent verbal control of intraverbal behavior may involve discriminative stimuli (i.e., discriminated operants), conditional stimulus control, and/or control by compound stimuli. Distinctions among these different types of antecedent control are presented, along with recommendations for intervention procedures that may facilitate the acquisition of intraverbal behavior.     

‘If I was a different ethnicity,would she treat me the same?’: Latino parents’ experiences obtaining autism services

This article reports on an ethnographic study with 12 Latino families of children on the autism spectrum related to obtaining autism services in Los Angeles County. Using critical discourse analysis of interviews, observations, and records, we consider the experiences of the Latino families in relation to: a discursively constructed ‘autism parent’ subject position that mandates ‘fighting’ service systems to ‘win’ autism services for children, originating from White middle-class parents’ socioeconomic resources and social capital; a neoliberal social services climate that assumes scarcity of available resources and prioritizes austerity in their authorization; and a media and institutional ‘cultural deficit’ discourse that attributes disparities in autism services for Latino children to their parents’ presumed culturally-based ‘passivity.’ We argue that parental discourse about fighting, or not fighting, for autism services is engendered by a tension between a parental logic of care, and the logic of competition of the economic market.     

Autism grows up: opportunities for adults with autism

A disability is a natural part of human experience that should not inhibit one’s ability to experience independence, equal opportunity and economic self‐sufficiency. It is not known how caregivers of adults with a specific disability, an autism spectrum disorder, would frame these opportunities for their children living in the USA. This survey explored the needs of 143 families supporting an adult with autism and the opportunities afforded them in socialization, employment and residential living. The results of the study indicated a lack of available support for caregivers and limited opportunities for their family member with autism in the areas of socialization, employment and residential living, especially for those most severely affected with autism. Implications for societal change are presented.     

The construction of communicative (in)competence in autism: a focus on methodological decisions

Research on people diagnosed with autism spectrum disorder (henceforth autism) is often based upon biomedical understanding. Such understanding tends to view the characteristics related to autism diagnosis, such as the lack of or atypical use of speech, as a sign of incompetence that can be reduced as an underlying pathology of an individual. However, little research has explicitly investigated how methodological decisions in research might influence the perception of these characteristics. This paper draws on two separate research cases involving minimally verbal children with autism to examine how methodological decisions in research design, data collection, data analysis, and data interpretation influence the construction of communicative (in)competence in these children. The paper encourages researchers to carefully consider and reflect on the methodological decisions they make throughout the research process.     

“From cause to cure”: A qualitative study on contemporary forms of mother blaming experienced by mothers of young children with autism spectrum disorder

ABSTRACT

In the past, the behaviours and personalities of mothers have been identified as potential causes of autism. More recently, other etiological hypotheses have been used to explain autism spectrum disorder, suggesting that this specific type of mother-blaming is now uncommon. However, some authors have pointed out that mothers are still being held responsible for their children’s condition and behaviours, as they are now expected to extensively promote their children’s development. The present article explores contemporary forms of mother-blaming experienced by thirteen mothers of children with autism spectrum disorder. The results are discussed in relation to the consequences of mother-blaming, such as social isolation and health related problems. It is hoped that this article will encourage social workers and professionals to understand the mothers’ perspectives and to recognize the importance of supporting them without generating or increasing mother-blaming.     

Validating difference and counting the cost of exclusion in the lives of people who identify as on the autistic spectrum

This current issues piece will explore how autobiographies written by people with autism can help identify sensory processing differences that might be viewed as possible attributes in an enabling society, but for which ableist perceptions are often negative. In concrete terms, these constructions may be preventing people from entering employment and making an economic contribution. The first autobiography written by someone who identified as being on the autism spectrum was by David Eastham in 1985. Since then, over 50 such books have been published. The emergence of such autobiographies challenges assumptions about what it is to be on the autism spectrum. It was often assumed people with autism were incapable of such social communication, as autobiographies assume abilities such as self-awareness, imagination and the ability and desire to communicate. These were all traits that were thought to be absent in someone diagnosed with autism. Consequently, the presence of these autobiographies destabilises and questions the dichotomy that was set up between what constitutes ‘normal’ and ‘abnormal’ behaviour.     

Vocal Coordination During Early Parent–Infant Interactions Predicts Language Outcome in Infant Siblings of Children with Autism Spectrum Disorder

This study examined vocal coordination during mother–infant interactions in the infant siblings (high‐risk infants; HR) of children with autism spectrum disorder (ASD), a population at heightened risk for developing language delays (LDs). Vocal coordination between mothers and HR infants was compared to a group of low‐risk (LR; no first‐ or second‐degree relative with ASD) dyads and used to predict later language development. Nine‐month‐old infants were video‐taped at home playing with their mothers, and interactions were coded for the frequency and timing of vocalizations. Percent infant simultaneous speech was predictive of later LD, and dyads with LD infants were less coordinated with one another in average latency to respond than dyads with non‐delayed (ND) infants. The degree of coordination between mothers and infants on this variable predicted a continuous measure of language development in the third year. This research underscores the importance of understanding early development in the context of interaction.     

Marriage and family therapists working with couples who have children with autism

Current research about families and couples who have children with autism is discussed using the Double ABCX model as a guide. A case study is presented along with recommendations for therapists who work with couples who have children with autism. Marriage and family therapists are encouraged to use the Double ABCX model as both an assessment tool as well as for intervention. More research and effective therapists in this area are needed in order to keep up with the rising rates of families that include children diagnosed with autism.     

An assessment of self-echoic behavior in young children

In the behavioral literature, self-echoic behavior has been hypothesized to play an important role in, for example, emergent conditional discriminations (e.g., Lowenkron, 1991), emergent verbal operants (Horne & Lowe, 1996), and problem solving (Skinner, 1957). Although early behavioral intervention programs for children with autism emphasize the establishment of accurate echoic repertoires, the type of stimulus control that defines a self-echoic response is typically not addressed. We report the development of a self-echoic assessment procedure that was administered to children with and without autism spectrum disorders. Preliminary results indicated that a discrepancy between echoic and self-echoic repertoires was more likely to be present among participants with autism than among typically developing participants. Future research should evaluate the extent to which interventions to establish self-echoic responding might produce other collateral benefits.     

Reconstructing Moral Identities in Memories of Childhood Language Brokering Experiences

Language brokering is a common phenomenon, whereby children of immigrant parents mediate both verbally and with written documents between their parents and other different language speakers or writers, converting meanings in one language into meanings in another. This paper explores some of the moral identities – the interplay between moral ideals and individuals' personal identities – adults construct from their memories of their activities as child language brokers. Qualitative research on adults who were, and to a large extent still are, language brokers for their parents, found that in the context of parent‐teacher meetings, some individuals recast their behaviours in a manner that rendered themselves as good, honest, ethical and well‐behaved students. This paper argues that the moral identities individuals construct from memories of their childhood experiences have social and cultural dimensions, and are contingent upon the context and the situation. The paper also has policy implications with regards to the status of the child, and the relationship of that status to cultural context and expectation, given that the circumstances of their lives cannot be removed. Regarding policy, this research could inform practitioners, schools, and the general public about the impact of language brokering experiences on children, and may help in some way to alleviate the stress/burdens associated with language brokering. Additionally, it could bring about increasing understanding of how people establish identities based on their lived experiences.     

Teaching Children With Autism Spectrum Disorder to Mand “Why?”

The Analysis of Verbal Behavior - For most children with autism spectrum disorder (ASD), manding for information is an important skill that must be systematically taught. Although previous studies...     

Factors That May Influence Parent Treatment Decision Making for Young Children with Autism Spectrum Disorder

ABSTRACT

The number of interventions available for children with autism spectrum disorder (ASD) has expanded greatly in recent years, although relatively little is known about the factors that influence family caregivers as they make treatment decisions for their children. This study involved a statewide survey of parents of young children with ASD to examine the relative weights of the factors that influenced their treatment decisions. Results suggested that caregivers rely on their own intuition for much decision making, although selected professionals are also influential. Implications for professionals working with children with ASD and their families are discussed.     

Quirky kids: fathers’ stories of embracing diversity and dismantling expectations for normative play with their children with autism spectrum disorder

Abstract

Anchored in critical disability studies, we used a narrative methodology to study fathers’ stories of play interactions with their children with autism spectrum disorder (ASD). Three narratives convey how father–child interactions unfold and how patterns of interaction respond to, redefine and resist societal norms. Narratives of action demonstrate fathers’ responses to societal norms, while narratives of adjustment depict how fathers have redefined expectations of their children in the context of play. Narratives of acceptance demonstrate fathers’ attunement to, and acceptance of, their children’s preferred play interests and a resistance to play norms. We argue that fathers’ stories represent a step towards emancipating play for children with ASD in that fathers’ appreciation of their children’s quirky play accentuates the relational and social capabilities of children, thus countering deficit interpretations of the abilities of children with autism more broadly.     

Is a Reasonable Attempt Reasonable? Shaping Versus Reinforcing Verbal Attempts of Preschoolers with Autism

The effectiveness of a language-training procedure that emphasized reinforcing vocal “reasonable attempts” (any response directed at an interventionist and within a broader class of correct responses) was compared with a procedure that emphasized shaping (reinforcing successive approximations that more closely resembled the target vocalization). Three preschoolers who had been diagnosed with autism spectrum disorders participated in the study. Data indicated that the children mastered vocal skills more rapidly when they learned through shaping than in the reasonable attempts condition. Implications for teaching children with autism spectrum disorders are discussed.     

Reconceptualizing Autism: An Alternative Paradigm for Social Work Practice

Autism is a complex, often misunderstood condition. More than a neurological disorder, autism can also be viewed as a different cognitive style or an alternative way of perceiving and reacting to the world. As more individuals on the autism spectrum are making themselves known, social workers must be open to using new paradigms to meet the needs of this unique population. This article explores how horizontal diversity and neurodiversity can be used to expand the ways social workers conceptualize autism and, consequently, how they work with persons on the autism spectrum and their families.     

Acquisition of Mands,Tacts, and Intraverbals Through Sign Exposure in an Individual With Autism

Many children with autism communicate through the use of alternative communication systems, such as sign language. Limited research has been conducted on the situations under which sign language will be acquired across verbal operants without direct teaching. The purpose of the current study was to evaluate exposure to sign language on the acquisition of signed mands, tacts, and intraverbals in a male child with autism. Results indicated fast acquisition of mands, tacts, and intraverbals without direct teaching. Results are discussed in the context of future research investigating exposure without direct teaching in individuals who communicate with alternative communication systems.     

Does public relations scholarship need better PR? practitioners’ perspectives on academic research

Articles in academic public relations journals often provide recommendations for public relations practitioners. The purpose of this study is to gain a practitioner perspective on that work and to determine if a potential disconnect between public relations practitioners and scholars exists. Through semi-structured, in-depth interviews with 22 public relations practitioners, this study examines knowledge, readership, and applicability of public relations scholarship in industry. Participants indicated they have a general awareness of and assigned value to academic scholarship; however, they do not actively consider it or use it in their professional lives due to issues of access, time, and relevance. Many appeals have been made within the academy to make scholars’ work more “public,” and these results reflect this need. Based on these findings, recommendations are made to increase the accessibility and relevance of scholarly work for professionals.