Assessing the Barriers to Achieving Genuine Housing Choice for Adults with a Learning Disability: The Views of Family Carers and Professionals

It has been reported that the capability of adults with a learningdisability to choose their housing is too often impeded by theviews and actions of their family carers and involved professionals(McGlaughlin and Gorfin, with Saul, in press). This study furtherexplores these apparent barriers to providing genuine housingchoice for adults with learning disabilities. It discusses findingsfrom a series of focus groups which explored family and professionalviews about housing and choice. The views expressed indicatethat risk is a fundamental concern for both professionals andfamilies when considering more independent housing for thisgroup. Although opportunities for choice were generally supported,many argued for the need to assess the ability to make informeddecisions. There were also examples of problematic relationshipsbetween professionals and carers, creating a barrier to choice.Carers need involvement, information and support during thedevelopment of housing plans if the needs of the primary serviceusersare to be met. The barriers identified have to be removed ifservice-users are to truly become the focus of decisions andbe enabled to make genuine informed choices.     

Older Carers of Adults with a Learning Disability Confront the Future: Issues and Preferences in Planning

The Valuing People White Paper (Department of Health, 2001)requires services to secure a plan for all service-users withlearning disabilities living with older carers and promisesthem and their families more choice and control over how andwhere they live. This paper examines the views of the oldercarers (aged over seventy) of sixty-two adults with a learningdisability about planning for the future. Fifty-six took partin interviews in their own homes and six completed a questionnaire.All carers were white and recruited from one local authorityin response to the requirements of the White Paper. Findingsindicate that a significant proportion (thirty-four—55per cent) is either not ready or is unwilling to make futureplans. Barriers to planning include a perceived lack of needdue to the existence of two carers, a lack of awareness of timescalesinvolved in securing housing, difficulties in letting go, alack of confidence in available housing options, and the existenceof mutually supportive relationships. The findings show a needfor a proactive approach to information and support provisionto enable these families to work through a process of makingplans for the future. This is essential to prevent the needfor emergency placements in response to crisis and in turn toensure that adults with learning disabilities have genuine choiceand involvement in how and where they live.     

Carers of People with Learning Disabilities, and their Experience of the 1995 Carers Act

Summary This paper seeks to highlight the impact of the Carers (Recognitionand Services) Act of 1995 on carers of people with learningdisabilities. It draws on research conducted in the south westbetween 1997 and 1999, which examined the views and experiencesof carers who had an assessment of their needs, together withthose of the person they care for and the professional conductingthe assessment. It concludes that the Carers Act is not widelyused, or understood, by this group of carers. Recommendationsfor improving practice include changes to the current terminology,new triggers for a carer's needs assessment, and a greater inputfrom other agencies, especially health services. Although thecurrent paper focuses on the views and experiences of carers,an exploration of the Carers Act, and its effect on potentialconflicts of interest with the person with learning disabilities,is available elsewhere (Williams and Robinson, 2001).     

Adults with a Learning Disability Living with Elderly Carers Talk about Planning for the Future: Aspirations and Concerns

The majority of adults with a learning disability live withfamily carers, many of whom are ageing and have support needsof their own. Planning for the future thus becomes the key topreventing a crisis situation when family care is no longerviable because of death or ill health. Existing knowledge andpractice are largely based upon the perspective of professionalsand carers. This study explores the views, aspirations and concernsof adults with a learning disability, about living at home andplanning for the future. Findings show that participants werevery aware of the need for alternative housing or support inthe future and had clear preferences about their future options.However, they also showed extensive concern for their familycarers and this often impacted on their willingness to planfor the future or to move to alternative housing. Their demonstrableawareness of the inevitable death or ill health of family carers,and willingness to engage with the implications, emphasize theimportance of involving adults with a learning disability inplanning for their future, as well as providing them with bereavementsupport.     

A Comparison of the Lifetime Economic Prospects of Women Informal Carers and Non‐carers,Australia, 2007

Informal care provided at home to family members with a disability is a major part of the disability and aged care system in Australia. Using data from the 2007 Household Income and Labour Dynamics in Australia survey, this study provides an updated comparison of the financial wellbeing, or lack thereof, over the working life of women primary carers and non‐carers. This study focuses on selected groups of primary carers and non‐carers disaggregated by partnership status, level of education and self‐assessed health status. While women primary carers tend to be more financially disadvantaged than non‐carers, having a post‐school education and being in good health contribute positively to bridge the gaps.     

Support for Carers of Older People: The Roles of the Public and Voluntary Sectors in Sweden

This study examines the support services offered to informal caregivers, whether directly or indirectly, in Sweden over the period of a special investment initiative between 1999 and 2001. Data were collected in a Swedish county using two separate mail questionnaires in 1999 and 2001. The first questionnaire was addressed to each municipality in the region. The second questionnaire was sent to a random sample of voluntary organizations in the area. The findings showed that only the municipalities provided direct forms of relief service, day care and financial support. The voluntary organizations’ support for carers focused on support groups and training as well as services for older care users themselves. There was a significant increase between 1999 and 2001 in the number of municipalities providing information material and training for carers and using professional caregiver consultants. On the one hand, the Swedish public social care system appears to be following the international pattern in paying more attention to informal caregivers and investing in support services for them. On the other hand the findings did not show any growth in support provided by the voluntary organizations. Here Swedish welfare is dissimilar to other European countries, where it is increasingly common for voluntary organizations to play an important role as providers of support for carers.     

Social Exclusion, Poverty, Health and Social Care in Tower Hamlets: The Perspectives of Families on the Impact of the Family Support Service

to Ben Gray, 6B Park Road, Wivenhoe, Essex CO7 9NB, UK. Summary This paper describes the work of the Family Welfare Association's(FWA's) Tower Hamlets Family Support Services projects (FSSs).Tower Hamlets is a multiracial area in East London, which accordingto the 1991 census has high levels of poverty, overcrowdingand unemployment. Increasing poverty and social exclusion, whichfurther entrench inequalities in health, are reported by sourcessuch as Government, health and social services departments asrequiring innovative local responses to meet pressing welfareneeds. Innovative projects are especially urgent with vulnerablefamilies whose experiences of racism, bullying, mental healthdifficulties, domestic violence and child abuse are the rulerather than the exception. In common with other initiativesin the United Kingdom and abroad, the FSS aims to be non-stigmatizing,non-intrusive and responsive to the ethnicity, views and specificneeds of families. The paper focuses on the FSS's participatorywork with families to illustrate effective methods of qualitysupport, detail outcomes and draw lessons for policy and practice.     

Family Support of the Aged: Some Evidence and Interpretation

This paper brings together a range of Australian material concerning family support for the aged. From a review of studies dealing with the family structure of the aged and accounts of inter generational contact and supportive exchanges within families, including migrant families, considerable evidence of family support is found. The implications of the absence of such support are seen from data on the use of services and admissions to institutional care; the preventive effect of marriage and family is apparent, those aged without family being identified as most at risk. Reasons for the commonly held view of family breakdown are then examined and some suggestions for service development outlined.     

提高学习支持服务水平:意义、内容与实现路径

学习支持服务是远程教育的重要支柱之一,提高学习支持服务水平是适应远程学习者个性化学习、推进开放大学综合改革发展的需要,也是在线教育成功与否的关键.构建聚焦学习需求、注重学习交互、强调学习体验、增强学习效能、改善学习效果的高质量学习支持服务体系,开放大学应以立德树人为根本,落实"以学习者为中心"的理念,推进学习支持服务供给创新,统筹学习支持服务要素协调发展,优化学习支持服务环境建设,构建学习支持服务共享机制.     

Perception of Parental Reciprocity Scale (POPRS): Development and Validation with Adolescents and Young Adults

The present paper describes the development of a new scale, the Perception of Parental Reciprocity Scale (POPRS), and research findings obtained with this instrument. Based on Youniss' (1980) theory, this scale assesses the extent of perceived mutual reciprocity in adolescents'/young adults' relations with their parents. An initial pool of 51 items was administered to 141 unmarried undergraduates along with measures of self-esteem, locus of control, and consultant choice to indicate construct validity. Item analyses and reliability procedures produced a 43-item scale. A second study of 1602 students between the ages of 13 and 25 examined further issues: cross-replication, cross-validation, reliability with young adolescents, reliability over time, criterion and construct validity, and age-related differences in scores. In addition to POPRS and the scales used in Study 1, measures included three global statements, attachment to parents, attitude to private personal authority, and scores on an open-ended interview. Results from both studies demonstrated high reliability, and construct and criterion validity. Furthermore, a significant age effect supports Youniss' theory of a developmental transformation in parent-child relations beginning in late adolescence and continuing in early adulthood.     

中国与南亚地区主义:以南亚区域合作联盟为例

本文主要解读南亚在中国地区战略中的地位,包括中国在南亚的利益和目标,分析中国成为南亚区域合作联盟观察员国的背景和意义,探讨中国与南亚区域合作联盟关系中未来可能遇到的挑战和加强合作的途径和方法.     

Secondary Traumatic Stress of Service Providers who Practice with Survivors of Family or Sexual Violence: A National Survey of Social Workers

Past research demonstrates that professionals helping survivors of family violence or sexual assault are at risk of experiencing secondary traumatic stress. Although social workers frequently provide services to these families, the risk of exhibiting secondary traumatic stress symptoms has rarely been investigated. Using a national sample (N >= 154), this research project examines the prevalence and severity of secondary traumatic stress among social workers who assist survivors of family violence or sexual assault. Implications for social work practice are also discussed.     

Social Support,Retirement Resources,and the Gendered Experiences of Aging for Tunisian Older Adults

Cultural context plays an important role in the experience of aging. The country of Tunisia is of particular interest because limited studies on aging have been done in the past decade. The study examined data collected from Tunisian older adults in an attempt to gain additional information about their experience aging in this culture. The purpose of this study was to identify key information tied to social policy factors that have the potential to impact older adults living in Tunisia. From June to July 2017, semi-structured interviews were completed with 60 older adults covering topics about family history, daily activities, health and health satisfaction, retirement benefits and satisfaction, medical coverage, social support, service availability, feelings of growing older, as well as advice provided to younger adults. Findings include gender differences in retirement resources and benefits, sources of support, and older adults’ self-reported desires for the future. This work adds to the growing body of literature concerning differences in global aging and provides greater awareness of aging in the distinctive context of Tunisia. Additional work should seek to deepen the investigation of the various social policies that impact the Tunisian older adult.     

The Role of Heritage Language Development in the Ethnic Identity and Family Relationships of Adolescents from Immigrant Backgrounds

The influence of immigrant-background adolescents' heritage language (HL) proficiency and use of the language on parent–adolescent relationships and ethnic identity was investigated in a sample of 414 adolescents from Latin American and Asian backgrounds. HL proficiency, but not language use, was positively associated with the quality of parent–adolescent relationships. Although HL proficiency and language use were both associated with ethnic identity, when taken together, only HL proficiency was a reliable predictor. These findings indicate that it is the development of proficiency in the HL that influences adolescents' successful adjustment, rather than their choice of languages. It is therefore important to support HL development in order to help immigrant-background students to better cope with the stresses of adolescence.     

Early Life Stress: Effects on the Regulation of Anxiety Expression in Children and Adolescents

This study examined children's (N = 79; 9–10 years) and adolescents’ (N = 82; 15–16 years) ability to regulate their emotion expressions of anxiety as they completed a modified version of the Trier Social Stress Test for Children (TSST‐C). Approximately half in each age group were internationally adopted from institutional care (N = 79) and half were non‐adopted, age‐matched peers (N = 82). Institutional care was viewed as a form of early life stress. Coders who were reliable and blind to group status watched videos of the session to assess anxiety expressions using the Child and Adolescent Stress and Emotion Scale developed for this study. Children exhibited more expressions of anxiety than adolescents, and youth adopted from institutions showed more expressions of anxiety than their non‐adopted counterparts. The role of early life stress on observed anxiety expressions remained significant after controlling for differences in age, physiological stress responses measured through salivary cortisol reactivity, and self‐reports of stress during the TSST‐C. This suggests possible deficits in the regulation of expressive behavior for youth with early life stress histories, which cannot be explained by experiencing the task as more stressful.     

Social Support and its Correlation with Loneliness and Subjective Well-being: A Cross-cultural Study of Older Nepalese Adults

Population aging in Nepal is a recent phenomenon, due more to demographic changes than to socio-economic development. The study had three goals: to analyze the social support exchange among elderly men and women; to discover the main sources of support in loneliness and subjective well-being in the elderly; and to study the cross-cultural differences in support among elderly Chhetri ( N  = 137, mean age = 69.1 [7.2] years) and Newar people ( N  = 195, mean age = 68.8 [7.7] years) in one ward in Kathmandu. The data were collected using face-to-face interviews. The dependent variables were loneliness and subjective well-being (SWB). The results for both ethnic Chhetri and Newar respondents show that their major support comes from their children living in the same household and their spouses. I conclude that the sources of social support and social support exchange are similar between the two castes/ethnicities and that there are no cross-cultural differences between them in terms of support for loneliness and SWB-life stability, although there are cross-cultural differences in their SWB-life satisfaction. Providing social support to friends and neighbors appears to be related to less loneliness and increased SWB in both castes/ethnicities.