Overprotection and lowered expectations of persons with disabilities: the unforeseen consequences

Lowered expectations and overprotection of the individual with a disability can cause lowered self esteem which can result in a life time of underachievement and failure to reach their full potential. Both lowered expectations and overprotection are forms of discrimination. Internalization of discrimination causes the person with a disability to believe that they are less capable than a person without a disability. Parents and care providers of children with disabilities may overprotect the child to shield them from harm; however this can actually cause more damage. Successful parenting skills are required to help children and adolescents develop a positive self concept and high self esteem. Guidelines have been developed to assist parents, educators and other professionals regarding the effects of overprotection and lowered expectations.     

Examining the trajectories of children providing care for adults in rural Kenya: Implications for service delivery

Research on caregiving children tends to be limited to children's caregiving experiences of parents with a specific disease or disability. This has led to a common perception that children's caregiving is a single, uniform and often long-term experience. Whilst this is most certainly the case for many children in economically more advanced countries, this may not hold true in rural Africa, where poverty and AIDS can have significant knock-on effects on entire families and communities. This paper seeks to develop a more complex understanding of children's caring experiences by asking children whom they have cared for over time and explore the different pathways that lead to their caregiving at different stages of their lives. The study reports on qualitative data collected from 48 caregiving children and 10 adults in the Bondo district of western Kenya in 2007. A multi-method approach was adapted, with historical profiles, Photovoice and draw-and-write essays complementing 34 individual interviews and 2 group discussions. A thematic network analysis revealed that children's caregiving was not confined to a single experience. Children were observed to provide care for a number of different family and community members for varying periods of time and intensities. Although their living arrangements and life circumstances often gave them little choice but to care, a social recognition of children's capacity to provide care for fragile adults, helped the children construct an identity, which both children and adults drew on to rationalise children's continued and multiple caring experiences. The study concludes that agencies and community members looking to support caregiving children need to consider their care trajectories — including whom they care for as well as the order, intensity, location and duration of their past and likely future caring responsibilities.     

‘My grandchild has a disability’: Impact on grandparenting identity, roles and relationships

Being a grandparent is an important and valued role for many older adults, who often have strong views about the type of grandparent they will be and what they will teach their grandchild. When their grandchild has a disability, grandparents may have to significantly adjust their expectations and interactions. This research explores if and how having a grandchild with a disability influences grandparents' sense of identity and enactment of the grandparent role. Using qualitative purposive sampling, semi-structured interviews were conducted with 22 grandparents of children with an intellectual and/or physical disability residing in Brisbane, Australia. A thematic analysis identified three key themes characterising grandparent's views: formation of grandparenting identity, styles of grandparenting, and role enactment. The results highlight the critical role of grandparents when a child has a disability, illustrating that the grandparenting experience and role enactment may be universal with only the context and delivery varying.     

RACE AND THE EDUCATIONAL EXPECTATIONS OF PARENTS AND CHILDREN: The Case of South Africa

South Africa, a country that is highly stratified by race, is an important location for studying the relationship between race and educational expectations. Using a longitudinal data set, we examine the educational expectations of black (African), colored (mixed race), and white (European ancestry) parents and children in Cape Town, South Africa. We find that parents and children have high educational expectations regardless of race, but black parents and children have higher educational expectations than coloreds and whites once socioeconomic and other factors are controlled. We also find that parents' and children's expectations tend to agree more and are more closely correlated among coloreds and whites than blacks. We test two explanations for the educational expectations of parents and children, finding more support for the status attainment perspective among coloreds and whites than blacks and support for the family social capital perspective among blacks and coloreds only.     

Disability and Discrimination in Statutory Child Protection Proceedings

Families headed by parents with intellectual disability [1] are among the most vulnerable in the community. Poverty, social isolation and the lack of adequate support services all threaten their well-being. People with intellectual disability who are parents must also contend with out-of-the-ordinary treatment in statutory child protection proceedings. Legal scholars writing mainly in the North American context cite cases in which the children of these parents have been removed despite lack of evidence of abuse or neglect, or when evidence was refuted or, indeed, even when the parent was shown to be providing adequate care. In cases of substantiated abuse and/or neglect, support has not been given to the parent or parents before their children were removed. In this paper, we describe these discriminatory actions and discuss the political, social and institutional conditions that have lead to such extreme consequences for people with intellectual disability who also happen to be parents.     

Parental attitudes towards education: What matters for children's well-being?

This study explores the potential influence of parental attitudes towards education on their children's daily life and their development in Korea. Qualitative methodologies were used; semi-structured in-depth interviews with 34 participants. The findings suggest that the desire of the parents for the educational success of their children is profound and it has a huge impact on their actual behavior towards their children. Although there was a contrast between what parents should want and the underlying preoccupying concern, all of the parents placed great importance on their children's academic achievement as a means to acquire personal advancement, higher social status, and wealth. The children's developmental needs for leisure, pleasure, and sleeping are overlooked. Their psychological and emotional well-being tends to be ignored. Focusing on the best interests of children is going too far for some in Korean society. This study concludes that behind the idea of well-being of children and fulfilling each child's potential must lie fundamental values concerning the needs, interests and welfare of children. This must be put at the heart of our policies and practices.     

Parents with a Learning Disability: research issues and informed practice

This paper commences with an examination of the concept of parenting and then applies its findings to parents who have a learning disability. It is argued that views on parenting, drawn from mainstream developmental psychology from parents who do not have a learning disability can inform our thinking about parents who do have a learning disability and provide an agenda for future research. In particular, we look at skills-based approaches to parenting, parenting as a motivated activity, cultural and historical factors influencing parenting, and lay views on children and childhood. The conclusion was reached that, although an audit of what people with a learning disability believe and expect about children is valuable research, the critical issue is how this knowledge is applied in parenting practice.     

The negotiation of minority ethnic identities in virtually all-white communities: research with children and their families in the South Wales valleys

This paper draws on qualitative interviews with 19 children and nine of their parents or carers in the South Wales valleys to discuss the effect on the social identities of minority ethnic children of living in virtually all-white communities. There is discussion of minority ethnic identities, local identities and Welshness, and the paper concludes with consideration of the theoretical and policy implications of the research. Interviews with the children showed them to be using a variety of creative strategies to negotiate their identities in a challenging and highly racialised context. Diverse individual histories and family relationships interact with available minority cultural identities and local and national cultural influences. The children have to construct their own identities in the context of dominant discourses of ‘Wales’ and ‘Welshness’ and also class-based notions of what it means to come from this particular region. Some maintain minority ethnic identities with pride and for others the maintenance of a minority ethnic identity is put under extreme pressure.     

Beyond the depleting model of parenting: narratives of childrearing and change

A great deal of scholarship investigates the effects of parenting on adults who parent. While existing literature has identified the ways in which parenting affects parents adversely, we argue that more attention needs to be paid to how having children may enhance parents’ lives. Thus, we draw upon twenty-four in-depth interviews with young parents in order to investigate this process. First, we identify five ways in which parents say caregiving has changed their worldviews, relationships, and expectations, leading them to 1) erect barriers, 2) aspire for more, 3) view parenthood as a second chance, 4) hew a new path, and 5) make connections. Second, we uncover two central metaphors that parents rely on to explain the effect that having responsibility for children has had on their lives: the child as witness and the child as tether. We also point to future areas of investigation, arguing that only with an adequate understanding of what parenting does to parents can we understand what changing trends in families and inequality hold for ourselves and our futures.     

“They will go like I did”: How parents think about college for their young children in the context of rising costs

Rising college costs and student loan burdens have triggered national debates about whether a college degree is “worth it.” Parents raising children in the midst of these debates may be evaluating the value of a college degree relative to its costs and adjusting their educational expectations for their children, shaping future generations' socialization toward college. In this context, it is unclear how theoretical models on college attendance decision-making perform in explaining parents' thoughts about college for their children. This qualitative study elicited early perspectives on college through in-depth interviews with 37 parents of kindergarten children from one school district in a mid-sized, Midwestern city. Almost unanimously, lower-income parents with some college education saw a college degree as a catalyst of their children's upward mobility, though very few thought they could help their children afford college. Higher-income parents more often expressed doubts about pursuing a college degree or the value of that degree acquired with debt.     

Parent-perceived Attitudes of Professionals: Implications for Service Providers

While parents' reactions to a diagnosis of disability in their child have been well documented, less is known of parents' reactions to the professionals who provide the diagnostic and support services used by parents. This study identified four major parameters within which the attitudes of professionals are perceived by parents of children/teenagers diagnosed as intellectually disabled. Comments of the 131 mothers and fathers interviewed helped to shed light on what they have expected of service providers, and suggest adjustments that may need to be made by professionals to the attitudes they convey in interaction with parents.     

Nonverbal Maternal Warmth and Children's Locus of Control of Reinforcement

Previous research on antecedents of generalized control expectancies has indicated that parents of children with internal control expectancies express more warmth than parents of children with external control expectancies. However, few studies have utilized observational methodologies and no study has identified a specific mechanism by which parental warmth may contribute to differences in children's control expectancies. In addition, no study has examined whether individual differences in children's behavior are associated with differences in parental warmth. We tested the hypothesis that mothers of internally and externally controlled children would differ in their expression of nonverbal behavioral indicators of warmth. To test the hypothesis, the interactions of 50 second-grade children and their mothers were videotaped. Compared to mothers of externally controlled children, mothers of internally controlled children displayed more smiles, exhibited more positive touches (hugs, pats, rubs), and gazed for longer periods of time toward their child. Analyses of the children's behavior revealed that internally controlled children displayed more smiles and engaged in less off-task behavior than externally controlled children. Results of the current study further clarify the nature of the association between parental warmth and children's generalized control expectancies and suggest nonverbal behavior as a possible mechanism.     

Children's experiences of disability: pointers to a social model of childhood disability

The social model of disability has paid little attention to disabled children, with few attempts to explore how far it provides an adequate explanatory framework for their experiences. This paper reports findings from a two-year study exploring the lived experiences of 26 disabled children aged 7-15. They experienced disability in four ways—in terms of impairment, difference, other people's behaviour towards them, and material barriers. Most young people presented themselves as similar to non-disabled children: it is suggested they may have lacked a positive language with which to discuss difference. It is further argued that Thomas's (1999) social relational model of disability can help inform understandings of children's experiences, with 'barriers to being' having particular significance.     

Parent presence and gender‐typicalness of educational choice1

Given parental influence on children's educational choices, new family constellations may impact on sex segregation in school and thus in the labour market. This paper addresses the question of what consequence father absence and stepfather presence may have for choice of the male‐dominated natural science/technology (NT) programme in Swedish upper secondary school. The data include register information on all pupils who attended the ninth grade of the Swedish compulsory school in 1998 and 1999 and their parents (n = 73,824). While children in mother‐only households are less likely to choose the NT programme compared with children residing with two original parents, this is accounted for by differences in socioeconomic conditions and in grade sum. Fathers, like mothers, also have a more direct influence on children's educational choices of field of study via their own education and occupation. However, what has not been noted in previous research is that this also applies to ‘absent’ fathers and, for boys, to stepfathers as well.     

Theory,practice, and perspectives: Disability Studies and parenting children with disabilities

Abstract

In this process-oriented article, the authors weave short personal narratives with theoretical reflections to examine the relationship between Disability Studies scholarship and parenting children with disabilities. The authors present three findings: first, their position as parent-teacher-scholars informs their work in Disability Studies. Second, the work of Disability Studies scholars has the potential to positively influence parents’ understandings of disability; consequently, Disability Studies-informed parenting can influence parent advocacy for their children. Third, parent-scholars have the potential to create research that can positively impact parents, practitioners, and the field of Disability Studies. The authors conclude by arguing that there is a need for Disability Studies scholarship for and by parents. This work is significant because it challenges divisions between theory and practice, and articulates a need and responsibility for parents to grapple with alternative understandings of disability and alternative (collective) ways to create better social conditions for their children.     

“Parent Advocacy” as an Ideological Code: LGBTQ Parents Engage with Disability Services

What does the work that LGBTQ parents do to find resources for their disabled children reveal about the social organization of services? This article presents findings from an institutional ethnography study based on interviews with 15 lesbian, gay, bisexual, transgender, and/or queer (LGBTQ) parents and six key community informants in Toronto, Canada. The analysis focused on the work parents did to engage with disability service systems on behalf of their children, and the ways in which families’ social privilege and/or marginalization affected their experiences. Particular attention was paid to the ways in which “parent advocacy” was taken up, responded to, and critiqued in these interviews. “Parent advocacy” was found to operate as what Dorothy Smith has called an “ideological code” (Smith 1999), offloading systemic responsibilities onto parents, shielding inequities, and promoting individualized competition between service users. This study suggests that the systemic organization that makes “parent advocacy” necessary also renders parents’ relative privilege or marginality central to what their children receive.     

‘Chocolate … makes you autism’: impairment,disability and childhood identities

This paper discusses perceptions and experiences of impairment and disability from the perspectives of learning disabled children, their parents and their social workers. The author reports on findings from her doctoral study that adults often fail to take into account the views and experiences of learning disabled children. As a result, these children developed their own interpretations of impairment and disability based on their experiences and interactions with others. Whilst this indicates that they are active social interpreters, it also suggests that adults should make greater efforts to inform and consult learning disabled children. The author concludes by reflecting on the relevance of these findings to contemporary theories of disability and childhood.     

Helping Out the Kids: Expectations About Parental Support in Young Adulthood

This paper examines the expectations of very young adults (age 18) and their mothers about financial support that parents might provide under a variety of situations common in young adulthood. Using representative data from women and one of their children, we examine differences in expectations between mothers and children and model variation in these expectations. We find that a lower proportion of mothers expect to provide support than their children expect them to, with particularly large gaps between mothers and sons. Further, there are substantial differences in support priorities. Many mothers would support only a married child and others only an unmarried one; similarly, some mothers would support only an unmarried child at home, whereas many others would only support a child away. Although some of these differences reflect differences in resources, most suggest disagreements and confusion about Americans' family values.     

Exploring issues of children as actors in social research

In recent years, there has been an increasing focus among childhood researchers on the concept of children's agency, or children as social actors, within research. The argument for the focus on children as ‘agents’ has commonly critiqued an earlier dominant tradition of research, whereby children had been positioned as passive objects of investigation, with their capacity for social agency largely ignored.This paper provides a theoretical and methodological exploration of the concept of children's agency in the research process. The authors outline conceptual developments that have contributed to the increased focus on children's agency and discuss how this focus has influenced research methods, both in terms of counting children in and researching collaboratively with them. Key elements of a methodological framework for promoting children's agency in collaborative research are outlined and some of the contextual obstacles to the implementation of this framework are discussed, in particular those encountered in attempting to ‘balance power relations’ between adults and children. The facilitation by adults of children themselves as researchers is identified as a possible way forward.The paper concludes with a brief discussion on the extent to which the acknowledgement of children's agency in research may lead to more inclusive policy practices.     

Cultural sensitivity in the delivery of disability services to children: A case study of Japanese education and socialization

This ethnographic study examined beliefs about disability and related socialization and educational practices at a Japanese elementary school. Disability is a universal issue affecting child welfare and educational systems around the world. Yet, relatively little sociocultural research has focused on non-Western children with disabilities. This limitation restricts our understanding of the extent to which and how cultures vary in their responses to disability, and the impact of these variations on children's development. Public schools in Japan recently implemented formal special education services for children with “developmental disabilities,” a new category used by educators to refer to “milder” difficulties in children's acquisition of social and academic skills, for example, learning disabilities, ADHD and Asperger's syndrome. This transition created a dilemma for educators: blending new requirements of providing individualized support with traditional Japanese socialization and educational practices of raising and educating children within peer groups. Participant observation, in-depth interviews, and longitudinal case studies of children with developmental disabilities addressed culturally- and developmentally-sensitive practices employed by educators. Educators were sensitive to stigma, involved peers in supporting one another, created home-like classrooms, guided children towards voluntary cooperation, and provided support and guidance to parents. Broad implications for the design of culturally-sensitive disability services are discussed.