Dissemination to research subjects: operationalizing investigator accountability

Recent articles have argued from principles of bioethics for the right of research subjects to receive the results of the studies in which they have participated. We argue that accountability is a powerful tool of meso-level analysis appropriate to reasoning about answerability in research ethics, and that it captures the responsibility of researchers to disseminate study results to research subjects. We offer the following features of the research situation as relevant to the manner of dissemination to study subject, in addition to factors already proposed in the literature (risk and impact on health outcome): (a) features of the research subject in relation to identity, personal investment, disease, and community; (b) characteristics of the research study and field of inquiry in relation to certainty and significance; and (c) relationships among the research subjects and the healthcare workers involved in their care and in the research.     

'My Mum and Dad said it Calms You Down': Children's Perceptions of Smoking as a Coping Strategy

While studies have shown that adults use smoking to deal with stress, little research has been carried out with children to explore their perceptions of smoking as a coping strategy. Qualitative questionnaire and interview data were generated with children aged 9–11 years. Participants perceived that adults smoked to relieve boredom and stress, and suggested that children might smoke for the same reasons. Children were more likely to know that adults smoked to deal with stress if they lived in a deprived area. Girls were more likely to believe that some children need to smoke as a coping strategy.     

Under One Roof: A Review of Research on Intergenerational Coresidence and Multigenerational Households in the United States

What motivates adult children, parents, and even grandchildren to live together? To answer this question, we review the sociological and social gerontological research on multigenerational households and families. We first provide a snapshot of multigenerational coresidence in the US and then discuss the primary theoretical perspectives used to explain these patterns: exchange theory, altruism, and norms and obligations. Structural conditions including economic crises tend to facilitate adult children moving in with parents (often with dependent children in tow), while spousal loss and declining health act as catalysts for parents moving in with adult children. Furthermore, economic struggles often facilitate the formation of grandparent-headed families where the middle generation parents may or may not be present. We suggest that the current economic recession and housing crises will have profound effects on multigenerational households and may also encourage more coresidence. Changes in social welfare policies, increases in coresident grandparenting, and changes in the racial and ethnic composition of the US also have implications for multigenerational households’ economic and social security.     

Longitudinal Trends of Religious Groups in Deregulated Taiwan: 1990 to 2009

Religious economies theory predicts that in a deregulated religious market, well‐organized religions will thrive, and loosely organized religions will struggle and decline in membership. This research (1) tests this hypothesis with representative sample data from Taiwan between 1990 and 2009; (2) contrary to religious economies theory, finds significant growth of folk religion in Taiwan; and (3) highlights the growth of religious commitment among Taiwanese Buddhism—evidenced by a decrease in the overall number of Buddhist adherents and an increase in the proportion of Buddhists who are formal converts. Additionally, neither significant growth in congregational religion nor organized, sectarian folk religion is detected in the analysis.     

Would rethinking learning disabilities benefit Kuwait?

Learning disabilities education in Kuwait grew from Kuwaiti’s wholesale importation of the Western, medical model of disability – a model basically incompatible with Kuwaiti culture. Conflicting factors include its problematic normal/abnormal binary, its assumption that the ‘deficit’ is located in the student and the segregation of students by label. As proponents of disability studies we investigate whether, and if so how, Arab educators at Kuwait’s only learning disabilities school talk about this incompatibility. Through focus group and individual, in‐depth conversational interviews we found that they acknowledged this tension, but that they dealt with it in more complex ways than we had anticipated: by compartmentalizing, accepting the imported model as the only alternative to overcrowded public education and subjugating their experiential awareness to that of the Western scientific model.     

Community councils as a medium for public participation: a case study in Grampian region

Planning authorities in Scotland are obliged to consult the public before finalising policies and proposals to be included in their development plans. Community councils are intended to operate as ‘the voice of a neighbourhood’ and this paper analyses an attempt by a regional planning authority to use community councils as a vehicle for consulting the public in the preparation of a structure plan for a rural area. The paper concludes that the attempt was unsuccessful because the community councils were not clear about the role they were expected to play; nor were they adequately prepared for their role. The authors believe, however, that the involvement of community councils has potential for promoting greater public participation in the preparation of development plans.