The changing face of the ‘good mother’: trends in research into families with a child with intellectual disability,and some concerns

This article reviews changing perspectives in recent social science research into families of children with intellectual disability. These latest trends emphasise family resilience, adaptation, and transformation, with the focus predominantly on mothers and their ability to psychologically adjust to their caring challenges. A concern is that by concentrating on the adaptive strategies of mothers, researchers risk minimising the socio-political dimensions of this experience. The theme of the ‘good mother’ figures strongly in this research, linked to the limiting socio-cultural narratives available to mothers of children with intellectual disability that, it is argued, may condone their continuing marginalisation.     

Integration and Cospecialization of Emerging Complementary Technologies by Startups

We analyze the market entry problem faced by startups that must integrate their service or product with one or more complementary technologies. The problem is especially challenging when the complementary technologies have uncertain cost reduction potentials. The entrepreneurship literature suggests that startups should pursue focused strategies for various reasons, including bounded rationality and budget constraints, but generally overlooks startups entering markets with complementary technologies. The advice for mature firms investing in complementary technologies is often to diversify investment across multiple complements to manage technological uncertainty. Given competing guidance, we seek to extend the entrepreneurship literature by modeling startups' entry decisions for markets in which complementary technologies exhibit strong learning effects. We find that, consistent with the extant entrepreneurship literature, startups generally achieve higher expected returns by channeling their integration investment to only one complementary technology. However, the mechanisms driving our results differ significantly by hinging on nonlinear feedback effects that occur when firms concentrate integration investment in only one complementary technology. Interestingly, this focused strategy often does not yield the highest market share or the lowest likelihood of bankruptcy. We characterize the situations under which each finding holds and describe the implications of these findings for theory, practice, and policy.     

Hopeless Cases: Queer Chronicities and Gertrude Stein’s “Melanctha”

ABSTRACT

For this contribution to the special issue on “Mapping Queer Bioethics,” the author offers a reflection on the nature of the literary, written word as the ethically fraught site of queer bioethics. By invoking the historical tendencies and tropes of the clinical case history alongside a seminal text by Gertrude Stein, the author at once asks if we should liberate a queer bioethics from biomedical discourse via mainstream narrative; or if we should see this strategy as unavoidably housed in narrative forms of storytelling because it echoes the tropes and stakes of the clinical, pathologized case history as regards queer sensibilities.     

Malthus in state space: Macro economic-demographic relations in English history, 1540 to 1870

. The history of preindustrial Europe provides an opportunity to examine the causes and consequences of population change at a macro level. However, serious statistical problems arise from the endogeneity of all observed variables in a Malthusian system (fertility, mortality, population size, and real wages), and from unobserved influences such as shifts in the demand for labor and variations in health. These problems have undermined both informal inference from the data and more complex econometric investigations. This paper takes a new statistical approach, finding the maximum likelihood estimate of a state space representation of the Malthusian system by repeated application of Kalman filter methods, using annual data from England, 1540 to 1870. The new estimates confirm some findings of the earlier literature and contradict others. Some variables are estimated for the first time. Implications are discussed for the interpretation of English economic-demographic history. Received: 3 January 2000/Accepted: 22 January 2001     

Modeling Quality-Adjusted Life Expectancy Loss Resulting from Tobacco use in the United States

Purpose  To describe the development of a model for estimating the effects of tobacco use upon Quality Adjusted Life Years (QALYs) and to estimate the impact of tobacco use on health outcomes for the United States (US) population using the model. Method  We obtained estimates of tobacco consumption from 6 years of the National Health Interview Survey (NHIS). In addition, NHIS data were used to impute the Quality of Well-Being (QWB) Scale using a new methodology known as QWBX1. The QWB places health status on a continuum ranging from death (0.0) to full functioning without symptoms (1.0). The method allows the adjustment of life expectancy for reduced quality of life associated with health conditions. NHIS data were matched to the National Death Index for 14,464 deaths occurring by December 31, 1997. The analysis is limited to adults between the ages of 18 and 70 years. Results  Quality of Well-Being scores were broken down by age and for six smoking categories: (1) non-smokers, (2) those who smoke 1–10 cigarettes per day, (3) 11–20 cigarettes per day, (4) 21–30 cigarettes per day, and (5) 31–40 cigarettes per day, and (6) 40 or greater cigarettes per day. There was a systematic relationship between current tobacco use and health-related quality of life at each point along the age spectrum and there was a clear and systematic separation of quality-adjusted life expectancy by number of cigarettes smoked per day. Teenagers who continue to smoke loose 3.5 QALYs between ages 18 and 70 in comparison to non-smokers. A greater portion in the loss in QALE is attributable to quality of life than to shorten life expectancy. Conclusions  The overall goal of Healthy People 2010 is to increase Years of Healthy Life (or QALE) in the United States. Each year, tobacco use results in hundreds of thousands of quality-adjusted life years lost. Combined models of morbidity and mortality incorporating a range of tobacco consumption levels are required to best represent the impact of tobacco use. Supported by a Grant 11RT-0243 from the Californian Tobacco Related Disease Research Program (TRDRP)     

Exploring environmental perceptions,behaviors and awareness: water and water pollution in South Africa

Understanding the relationships among perceptions, behaviors and awareness of environmental initiatives is important for both policy makers and social scientists. There is, however, limited consensus among scholars as to the reasons for differences and similarities among ethnic and socio-economic groups in their environmentally related attitudes and behaviors. South Africa, which has established a constitutional right to a safe environment, together with the presence of parallel first and third world populations, offers an unusual setting in which to examine these issues. Using the 2004 South African General Household Survey, the similarities and differences between African and non-African households with respect to the perceptions, behaviors and awareness of programs related to water and water pollution are examined. Africans and those with lower socio-economic status are more likely to perceive water pollution as a community problem; educational attainment is unrelated to this perception. In combination with perception of water pollution as a problem, education is positively related to taking action to treat water for drinking and food preparation. Awareness of a highly touted program to clear waterways of alien vegetation is strongly positively related to socio-economic status, and is much more common among non-Africans than Africans.     

Russia Faces Depopulation? Dynamics of Population Decline

Between 1992 and 1993 Russia's population declined, as it has in every succeeding year. This has been viewed as a population disaster, related to high adult male mortality and deterioration of the health care system. Some see a substantially depopulated Russia in the future. However, the prospect of long-term population decline is completely due to recent declines in fertility. High adult male mortality, although a cause of great concern, does not contribute to the chance of long-term population decline. Projections of the future population of Russia depend upon the exact fertility assumptions used. Based on the example of fertility in the United States in the Great Depression and the Baby Boom following World War II, the future depopulation of Russia is far from certain.     

Perceptual indicators of family well-being

A resource exchange theory for the development of perceptual indicators of quality of family life is presented with empirical evidence to test the theory. The theory specifies six classes of resources: love, status, services, information, goods and money, as necessary to maintain some level of life quality. The first three are the most dependent on the particular people involved in the exchange relationship and the interpersonal exchanges of these resources offer opportunities for highest levels of satisfaction. It was hypothesized (1) that feelings about the particularistic resources received from family would significantly contribute to family life satisfaction for men and women; (2) that the order of resource classes on the particularism dimension would correspond to the order of their effectiveness in contributing to family life satisfaction. Results of the study support the theoretical model and hypotheses and suggest that further research with respondents of differing life circumstances is needed. The need for indicators of quality of family life in quality of life research is emphasized.     

Family life quality: Theory and assessment in economically stressed farm families

The purposes of this paper are to (a) describe a resource exchange theory which outlines the dimensions of life quality (Foa and Foa, 1974), (b) present a multidimensional measure of personal evaluations of family life quality based on this theory, and (c) report the results of a two-stage study in which the scale was used. The scale includes items representing love, status, services, information, goods, and money resources received from the family. Respondents evaluated the degree to which the receipt of these resources satisfied personal needs for: (a) love and affection, (b) respect and esteem, (c) comfort and assistance, (d) shared meaning, (e) personal things, and (f) money for personal use. Reliability, correlation, covariance, cluster, and factor analyses on data from 592 subjects provided information for reducing the number of items. A reduced version of the scale was administered to 331 of the same subjects one year later. The two stages provided evidence of construct validity and reliability for the scale.Research was supported by the Minnesota Agricultural Experiment Station: Projects 52-054, 52-055, 52-058 Paper # 18,277 and the Minnesota Extension Service.     

6 Three Perspectives on Team Learning

Abstract

The emergence of a research literature on team learning has been driven by at least two factors. First, longstanding interest in what makes organizational work teams effective leads naturally to questions about how members of newly formed teams learn to work together and how existing teams improve or adapt. Second, some have argued that teams play a crucial role in organizational learning. These interests have produced a growing and heterogeneous literature. Empirical studies of learning by small groups or teams present a variety of terms, concepts, and methods. This heterogeneity is both generative and occasionally confusing. We identify three distinct areas of research that provide insight into how teams learn to stimulate cross-area discussion and future research. We find that scholars have made progress in understanding how teams in general learn, and propose that future work should develop more precise and context-specific theories to help guide research and practice in disparate task and industry domains.