Understanding the determinants of consent for linkage of administrative health data with a longitudinal survey

Abstract

The Survey of Families, Income and Employment (SoFIE) is a panel income study with a health component, including data linkage to national health databases. This paper investigates factors that predict consent to data linkage. SoFIE participants were asked permission to link their SoFIE records to administrative health data in Wave 3 of data collection. Logistic regression was used to investigate the association of sociodemographic variables with consent to record linkage. Of Wave 3 participants 79.4% consented to health record linkage. Taking into account prior attrition, consent and matching the overall participation rate was 60.9%. Participants reporting Māori, Pacific and Asian ethnicity had lower odds of consenting. There was a strong relationship between the presence of co-morbid disease and consent to linkage. This study has shown that consent to link health information to survey records was high and the survey provides a rich and unique dataset for longitudinal analyses.     

Response to Elder‐Vass: “Seven Ways to be A Realist about Language”

Given that explicitly realist perspectives are currently quite unfashionable in applied linguistics, we very much welcome your thorough and careful discussion of the various forms they might take. We find the various categories you identify quite persuasive, and we find much to agree with in your characterisation of several of the positions you outline, particularly in the earlier part of the paper. However, we do take issue with aspects of your characterisation of both “social” and “linguistic systems” realism, and with some of the arguments you adduce particularly against the latter and in favour of your seventh way (“linguistic norm circles realism”). Our response, then, concentrates particularly on the challenges arising from these parts of your paper, and addresses: (1) the ways in which we may define language itself, for the purposes of this debate; (2) the distinction between social and linguistic norms; (3) the properties of language; (4) the role of empirical evidence; and (5) the methodological problems we find with the norm circle approach.     

Biases in Ethical Decision Making among University Faculty

Over the years, cognitive biases have been examined throughout the decision-making literature, but little work has investigated the cognitive biases operating in ethical decision making. The present effort explores a taxonomy of biases through interviews with university faculty members. Additionally, this study identifies the psychological processes giving rise to these biases in ethical decision making. Results suggest that the biases listed in the taxonomy are indeed operating in the ethical decision making of university faculty. Implications of these results are discussed.     

Multivariate parabolic bioassay

A general linear model approach to quantitative parabolic bioassays with multivariate responses is proposed. The point and interval estimator of the relative potency and an associated test for validity is presented. The relationships with known univariate methods are illustrated.     

The Decline in Shared Collective Conscience as Found in the Shifting Norms and Values of Etiquette Manuals

In this article we address Emile Durkheim's theory that norms and values become more generalized and abstract in a society as it becomes more complex and differentiated. To test Durkheim's theory we examine etiquette manuals—the common texts that define normative manners and morals in American society. We perform a deductive content analysis on past and present etiquette manuals to understand what changes have occurred regarding shifting behavioral norms and values over time. Our findings suggest that a change has occurred in the presentation and language of contemporary etiquette manuals, reflecting a greater change in the normative order. We find—as Durkheim would expect—that three main shifts have occurred: a shift from specific to general expectations for behavior in social settings, a shift from demanding to more suggestive rules of behavior in social situations, and a weakening in the severity of sanctions for breaches of etiquette.     

Shift-and-persist coping and health among rural African American adolescents

This study examines whether shift-and-persist coping, a coping strategy defined by accepting challenges and remaining hopeful for the future, is associated with psychosocial and physical health and/or moderates the effects of contextual stress (i.e., racial discrimination, financial strain) on health among African American adolescents living in the rural Southeastern United States. Participants (N = 299, 56% boys, M_age = 12.91) completed measures of shift-and-persist coping, contextual stress, and psychosocial and physical health. Shift-and-persist coping was generally associated with better health but did not buffer the effects of contextual stress. Results suggest that shift-and-persist coping may serve as a source of resilience among African American adolescents living in a context where many experience heightened contextual stress.     

Neural mechanisms of language development in infancy

Understanding the neural processes underpinning individual differences in early language development is of increasing interest, as it is known to vary in typical development and to be quite heterogeneous in neurodevelopmental conditions. However, few studies to date have tested whether early brain measures are indicative of the developmental trajectory of language, as opposed to language outcomes at specific ages. We combined recordings from two longitudinal studies, including typically developing infants without a family history of autism, and infants with increased likelihood of developing autism (infant-siblings) (N = 191). Electroencephalograms (EEG) were recorded at 6 months, and behavioral assessments at 6, 12, 18, 24 and 36 months of age. Using a growth curve model, we tested whether absolute EEG spectral power at 6 months was associated with concurrent language abilities, and developmental change in language between 6 and 36 months. We found evidence of an association between 6-month alpha-band power and concurrent, but not developmental change in, expressive language ability in both infant-siblings and control infants. The observed association between 6-month alpha-band power and 6-month expressive language was not moderated by group status, suggesting some continuity in neural mechanisms.