Ethical Considerations in Adoption Research: Navigating Confidentiality and Privacy Across the Adoption Kinship Network

Abstract

Adoption research often includes multiple members of the adoption network, each of whom has distinctive perspectives. Participants may include adopted individuals and their siblings as well as adoptive parents, birth parents, and adoption professionals. Due to these multiple informants and the sensitivity of the topics explored in adoption research, researchers encounter several unique ethical concerns when working with populations impacted by adoption. The current article addresses confidentiality and privacy issues that arise when conducting adoption research. Examples from a longitudinal study on openness in adoption are provided to highlight strategies that can be used to address these issues.     

The Royal Statistical Society Speech Delivered at the 125th Anniversary Dinner

The Statistical Society of London was founded on March 15, 1834, with the Marquis of Lansdowne in the Chair. The Society began with 313 “original members”. The Royal Charter was granted in 1887 following its fiftieth anniversary. The number of fellows reached 1000 in 1924, 2000 in 1949, and promises to reach 3000 in the current year.

The Anniversary Dinner was held on March 17, 1959. The Prime Minister proposed the toast to the Royal Statistical Society and the President of the Society, Sir Harry Campion, responded. Other speakers at the dinner were Lord Piercy and Prof. A. Bradford Hill (Past Presidents of the Society), Sir Harold Gillett (Lord Mayor of London) and Sir Maurice Bowra (President of the British Academy).

Dr. Churchill Eisenhart, Vice-President of the ASA, represented the Association at the Anniversary Dinner. The Prime Minister's press release and the banquet program (from which this note was compiled) were transmitted to THE AMERICAN STATISTICIAN by Dr. Eisenhart.

A full account of the Dinner, with the report of the speeches, is to be published in the Journal of the Royal Statistical Society, Series A (General), Part III (1959).     

The spokane heart study: weibull regression and coronary artery disease

Coronary artery calcium is a marker of coronary artery disease and measures the progression of atherosclerosis. It is measured by electron beam computed tomography, and the measured amount of coronary artery calcium is highly skewed to the right and left censored. The distribution of coronary artery calcium appears to be Weibull. We propose a Weibull regression model and we analyze the data using these techniques. Our analysis is based on data from the Spokane Heart Study, which is a cohort of about a thousand subjects that are assessed every two years for coronary artery calcium and risk factors of coronary artery disease. The major focus of the heart study is to determine the natural history of atherosclerosis in its early phase, and we analyze the data as a cross-sectional study with 859 subjects. We would also like to highlight the use of Weibull regression techniques in situations like this, where we have extreme right skewed data. Our main emphasis will be on examining the effect of the traditional risk factors of age, gender, lipid profile (cholesterol and HDL), patient history of lipid abnormality, hypertension, and smoking, and other family history risks on coronary artery calcium. We found that the most important factors influencing the disease were age, sex, and patient history of smoking and lipid abnormality.     

The Role of Child Characteristics and Peer Experiences in the Development of Peer Cooperation

Cooperation with peers is challenging for young children, and there are large individual differences in the development of cooperation. The roles of child characteristics and peer experiences for peer interaction during free play have been studied extensively, but it is unclear which factors predict young children's successful cooperation at different points in development. In this study, 2‐, 3‐, and 4‐year‐old children were observed during a peer cooperation task. Both their interactive behavior and cooperation success were examined, and the association of these variables with child characteristics and peer experiences was explored. Results showed that successful peer cooperation increased with age. Moreover, early individual differences in peer cooperation were related to temperamental characteristics, and, among older children, the rate of cooperation was related to prior peer experience.     

Genetic influence on age at first birth of female twins born in the UK, 1919–68

Using a sample of monozygotic (945, 42?per cent) and dizygotic (1,329, 58?per cent) twin pairs born 1919–68 in the UK, we applied innovative tobit models to investigate genetic and environmental influences on age at first birth (AFB). We found that a substantial part (40?per cent) of the variation in AFB is caused by latent family characteristics. Genetic dispositions (26?per cent) play a more important role than the shared environment of siblings (14?per cent), with the non-shared environment/measurement error having the strongest influence (60?per cent). Like previous studies, this study reveals marked changes in estimates over time, and supports the idea that environmental constraints (war or economic crisis) suppress and normative freedom (sexual revolution) promotes the activation of genetic predispositions that affect fertility. We show that the exclusion of censored information (i.e., on the childless) by previous studies biased their results.

Supplementary material for this article is available at: http://dx.doi.org/10.1080/00324728.2015.1056823     

The mental health demographic profile system: A longitudinal information system

This paper presents the plans currently being developed to make the Mental Health Demographic Profile System into a longitudinal information system useful for research and program planning. Topics discussed are as follows:

1. Development of a data base that contains 1960, 1970, and 1980 small areas (census tracts, MCDs or CCDs, counties). Preliminary tables for 1960,and 1970 will be displayed. Problems of identifying constant small areas for 1960 and 1970 are discussed.
2. Items to be included in the standard profile and items to be available for use (but not part of the standard profile) are discussed.
3. Improvement of access to the data system is discussed. This includes a discussion of the interactive programs being developed and the possible transfer of service and maintenance functions (but not development functions) to the National Center for Health Statistics.

     

Workers' Compensation Costs When Maximum Benefits Change

“Natural experiment” studies of benefit utilization in workers' compensation have used changes in statutory maximum payments to estimate claim duration elasticities. These studies so far have been limited to using insurance claims data rather than information on individual workers. The result is a failure to estimate changes in claim frequency or the average costs per worker as maximums change. This is the first natural experiment study to analyze changes in both the frequency and severity of workers' compensation claims using data from a single large U.S. employer. In addition, the utilization response to benefit decreases as well as benefit increases is examined.