The Ethics of Research With Men who Have Learning Disabilities and Abusive Sexual Behaviour: a minefield in a vacuum

In the wake of the recent awareness of the sexual abuse of people with learning disabilities is the recognition that a small number of men with learning disabilities are themselves sexually abusing. The need to understand the men's behaviour and provide effective responses is pressing yet the search for an ethical course of enquiry appears illusory. The two conflicting dilemmas which make this task so difficult are whether the men's learning disabilities preclude their giving informed consent to the research process, and/or whether men who are sexually abusing have lost some rights to exclude themselves from research which is intended to prevent further abuse. This paper explores in depth these dilemmas and describes the authors' attempts to resolve them as they attempted to devise a protocol for consent to involvement in a qualitative study of men with learning disabilities who sexually abuse. Issues raised in this particular context have relevance to many other issues in learning disability services where robust ethical debate is needed, but often glossed over.     

Resilience and Survival: Black Teenage Mothers ‘Looked After’ by the State Tell their Stories About their Experience of Care

‘Looked after’ young people are among the most disadvantaged members of our society. While their disadvantaged status should not be ignored, poor outcomes are often emphasised at the expense of good ones. This article reports a study that adopts the concept of resilience to understand the narratives of the participants’ experience of care and foster care. A total of 15 young mothers, aged 16–19 and mainly from black African backgrounds, were interviewed. Despite lacking a ‘secure base’, informants invested in a sense of moral identity and a source of self‐directedness, which enabled them to move from victim of circumstances to individuals who overcome their circumstances.     

Using the 'Looking After Children' dimensions to collect aggregate data on well-being

The Department of Health has funded the development of a set of schedules for collating information on and monitoring the progress of children looked after by local authorities. An additional aspiration underlying official encouragement of the use of these ‘Looking After Children’ (LAC) materials was that they would provide aggregate data to feed into national and local policy and planning. Progress on this aim has been slow, in part because instruments designed to aid practice in individual cases have not adapted easily to the hoped for dual role, and in part because completion rates have been patchy and often poor. This paper describes an action research project designed to use the children's reviewing system to collect aggregate data on the LAC dimensions of well‐being. It comments on the viability of this method of aggregate data collection as well as locating the information on a cohort of 96 children in the context of other studies, and debates about whether the state can be a ‘good parent’.     

The narrative self in autobiographical accounts of illness

The paper analyzes autobiographical acounts of the experience of chronic illness and its treatment to develop a sociological theory of the self. It is suggested that ‘self’ is not a biologistic or psycologistic thing. Rather self is autobiographical narrative – hence the narrative self. It is argued that four elements constitute such narrative selves in autobiographical discourse: evaluative relationships between events in time; cosmology; power relationships; and conceptualisation of self as object.     

Dosage-response analysis for a semi-quantal response derived from an aqueous biological assay

This paper is concerned with the interpretation of semi-quantal or graded responses in biological assay. On the basis of a model by which the various response categories represent contiguous intervals on an underlying quantitative scale reflecting time to death, a method of analysis for semi-quantal data is put forward. The results are illustrated by an aqueous assay designed to assess the toxicity of an effluent. It is confirmed that the proposed method of analysis leads to more precise estimates of the dosage-response relation than the alternative quantal response analysis of each response threshold.     

‘Unfit for reform or punishment’: mental disorder and discipline in Liverpool Borough Prison in the late nineteenth century

This article examines how Liverpool Borough Prison, opened in 1855 as one of the largest local prisons in England to adopt the separate system, categorized and dealt with mental distress and disorder amongst its prison population in the late nineteenth century. High prison committal rates in Liverpool, alongside high levels of recidivism, especially among female prisoners, led to severe overcrowding and encouraged a harsh disciplinary regime. Exacerbated by the poor physical and mental condition of the prisoners, this produced a challenging environment for maintaining the separate system of confinement and prisoners’ mental well-being. While official figures for the rates of mental disorder in local prisons are not readily available, Liverpool Prison’s diverse and under-exploited archives and official reports indicate that insanity caused prison officials and visiting justices great concern, and many prisoners were declared unfit for the rigours of prison discipline. Our article explores the implications of the ever more punitive, deterrent and physically taxing penal policy implemented in the late nineteenth century on the minds of prisoners. Despite the heavy toll on prisoners’ mental well-being, such cases were often retained by prison medical officers reluctant to acknowledge the failure of the prison to deter, reform and redeem.