‘The invisible enemy’: disability,loneliness and isolation

Abstract

The aim of this article is to quantitatively explore the relationship between disability, emotional loneliness and social isolation. The data analysis presents a number of statistically significant findings which illustrate that disabled people (N?=?250) were at increased risk of experiencing emotional loneliness and social isolation compared with the nondisabled group (N?=?355). This study identifies a number of disabling barriers which result in this overrepresentation of disabled people. The study aims to move away from a pathological explanation of linking loneliness and social isolation to disability, in order to explain this occurrence from a barrier-based approach.     

Improving research about us,with us: a draft framework for inclusive autism research

It is both epistemologically as well as ethically problematic if the autistic voice is not heard in relation to social scientific research seeking to further develop knowledge of autism. Ever since autism first emerged, it has remained medicalised and almost exclusively the preserve of non-autistic researchers. More recently, autistic individuals have begun to contribute to autism research. However, the vast majority of research in autism is still undertaken on autistic people, rather than with them, and is often not concerned with improving the day-to-day lives of people with autism. We discuss the concepts of participatory research and emancipatory research before presenting a draft framework for what we regard as truly inclusive research in autism. Our proposals are firmly based on ideas developed by the members of a university-based group of autistic adults (the Asperger’s Consultation Group) as well as the knowledge and experience of the other contributors.     

A multi-population evaluation of the Poisson common factor model for projecting mortality jointly for both sexes

Mortality forecasts are critically important inputs to the consideration of a range of demographically-related policy challenges facing governments in more developed countries. While methods for jointly forecasting mortality for sub-populations offer the advantage of avoiding undesirable divergence in the forecasts of related populations, little is known about whether they improve forecast accuracy. Using mortality data from ten populations, we evaluate the data fitting and forecast performance of the Poisson common factor model (PCFM) for projecting both sexes’ mortality jointly against the Poisson Lee–Carter model applied separately to each sex. We find that overall the PCFM generates the more desirable results. Firstly, the PCFM ensures that the projected male-to-female ratio of death rates at each age converges to a constant in the long run. Secondly, using out-of-sample analysis, we find that the PCFM provides more accurate projection of the sex ratios of death rates, with the advantage being greater for longer-term forecasts. Thus the PCFM offers a viable and sensible means for coherently forecasting the mortality of both sexes. There are also significant financial implications in allowing for the co-movement of mortality of females and males properly.     

Identifying Mother–child Interaction Styles Using a Person‐centered Approach

Parent–child conflict in the context of a supportive relationship has been discussed as a potentially constructive interaction pattern; the current study is the first to test this using a holistic analytic approach. Interaction styles, defined as mother–child conflict in the context of maternal sensitivity, were identified and described with demographic and stress‐related characteristics of families. Longitudinal associations were tested between interaction styles and children's later social competence. Participants included 814 partnered mothers with a first‐grade child. Latent profile analysis identified agreeable, dynamic, and disconnected interaction styles. Mothers' intimacy with a partner, depressive symptoms, and authoritarian childrearing beliefs, along with children's later conflict with a best friend and externalizing problems, were associated with group membership. Notably, the dynamic style, characterized by high sensitivity and high conflict, included families who experienced psychological and relational stressors. Findings are discussed with regard to how family stressors shape parent–child interaction patterns.     

Lost in Translation? Embracing the Challenges of Working With Families From a Refugee Background

This article describes the difficulties a mainstream family therapy service experienced in working with families from a refugee background. The experience of six therapists and five bicultural workers, who are also the referring agents, was captured in focus groups, and the reflections that emerged shaped a four‐part approach for working with families from a refugee background. Live consultation, either by the family therapist or bicultural worker, is suggested as a way to marry the expertise of family therapists who are not cultural ‘insiders’ with the ‘lived experience’ and cultural expertise of bicultural support workers. The process of reflecting on therapeutic failure resulted in several principles for working therapeu‐tically with families with a history of refugee trauma, unmet resettlement needs and family relationship challenges. These include maintaining a flexible approach to therapy, ascertaining a clear understanding of the referral context, defining an explicit therapeutic contract from the first session, being mindful of the important role that language plays and terminating therapy if it is contra‐indicated.     

Taking action on racial disproportionality in the child welfare system

Mirroring national trends, children of color in Washington state's King County are overrepresented at every point in the child welfare system and fare worse by most measures than are Caucasian children. The King County Coalition on Racial Disproportionality was formed to reduce and ultimately eliminate racial disproportionality in the county's child welfare system. The research-based strategies implemented to address the issue focused on children in care longer than two years. They included participation in the Breakthrough Series Collaborative on Racial Disproportionality, implementation of benchmark hearings, and development of Champions for Permanence. Now in the beginning stages, perhaps the most significant success is heightened awareness within the community of the disparate outcomes for children of color in the child welfare system.     

Facility Organizational and Facility Resident Characteristics in Nursing Homes Serving Residents With a Mental Health History

ABSTRACT

The prevalence of mental health disorders among nursing home residents has been noted. The purpose of this study was to identify characteristics among nursing homes serving residents with a mental health history. A retrospective, cross-sectional design was conducted using the 2003 national Online Survey, Certification, and Reporting facility data merged with the resident-level Minimum Data Set resulting in 2,499 nursing homes. Across facilities, 22% of the total residents had a diagnosis of a mental disorder not including any form of dementia. Among those with a mental health history, 53% of facility residents had depression and 37% had schizophrenia.