Awareness of Publication Guidelines and the Responsible Conduct of Research

We have conducted a longitudinal survey of NIH-funded F32 postdoctoral fellows to determine if mandated instruction in the responsible conduct of research (RCR) has measurable effects on awareness of, attentiveness to, and behavioral judgments about research ethics and authorship and publication. Of 418 F32 fellows participating in the study, 50% were aware of and had referred to guidelines on authorship and publication practices while 50% were either unaware of or had not referred to guidelines. Groups were similar with regard to total number of peer-reviewed publications and total number of first author publications, years of research experience, years since completing their doctoral degree, and receipt of RCR training. The equal distribution of guideline awareness and use, and group similarities with regard to career development and achievement provided us with an opportunity to consider whether awareness of and use of guidelines is associated with broader judgments about author roles and responsibilities. The findings suggest that awareness and utilization of guidelines are, at best, only modestly associated with more ethically appropriate judgments and attitudes about author roles and responsibilities among novice F32’s.     

‘It's against our law,never mind anyone else's’: the Disability Discrimination Act 1995 and adults with learning disabilities

This study examines Part III of the Disability Discrimination Act 1995 (the provision of goods, services and facilities) in relation to adults with learning disabilities. The study had a participatory element in that self‐advocates co‐facilitated focus groups and joined the Research Advisory Group. The paper presents views of people with learning disabilities, garnered through focus groups and interviews, about the Act and about using services. Awareness of their rights was generally low, although activists were generally better informed. While usually offered reasonable service in shops, pubs and other facilities, people were sometimes treated unfairly. This could take three forms – being treated with a lack of courtesy and respect, failure to make reasonable adjustments and outright refusal to serve. People felt a strong sense of injustice when treated in these ways but the majority were unlikely to complain, although a few had challenged unfair treatment. The paper concludes with recommendations for policy and practice.     

Some Ethical and Methodological Issues in Research with People with Learning Difficulties

This paper discusses some ethical and methodological issues which arose in a recent study examining the exercise of choice by people with learning difficulties. The research aimed to examine in detail the choice-making process, and to explore ways of involving people with learning difficulties both as respondents and as contributors to the study design. Various dilemmas were encountered-including how to gain informed consent from people with profound impairment, the risk of intrusion when conducting research in people's own homes, and the dangers of raising expectations of continuing friendship. The importance of accountability when analysing data and disseminating findings is highlighted. A Research Advisory Group, including two people with learning difficulties, was set up to give guidance on the study. Steps were taken, but not enough, to facilitate their involvement in the meetings. Reflecting on experience gained in this study and on research reported elsewhere, a number of pointers for future research are drawn. These include the need to consider the potential implications of intellectual impairment for involvement in the research process.     

Enablers of help‐seeking for deaf and disabled children following abuse and barriers to protection: a qualitative study

Research internationally has highlighted the increased vulnerability of deaf or disabled children to abuse and the frequently inadequate response of services. However, first‐hand accounts of deaf or disabled children have rarely been sought. This paper reports selected findings from one of the first studies exploring experiences of deaf and disabled children regarding help‐seeking following maltreatment. Innovative and sensitive research methods were employed to support 10 deaf or disabled people (children and adults) to take part in guided conversations. The study identifies three enablers of help‐seeking of deaf or disabled children: the capacity of adults to detect abuse and respond to disclosures, supportive relationships or circumstances which facilitate disclosure and for Deaf children, access to registered interpreters. Barriers to protection related to these are also discussed. Recommendations directed at policy makers, practitioners and families include education and awareness raising amongst practitioners, children, parents and carers; addressing isolation of deaf and disabled children; providing comprehensive support services that address the needs of the child holistically; ensuring that the voice of the child is heard; routine access to registered interpreters for Deaf children within mainstream and specialist services and measures to address disablism at local and institutional levels.     

Advances in Research on Nonprofit Advocacy and Civic Engagement

Nonprofits are collective endeavors that supply a bewildering range of products and services, including some of value to their immediate members only. Many also advocate policy positions on issues of direct interest to themselves, their clients and beneficiaries, and/or the broader community. There is substantial variation in their advocacy strategies, the scope of policy goals they embrace, and the types of individuals they engage in such activities. Consequently, there are also differences in whether and how nonprofit advocacy activities reduce inequalities, enhance civic participation, and promote deliberative democracy. This symposium interprets and theorizes about emerging nonprofit challenges by showcasing research of nonprofit advocacy and civic engagement scholars. Collectively, the papers demonstrate the vibrancy of the field of nonprofit civic engagement and advocacy and identify important areas for future research to capture the complexity of nonprofits as actors guided by both instrumental and normative goals, serving organizational and social missions, and reducing some types of inequalities but creating new ones.     

Theorizing race and settler colonialism within U.S. sociology

Settler colonialism expands race and racism beyond ideological perspectives and reveals the links between historical and contemporary racialized social relations and practices–the racial structure–of American society. In this article, we define settler colonialism, highlight sociological scholarship that uses settler colonial theoretical frameworks, and explore ways in which this work enriches, intersects with, complicates, and contradicts key assumptions within the sociology of race.     

Disclosure of Transgender Identity and Status in the Context of Friendship

This study focuses on understanding disclosure of transgender identity within the context of friendship. Participants were 536 individuals who self-identified as transgender or gender variant. Participants completed an online questionnaire regarding friendship experiences. Thematic analysis focused on understanding experiences of identity disclosure to friends. Participants reported positive and negative experiences associated with the identity disclosure process, with responses falling into five distinct categories: positive or affirming responses, negative responses, a variation of responses, an impact on the friendship status, and emotional responses from friends. Within these five theme categories, distinct subcategories were apparent including responses that reflected support, physical violence, gaining or losing friends, and friends being unsurprised or not caring about the disclosure. These findings point to the ways in which the friendship experiences for transgender individuals are complex and unique. Clinical implications for understanding the needs of clients regarding disclosure of transgender identity and status to friends are discussed.