Older family-carers' views on the future accommodation needs of relatives who have an intellectual disability

Over the past 20 years, research across the developed world has identified trends towards ageing of the population with learning/intellectual disability. Alongside is the recognition that family-carers are also ageing. Recently, the UK government has sought to identify the future housing needs of dependents with intellectual disability residing with older carers. Consequentially, a city council commissioned this qualitative study involving 28 older carers. The findings indicate a need for information about housing options, a lack of practical support and feelings of marginalisation. The conclusions suggest key roles for social services in providing proactive support and advice to family-carers, and a greater degree of joint working between social services departments and housing agencies. These resonate with similar international studies and provide the opportunity to focus on the perspectives of family-carers. Their experiences are real, and if welfare professionals are to work with people with intellectual disability and their family-carers, acknowledging their views is essential.     

“It's up to the clan to protect”: Cultural heritage and the micropolitical ecology of conservation in New Caledonia

This case study from New Caledonia explores the motivations of local people in initiating co-managed conservation projects on customary lands. Kanak villagers viewed “conservation” largely as a means of reinforcing their cultural identity through preservation of their cultural heritage, grounded in the landscape. However, at the same time, they hoped to promote economic development. Ironically, thus, they found it necessary to welcome outside influences—to seek visits from non-Kanak tourists and to request financial and technical support from the provincial government, which had been created by the colonial power. Meanwhile, although a desire to reinforce customary authority structures formed an important part of this search for a unifying cultural identity, the quest for a stable, traditional, shared “past” created new, micropolitical instabilities within the community, conditioned by expectations of financial gain and by sources of social status. A “micropolitical ecology” approach revealed that a conservation program grounded in customary authority would be the only acceptable solution, although it would be difficult for villagers to agree on who filled customary roles. This study indicates the importance of gaining a clear understanding of intra-community dynamics and of community members’ perceptions of external groups, in order to design appropriate strategies for co-management.     

Risk Estimation and Value-of-Information Analysis for Three Proposed Genetic Screening Programs for Chronic Beryllium Disease Prevention

Genetic differences (polymorphisms) among members of a population are thought to influence susceptibility to various environmental exposures. In practice, however, this information is rarely incorporated into quantitative risk assessment and risk management. We describe an analytic framework for predicting the risk reduction and value-of-information (VOI) resulting from specific risk management applications of genetic biomarkers, and we apply the framework to the example of occupational chronic beryllium disease (CBD), an immune-mediated pulmonary granulomatous disease. One described Human Leukocyte Antigen gene variant, HLA-DP beta 1*0201, contains a substitution of glutamate for lysine at position 69 that appears to have high sensitivity (approximately 94%) but low specificity (approximately 70%) with respect to CBD among individuals occupationally exposed to respirable beryllium. The expected postintervention CBD prevalence rates for using the genetic variant (1) as a required job placement screen, (2) as a medical screen for semiannual in place of annual lymphocyte proliferation testing, or (3) as a voluntary job placement screen are 0.08%, 0.8%, and 0.6%, respectively, in a hypothetical cohort with 1% baseline CBD prevalence. VOI analysis is used to examine the reduction in total social cost, calculated as the net value of disease reduction and financial expenditures, expected for proposed CBD intervention programs based on the genetic susceptibility test. For the example cohort, the expected net VOI per beryllium worker for genetically based testing and intervention is $13,000, $1,800, and $5,100, respectively, based on a health valuation of $1.45 million per CBD case avoided. VOI results for alternative CBD evaluations are also presented. Despite large parameter uncertainty, probabilistic analysis predicts generally positive utility for each of the three evaluated programs when avoidance of a CBD case is valued at $1 million or higher. Although the utility of a proposed risk management program may be evaluated solely in terms of risk reduction and financial costs, decisions about genetic testing and program implementation must also consider serious social, legal, and ethical factors.     

Semi-online scheduling with “end of sequence” information

We study a variant of classical scheduling, which is called scheduling with “end of sequence” information. It is known in advance that the last job has the longest processing time. Moreover, the last job is marked, and thus it is known for every new job whether it is the final job of the sequence. We explore this model on two uniformly related machines, that is, two machines with possibly different speeds. Two objectives are considered, maximizing the minimum completion time and minimizing the maximum completion time (makespan). Let s be the speed ratio between the two machines, we consider the competitive ratios which are possible to achieve for the two problems as functions of s. We present algorithms for different values of s and lower bounds on the competitive ratio. The proposed algorithms are best possible for a wide range of values of s. For the overall competitive ratio, we show tight bounds of ϕ + 1 ≈ 2.618 for the first problem, and upper and lower bounds of 1.5 and 1.46557 for the second problem. The authors would like to dedicate this paper to the memory of our colleague and friend Yong He who passed away in August 2005 after struggling with illness. D. Ye: Research was supported in part by NSFC (10601048).     

Searching for wages and mothering from Afar: The case of Honduran transnational families

This article draws on data from a 2‐year two‐country study that included 157 people to explore the survival strategies of poor Honduran transnational families. I argue that transnational families, defined as those divided between two nation‐states who have maintained close ties, depend on a cross‐border division of labor in which productive labor occurs in the host country and reproductive labor in the home country. This article bridges the literatures on transnationalism and families. The transnationalism literature tends to focus on macro processes, whereas the literature on families assumes proximity. This research helps fill the gap in both literatures, exposing the ways in which processes of economic globalization have radically altered family form and function.     

Getting There is Only Half the Battle: Stigma Consciousness and Maintaining Diversity in Higher Education

Increases in stigma consciousness since arriving at a primarily White college could predict the college performance and self-esteem of the academically stigmatized. After reviewing relevant research, the authors report on a study in which 44 stigmatized (African Americans and Latinos/Latinas) and 79 nonstigmatized (Whites and Asian Americans) students completed measures of stigma consciousness, GPA, disengagement from academics, and self-esteem. Among stigmatized males, increases in stigma consciousness predicted lower GPAs and greater disengagement. Although stigmatized females had low GPAs regardless of their increases in stigma consciousness, with increases in stigma consciousness came less disengagement from school and lower self-esteem. The discussion offers suggestions for how to minimize these negative effects of heightened stigma consciousness levels.     

Perceived Risk and Uncertainty of Nuclear Waste: Differences Among Science,Business, and Environmental Group Members1

This paper presents survey results on perceived risk regarding the management of nuclear waste. Using data taken from random mail surveys of members of scientific, business, and environmental groups in Colorado and New Mexico in the summer of 1990, we examine differences between the groups in their expressed perceptions of risk and also their assessments of the certainty of their beliefs. We consider whether (a) greater uncertainty is associated with greater perceived risks and (b) whether there is greater responsiveness to new information for those whose beliefs are least certain. We find that there are connections between perceived risk and uncertainty, and there is a greater tendency to update risk assessements from a position of greater initial uncertainty. There are, however, differences between the groups as well as asymmetries in their responses to new information. The latter suggests that perceived risks will ratchet upward over time even when information is not biased toward more or less risk.     

Text,competence and logic: An exercise

Professional medical practice, like other organizational conduct, relies upon records which document transactions between members and their clientele. Medical practitioners employ a set of conventions providing for the systematic recording and interpretation of medical record cards that forms a social organization underlying the records cards' ordinary usage. In this paper we examine these conventions and develop a computer program which captures elements of their structure and use. By doing so we illustrate one way in which sociological analysis can contribute to the design of intelligent systems. We also suggest that the emerging discipline of Artificial Intelligence might find recent developments in sociology pertinent to its concerns.     

Performativity and helping professions: social theory, power and practice

Drawing on Judith Butler's conception of 'performativity', we would argue that the notion has important implications for contemporary debates in international social welfare over agency, subjection and 'resistance'. Professional social workers embedded in discursive institutions function according to particular expectations around performativity. In addition, this organisational context is complex with multiple demands. In light of technologies of surveillance and control in contemporary social work, performativity offers a response to the pressing need to expand notions of worker opposition beyond traditional forms of organised dissent towards the production of subjective space.