Palliative care patients' experiences of healthcare treatment

Kennett C, Payne M. Palliative care patients' experiences of healthcare treatment Int J Soc Welfare 2010: 19: 262–271 © 2009 The Author(s), Journal compilation © 2009 Blackwell Publishing Ltd and the International Journal of Social Welfare. This article reports on a thematic analysis of the opinions of 34 palliative care patients about medical and healthcare treatment expressed in comments, narratives and discussions during a series of facilitated group discussions undertaken as part of training events for medical students. Palliative care patients often have long healthcare careers, which enables them to compare different professionals and services, thus offering a more powerful and complex analysis of patient experience than that obtainable from analysis of complaints or satisfaction surveys, and permits some understanding to be obtained of the attitudes that condition evaluations of services. The patients balanced negative views with positive experiences. They appreciated open, listening, equal and friendly relationships with professionals in which careful explanation fostered their confidence in the overall service. They criticised inflexible services that did not consider their broad needs, and in which relationships with professionals were characterised by busy‐ness and professional distance.     

The Effects of Participation Rate on the Internal Reliability of Peer Nomination Measures

Although low participation rates have historically been considered problematic in peer nomination research, some researchers have recently argued that small proportions of participants can, in fact, provide adequate sociometric data. The current study used a classical measurement perspective to investigate the internal reliability (Cronbach's α) of peer nomination measures of acceptance, popularity, friendship, prosocial behavior, and overt aggression. Data from 642 participants attending 10 schools were resampled at different participation rates ranging from 5 percent to 100 percent of the original samples. Results indicated that (1) the association between participation rate and Cronbach's α was curvilinear across schools and variables; (2) collecting more data for a given variable (by using unlimited vs. limited nominations, or two vs. one items) was significantly related to higher internal reliability; and (3) certain variables (overt aggression, popularity) were more reliable than others (acceptance, friendship). Implications for future research were discussed.     

The public and private purposes of case records

Social welfare agencies have official reasons and requirements for the construction of case records. Sociologists have detected a set of unofficial reasons that shape case records in practice. This paper suggests that case records that record the lives of children in child welfare systems are written, inter alia, to deny the failure of interventions, to justify the refusal to serve “bad clients,” and to justify the decision to extend hegemony over “good” clients.     

The South Oaks Gambling Screen: a review with reference to Australian use

The South Oaks Gambling Screen (SOGS) is a psychometric instrument widely used internationally to assess the presence of pathological gambling. Developed by Lesieur and Blume (1987) in the United States of America (USA) as a self-rated screening instrument, it is based on DSM-III and DSM-III-R criteria. This paper describes the origins and psychometric development of the SOGS and comments critically in relation to its construct validity and cutoff scores. Reference is made to the use of the SOGS in the Australian setting, where historically gambling has been a widely accepted part of the culture, corresponding to one of the highest rates of legalised gambling and gambling expenditure in the world. An alternative approach to the development of an instrument to detect people who have problems in relation to gambling is proposed.     

"It's not cricket": colonial legacies and contemporary inequalities

Cricket has been historically significant in defining notions of English national identity and continues to feature in debates over the inclusion/exclusion of immigrants in British society. British-African-Caribbean players are well represented in the English game but participation appears mediated by ethnic group membership. This contemporary pattern can only be understood when contextualized within the historical development of cricket in the Caribbean and, in particular, the struggles between whites and blacks and between the white elites. Over-representation in certain cricketing roles has been an ever-present feature of this negotiation; contemporary inequality is, therefore, largely a consequence of the legacy of British Imperialism.     

Models and methods for pairing data

This paper deals with models and methods for count data derived from observations on pairing phenomena. Pairs formed from “similar” members are excluded. Various models are considered and analyzed. Particular emphasis is on developing methods for testing whether particular pairs are prone to occur more or less often than expected by chance.     

The Devil is in the Detail: Clinicians,Academics and Researchers Resolving the Problems of Clinical Research

The difficulties associated with conducting valid family therapy research within a clinical practice discourage many potential researchers. This article will describe collaboration between a group of academics, researchers and clinicians who decided to explore the process and efficacy of systemic family therapy conducted within a working private practice. The specific questions we are addressing are, whether the requests clients bring to their first session of therapy can be reliably classified by practitioners, whether these requests change over time, and whether the nature of the request is associated with therapist and client ratings of therapeutic outcome. Additional questions about the form and nature of the therapeutic alliance as experienced by both client and practitioner are also being explored. This paper will map the passage of the work from inception to its current state where over 140 clients are active participants. In doing so attention will be paid to the obstacles encountered: practical, financial and ethical, and the solutions devised to address these.     

Assessing outcomes in an English authority (The Royal Borough of Kensington and Chelsea)

The local authority has used the Looking After Children materials to develop needs-led and outcome-oriented services at both individual and strategic planning levels. A specific study used data from the Assessment and Action Records to identify priority needs and desired outcomes for young people leaving care.